Zinthu 6 Zomwe Ndaphunzira M'chaka Changa Choyamba Ndi MS

Zamkati

• 1. MS palibe vuto lililonse
• 2. Ndine wolimba kuposa momwe ndimaganizira
• 3. Kumbali inayi, kusungunuka kuli bwino
• 4. Aliyense ndi katswiri
• 5. Kufunika kwa fuko
• 6. Sizinthu zonse zokhudzana ndi MS
• Tengera kwina

Zaka 17 zapitazo, ndinapezeka ndi matenda a multiple sclerosis (MS). Kwambiri, ndimamva ngati ndili ndi MS. Ndi ntchito yovuta ndipo malipiro ake ndiabwino, koma ndimayang'anira zomwe zimafunikira kuyendetsedwa. Ndimapitirizabe, ndipo ndimagawana zomwe ndakumana nazo pa blog yanga, Tripping On Air.

Sindinali bwana wanthawi zonse ndi MS, ngakhale. Nditangopezeka ndi matendawa, ndinkachita mantha kwambiri. Ndinali nditangoyamba kumene m'moyo, ndipo matenda angawa anangokhala ngati tsogolo langa lonse latayidwa.

Chidziwitso chazaka zoyambirira zitatha kukhala chovuta kwambiri pamoyo wanu. Ndinaphunzira zambiri panthawiyi, ndipo inunso mudzaphunzira.

Nazi zinthu zisanu ndi chimodzi zomwe ndidaphunzira mchaka choyamba nditapezeka.

1. MS palibe vuto lililonse

Ndi chibadwa cha anthu kufuna kudziwa chifukwa chake zinthu zimachitika. Sitingathe kuthandizira.

Chizindikiro changa choyamba cha MS chinali kupweteka kupweteka kwamaso komwe pambuyo pake kunapezeka kuti ndi optic neuritis. Zidawoneka sabata imodzi nditakhala usiku wa Halowini ndikumwa mowa wambiri ndi zibwenzi zanga, ndikulodza, ndikuchita zosewerera.

Kwa nthawi yayitali, ndidatsimikiza kuti vinyo wofiira ndi ziwanda mwanjira inayake zidayitanitsa MS m'moyo wanga. Sitikudziwa chomwe chimayambitsa MS, koma ndibwino kunena kuti siufiti.

Simunapeze MS kuti musachedwe kapena osagunda zolimbitsa thupi mokwanira. Simunapeze MS chifukwa mumayiwala kubalalitsa kapena mumadya maswiti kadzutsa. MS sizotsatira za chizolowezi chilichonse choyipa chomwe umadzimenya wekha. MS zimachitika ndipo si vuto lanu.

2. Ndine wolimba kuposa momwe ndimaganizira

Chithandizo choyamba chomwe ndidapatsidwa chinali jekeseni - jakisoni yomwe ndimayenera kudzipatsa ndekha. Lingaliro langa lokha linali ayi, mobwerezabwereza. Sindimatha kulingalira kuti ndimatha kupirira jakisoni tsiku lililonse, samatha kudzipatsa ndekha.

Amayi anga adandipatsa singano zanga mwezi woyamba. Koma tsiku lina ndinaganiza kuti ndikufuna kudzilamulira.

Kuwombera jakisoni wamagalimoto mwendo wanga koyamba kunali kowopsa, koma ndidachita. Ndipo nthawi yotsatira ndikazichita, zinali zosavuta. Majekeseni anga anapitilira kukhala osavuta, mpaka kudzipatsa ndekha singano pamapeto pake sikunakhale vuto lalikulu.

3. Kumbali inayi, kusungunuka kuli bwino

Ngakhale ndimazindikira kuti ndimatha kuchita zinthu zovuta, nthawi ndi nthawi ndinkadzipeza ndekha nditagwa pansi pogona, ndikulira. Ndimadzipanikiza kwambiri kuti ndiike nkhope yolimba mtima kwa ena, koma sizachilendo kutuluka.

Ndi kwabwino kumva chisoni ndi zomwe mukukumana nazo. Koma ngati mukuvutika, ndibwino kupempha thandizo. Lankhulani ndi dokotala wanu kuti mulandire malingaliro kwa akatswiri azaumoyo omwe angakuthandizeni.

4. Aliyense ndi katswiri

Nditapezeka ndi vutoli, zidangowoneka ngati kuti aliyense amene adadziwa kuti ndili ndi MS anali ndi choti anene. Amandiuza za abwana a amayi awo a abwenzi apamtima a mlongo wawo omwe anali ndi MS, koma adachiritsidwa ndi zakudya zozizwitsa, zowonjezeretsa, kapena kusintha kwa moyo.

Upangiri wokhazikika wosafunsidwa udapangidwa bwino, koma osadziwika. Kumbukirani, zosankha zanu zachipatala zili pakati pa inu ndi dokotala. Ngati zikumveka zabwino kwambiri kuti zisakhale zoona, mwina ndichoncho.

5. Kufunika kwa fuko

Atandipeza, ndinafikira anthu omwe anali kukumana ndi zinthu zofananazo zomwe ndinali panthawiyo. Izi zinali zisanakhale zosavuta kupeza magulu pa intaneti, koma ndimatha kulumikizana ndi ena onga ine kudzera mu National MS Society komanso kudzera mwa abwenzi. Ndinapanga ubale ndi atsikana omwe ali ndi MS omwe anali ndi moyo wofanana ndi ine, kuyesa kudziwa zinthu monga chibwenzi ndikuyamba ntchito.

Zaka 17 pambuyo pake, ndimakondanabe ndi akaziwa. Ndikudziwa kuti nditha kuwaimbira foni kapena kutumizirana mameseji nthawi iliyonse ndikafuna kufotokoza kapena kugawana nawo, ndipo azimvetsa mwanjira yomwe aliyense sangatero. Kuwonedwa ndikofunika kwambiri, ndipo mwa kuthandizana, mutha kudzithandizira.

6. Sizinthu zonse zokhudzana ndi MS

Pali masiku omwe ndimamva ngati sindikuganiza za MS. Masiku ano, ndiyenera kudzikumbutsa kuti ndine woposa matenda anga - njira yochulukirapo.

Kuzolowera zachilendo komanso njira yatsopano momwe mumaganizira kuti moyo wanu ungawonekere kungakhale kovuta, komabe ndinu. MS ndi vuto lomwe muyenera kuthana nalo, chifukwa chake yang'anani MS. Koma kumbukirani nthawi zonse kuti simuli MS.

Tengera kwina

M'chaka changa choyamba ndi MS, ndidaphunzira zambiri za zomwe zikutanthauza kukhala ndi matenda osachiritsika. Ndinaphunziranso zambiri za ine ndekha. Ndine wamphamvu kuposa momwe ndimaganizira. Pazaka zomwe ndapeza, ndidaphunzira kuti MS imatha kupangitsa moyo kukhala wovuta, koma moyo wovuta sikuyenera kukhala moyo wachisoni.

Ardra Shephard ndiye wolemba mabulogu waku Canada yemwe adalimbikitsa blog yopambana mphotho ya Tripping On Air - wopusa wopanda ulemu wokhudza moyo wake wokhala ndi multiple sclerosis. Ardra ndi mlangizi wolemba pamndandanda wawayilesi wa AMI wonena za chibwenzi ndi kulemala, "Pali Chinachake Chimene Muyenera Kudziwa," ndipo adawonetsedwa pa Sickboy Podcast. Ardra yathandizira ku msconnection.org, The Mighty, xojane, Yahoo Lifestyle, ndi ena. Mu 2019, anali wokamba nkhani ku MS Foundation ya Cayman Islands.Tsatirani iye pa Instagram, Facebook, kapena hashtag #babeswithmobilityaids kuti alimbikitsidwe ndi anthu omwe akugwira ntchito kuti asinthe malingaliro awo momwe zimawonekera kukhala olumala.