Mlembi: Louise Ward
Tsiku La Chilengedwe: 3 Febuluwale 2021
Sinthani Tsiku: 26 Novembala 2024
Anonim
Nkhani za ufiti ku Mpoto Rumphi
Kanema: Nkhani za ufiti ku Mpoto Rumphi

Zamkati

Simuli MS Wanu

Kodi ndinu mayi? Wolemba mabuku? Wothamanga? Tikufuna kukukumbutsani kuti pali zambiri kwa inu kuposa multiple sclerosis— {textend} ndipo tikufuna kuti mukumbutse ena popanga ndemanga yanu. Ndipo uuzeni dziko kuti muli ndi MS, KOMA ...

Migwirizano ndi zokwaniritsa

Nkhani ya Julia, ndazindikira kuti ndili ndi matenda omwe adandipeza zaka zopitilira 23 zapitazo. Ngakhale nditakhala wazaka zoposa 58 ndikudziwa ndikulimbana ndi izi tsiku lililonse & Osataya mtima! Ndimamva kuchokera kwa anthu ambiri, Simukuwoneka ngati mukudwala! Chabwino samandiwona m'masiku oyipa amenewo. Monga Chizindikiro changa chikuwerengedwa panjinga yanga-Yisuntha! Kulimbana ndi MS ... Kuyenda mwachangu momwe ndingathere! Izi ndi zomwe ndikuchita. Ndangomaliza kumene MS WALK ndi Team yanga & galu yaying'ono yothandizira, (mascot athu) Boo. Sadzataya Mtima! Tonsefe timadziwa mawu akuti ...


Nkhani ya Nicole, ndidakali ndi ine mumtima.

Nkhani ya Tresa, MS alibe ine.

Nkhani ya Cathy Chester, dzina langa ndine Cathy Chester ndipo ndapezeka ndi MS kuyambira 1987. Moyo wanga waperekedwa kuzinthu ziwiri: kuzilemba ndikulipereka kwa anthu omwe ali ndi MS. Bulogu yanga, An Empowered Spirit, idadzipereka kuti ikhale yopambana zaka 50. Ndilembera masamba angapo azaumoyo, ndipo ndine blogger wa The Huffington Post. Ndimakhala ndi chikhulupiriro cholimba chakuti moyo ndiwokoma, ndipo tiyenera kulanda tsiku lililonse pochita zomwe tingathe ndi luso lomwe aliyense ali nalo.

Nkhani ya Amy, ndakhala ndi MS kwa zaka 25 kuyambira ndili ndi zaka 20years. Kukhala ndi matendawa - matenda osinthika mosayembekezereka, osasinthika, apanga zomwe ndili lero. Chifukwa cha ichi moyo wanga watenga tanthauzo ndikadapanda kukhala kuti sindinaumbidwe mozungulira MS. Anthu ena amati, ndili ndi MS koma ilibe ine. Ndikuti, ndili ndi MS ndipo NDINE. Ndipo ndili ndi MS ndili wopitilira momwe ndikanakhalira. (onani mssoftserve.org!)


Nkhani ya Kit, ndidakali mkazi, mkazi, mayi komanso bwenzi. Ndinakhazikitsa gulu lachinsinsi lothandizira anthu odwala matenda aakulu. Ndikupitiliza kugwiritsa ntchito luso langa lolemba komanso kufufuza tsiku lililonse ndikamafufuza zamankhwala ndi zaumwini za mamembala 800 a Living for Cure. Ndimagwira ntchito pang'onopang'ono, ndipo nthawi zambiri ndimasokonezedwa ndi zofuna za MS, koma ndikuthandizirabe kudziko labwino, ndipo ndizomwe zimandimasulira!

Nkhani ya J, ndakhala ndikukhala ndi MS kwazaka 19. Anandipeza ndili ndi zaka 18. Sindinalole kuti MS ilamulire moyo wanga! Kukhazikika ndikuti "Sindingasiye!" malingaliro ndi ofunikira. Anthu ambiri amawona izi ngati chiweruzo cha imfa pomwe ndidatenga MS yanga ndikuilola kuti izindithandiza kukula monga munthu. Ndimatenga zinthu tsiku limodzi nthawi imodzi ndipo sindimanyalanyaza chilichonse kapena wina aliyense. MS satanthauzira kuti ndine ndani .... ndimachita izi! MS sichikundifotokozera!

Nkhani ya Lea, Monga momwe munganenere pachithunzichi - Ndili ndi zotsalira zamaso akuda awiri kuyambira kugwa kwanga komaliza chifukwa cha MS - komabe ndimadzuka ndikupitanso zina! Moyo wanga ndi wanga! Ndimasangalala nazo zivute zitani! Nthawi zonse ndimakhala, ndimakhala nthawi zonse, ziribe kanthu momwe MonSters angakhalire m'moyo wanga!


Nkhani ya S, ndili ndi MS, koma kulera ndikuphunzitsa ana anga zosowa zapadera ndikuwona mwana wanga wamkulu akuchita bwino ku koleji kumandilimbitsa. Amandifuna. Ndikuwafuna. PAMODZI, titha kuthana ndi chilichonse! Tadutsapo mphepo yamkuntho yambiri limodzi ndipo nthawi zonse timatuluka mwamphamvu chifukwa cha iyo.

Nkhani ya Kathy, MS ndi gawo lamomwe ndimakhalira, koma siomwe ndimasankha kukhala. Kudziwa zomwe zimayambitsa kulumala kwanga ndikwabwino kuposa kukhala opanda chidziwitso - Ndine wamphamvu, wabwinoko, wosangalala chifukwa ndikudziwa zomwe zikundiyang'ana. Popanda izi mwina sindinamalize kutaya 100lbs ndikupeza zinthu zina zomwe ndimakwanitsa.

Nkhani ya Ella Forbes, ndidapezeka mu Novembala 2010 ndili ndi RRMS,, Moyo wanga udasintha, zonse zomwe zidandizungulira zidasintha, palibe chomwe chidakhala chimodzimodzi. Nthawi zonse anali banja langa komanso anzanga atsopano abwino omwe adandithandiza kuzindikira kuti ndidali INE !!. Ndimangophunzira ndikusinthasintha dziko langa lomwe likusintha, sindikuyang'ana kumbuyo .. ndikupita patsogolo ndi ms ms.

Nkhani ya Nicole Price, ndakhala ndi MS kwa zaka 13 tsopano, ndipo Sindingalole kuti izilamulira moyo wanga .. Ndili ndi anyamata awiri; zaka 21 ndi 15, ndipo ndiyenera kupitilirabe kuwamenyera. Ndiwo moyo wanga, ndipo ndiyenera kuwonetsetsa kuti ali ndi tsogolo labwino. Ndili ndi zaka 21 wazaka zake za 3 ku CWU ndikuphunzira za Health and Safety Management, ndipo mwana wanga wazaka 15 akuchita bwino mchaka chake choyamba ku High School komanso mu mpira, ndilibe nthawi yoti MS andilamulire. Kukhala wotsimikiza ndikukhalira anyamata anga kumandithandiza tsiku lililonse.

Nkhani ya Tonia, ndinapezeka zaka 10 zapitazo ndili ndi zaka 33. Zizindikirozo zinali zovuta kuzolowera poyamba koma pang'ono ndi pang'ono ndinaphunzira kuzithetsa. Banja langa limandithandiza kwambiri ndipo izi zikutanthauza kuti dziko lapansi kwa ine. Ndimakana kuti MS indilangize komwe ndingapite ndi zomwe ndingachite. Ndipambana m'njira zonse zofunika !!!

Nkhani ya Christie, ndine wojambula zithunzi wambiri yemwe amakonda kukwera njinga yanga mwachangu kwambiri. Inde, ndimakhala ndi MS ndipo ndili ndi masiku abwino komanso masiku oyipa. Ndimayesetsa kudzaza masiku abwino ndi zinthu zomwe ndimakonda: kuseka ndi abwenzi komanso abale, kujambula zithunzi, kupalasa njinga, kulima dimba, kuwona zakudya zabwino ku San Diego dzuwa, kulemba, kujambula, kuwerenga, kuyenda padziko lonse lapansi. Mumalandira lingaliro. MS sangalepheretse kuchita zinthu zomwe ndimakonda. Nyengo.

Nkhani ya Ryan Proce, ndili ndi zinthu zambiri zoti ndichite. Monga kukhala bambo ndi mwamuna. Ndilibe nthawi yosiya moyo !!! Ndimagwira ntchito yophika, wogwirizira basi pamsasa, komanso wotsutsa. Ndimatenga mankhwala anga ndikuwunika thanzi langa, ndipo sindigonjera matendawa.

Nkhani ya Ann Pietrangelo, Dzina langa ndi Ann Pietrangelo ndipo ndidalemba bukuli, “No More Secs! Kukhala, Kuseka & Kukonda Ngakhale Pali Matenda Ofoola Ziwalo ”chifukwa ndi zomwe ndimachita tsiku lililonse. Ndimadwalanso khansa ya m'mawere katatu konse, choncho ndimamvetsetsa kufunikira kopitilira ndikakumana ndi zopinga. Kumene msewu umatsogolera ndichinsinsi. Ndili wokondwa chabe kuti ndili panjira.

Nkhani ya a Jennifer Duncan, ndikhoza kukhala ndi MS koma ilibe ine ndipo sichidzatero. Ndili ndi banja lalikulu lomwe limandithandiza ndi MS yanga. Mwamuna wanga ndi ana anga ndiabwino komanso mayi anga. Ndakhala ndi MS kwa chaka chimodzi ndi theka ndipo ndikuchita bwino mpaka pano.

Nkhani ya Barbara Nuss, Anthu ena angaganize kuti izi sizingatheke, koma ndimawona MS yanga ngati mdalitso wobisika.MS yandionetsa mphamvu komanso kulimba mtima komwe sindinadziwepo kale. Zandiwonetsa momwe moyo ulili wamtengo wapatali komanso kuti ndisamatulutse thukuta zazing'ono. Sindingathe kuchita zinthu zomwe ndinali nazo kale, kukhala ndi moyo womwe ndinali nawo kale, kupanga ndalama zomwe ndinali nazo kale. Koma ndili ndi banja lachikondi & dongosolo lalikulu lothandizira. Ndinaphunzira kuyamikira moyo ndipo mavuto aliwonse omwe ndikukumana nawo pakadali pano sakhala oyipa momwe angakhalire. Sindinkawona moyo ngati uwu m'mbuyomu, ndipo ndikuthokoza a MS chifukwa chondiwonetsa.

Nkhani ya Debbie Phillips, ndili ndi zaka 49, mkazi, mayi, agogo ndipo ndidakali ine. Mwamuna wanga ndi msirikali wakale wazankhondo wazaka 30 wokhala ndi TEMinal COPD. Anapezeka 2 yrs ndisanapezeke ndi RRMS, timasamalirana. SINDIDZALEKA koma ndiphunzitsa anthu ambiri momwe ndingathere za MS mpaka titapeza mankhwala!

Nkhani ya Jill Gebhard, MS mwina yasintha moyo wanga, koma sizikundiletsa kuchita zomwe ndimakonda. Ndingakhale wochedwa kuposa wina aliyense, koma ndatsimikiza mtima kukhala moyo wanga wonse! MS inandichotsera unyamata wanga, ndipo ndikubwerera pang'ono tsiku lililonse. Ndipo mukudziwa chiyani? Inunso mungatero!

Nkhani ya Nicole, adandipeza pafupifupi zaka 4 zapitazo ndili ndi zaka 29. Sindinganame zinali zowopsa, zinali zowopsa mpaka lero. Kusiyana kokha ndikuti lero ndikuthandizidwa ndi abale komanso abwenzi apamtima. Ndikudziwa ziribe kanthu chomwe ndikulamulira ndi momwe ndimayankhira pazomwe ndiyenera kukumana nazo. Musataye mtima nokha kapena zolinga zanu. Mwina simukhala munthu wofanana ndendende ndi thupi lanu koma mukadali moyo womwewo womwe Mulungu adalenga amalola Nkhondo kuti tikhale moyo womwe tidapatsidwa.

Nkhani ya Michelle Loza, adandipeza Nov 2009. Ana anga aakazi anali ndi zaka 7 ndi 9 zokha. Ndinachoka kwa amayi omwe amagwira ntchito pabanja mpaka pano kukhala osakwatiwa kunyumba supermom. MS siyandiletsa kuchita zinthu koma m'malo mwake ndimagwiritsa ntchito mwayi uliwonse kuchita zinthu. Cholinga changa ndikupanga kukumbukira mwayi uliwonse womwe tingapeze.

Nkhani ya Bonny Hanan, MS ndi gawo la moyo wanga, osati moyo wanga wonse. Ndidapezeka kuti Marichi a 2012 patatha zaka ziwiri ndili mwana. Kuyambira pamenepo ndakhala ndikutsatira gulu langa lokonda kuzungulira kumwera kwa United States. Ndinapanga abwenzi angapo angapo, ndipo ndinaphunzira kudzilankhulira ndekha. Chofunika kwambiri, ndakhala nthawi yabwino kwambiri ndi banja langa ndipo ndamanga ubale wolimba kwambiri nawo. Makamaka mwana wanga wamkazi wazaka 13 yemwe ngakhale ali ndi matendawa amandiuza nthawi zonse kuti ndine mayi wabwino koposa!

Nkhani ya Dan ndi Jen, MS satifotokozera, koma ndiwofunika kwambiri m'nkhani yathu. Nkhani yathu ndiyotsimikizika kuti ndi nkhani yachikondi, pomwe MS amakhala ngati wosewera. Popanda matendawa, mwina sitinakumaneko nawo pa pulogalamu ya MS zaka 11 zapitazo. Nthawi zambiri ndimunthu woyipa m'nkhaniyi. Koma ndife opambana amene amathetsa matendawa. Sizikutanthauza ife. Kukhala ndi Multiple Sclerosis kumapangitsa nkhani yathu kukhala yosangalatsa.

Cheri Cover, sindine MS wanga chabe chifukwa pali zambiri pamoyo kuposa MS. Ndili ndi abale ndi abwenzi omwe amasamala za ine ndipo ndimawasamala. Sindingathe kukhala pansi ndikuganizira za thanzi langa tsiku lonse ndikuphonya moyo. Pamodzi tidzamenya chilombo ichi!

Lowani nawo Gulu Lathu la Facebook la MS

Lowani pagulu lothandizana nawo kuti muphunzire zambiri za MS. Kuchokera pazoyambira, mpaka kuchipatala kuti muchepetse matenda anu.

Tumizani Kanema Wakuti "Muli Ndi Izi"

"Muli ndi Izi" imathandizira gulu la MS. Onani makanema ochokera kwa ena omwe ali ndi MS ndipo phunzirani kuti simuli nokha pankhondoyi. Pezani chilimbikitso ndi upangiri kuchokera kwa anthu onga inu, ndikudzimva kuti muli ndi mphamvu zofotokozera nkhani yanu.

Multiple Sclerosis Prognosis ndi Chiyembekezo cha Moyo

7 MS Mfundo Zomwe Muyenera Kudziwa

Zizindikiro 8 za MS mu Akazi

Njira 12 MS Zimathandizira Thupi

Zida Zabwino Kwambiri za MS zochokera pa intaneti

Mankhwala atsopano 5 Omwe Akusintha MS

Azimayi ali ndi chiopsezo chachikulu chotenga MS kuposa momwe amachitira amuna, ndipo matendawa amatha kukhudza amayi mosiyanasiyana.

MS Kuyambira Pamwamba Mpaka Pansi, Onani momwe MS imakhudzira thupi lonse ndimapu olumikiziranawa.

7 Muyenera Kudziwa Zambiri za MS, Kuyambira pazizindikiro mpaka kutsata, pezani zomwe muyenera kudziwa.

Migwirizano ndi zokwaniritsa

Healthline itenga zidziwitso kuchokera kwa ogwiritsa ntchito kudzera pa pulogalamu ya Facebook pongofuna kuti apange ogwiritsa ntchito bwino pulogalamuyi. Healthline imangotenga zofunikira zofunikira kuti zigwiritse ntchito pulogalamuyi. Palibe chilichonse chazambiri zochokera pamaakaunti a Facebook omwe adzagwiritsidwe ntchito kunja kwa pulogalamuyi. Health mulibe ufulu uliwonse pazambiri izi.

Malamulo ndi Mpikisano

Kuyenerera

Kutumiza kuli kotseguka kwa onse okhala ku United States, kupatula omwe akugwira ntchito ku Healthline Networks, otsatsa ndi otsatsa malonda, anzawo ndi anzawo, komanso abale apabanja. Kulowa kamodzi kokha pamunthu aliyense kumaloledwa.

Kusankha Wopambana

Kulowa ndi magawo ambiri nthawi ya 11:59 PM pa Juni 30, 2013 kudzasankhidwa kukhala wopambana. Pakakhala tayi, mphothoyo igawika pakati pa omwe apambana. Mayina a omwe apambana adzalembedwanso patsamba la Healthline Multiple Sclerosis Facebook.

Mphoto yake

Khadi limodzi la $ 50 lidzaperekedwa kwa wopambana woyamba. Opambana adzalumikizidwa kudzera pa imelo akaunti kapena fomu pa blog yawo pa Julayi, 10 2013. Kuti athe kulandira mphothoyo, wopambana ayenera kuyankha kudzera pa imelo ku [email protected] pasanafike pa Julayi 30, 2013. Mayankho akuyenera kuphatikiza zonse dzina, imelo, ndi malo. Mphoto zidzaperekedwa pa Julayi 31, 2013. Kulephera kuyankha molingana ndi izi kuyenera kutanthauza kuti wopambana ataya mphothoyo.

Nthawi Yogonjera

Kutumiza kumayamba pa Epulo 26, 2013. Zolembera ziyenera kulandiridwa ndi 11: 59 PM PST pa Juni 30, 2013.

Kulowera

Zolemba zonse ziyenera kulembedwa mchingerezi.

Olowera sangalowe ndi maimelo angapo amaimelo kapena maina angapo.

Kutumiza komwe kumaphwanya kapena kuphwanya ufulu wa munthu wina, kuphatikiza koma osangokhala ndiumwini, sikuyenera.

Chilolezo ndi Chidziwitso

Potumiza chithunzi cha MS chikwangwani, mukuvomera izi: Ndikupatsa Healthline Networks chilolezo chopanda mafumu, chiphaso chosatha chogwiritsa ntchito chithunzi chomwe chaperekedwa pano ("Ntchito") pazifukwa zilizonse. Zogwiritsa ntchito zitha kuphatikizira, koma sizingokhala malire, kukwezedwa kwa Healthline Networks ndi ntchito zawo mwanjira iliyonse, kuphatikiza pa intaneti, m'mabuku osindikiza, monga amagawira atolankhani, komanso muzogulitsa. Healthline Networks ili ndi ufulu wogwiritsa ntchito / kusagwiritsa ntchito ntchito iliyonse yomwe ikuyenera kukhala yoyenera ndi Healthline Networks mwakufuna kwawo. Palibe Ntchito yomwe idzabwezeredwe ikangoperekedwa.

Ndikumvetsetsa kuti popereka chithunzi cha MS chikwangwani, ndikuvomereza kuti Healthline Networks sikhala ndiudindo uliwonse woteteza ntchito yanga motsutsana ndi kuphwanya ufulu waumwini kapena ufulu wina waluso kapena ufulu wina uliwonse womwe ndingakhale nawo pantchito imeneyi, ndi palibe njira yomwe idzayang'anire zotayika zilizonse zomwe ndingakumane nazo chifukwa chophwanyidwa kotere; potero ndikuyimira ndikuloleza kuti Ntchito yanga siyiphwanya ufulu wa munthu wina aliyense kapena bungwe. Pofuna kulingalira mozama, ndimamasula mosavomerezeka, ndimakhala wopanda vuto ndikubweza Healthline Networks, owongolera, maofesala, ndi omwe agwira ntchito kuchokera pazomwe zanenedwa, zovuta zonse, ndi zotayika zomwe zatuluka chifukwa chokhudzidwa ndi gawo langa lazopereka, kapena Healthline Network kugwiritsa ntchito Ntchito yanga. Kumasulidwa uku ndi kuchindilidwa kudzakhala kofunika kwa ine, ndipo olowa m'malo anga, omwe akutipatsa udindo, owongolera, ndikuwapatsa ntchito.

Healthline Networks siyiyenera kutayika chifukwa cha kutuluka kapena kulumikizana kapena chifukwa chakuyitanitsa kulikonse koperekedwa ndi Healthline Networks.

Othandizidwa ndi Healthline Networks, Inc. 660 Third Street, San Francisco, CA, 94609

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