Mabulogu Abwino Kwambiri a Multiple Sclerosis a 2020

Zamkati

• MultipleSclerosis.net
• Awiri Amatenga MS
• Zikhalidwe Zanga Zatsopano
• Kulumikiza kwa MS
• Mtsikana yemwe ali ndi MS
• Kukambirana kwa MS
• Multiple Sclerosis News Masiku Ano
• Multiple Sclerosis Trust
• MS Society yaku Canada
• Kuthamanga Kupyola mu Treacle
• Ma Dinosaurs, Abulu ndi MS
• Yvonne deSousa
• Wanga Wosamvetseka
• Kukhumudwa M'mabwalo
• MS Views ndi News
• Mpata Wopezeka
• Chabwino komanso Olimba ndi MS
• MS Muse

Multiple sclerosis (MS) ndimatenda osadziwika omwe ali ndi zizindikilo zingapo zomwe zimabwera, kupita, kuzengereza, kapena kukulirakulira.

Kwa ambiri, kumvetsetsa zowonadi - {textend} kuchokera pakusanthula ndi njira zamankhwala mpaka zovuta zakukhala ndi matendawa - {textend} ndiye gawo loyamba pakuphunzira momwe angathetsere matendawa.

Mwamwayi, pali gulu lothandizira kunja uko lotsogolera njira yolimbikitsira, kudziwitsa, komanso kukhala zenizeni za MS.

Mabulogu adapanga mndandanda wathu wabwino kwambiri chaka chino chifukwa cha malingaliro awo, chidwi chawo, komanso kudzipereka kwawo kuthandiza omwe amakhala ndi MS.

MultipleSclerosis.net

Kuyendetsa galimoto chitetezo, kupsinjika kwachuma, kunenepa, kukhumudwa, ndikuopa zamtsogolo - {textend} kwa ambiri omwe ali ndi MS, awa ndi nkhawa, ndipo tsambali silimanyalanyaza aliyense wa iwo. Mawu oyambira komanso osasankhidwa ndi gawo lazomwe zimapangitsa zomwe zili pa blog ya MultipleSclerosis.net kukhala zamphamvu kwambiri. Olemba achichepere komanso othandizira a MS monga Devin Garlit ndi Brooke Pelczynski amafotokoza momwe zilili. Palinso gawo lonena za MS ndi Mental Health, lofunika kwa aliyense amene akulimbana ndi zovuta zamatenda kapena kukhumudwa komwe kumabwera ndi matenda osachiritsika.

Awiri Amatenga MS

Pakatikati pake, iyi ndi nkhani yachikondi yochititsa chidwi yokhudza anthu awiri omwe amakhala ndi MS. Koma siziimira pamenepo. Okwatirana Jennifer ndi Dan onse ali ndi MS ndipo kusamalirana. Pabulogu yawo, amagawana zambiri za zovuta zawo zamasiku ndi tsiku komanso kupambana kwawo, komanso zinthu zina zoganizira zothandiza kuchepetsa moyo ndi MS. Amakusungirani zochitika zawo zonse, ntchito yolimbikitsa, ndi momwe amathandizira ndi kusamalira milandu yawo ya MS.

Zikhalidwe Zanga Zatsopano

Anthu omwe ali ndi MS omwe akukumana ndi zizindikiro kapena kukhala ndi nthawi yovuta kwambiri apeza upangiri wothandiza pano. Nicole Lemelle wakhala wochirikiza mdera la MS kwa nthawi yayitali momwe ambiri a ife tingakumbukire, ndipo wapeza malo abwino pakati pofotokozera nkhani yake moona mtima ndikupitiliza kulimbikitsa ndikulimbikitsa dera lawo. Ulendo wa Nicole MS wakhala wovuta m'zaka zaposachedwa, koma amagawana kulimba mtima kwake m'njira yomwe ingakupangitseni kufuna kumukumbatira kudzera pakompyuta.

Kulumikiza kwa MS

Anthu omwe ali ndi MS ndi omwe amawasamalira akufuna kudzoza kapena maphunziro azipeza apa. Blog iyi imapereka nkhani zosiyanasiyana kuchokera kwa anthu omwe ali ndi MS mgawo lililonse la moyo wawo. MS Connection imalankhula za chilichonse kuyambira maubwenzi ndi zolimbitsa thupi mpaka upangiri pantchito ndi zonse zomwe zili pakati. Imayang'aniridwa ndi National MS Society, chifukwa chake mupezanso zolemba zamtengo wapatali zomwe zaponyedwamo.

Mtsikana yemwe ali ndi MS

Anthu omwe angopezekanso ndi MS apeza kuti blog iyi ndi yothandiza kwambiri, ngakhale aliyense amene ali ndi MS atha kupeza phindu munkhani izi. Caroline Craven wagwira ntchito yodabwitsa pakupanga chida chothandiza kwa anthu omwe ali ndi MS chomwe chimaphatikizapo mitu monga mafuta ofunikira, malingaliro othandizira, komanso thanzi lamaganizidwe.

Kukambirana kwa MS

Blog iyi ndi yothandiza kwa anthu omwe angopezedwa kumene ndi MS, kapena aliyense amene ali ndi vuto linalake la MS momwe angafune kulangizidwa. Yosungidwa ndi Multiple Sclerosis Association of America, nkhanizi zidalembedwa ndi anthu omwe ali ndi MS ochokera konsekonse. Ili ndiye poyambira lalikulu kwa anthu omwe akufunafuna chithunzi chathunthu cha MS.

Multiple Sclerosis News Masiku Ano

Ngati mukuyang'ana chilichonse chomwe chingaganiziridwe kuti ndi chothandiza kwa gulu la MS, ndipamene mungapeze. Ichi ndiye chokhacho chofalitsa pa intaneti chomwe chikutulutsa nkhani zokhudzana ndi MS tsiku ndi tsiku, kupereka chitsimikizo komanso chatsopano.

Multiple Sclerosis Trust

Anthu omwe ali ndi MS omwe akukhala kunja azisangalala ndi zolemba zosiyanasiyana zofotokoza kafukufuku wa MS. Palinso nkhani zaumwini za anthu omwe amakhala ndi MS komanso mndandanda wazomwe zimachitika zokhudzana ndi MS komanso othandizira ndalama ku United Kingdom.

MS Society yaku Canada

Kuchokera ku Toronto, bungweli limapereka chithandizo kwa iwo omwe ali ndi MS ndi mabanja awo, ndipo limathandizira kafukufuku kuti apeze mankhwala. Ndi mamembala opitilira 17,000, adadzipereka kuthandizira kafukufuku ndi ntchito za MS. Sakatulani pazowunikira komanso nkhani zandalama, ndikutenga nawo mbali muma webinema aulere.

Kuthamanga Kupyola mu Treacle

Chizindikiro pa blog yolimbikitsa komanso yosapita m'mbali iyi "chimakhala chopunthwitsa m'moyo ndi MS." Kuwona mtima kwa Jen ndikulimbikitsidwa kumawonekera pazinthu zonse pano - {textend} kuchokera pazolemba pa kulera kwa makolo ndi zenizeni zakukhala ndi "matenda osachiritsika" mpaka kuwunika kwa zinthu. Jen amagwiranso ntchito pa Dizzycast, podcast yokhala ndi ma Dinosaurs, Abulu ndi MS (onani pansipa).

Ma Dinosaurs, Abulu ndi MS

Heather ndi wosewera wazaka 27, mphunzitsi, komanso loya wa MS yemwe amakhala ku England. Anapezeka ndi MS zaka zingapo zapitazo, ndipo adayamba kulemba mabulogu posakhalitsa. Kuphatikiza pogawana malingaliro ndi malingaliro pa MS, amatumiza "zakudya, zakudya zopumira, ndi zinthu zilizonse zolimbitsa thupi" zomwe zimakhala zothandiza. Wokhulupirira kuti ali ndi moyo wathanzi wothandiza kusintha moyo ndi MS, Heather nthawi zambiri amagawana zomwe zamugwirira ntchito bwino.

Yvonne deSousa

Yvonne deSousa ndi zoseketsa. Sakatulani tsamba la bio ndipo muwona zomwe tikutanthauza. Wakhalaponso ndikubwezeretsanso MS kuyambira ali ndi zaka 40. Zomwe adachita atamupeza koyamba? “Zinali zovuta kukhulupirira koma ndinayamba kuseka. Kenako ndinalira. Ndinaimbira foni mchemwali wanga Laurie yemwe anapezeka ndi MS pafupifupi zaka 10 m'mbuyomo. Anandiseketsa. Ndinazindikira kuti kuseka kunali kosangalatsa. Kenako ndinayamba kulemba. ” Kukhoza kwa Yvonne kupeza nthabwala ngakhale anali pamavuto odabwitsa, koma amalankhula mosapita m'mbali zinthu zikayamba kuda kapena kuvuta kuseka. "Multiple Sclerosis ndi yoopsa komanso yoopsa," akulemba. “Zolemba zanga izi sizinapangidwe mwanjira iliyonse kunyoza vutoli kapena iwo omwe ali nalo, makamaka omwe ali patsogolo. Kulemba kwanga ndikungofuna kumwetulira mwachidule kwa iwo omwe angamvetse zovuta zina zomwe zimachitika ku MS. "

Wanga Wosamvetseka

Doug wa My Odd Sock ndimangomva ngati akusowa kuseka atazindikira kuti ali ndi MS kubwerera ku 1996. Ndipo adaseka. Ndi blog yake, akutiitanira tonse kuseka naye. Kusakanikirana kwa Doug mwanzeru komanso kudzilimbitsa-moyankhula pamodzi ndi kuwona mtima kwake mwankhanza pokhala ndi MS zimapangitsa kuti zolemba zake pamabuku zikhale bata pakakhala mkuntho. Atagwiritsa ntchito ntchito yake ngati nthabwala komanso wolemba zotsatsa, a Doug amadziwa zovuta "zophunzitsira." Amayesetsa kuphunzitsa owerenga ake za zenizeni za MS ngakhale zitakhala zochititsa manyazi, monga kukhala ndi vuto losayembekezereka pokodza kapena kutulutsa matumbo, kapena kukhala ndi erection yosayembekezereka kwinaku akuwombera Botox mwendo kuofesi ya dokotala. Amatisunga tonse kuseka pomwepo.

Kukhumudwa M'mabwalo

Chopunthwitsa ku Flats ndi buku-lotembenuzidwa-blog ndi woyang'anira projekiti-wotembenuka-waluso-wolemba-ndi-a-PhD Barbara A. Stensland.Kuchokera ku Cardiff, Wales, Barbara anapezeka ndi MS mu 2012 ndipo sachita manyazi kuvomereza kuti MS nthawi zambiri yakhala chopunthwitsa pamoyo wake. Anamusiya ntchito chifukwa cha MS, koma izi sizinamulepheretse kupeza MA pakulemba mwanzeru, kupambana mphotho zingapo pakulemba kwake, pokhala mlangizi wa makanema pazithunzi zolondola za MS, akuwonekera pa BBC ndi BBC Wales, ndikuthandizira kumawebusayiti amakasitomala osiyanasiyana monga makampani azachipatala ndi mabungwe a MS. Uthenga wa Barbara ndikuti mutha kuchita chilichonse, ngakhale mutapezeka ndi MS. Amagwiritsanso ntchito kuzindikira kwake ngati wolemba kuti athandize kuzindikira kwa olemba mabulogu ena omwe amalemba za MS.

MS Views ndi News

Musalole kuti template yosavuta ya Blogspot ikupusitseni. MS Views ndi News zili ndi zambiri zokhudzana ndi zomwe asayansi apanga posachedwapa ndi kafukufuku wokhudzana ndi MS komanso kafukufuku wanzeru pa zamankhwala a MS ndi maulalo azinthu zothandiza. Stuart Schlossman yemwe amakhala ku Florida adapezeka kuti ali ndi MS mu 1999 ndipo adayambitsa MS News ndi Views kuti apereke kuchuluka kwakukulu kwasayansi ndi zamankhwala zonse zomwe zimakhala m'malo amodzi m'malo momwazikana pa intaneti. Awa ndi malo ogulitsira amodzi kuti muthetse chidwi chanu pazomwe zikuchitika ndikufufuza kwa MS ndikuyandikira magwero oyambira popanda kupyola masauzande azinthu pa intaneti.

Mpata Wopezeka

Rachael Tomlinson ndiye dzina la webusayiti yake ya Accessible Rach (mawu akuti: "kuposa njinga ya olumala"). Ndiwokonda kwambiri rugby waku Yorkshire, England. Ndipo popeza adapezeka ndi MS yemwe amapita patsogolo kwambiri, wasintha moyo wake ndi MS kukhala mwayi woti akambirane za njinga ya olumala (kapena kusowa kwake) pamasewera ambiri a rugby ku United Kingdom. Ntchito yake yathandizira kuzindikira za kupezeka kwa bwalo lamasewera. Iyenso ndi mkazi wamatsenga. Amakhala ndi tsamba lodziwika bwino la Instagram lolimbikitsa kukongola ndi maupangiri azodzikongoletsa kwinaku akuthandiza kufalitsa kuzindikira kwa MS ndikuwononga manyazi pogwiritsa ntchito chikuku.

Chabwino komanso Olimba ndi MS

Chabwino ndi Strong ndi MS ndi ntchito ya woyambitsa ndi CEO wa SocialChow Angie Rose Randall. Angie adabadwa ndikuleredwa ku Chicago ndipo adakhala katswiri pazolumikizana asanazindikire kuti ali ndi MS wobwezeretsanso ali ndi zaka 29. Cholinga chake ndikuyika moyo wake wotanganidwa powonetsa momwe zingathere ngakhale atapezeka ndi MS. Ndipo ndi maudindo angapo anthawi zonse, kuphatikiza kuyendetsa kampani yake ndi makasitomala odziwika bwino ngati Sprint ndi NASCAR, kulera ana awiri achichepere ndi Shih Tzu, ndikulemba mosalekeza za zomwe adakumana nazo, ali ndi manja ambiri. Ndipo akugwira ntchito yabwino kwambiri.

MS Muse

Ili ndi blog yodziwika bwino yolembedwa ndi mayi wachichepere wakuda yemwe adapezeka ndi matenda a sclerosis zaka 4 zapitazo. Ali wotsimikiza kuti afufuze moyo wake mopanda mantha ndipo asalole kuti MS amufotokozere. Buloguyi ili ndi akaunti yake yoyamba yokhala ndi MS. Mupeza kuti "Disabled Chronicles" ndi "The Journal" zodzaza ndi nkhani zachidule za tsiku ndi tsiku zopanda zokutira shuga. Ngati mukufuna kuwerenga nkhani zolimba mtima komanso zotseguka zaulemala, kubwereranso, komanso kukhumudwa zomwe zitha kuyenda ndi MS, kuphatikiza chiyembekezo cha Ashley, iyi ndi blog yanu.

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