Wachinyamata Wodziwika: Tsiku Limene Ndinakumana Ndi Mnzanga Wamoyo Wonse, MS

Kodi chimachitika ndi chiyani mukakakamizidwa kukhala moyo wanu ndi zomwe simunapemphe?

Thanzi ndi thanzi zimakhudza aliyense wa ife mosiyanasiyana. Iyi ndi nkhani ya munthu m'modzi.

Mukamva mawu oti "bwenzi la moyo wonse," zomwe zimabwera m'maganizo anu ndi wokondedwa, mnzanu, bwenzi lapamtima, kapena wokwatirana naye. Koma mawu amenewo amandikumbutsa Tsiku la Valentine, ndipamene ndidakumana ndi bwenzi langa latsopano: multiple sclerosis (MS).

Monga ubale uliwonse, ubale wanga ndi MS sunachitike tsiku limodzi, koma unayamba kupita patadutsa mwezi umodzi.

Munali mu Januware ndipo ndidabwerera ku koleji tchuthi chikatha. Ndimakumbukira kuti ndinali wokondwa kuyambitsa semester yatsopano komanso ndikuwopa milungu ingapo ikubwera yamaphunziro olimba a preseason lacrosse. Sabata yoyamba kubwerera, timuyi inali ndi machitidwe a kaputeni, omwe samatenga nthawi yochulukirapo komanso kukakamizidwa kuposa momwe amachitira ndi makochi. Zimapatsa ophunzira nthawi kuti azolowere kubwerera kusukulu ndikuyamba makalasi.

Ngakhale amayenera kumaliza kupereka chilango jonsie run (aka a 'chilango run' kapena the kuthamanga kwambiri kuposa kale lonse), sabata yamachitidwe a kaputeni anali osangalatsa - {textend} njira yopepuka, yopanikiza yochita masewera olimbitsa thupi ndikusewera lacrosse ndi anzanga. Koma nditayamba pang'ono Lachisanu, ndidadzichepetsera chifukwa mkono wanga wamanzere unkangolira mwamphamvu. Ndinapita kukalankhula ndi aphunzitsi othamanga omwe adandipima mkono ndikundipima mayendedwe osiyanasiyana. Anandipatsa chithandizo chothandizira kutentha ndi kutentha (chomwe chimadziwikanso kuti TENS) ndipo ananditumiza kwathu. Anauzidwa kuti ndibwerere tsiku lotsatira kuti ndikalandire chithandizo chomwecho ndipo ndinatsatira ndondomekoyi masiku asanu otsatira.

Munthawi yonseyi, kumenyedwa kumangokulira ndipo kuthekera kwanga kusuntha mkono wanga kudachepa kwambiri. Posakhalitsa kumverera kwatsopano kunabwera: kuda nkhawa. Tsopano ndinali ndikumverera kwakukulu kuti Gawo I lacrosse linali lochuluka kwambiri, koleji wamba inali yochuluka kwambiri, ndipo zomwe ndimafuna ndimangokhala kunyumba ndi makolo anga.

Kuphatikiza pa nkhawa yanga yatsopano, mkono wanga udachita ziwalo. Sindinathe kuchita masewera olimbitsa thupi, zomwe zidandipangitsa kuti ndiphonye kachitidwe koyamba ka 2017. Potumiza foni, ndinalira kwa makolo anga ndikuwapempha kuti ndibwerere kunyumba.

Zinthu zikuwonekeratu kuti sizikuyenda bwino, motero ophunzitsa adandiitanitsa X-ray paphewa ndi mkono. Zotsatira zidabweranso zachilendo. Menyani chimodzi.

Pasanapite nthawi, ndinapita kwa makolo anga ndipo ndinapita kukawona odwala mafupa a kwathu omwe ndinkadalira banja langa. Anandipima ndipo ananditumiza ku X-ray. Apanso, zotsatira zake zinali zachilendo. Menyani awiri.

Koma, kenako adandiuza MRI ya msana wanga, ndipo zotsatira zake zidawonetsa zachilendo. Pamapeto pake ndinali ndi chidziwitso chatsopano, koma mafunso ambiri adatsalabe osayankhidwa. Zomwe ndimadziwa panthawiyo ndikuti panali vuto lina pa C-spine MRI yanga ndipo ndimafunikira MRI ina. Nditatsitsimuka pang'ono kuti ndimayamba kupeza mayankho, ndidabwerera kusukulu ndikufotokozera nkhaniyi kwa aphunzitsi anga.

Nthawi yonseyi, ndimakhala ndikuganiza chilichonse chomwe chikuchitika chinali minofu komanso zokhudzana ndi kuvulala kwa lacrosse. Koma nditabwerera ku MRI yanga yotsatira, ndidazindikira kuti imakhudzana ndi ubongo wanga. Mwadzidzidzi, ndinazindikira kuti izi sizingakhale kuvulala kwam'mimba kokha.

Kenako, ndinakumana ndi dokotala wa matenda a ubongo. Adatenga magazi, adayesedwa pang'ono, ndipo adati akufuna MRI ina yaubongo wanga - {textend} nthawi ino motsutsana. Tidachita izi ndipo ndidabwerera kusukulu ndili ndi nthawi yokawonananso ndi katswiri wa mitsempha Lolemba.

Unali mlungu wamba kusukulu. Ndinkasewera m'makalasi anga popeza ndinali nditaphonya zochuluka chifukwa chobwera kuchipatala. Ndinawona kuchita. Ndinadziyesa ngati wophunzira wamba waku koleji.

Lolemba, Okutobala 14th adafika ndipo ndidapita kukaonana ndi dokotala wanga ndisanachite mantha mthupi mwanga. Ndinaganiza kuti andiuza chomwe chinali vuto ndikukonza kuvulala kwanga - {textend} zosavuta momwe zingathere.

Adanditchula dzina langa. Ndinalowa mu office ndikukhala. Katswiri wa matenda a ubongo anandiuza kuti ndinali ndi MS, koma sindinadziwe tanthauzo lake. Adaitanitsa ma IV steroids akulu sabata yamawa ndipo adati zithandizira mkono wanga. Anakonza namwino kuti abwere kunyumba kwanga ndipo adafotokoza kuti namwino adzakhazikitsa doko langa ndikuti dokoli likhala mwa ine sabata yamawa. Zomwe ndimayenera kuchita ndikulumikiza kuwira kwanga kwa ma steroids ndikudikirira maola awiri kuti alowe mthupi langa.

Palibe chilichonse chomwe chidalembetsedwa ... mpaka nthawi yoikidwiratu itatha ndipo ndinali mgalimoto ndikuwerenga chidule chomwe chinali "Kupezeka kwa Grace: Multiple Sclerosis."

Ndinayang'ana MS. Mawu oyamba omwe ndinawona anali akuti: "Kawirikawiri, chithandizo chitha kuthandiza koma palibe mankhwala." APO. NDI. Ayi. CHIRITSENI. Ndipamene zidandigunda. Inali mphindi yomweyi pomwe ndidakumana ndi mzanga wa moyo wonse, MS. Sindinasankhe kapena kufuna izi, koma ndidakhalabe nazo.

Miyezi itandipeza ndi MS, ndimachita mantha kuuza aliyense zomwe zili ndi vuto langa. Aliyense amene amandiwona kusukulu adadziwa kuti china chake sichili bwino. Ndimakhala kuti sindimachita masewera olimbitsa thupi, sindinapezeke mkalasi kwambiri chifukwa cha nthawi yoikidwa, ndipo ndimalandila ma steroids tsiku lililonse zomwe zidapangitsa nkhope yanga kuphulika ngati nsomba. Zowonjezerapo, kusinthasintha kwanga ndi chilakolako changa chinali pamlingo wina wonse.

Anali tsopano Epulo ndipo sikuti mkono wanga udali woloboloka, koma maso anga adayamba kuchita izi ngati akuvina m'mutu mwanga. Zonsezi zidapangitsa kuti sukulu ndi lacrosse zikhale zovuta mwamisala. Dokotala wanga anandiuza kuti kufikira ndikayamba kukhala wathanzi, ndiyenera kusiya maphunziro. Ndinatsatira malingaliro ake, koma potero ndidataya gulu langa. Sindinalinso wophunzira motero sindinathe kuyeserera kapena kugwiritsa ntchito masewera olimbitsa thupi a varsity. Nthawi yamasewera ndimayenera kukhala m'malo oyimilira. Iyi inali miyezi yovuta kwambiri, chifukwa ndimamva ngati ndataya Chilichonse.

M'mwezi wa Meyi, zinthu zidayamba kukhazikika ndipo ndidayamba kuganiza kuti ndili bwino. Chilichonse chokhudza semester yapitayi chidawoneka ngati chatha ndipo inali nthawi yachilimwe. Ndinadzimva "wabwinobwino" kachiwiri!

Tsoka ilo, sizinakhalitse. Posakhalitsa ndinazindikira kuti sindidzakhalaponso wabwinobwino Apanso, ndipo ndazindikira kuti si chinthu choyipa. Ndine msungwana wazaka 20 wokhala ndi matenda a moyo wonse omwe amandikhudza tsiku lililonse. Zinatenga nthawi yayitali kuti ndizolowere izi, mwakuthupi komanso mwamaganizidwe.

Poyamba, ndinali kuthawa matenda anga. Sindinganene za izi. Ndikanapewa chilichonse chomwe chimandikumbutsa. Ndinkadziyerekezera kuti sindikudwalanso. Ndinalota ndikudzibwezeretsanso pamalo pomwe palibe amene amadziwa kuti ndikudwala.

Ndikaganiza za MS yanga, malingaliro owopsa adadutsa m'mutu mwanga kuti ndinali woipa komanso wodetsedwa chifukwa chawo. China chake chinali cholakwika ndi ine ndipo aliyense amadziwa za izo. Nthawi zonse ndikaganiza izi, ndimathawa kutali kwambiri ndi matenda anga. MS anali atawononga moyo wanga ndipo sindidzabwerenso.

Tsopano, patatha miyezi yambiri ndikudzimvera chisoni ndikudzimvera chisoni, ndazindikira kuti ndili ndi bwenzi latsopano kwanthawi yonse. Ndipo ngakhale sindinamusankhe, akhala pano. Ndikuvomereza kuti zonse zasintha tsopano ndipo sizibwerera momwe zidalili - {textend} koma zili bwino. Monga ubale uliwonse, pali zinthu zofunika kuzigwira, ndipo simukudziwa zomwe zili mpaka mutakhala pachibwenzi kwakanthawi.

Tsopano popeza MS ndi ine takhala pachibwenzi kwa chaka chimodzi, ndikudziwa zomwe ndiyenera kuchita kuti ubalewu ugwire ntchito. Sindilola MS kapena ubale wathu kundifotokozeranso. M'malo mwake, ndidzakumana ndi mavutowo ndikuthana nawo tsiku ndi tsiku. Sindidzipereka kwa iwo ndikulola nthawi kuti idutse.

Odala Tsiku la Valentine - {textend} tsiku lililonse - {textend} kwa ine ndi bwenzi langa la moyo wonse, multiple sclerosis.