Kodi Leber congenital amaurosis ndi momwe mungachiritsire

Zamkati

• Momwe mungachiritse ndikukhala ndi matendawa
• Zizindikiro zazikulu ndi momwe mungadziwire
• Momwe mungatengere matendawa

Leber congenital amaurosis, yomwe imadziwikanso kuti ACL, Leber's syndrome kapena Leber cholowa cha optic neuropathy, ndi matenda osachiritsika obadwa nawo omwe amachititsa kusintha kwakanthawi pamagetsi am'manja, omwe ndi minofu yamaso yomwe imazindikira kuwunika ndi utoto, kuyambitsa kutaya kwamaso kuyambira pakubadwa komanso mavuto ena amaso, monga kuzindikira kuwala kapena keratoconus, mwachitsanzo.

Nthawi zambiri, mwana yemwe ali ndi matendawa sawonetsa kuti matenda akuwonjezeka kapena kuchepa m'masiku, koma amakhala ndi masomphenya ochepa, omwe, nthawi zambiri, amangolola kusuntha, mawonekedwe ndi kusintha kwa kuwala.

Leber congenital amaurosis ilibe mankhwala, koma magalasi apadera ndi njira zina zosinthira zitha kugwiritsidwa ntchito kuyesa kukonza masomphenya ndi moyo wamwana. Nthawi zambiri, anthu omwe ali ndi matendawa m'banja, amafunika kupanga upangiri wa majini asanayese kutenga pakati.

Momwe mungachiritse ndikukhala ndi matendawa

Kubadwa kwa Leber Amaurosis sikuipiraipira pazaka zambiri, chifukwa chake, mwanayo amatha kuzolowera masomphenya popanda zovuta zambiri. Komabe, nthawi zina, kungakhale bwino kugwiritsa ntchito magalasi apadera kuti musinthe pang'ono masomphenya.

Nthawi yomwe masomphenya ndi otsika kwambiri, zitha kukhala zothandiza kuphunzira braille, kudziwa kuwerenga mabuku, kapena kugwiritsa ntchito galu wowongolera kuti muziyenda mumsewu, mwachitsanzo.

Kuphatikiza apo, dokotala wa ana atha kulimbikitsanso kugwiritsa ntchito makompyuta omwe amasinthidwa ndi anthu omwe ali ndi vuto lochepa kwambiri, kuti athandize kukula kwa mwanayo ndikuloleza kuyanjana ndi ana ena. Chipangizochi chimathandiza kwambiri kusukulu, kuti mwanayo azitha kuphunzira mofanana ndi anzawo.

Zizindikiro zazikulu ndi momwe mungadziwire

Zizindikiro za kubadwa kwa amaerosis kwa Leber ndizofala kwambiri mchaka choyamba ndipo zimaphatikizapo:

• Zovuta kugwirira zinthu zapafupi;
• Zovuta kuzindikira nkhope zodziwika akachoka;
• Kusuntha kwamaso kosazolowereka;
• Hypersensitivity kuunika;
• Khunyu;
• Kuchedwa kutukuka kwa mota.

Matendawa sangadziwike panthawi yapakati, komanso samapangitsa kusintha kwa kapangidwe ka diso. Mwanjira imeneyi, dokotala wa ana kapena ophthalmologist amatha kuyesa kangapo kuti athetse malingaliro ena omwe angayambitse zizindikilozo.

Nthawi zonse pakakhala kukayikira kwamasomphenya m'mwana, tikulimbikitsidwa kukaonana ndi adotolo kuti akayese masomphenya, monga electroretinography, kuti azindikire vutoli ndikuyamba chithandizo choyenera.

Momwe mungatengere matendawa

Ichi ndi matenda obadwa nawo ndipo, chifukwa chake, amafalikira kuchokera kwa makolo kupita kwa ana.Komabe, kuti izi zichitike, makolo onse ayenera kukhala ndi jini la matenda, ndipo sikofunikira kuti kholo lililonse lidwale matendawa.

Chifukwa chake, ndizofala kuti mabanja asamapereke matendawa kwa mibadwo ingapo, popeza pali 25% yokha yofalitsa matendawa.