Spinal Muscular Atrophy: Zida Zabwino Kwambiri Paintaneti

Zamkati

• Mgwirizano wa Muscular Dystrophy
• Chiritsani SMA
• Gwendolyn Strong Foundation
• Chikondi cha Angelo a SMA
• Mabungwe kunja kwa United States

Spinal muscular atrophy (SMA) imakhudza gawo lililonse la moyo watsiku ndi tsiku. Chifukwa chake ndikofunikira kutha kukambirana mavuto ndikupeza upangiri.

Kuyanjana ndi gulu lothandizira la SMA kumatha kukhala ndi vuto pakumverera kwanu. Ndichinthu choyenera kuganizira makolo, achibale, kapena anthu omwe akukhala ndi SMA.

Nazi zina mwazinthu zabwino kwambiri zapaintaneti zothandizira SMA:

Mgwirizano wa Muscular Dystrophy

Muscular Dystrophy Association (MDA) ndi amene amatsogolera pa kafukufuku wa SMA. MDA imaperekanso magulu othandizira, ena makamaka a SMA. Zina zimakhala zovuta zam'mimba. Amakambirana zothana ndi chisoni, kusintha, kapena chithandizo chamankhwala. MDA ilinso ndi magulu othandizira makolo a ana omwe ali ndi vuto la minofu.

Kuti mupeze gulu lothandizira, lemberani ogwira nawo ntchito ku MDA. Pitani ku tsamba la gulu la MDA, ndipo lembani ZIP code yanu mu "Pezani MDA mdera lanu" chida chazanja lamanzere la tsambalo.

Zotsatira zakusaka zikuphatikiza nambala yafoni ndi adilesi yaofesi yakomweko ya MDA. Muthanso kupeza malo osamalira anthu akomweko komanso zochitika mtsogolo mdera lanu.

Thandizo lowonjezera pa intaneti limapezeka kudzera pagulu lazama TV. Apeze pa Facebook kapena mutsatire pa Twitter.

Chiritsani SMA

Cure SMA ndi bungwe lowalimbikitsa. Amakhala ndi msonkhano waukulu kwambiri wa SMA padziko lonse lapansi chaka chilichonse. Msonkhanowu umabweretsa pamodzi ofufuza, akatswiri azaumoyo, anthu omwe ali ndi vutoli, komanso mabanja awo.

Webusayiti yawo ili ndi zambiri zambiri zokhudza SMA komanso mwayi wopeza chithandizo. Amaperekanso anthu omwe apezeka posachedwa ndi ma phukusi osamalira ndi mapaketi azidziwitso.

Pakalipano pali machaputala 34 otsogozedwa ndi odzipereka a Cure SMA ku United States. Zambiri zamalumikizidwe zimapezeka patsamba la Cure SMA.

Mutu uliwonse umakonza zochitika chaka chilichonse. Zochitika kwanuko ndi njira yabwino kwambiri yokumana ndi ena omwe akhudzidwa ndi SMA.

Lumikizanani ndi chaputala chanu kapena pitani patsamba la Cure SMA kuti mufufuze zochitika mdera lanu.

Muthanso kulumikizana ndi ena kudzera pa tsamba la Facebook la Cure SMA.

Gwendolyn Strong Foundation

Gwendolyn Strong Foundation (GSF) ndi bungwe lopanda phindu lomwe limadziwitsa anthu padziko lonse za SMA. Mutha kulumikizana ndi ena kuti muthandizidwe kudzera patsamba lawo la Facebook kapena Instagram. Muthanso kulowa nawo mndandanda wawo wamakalata kuti musinthe.

Chimodzi mwazomwe amachita ndi pulogalamu ya Project Mariposa. Kudzera pulogalamuyi, atha kupereka iPads 100 kwa anthu omwe ali ndi SMA. Ma iPads amathandiza anthu awa kulumikizana, maphunziro, komanso kulimbikitsa ufulu.

Lembetsani ku channel ya YouTube ya GSF kuti muzisintha pa ntchitoyi ndikuwonera makanema a anthu omwe ali ndi SMA omwe akunena nkhani yawo.

Tsamba la GSF lilinso ndi bulogu yothandizira anthu omwe amakhala ndi SMA ndi mabanja awo kuti azikhala ndi mwayi wofufuza za SMA. Owerenga amathanso kuphunzira za zovuta komanso kupambana kwa omwe amakhala ndi SMA.

Chikondi cha Angelo a SMA

SMA Angels Charity cholinga chake ndikupeza ndalama zofufuzira ndikuwongolera chisamaliro cha anthu omwe ali ndi SMA. Bungweli limayendetsedwa ndi odzipereka. Chaka chilichonse, amakhala ndi mpira kuti apeze ndalama zofufuzira za SMA.

Mabungwe kunja kwa United States

SMA Foundation ili ndi mndandanda wamabungwe a SMA omwe ali padziko lonse lapansi. Gwiritsani ntchito mndandandawu kuti mupeze bungwe la SMA m'dziko lanu ngati mumakhala kunja kwa United States.

Pitani patsamba lawo kapena pitani kuti mumve zambiri zamagulu othandizira.