Kuyenda ndi Hemophilia A: Zomwe Muyenera Kudziwa Musanapite

Zamkati

• Onetsetsani kuti muli ndi inshuwaransi yapaulendo
• Bweretsani chinthu chokwanira
• Sanjani mankhwala anu
• Musaiwale kalata yanu yoyendera
• Yang'anani musanadumphe
• Fikirani
• Musaope kupempha thandizo
• Valani chinthu chochenjeza azachipatala
• Onetsetsani infusions
• Ndipo kumene, sangalalani!

Dzina langa ndine Ryanne, ndipo anandipeza ndi matenda a hemophilia A ndili ndi miyezi isanu ndi iwiri. Ndayenda kwambiri kudutsa Canada, mpaka pang'ono, United States. Nawa ena mwa malangizo anga oyenda ndi hemophilia A.

Onetsetsani kuti muli ndi inshuwaransi yapaulendo

Kutengera komwe mukupita, ndikofunikira kukhala ndi inshuwaransi yoyendera yomwe imafotokoza zomwe zidalipo kale. Anthu ena ali ndi inshuwaransi kudzera kusukulu kapena owalemba ntchito; nthawi zina ma kirediti kadi amapereka inshuwaransi yaulendo. Chachikulu ndikuti awonetsetse kuti akwaniritsa zomwe zidalipo, monga hemophilia A. Ulendo wopita kuchipatala kudziko lina popanda inshuwaransi ukhoza kukhala wokwera mtengo.

Bweretsani chinthu chokwanira

Onetsetsani kuti mwabwera ndi zinthu zokwanira pamaulendo anu. Zomwe mungachite, ndizofunikira kuti mukhale ndi zomwe mukufuna mukakhala kuti mulibe (ndi zina zowonjezera pakagwa vuto ladzidzidzi). Izi zikutanthauzanso kulongedza masingano okwanira, mabandeji, ndi swabs swabs. Tonsefe timadziwa kuti nthawi zina katundu amatayika, chifukwa chake ndi bwino kunyamula izi popita nazo. Ndege zambiri sizilipiritsa ndalama zowonjezera pakathumba konyamula.

Sanjani mankhwala anu

Onetsetsani kuti mwanyamula mankhwala aliwonse omwe mumafuna mu botolo lawo loyambirira (komanso muthumba lanu!). Onetsetsani kuti mwanyamula zokwanira ulendo wanu wonse. Ine ndi amuna anga timaseka kuti mumangofunika pasipoti yanu ndi mankhwala anu kuti muyende; mutha kusintha china chilichonse ngati zingafunike!

Musaiwale kalata yanu yoyendera

Mukamayenda, nthawi zonse zimakhala bwino kubweretsa kalata yapaulendo yolembedwa ndi dokotala wanu. Kalatayo imatha kukhala ndi chidziwitso chazomwe mumanyamula, mankhwala aliwonse omwe mukufuna, komanso dongosolo la chithandizo mukadzafunika mupite kuchipatala.

Yang'anani musanadumphe

Lamulo labwino la chala chachikulu ndikuti muwone ngati komwe mukupitako kuli ndi malo opangira hemophilia m'derali. Ngati ndi choncho, mutha kulumikizana ndi chipatala ndikuwapatsa mutu kuti mukukonzekera ulendo wopita mumzinda wawo (kapena mzinda wapafupi). Mutha kupeza mndandanda wazachipatala za hemophilia pa intaneti.

Fikirani

Gulu la hemophilia, mwa zomwe ndakumana nazo, limakhala logwirizana komanso lothandiza. Nthawi zambiri, pali magulu olimbikitsa anthu m'mizinda yayikulu yomwe mungafikire ndikulumikizana nawo pamaulendo anu. Amatha kukuthandizani kuyenda m'malo anu atsopanowa. Amathanso kunena zokopa zakomweko!

Musaope kupempha thandizo

Kaya mukuyenda nokha kapena ndi wokondedwa wanu, musaope kupempha thandizo. Kupempha thandizo ndi katundu wolemera kungakhale kusiyana pakati pa kusangalala ndi tchuthi chanu, kapena kugwiritsa ntchito kama pabedi ndi magazi. Ndege zambiri zimapereka ma wheelchair komanso thandizo pazipata. Muthanso kufunsanso chipinda china chamiyendo kapena mupemphe mipando yapadera ngati mungayimbire ndegeyo pasanapite nthawi.

Valani chinthu chochenjeza azachipatala

Aliyense amene ali ndi matenda osachiritsika ayenera kuvala chibangili chachipatala kapena mkanda nthawi zonse (iyi ndi nsonga yothandiza ngakhale simukuyenda). Kwa zaka zambiri, makampani ambiri adatuluka ndi zosankha zokongola kuti zigwirizane ndi umunthu wanu komanso moyo wanu.

Onetsetsani infusions

Onetsetsani kuti mukusunga mbiri yabwino ya infusions yanu mukamayenda. Mwanjira imeneyi mudzadziwa kuchuluka kwa zinthu zomwe mwatenga. Mutha kukambirana zovuta zilizonse ndi a hematologist mukabwerera kwanu.

Ndipo kumene, sangalalani!

Ngati mwakonzeka mokwanira, kuyenda kumakhala kosangalatsa komanso kosangalatsa (ngakhale ndimatenda amwazi). Yesetsani kulola kupsinjika kwa zosadziwika kukulepheretsani kusangalala ndiulendo wanu.

Ryanne amagwira ntchito ngati wolemba paokha ku Calgary, Alberta, Canada. Ali ndi blog yophunzitsira azimayi omwe ali ndi vuto lotaya magazi lotchedwa Hemophilia ndi ya Atsikana. Komanso ndiwodzipereka pantchito ya hemophilia.