Momwe mungadziwire cystic fibrosis mwa khanda ndi momwe mankhwala akuyenera kukhalira

Zamkati

• Zizindikiro za cystic fibrosis
• Momwe mungatsimikizire matendawa
• Chithandizo cha cystic fibrosis
• Zovuta zotheka
• Kutalika kwa moyo

Njira imodzi yokayikira ngati mwanayo ali ndi cystic fibrosis ndikuwunika ngati thukuta lake ndi lamchere kwambiri kuposa zachilendo, ndichifukwa choti khalidweli ndilofala kwambiri munthendayi. Ngakhale thukuta lamchere limawonetsa cystic fibrosis, matendawa amangopangidwa poyesa chidendene, chomwe chiyenera kuchitidwa mwezi woyamba wamoyo. Pazotsatira zabwino, matendawa amatsimikiziridwa ndi mayeso a thukuta.

Cystic fibrosis ndimatenda obadwa nawo opanda mankhwala, momwe tiziwalo tina timatulutsa tinthu tating'onoting'ono tomwe timakhudza kagayidwe kazakudya ndi kapumidwe. Chithandizo chake chimaphatikizapo mankhwala, zakudya, kulimbitsa thupi, ndipo nthawi zina, kuchitidwa opaleshoni. Chiyembekezo cha moyo wa odwala chikuwonjezeka chifukwa cha kupita patsogolo kwa chithandizo chamankhwala komanso kuchuluka kwa kutsatira, pomwe anthu wamba amafika zaka 40. Dziwani zambiri za cystic fibrosis.

Zizindikiro za cystic fibrosis

Chizindikiro choyamba cha cystic fibrosis ndipamene mwana amalephera kuthetsa meconium, yomwe imafanana ndi ndowe zoyambirira za wakhanda, tsiku loyamba kapena lachiwiri la moyo. Nthawi zina mankhwala osokoneza bongo amalephera kuthetsa malowa ndipo ayenera kuchotsedwa kudzera mu opaleshoni. Zizindikiro zina zomwe zikuwonetsa cystic fibrosis ndi izi:

• Thukuta lamchere;
• Kulimbikira kutsokomola, kusokoneza chakudya ndi kugona;
• Phlegm wandiweyani;
• Mobwerezabwereza bronchiolitis, yomwe ndi kutupa kosalekeza kwa bronchi;
• Matenda opatsirana omwe amabwerezedwa, monga chibayo;
• Kupuma kovuta;
• Kutopa;
• Kutsekula m'mimba kapena kudzimbidwa kwakukulu;
• Kutaya njala;
• Mpweya;
• Ndowe zonyezimira, zotuwa;
• Zovuta zolemera komanso kukula kwakanthawi.

Zizindikirozi zimayamba kuwonekera m'masabata oyamba amoyo ndipo mwanayo ayenera kulandira chithandizo choyenera kuti apewe kukulirakulira. Komabe, zitha kuchitika kuti cystic fibrosis ndiyofatsa ndipo zizindikirazo zimangowonekera paunyamata kapena munthu wamkulu.

Momwe mungatsimikizire matendawa

Kupezeka kwa cystic fibrosis kumachitika kudzera pachidendene, chomwe chimayenera kwa ana onse akhanda ndipo chiyenera kuchitika mpaka mwezi woyamba wamoyo. Pazotsatira zabwino, mayeso a thukuta amachitidwa kuti atsimikizire kuti ali ndi vutoli. Pachiyesochi, thukuta pang'ono kuchokera kwa khanda limasonkhanitsidwa ndikuyesedwa, monga kusintha kwina kwa thukuta kumawonetsa kupezeka kwa cystic fibrosis.

Ngakhale ndi zotsatira zabwino za mayeso awiri, mayeso a thukuta amabwerezedwa mobwerezabwereza kuti atsimikizire za matenda omaliza, kuphatikiza ndikofunikira kuwona zomwe mwana wakhanda wapeza. Ana okalamba omwe ali ndi zizindikiro za cystic fibrosis ayenera kukhala ndi mayeso a thukuta kuti atsimikizire matendawa.

Kuphatikiza apo, ndikofunikira kuyesa mayeso obadwa nawo kuti muwone kusintha komwe kumakhudzana ndi cystic fibrosis yomwe mwanayo ali nayo, chifukwa kutengera kusintha kwa matendawo, matendawa amatha kukhala okhwima kapena owopsa, zomwe zitha kuwonetsa njira yabwino kwambiri yothandizira yomwe iyenera Kukhazikitsidwa ndi dokotala wa ana.

Dziwani matenda ena omwe amatha kudziwika ndi mayeso a chidendene.

Chithandizo cha cystic fibrosis

Chithandizo cha cystic fibrosis chikuyenera kuyamba akangodziwa, ngakhale palibe zisonyezo, chifukwa zolinga zake ndikubwezeretsa matenda am'mapapo ndikupewa kuperewera kwa zakudya m'thupi komanso kuchepa kwa kukula.Chifukwa chake, kugwiritsa ntchito maantibayotiki kuti athane ndikupewa matenda omwe angachitike atha kuwonetsedwa ndi adotolo, komanso kugwiritsa ntchito mankhwala oletsa kutupa kuti athetse mavuto okhudzana ndi kutupa kwa mapapo.

Amanenanso kuti amagwiritsa ntchito mankhwala osokoneza bongo kuti athandize kupuma ndi ma mucolytics kuti athandize kuchepetsa phlegm ndikuthandizira kuthetseratu. Dokotala angalimbikitsenso kugwiritsa ntchito mavitamini A, E K ndi D, kuphatikiza ma enzyme othandizira kugaya chakudya.

Chithandizochi chimaphatikizapo akatswiri angapo, chifukwa kuwonjezera pa kugwiritsa ntchito mankhwala, kupuma kwa thupi, kulimbitsa thupi komanso kuwunika kwamaganizidwe, chithandizo cha oxygen chothandizira kupuma bwino, nthawi zina, kuchitidwa opaleshoni yopititsa patsogolo mapapu kapena kupatsira m'mapapo kumafunikanso. Onani momwe chakudya chingathandizire kuthana ndi cystic fibrosis.

Zovuta zotheka

Cystic fibrosis imayambitsa zovuta m'magulu angapo amthupi, zomwe zimatha kuyambitsa:

• Matenda, omwe nthawi zambiri amakhala ovuta kuwongolera;
• Kulephera kwa pancreatic, komwe kumatha kubweretsa kusadyanso zakudya zomwe zadyedwa ndi kuperewera kwa zakudya m'thupi;
• Matenda ashuga;
• Matenda a chiwindi, monga kutupa ndi matenda enaake;
• Wofooka;
• Matenda osokoneza bongo (DIOS), pomwe kutsekula kwa m'matumbo kumachitika, ndikupangitsa kukokana, kupweteka ndi kutupa m'mimba;
• Mwala wamtengo wapatali;
• Matenda a m'mafupa, zomwe zimapangitsa kuti mafupa asavutike;
• Kusowa zakudya m'thupi.

Zovuta zina za cystic fibrosis ndizovuta kuwongolera, koma chithandizo choyambirira ndiyo njira yabwino kwambiri yolimbikitsira moyo ndikukonda kukula koyenera kwa mwanayo. Ngakhale amakhala ndi mavuto ambiri, anthu omwe ali ndi cystic fibrosis nthawi zambiri amatha kupita kusukulu ndi kugwira ntchito.

Kutalika kwa moyo

Kutalika kwa moyo wa anthu omwe ali ndi cystic fibrosis kumasiyana malinga ndi kusintha kwa thupi, kugonana, kutsatira mankhwala, kuuma kwa matenda, zaka zakubadwa ndi matenda opatsirana, kugaya chakudya komanso mawonekedwe am'mimba. Matendawa nthawi zambiri amakhala oyipa kwa anthu omwe sakuchiritsidwa moyenera, amachedwa matendawa kapena ali ndi vuto lodana ndi kapamba.

Mwa anthu omwe adapezeka msanga, makamaka atangobadwa kumene, ndizotheka kuti munthuyo afike zaka 40, koma chifukwa chake ndikofunikira kuchitira mankhwala moyenera. Pezani momwe mankhwala a cystic fibrosis ayenera kuchitidwira.

Pakadali pano, pafupifupi 75% ya anthu omwe amatsata chithandizo cha cystic fibrosis monga momwe akulimbikitsira amafika kumapeto kwa unyamata ndipo pafupifupi 50% amafika zaka khumi zapitazi, omwe anali 10% kale.

Ngakhale mankhwalawa atachitidwa moyenera, mwatsoka zimakhala zovuta kuti munthu amene wapezeka ndi cystic fibrosis afike zaka 70, mwachitsanzo. Izi ndichifukwa choti ngakhale atalandira chithandizo choyenera, ziwalozi zimakhudzidwa pang'onopang'ono, zomwe zimawapangitsa kukhala ofooka, ofooka ndikutaya magwiridwe antchito pazaka zambiri, zomwe zimapangitsa, nthawi zambiri, kulephera kupuma.

Kuphatikiza apo, matenda opatsirana ndi tizilombo tofala kwambiri mwa anthu omwe ali ndi cystic fibrosis ndipo chithandizo chamankhwala chamadzimadzi chimatha kupangitsa kuti mabakiteriya akhale olimba, omwe amatha kupangitsa matenda a wodwalayo kukhala owopsa.