Chaka Changa Choyamba ndi MS

Zamkati

• Marie Robidoux
• Janet Perry
• Doug Ankerman
• Kutenga

Kuphunzira kuti muli ndi multiple sclerosis (MS) kumatha kuyambitsa chisangalalo. Poyamba, mutha kumasuka kuti mukudziwa zomwe zimayambitsa matenda anu. Komano, kulingalira zakulemala ndikugwiritsa ntchito njinga ya olumala mwina kungakuchititseni mantha pazomwe zili patsogolo.

Werengani momwe anthu atatu omwe ali ndi MS adakwanitsira kumaliza chaka chawo choyamba ndipo akukhalabe ndi moyo wathanzi, wopindulitsa.

Marie Robidoux

Marie Robidoux anali ndi zaka 17 pomwe anapezeka ndi MS, koma makolo ake ndi adokotala adazisunga mpaka atakwanitsa zaka 18. Anali wokwiya komanso wokhumudwa.

"Ndinakhumudwa nditazindikira kuti ndili ndi MS," akutero. “Zinanditengera zaka kuti ndikhale womasuka kuuza aliyense kuti ndili ndi MS. Zinkawoneka ngati manyazi. [Zimamveka] ngati kuti ine ndine woperewera, munthu woti ndizingopewa kuyandikira. ”

Monga ena, chaka chake choyamba chinali chovuta.

"Ndidakhala miyezi yambiri ndikuwona kawiri, makamaka miyendo yanga idagwiritsidwa ntchito, ndimakhala ndi vuto, nthawi yonseyi ndikuyesera kupita kukoleji," akutero.

Chifukwa Robidoux analibe chiyembekezo chilichonse cha matendawa, adaganiza kuti ndi "imfa." Ankaganiza kuti, pamapeto pake apita kumalo osamalira anthu, kugwiritsa ntchito njinga ya olumala, ndikudalira ena kotheratu.

Amalakalaka atadziwa kuti MS imakhudza aliyense mosiyanasiyana. Masiku ano, amangolephera pang'ono kuyenda, kugwiritsa ntchito ndodo kapena kulimba kuti amuthandize kuyenda, ndipo akupitilizabe kugwira ntchito nthawi zonse.

"Ndakhala ndikutha kusintha, nthawi zina ngakhale ine ndekha, ndimipira yonse yokhotakhota yomwe MS idandiponya," akutero. "Ndimasangalala ndi moyo ndipo ndimakondwera ndi zomwe ndingathe momwe ndingathere."

Janet Perry

"Kwa anthu ambiri omwe ali ndi MS, pali zikwangwani, zomwe nthawi zambiri zimanyalanyazidwa, koma zimayikidwiratu," akutero a Janet Perry. "Kwa ine, tsiku lina ndinali bwino, ndiye ndinali wosokonezeka, ndikuipiraipira, ndipo mchipatala pasanathe masiku asanu."

Chizindikiro chake choyamba chinali kupweteka mutu, kenako chizungulire. Anayamba kuthamangira kukhoma, ndipo adakumana ndi masomphenya awiri, kusachita bwino, ndi dzanzi kumanzere kwake. Anadzipeza yekha akulira ndipo ali pachisokonezo popanda chifukwa.

Komabe, atamupeza, kumverera kwake koyamba kunali kupumula. Madokotala anali ataganizira kuti matenda ake oyamba a MS anali sitiroko.

"Sizinali kuti aphedwe mwachipongwe," akutero. “Titha kuthandizidwa. Sindingathe kukhala popanda mantha amenewo. ”

Inde, njira yakutsogolo sinali yophweka. Perry amayenera kuphunzira momwe angayendere, kukwera masitepe, ndi momwe angatembenuzire mutu wake osadzimva kuti ndi wopepuka.

"Ndinali wotopa koposa china chilichonse ndikulimbikira kwa zonsezo," akutero. "Simunganyalanyaze zinthu zomwe sizikugwira ntchito kapena zomwe zimagwira ntchito ngati mungaganizire. Izi zimakukakamizani kuti muzindikire komanso kuti mudzakhale panthawiyi. ”

Amaphunzira kukhala osamala kwambiri, kuganizira zomwe thupi lake lingathe komanso zomwe sangachite.

"MS ndi matenda osokoneza bongo ndipo chifukwa choti ziwopsezo sizinganenedweratu, ndizomveka kukonzekera zamtsogolo," akutero.

Doug Ankerman

"Maganizo a MS adandidya," akutero a Doug Ankerman. "Kwa ine, MS inali yoyipa kwambiri pamutu panga kuposa thupi langa."

Dokotala woyambirira wa Ankerman adakayikira MS atadandaula za dzanzi kudzanja lake lamanzere ndikuuma mwendo wake wamanja. Ponseponse, zizindikirazi zidakhala zosasinthasintha mchaka chake choyamba, zomwe zidamupatsa mwayi wobisala ku matendawa.

"Sindinauze makolo anga pafupifupi miyezi isanu ndi umodzi," akutero. “Ndikapita kukawaona, ndinkalowa mozembera kubafa kuti ndikawombere kamodzi pa sabata. Ndimawoneka wathanzi, ndiye bwanji uwauze ena nkhaniyi? ”

Pokumbukira, Ankerman amazindikira kuti kukana kuti ali ndi kachilombo, ndi "kukankhira mkati kwambiri," kunali kulakwitsa.

"Ndikumva kuti ndataya zaka zisanu kapena zisanu ndi chimodzi za moyo wanga kusewera masewera okana," akutero.

M'zaka 18 zapitazi, matenda ake adatsika pang'onopang'ono. Amagwiritsa ntchito zothandizira zingapo kuyenda, kuphatikizapo ndodo, zowongolera m'manja, ndi chikuku poyenda. Koma salola kuti ma hangout awa amuchedwetse.

"Tsopano ndili ndi mfundo ndi MS yanga yomwe inandiopsa nditangopezedwa koyamba, ndipo ndikuzindikira kuti sizoyipa kwambiri," akutero. "Ndili bwino kwambiri kuposa ambiri omwe ali ndi MS ndipo ndikuthokoza."

Kutenga

Ngakhale MS imakhudza aliyense mosiyanasiyana, ambiri amakumana ndi zovuta zomwezo komanso mantha chaka choyamba atazindikira. Zingakhale zovuta kuvomereza momwe mukudziwira ndikuphunzira momwe mungasinthire moyo ndi MS. Koma anthu atatuwa akutsimikizira kuti mutha kuthana ndi kukayikira koyamba ndikudandaula, ndikupitilira zomwe mukuyembekezera mtsogolo.