Momwe Kuyesera Makina Osunthira Kusinthira Momwe Ndimadzidalira Ndekha ndi MS

Zamkati

• Mfundo yofunika

M'chilimwe pakati pa mwana wanga wamkulu komanso wamkulu ku koleji, amayi anga ndi ine tidaganiza zolembetsa nawo msasa wolimbitsa thupi. Makalasi amachitika m'mawa uliwonse 5 koloko m'mawa m'mawa m'mene ndimathamanga, sindimatha kumva mapazi anga. Kwa masabata angapo otsatira, zinthu zinaipiraipira, ndipo ndinadziwa kuti yakwana nthawi yoti ndionane ndi dokotala.

Ndinapita kwa madokotala angapo omwe anandipatsa upangiri wotsutsana. Patatha milungu ingapo, ndinapezeka kuti ndili kuchipatala kuti ndilandire lingaliro lina.

Madokotala anandiuza kuti ndinali ndi multiple sclerosis (MS), matenda amkati mwa ubongo omwe amasokoneza mayendedwe azidziwitso mkati mwa ubongo komanso pakati paubongo ndi thupi.

Panthawiyo, sindimadziwa kuti MS ndi chiyani. Sindinadziwe zomwe zingachititse thupi langa.

Koma ndimadziwa kuti sindidzalola kuti matenda anga andifotokozere.

M'masiku ochepa, matenda omwe sindinkadziwa kalikonse adakhala cholinga chathunthu pabanja langa. Amayi anga ndi mlongo wanga adayamba kuthera maola ambiri pakompyuta tsiku lililonse, akuwerenga nkhani iliyonse ndi zomwe angapeze. Tinali kuphunzira momwe timapitira, ndipo panali zambiri zoti tigwiritse.

Nthawi zina zimamveka ngati ndikungoyenda pang'ono. Zinthu zinali kuyenda mofulumira. Ndinali wamantha ndipo sindimadziwa kuti ndiyembekezere chiyani pambuyo pake. Ndinali paulendo womwe sindinasankhe kupitabe, osadziwa komwe unganditenge.

Zomwe tidazindikira mwachangu ndikuti MS ili ngati madzi. Itha kutenga mawonekedwe ndi mawonekedwe ambiri, mayendedwe ambiri, ndipo imakhala yovuta kukhala nayo kapena kuneneratu. Zomwe ndimatha kuchita ndikungolowetsa ndikukonzekera chilichonse.

Ndinamva chisoni, kuthedwa nzeru, kusokonezeka, komanso kukwiya, koma ndimadziwa kuti palibe chifukwa chodandaulira. Inde, banja langa silikanandilola. Tili ndi mawu akuti: "MS ndi BS."

Ndidadziwa kuti ndimalimbana ndi matendawa. Ndinadziwa kuti ndili ndi gulu lankhondo kumbuyo kwanga. Ndinadziwa kuti azikakhala pamenepo.

Mu 2009, amayi anga adalandira foni yomwe idasintha miyoyo yathu. Wina ku National MS Society adamva zamatenda anga ndikufunsa ngati angatithandizire ndi momwe angatithandizire.

Patangopita masiku ochepa, ndinapemphedwa kukakumana ndi munthu wina amene ankagwira ntchito ndi achinyamata omwe anali atangopezedwa kumene. Adabwera kunyumba kwanga ndipo tidapita kokadya ayisikilimu. Anandimvetsera mwatcheru ndikamalankhula za matenda angawa. Nditamuuza nkhani yanga, adagawana nawo mwayi, zochitika, ndi zothandizira zomwe bungweli limapereka.

Kumva za ntchito yawo komanso anthu zikwizikwi omwe akuwathandiza kunandipangitsa kuti ndisamasungulumwe. Zinali zotonthoza kudziwa kuti panali anthu ena ndi mabanja kunja uko akumenya nkhondo yomwe ine ndinali. Ndimamva ngati ndili ndi mwayi wopanga limodzi. Ndinazindikira nthawi yomweyo kuti ndikufuna kutenga nawo mbali.

Posakhalitsa, banja langa lidayamba kuchita nawo zochitika ngati MS Walk ndi Challenge MS, ndikupeza ndalama kuti mufufuze ndikubwezera kubungwe lomwe limatipatsa zochuluka.

Kudzera mukugwira ntchito molimbika komanso kusangalatsa, gulu lathu - lotchedwa "MS ndi BS" - lidapeza ndalama zoposa $ 100,000 pazaka zapitazi.

Ndinapeza gulu la anthu omwe amandimvetsa. Inali "gulu" lalikulu kwambiri komanso labwino kwambiri lomwe ndidalowapo.

Pasanapite nthawi, kugwira ntchito ndi MS Society kunayamba kukhala malo ogulitsira komanso chidwi changa. Monga wamkulu pakulumikizana, ndimadziwa kuti ndigwiritse ntchito luso langa kuthandiza ena. Pambuyo pake, ndinalowa nawo mgululi, ndikulankhula ndi achinyamata ena omwe apezeka ndi MS.

Pomwe ndimayesera kuthandiza ena pogawana nawo nkhani zanga komanso zokumana nazo, ndidapeza kuti akundithandizanso kwambiri. Kutha kugwiritsa ntchito liwu langa kuthandiza gulu la MS kunandipatsa ulemu komanso cholinga kuposa momwe ndimaganizira.

Zomwe ndimachita nawo kwambiri, ndimaphunzira zambiri za momwe ena amakumanirana ndi matendawa ndikuthana ndi zisonyezo zawo. Kuchokera pa zochitikazi, ndidapeza china chomwe sindikanatha kuchipeza: upangiri wa eni kuchokera kwa ena omwe akumenya nkhondo yomweyo.

Komabe, kuyenda kwanga kunapitilira kukula pang'onopang'ono. Apa ndipamene ndidayamba kumva zazing'onozing'ono zamagetsi zomwe zimadziwika kuti "zozizwitsa."

Ngakhale ndimakhala ndikukumana ndi zovuta, kumva zakupambana kwa anthu ena zidandipatsa chiyembekezo choti ndipitiliza kumenya nkhondo.

Mu 2012, mankhwala omwe ndimamwa kuti ndithandizire kuthetsa zizolowezi zanga adayamba kukhudza mafupa anga, ndipo kuyenda kwanga kumakulirakulirabe. Ndinayamba kukhala ndi "phazi phazi," vuto lokoka mwendo lomwe nthawi zambiri limabwera ndi MS.

Ngakhale ndimayesetsa kukhala ndi chiyembekezo, ndidayamba kuvomereza mfundo yoti ndiyenera kukhala ndi chikuku.

Dokotala wanga adandikwanira kuti ndikhale ndi cholumikizira chopangira kuti ndikweze phazi langa kuti ndisapunthwe. M'malo mwake, idakumba mwendo wanga ndipo idandipweteka kuposa momwe idathandizira.

Ndidamva zambiri za chida chamatsenga chotchedwa Bioness L300Go. Ndi khafu yaying'ono yomwe mumavala mozungulira miyendo yanu kuti muwalimbikitse ndikuthandizani kubwezeretsa minofu yanu. Ndikufuna izi, ndimaganiza, koma sindinakwanitse panthawiyi.

Miyezi ingapo pambuyo pake, ndinaitanidwa kukapereka mawu otsegulira ndi kutseka pamwambo waukulu wopezera ndalama ku MS Society wa MS Achievers.

Ndidayankhula zaulendo wanga wa MS, abwenzi osaneneka omwe ndidakumana nawo ndikugwira ntchito ndi bungweli, komanso za anthu onse omwe zoperekazo zitha kuthandiza, kaya kudzera pakufufuza kovuta kapena kuthandiza anthu kulandira ukadaulo, monga L300Go.

Kutsatira mwambowu, ndidalandira foni kuchokera kwa purezidenti wa MS Society. Wina pamwambowu adandimva ndikulankhula ndipo adandifunsa ngati angandigulire L300Go.

Ndipo sanali aliyense, koma wosewera mpira wa Redskins Ryan Kerrigan. Ndinadzazidwa ndi kuthokoza komanso chisangalalo.

Nditamuwonananso, patatha chaka chimodzi, zinali zovuta kufotokoza zomwe adandipatsa. Pakadali pano, khafu yamiyendo yanga idatanthawuza zochulukirapo kuposa chida chilichonse cholumikizira kumapazi.

Zinali zowonjezera thupi langa - mphatso yomwe idasintha moyo wanga ndikundipatsa mwayi wopitiliza kuthandiza ena.

Kuyambira tsiku lomwe ndidalandira koyamba Bioness L300Go, kapena "kompyutala yanga yaying'ono" momwe ndimayitchulira, ndidayamba kudzimva kukhala wamphamvu komanso wolimba mtima. Ndinapezanso nzeru zachilendo zomwe sindimadziwa kuti ndataya. Ichi sichinthu chomwe mankhwala kapena chida china chidatha kundipatsa.

Chifukwa cha chipangizochi, ndimadziona ngati munthu wamba. Sindikulamuliridwa ndi matenda anga. Kwa zaka zambiri, kuyenda ndi kuyenda zinali ntchito yambiri kuposa mphotho.

Tsopano, kuyenda moyo sikulinso kwakuthupi ndipo zochitika zamaganizidwe. Sindikufunika kudziuza ndekha "Kweza phazi lako, tenga," chifukwa L300Go yanga imandichitira ine.

Sindinamvetsetse kufunikira koyenda mpaka nditayamba kutaya. Tsopano, sitepe iliyonse ndi mphatso, ndipo ndatsimikiza mtima kupitabe patsogolo.

Mfundo yofunika

Ngakhale ulendo wanga udatha, zomwe ndaphunzira kuyambira pomwe adandipeza ndizofunika kwambiri: Mutha kuthana ndi chilichonse chomwe moyo ungakupatseni ndi banja komanso gulu lothandizana.

Ngakhale mumve kukhala osungulumwa, pali ena omwe amakukwezani ndikupitiliza kupita patsogolo. Pali anthu ambiri abwino padziko lapansi omwe akufuna kukuthandizani paulendowu.

MS amatha kusungulumwa, koma pali chithandizo chochuluka kunja uko. Kwa aliyense amene awerenga izi, kaya muli ndi MS kapena ayi, zomwe ndaphunzira kuchokera ku matendawa ndikuti ndisataye mtima, chifukwa "malingaliro olimba ndi olimba thupi" komanso "MS ndi BS."

Alexis Franklin ndi loya wodwala wochokera ku Arlington, VA yemwe adapezeka kuti ali ndi MS ali ndi zaka 21. Kuyambira pamenepo, iye ndi banja lake athandiza kupeza ndalama masauzande ambiri pakufufuza za MS ndipo wapita kudera lalikulu-DC akuyankhula ndi achichepere ena omwe apezeka posachedwa anthu za zomwe adakumana nazo ndi matendawa. Ndiye mayi wachikondi wa chisakanizo cha chihuahua, Minnie, ndipo amakonda kusangalala ndi mpira wa Redskins, kuphika, komanso kuluka nthawi yake yaulere.