Kwa Omwe Amasamalira Winawake Amene Ali ndi Matenda a Parkinson, Pangani Mapulani Apano

Ndinali ndi nkhawa kwambiri mwamuna wanga atandiuza koyamba kuti akudziwa kuti china chake sichili bwino. Anali woyimba, ndipo usiku wina ku gig, samatha kusewera gitala. Zala zake zinali zitaundana. Tinayamba kuyesa kupeza dokotala, koma pansi pamtima, tinkadziwa kuti anali chiyani. Amayi ake anali ndi matenda a Parkinson, ndipo tinkangodziwa.

Titatulutsidwa m'chaka cha 2004, zonse zomwe ndimamva zinali mantha. Mantha amenewo adatha ndipo sanachoke. Ndizovuta kukulunga mutu wanu mozungulira. Kodi m'tsogolomu zinthu zidzakhala bwanji? Kodi ndingakhale mkazi wokwatiwa ndi munthu amene ali ndi matenda a Parkinson? Kodi ndingakhale wosamalira? Kodi ndikadakhala wamphamvu mokwanira? Kodi ndingakhale wopanda kudzikonda mokwanira? Ichi chinali chimodzi mwa mantha anga akulu. M'malo mwake, ndili ndi manthawa tsopano kuposa kale.

Panthawiyo, kunalibe zambiri kunja uko zokhudzana ndi mankhwala ndi chithandizo, koma ndimayesetsa kudziphunzitsa ndekha momwe ndingathere. Tinayamba kupita kumagulu othandizira kuti tikaphunzire zomwe tingayembekezere, koma izi zinali zokhumudwitsa kwambiri kwa amuna anga. Pa nthawiyo anali bwino, ndipo anthu omwe anali m'magulu othandizira sanali. Mwamuna wanga anandiuza, “Sindikufunanso kupita. Sindikufuna kukhumudwa. Sindine wofanana nawo. ” Chifukwa chake tidasiya.

Ndimamva bwino kwambiri momwe mamuna wanga anafikira matenda ake. Adali wokhumudwa kwakanthawi kochepa koma pamapeto pake adaganiza zokhala ndi nyanga ndikusangalala mphindi iliyonse. Ntchito yake idakhala yofunika kwambiri kwa iye, koma atazindikira, banja lake lidayamba. Zinali zazikulu. Adayamba kutiyamikira. Chidwi chake chinali cholimbikitsa.

Tinadalitsidwa ndi zaka zambiri zabwino, koma zomalizira zakhala zovuta. Dyskinesia yake ndi yoyipa kwambiri tsopano. Amagwa kwambiri. Kumuthandiza kungakhale kokhumudwitsa chifukwa amadana ndi kuthandizidwa. Adzandichotsera. Ndikamayesetsa kumuthandiza pa chikuku chake ndipo sindine wangwiro, amandikalipira. Zimandikwiyitsa, choncho ndimakonda kuseka. Ndipanga nthabwala. Koma ndili ndi nkhawa. Ndine wamanjenje sindichita ntchito yabwino. Ndimamva kwambiri.

Ndiyeneranso kupanga zisankho zonse tsopano, ndipo gawolo ndi lovuta kwambiri. Mwamuna wanga ankakonda kupanga zisankho, koma sangathenso. Adapezeka ndi matenda amisala a Parkinson ku 2017. Chimodzi mwazinthu zovuta kwambiri ndikudziwa zomwe ndingamulole kuti achite ndi zomwe sindingathe. Ndichotsa chiyani? Adagula galimoto posachedwa popanda chilolezo changa, ndiye ndikumulanda khadi yake yangongole? Sindikufuna kuchotsa kunyada kwake kapena zomwe zimamupangitsa kukhala wosangalala, koma mbali yomweyo, ndikufuna kumuteteza.

Ndimayesetsa kuti ndisamaganizire zakukhosi. Iwo alipo; Sindikungonena. Ndikudziwa kuti zimandikhudza. Kuthamanga kwa magazi kwanga ndikokwera ndipo ndikulemera kwambiri. Sindimadzisamalira ndekha momwe ndimakhalira. Ndili munjira yoyatsira moto anthu ena. Ndidawatulutsa onse m'modzi. Ngati ndatsalira ndi nthawi iliyonse ndekha, ndimapita kokayenda kapena kusambira. Ndikufuna kuti wina andithandizire kupeza njira zothanirana ndi mavutowa, koma sindikufuna kuti anthu azindiuza kuti ndizikhala ndi nthawi yopanda pandekha. Ndikudziwa kuti ndiyenera kuchita izi, ndi nkhani yopeza nthawiyo.

Ngati mukuwerenga izi ndipo wokondedwa wanu wapezeka kuti ali ndi Parkinson, musayese kuganiza kapena kuda nkhawa zamtsogolo za matendawa. Ndicho chinthu chabwino kwambiri chomwe mungachite kwa inu nokha ndi wokondedwa wanu. Sangalalani ndi sekondi iliyonse yomwe muli nayo ndikupanga mapulani ambiri momwe mungathere pakadali pano.

Ndikumva chisoni kuti sindidzakhala "wokondwa mpaka kalekale," ndipo ndikudzimvanso kukhala wolakwa chifukwa cholephera kupirira apongozi anga pomwe anali amoyo ndikukhala ndi matendawa. Zochepa zinali kudziwika nthawi imeneyo. Awa ndi okhawo omwe ndimanong'oneza nawo bondo, ngakhale ndimawona kuti mwina ndidzanong'oneza bondo mtsogolo, matenda a mamuna wanga akukulirakulira.

Ndikuganiza kuti ndizodabwitsa kuti tili ndi zaka zambiri ndikumachita zomwe tidachita. Tinapita kutchuthi chosaneneka, ndipo tsopano tili ndi zokumbukira zabwino kwambiri monga banja. Ndine woyamikira chifukwa chokumbukira izi.

Modzipereka,

Abbe Aroshas

Abbe Aroshas adabadwira ku Rockaway, New York. Anamaliza maphunziro awo ngati salutatorian mkalasi yake yasekondale ndikupita ku Brandies University komwe adalandira digiri yoyamba. Anapitiliza maphunziro ake ku University ya Columbia ndipo adapeza digiri ya udokotala wa mano. Ali ndi ana akazi atatu, ndipo tsopano amakhala ku Boca Raton, Florida ndi amuna awo, Isaac ndi mwana wawo wachinyamata, Smokey Moe.