Cystic Fibrosis ndi Mimba

Zamkati

• Zotsatira za kutenga mimba
• Kuyesedwa nthawi yapakati
• Malangizo a moyo
• Idyani bwino
• Chitani masewera olimbitsa thupi
• Malangizo ena owonetsetsa kuti ali ndi pakati
• Mankhwala oti mupewe muli ndi pakati
• Malangizo okhalira ndi pakati pa cystic fibrosis
• Tengera kwina

Mukakhala ndi cystic fibrosis, ndizotheka kutenga pakati ndikunyamula mwana mpaka nthawi. Komabe, muyenera kuyang'aniridwa mosamala m'miyezi isanu ndi inayi iyi kuti muwonetsetse kuti inu ndi mwana wanu muli ndi thanzi labwino.

Kuti mudzipatse mwayi wabwino wokhala ndi pakati, onani olera omwe ali pachiwopsezo chachikulu musanayese kutenga pakati.

Katswiriyu:

• onaninso zaumoyo wanu
• onetsetsani ngati zili bwino kuti mukhale ndi pakati
• kukutsogolerani kupyola pakati

Mudzagwiranso ntchito limodzi ndi pulmonologist yemwe amachiza cystic fibrosis yanu panthawi yonse yomwe muli ndi pakati.

Nayi chithunzithunzi cha zomwe mungayembekezere mukayamba kukonzekera banja.

Zotsatira za kutenga mimba

Pakati pa mimba, zizindikiro zanu za cystic fibrosis zikhoza kuwonjezeka. Mwana amene akukula amatha kupanikizika m'mapapu anu ndikupangitsa kuti kupuma kukhale kovuta. Kudzimbidwa kumakhalanso kofala kwa amayi omwe ali ndi cystic fibrosis.

Zovuta zina zotenga mimba ya cystic fibrosis ndi monga:

• Kutumiza msanga. Apa ndipamene mwana wanu amabadwa asanakwane sabata la 37 la mimba. Ana omwe amabadwa msanga kwambiri ali pachiwopsezo chazovuta monga kupuma movutikira komanso matenda.
• Matenda a shuga. Apa ndi pamene mayi amakhala ndi shuga wambiri wamagazi panthawi yomwe ali ndi pakati. Matenda a shuga amatha kuwononga ziwalo monga impso ndi maso. Zingathenso kuyambitsa mavuto m'mwana wakhanda.
• Kuthamanga kwa magazi (matenda oopsa). Izi ndizowonjezera kukana chifukwa cha mitsempha yamagazi yolimba. Kuthamanga kwa magazi kukakhala kwakukulu panthawi yapakati, kumatha kuchepetsa magazi kupita kwa mwana wanu, kumachepetsa kukula kwa mwana wanu, ndikupangitsa kuti abereke msanga.
• Kuperewera kwa zakudya. Izi zitha kuteteza mwana wanu kuti asakule mokwanira m'mimba.

Kuyesedwa nthawi yapakati

Pali kuthekera komwe mungadutse cystic fibrosis kwa mwana wanu. Kuti izi zichitike, mnzanu amafunikanso kunyamula jini yosazolowereka. Wokondedwa wanu akhoza kukayezetsa magazi kapena malovu musanakhale ndi pakati kuti muwone ngati wanyamula.

Pakati pa mimba, mayesero awiriwa asanabadwe amayang'ana kusintha kwamitundu yambiri. Amatha kuwonetsa ngati mwana wanu atha kukhala ndi cystic fibrosis kapena atenge gawo limodzi mwazomwe zimadziwika kuti zimayambitsa cystic fibrosis:

• Chorionic villus sampling (CVS) imachitika pakati pa masabata a 10 ndi 13 a mimba. Dokotala wanu amalowetsa singano yayitali, yopyapyala m'mimba mwanu ndipo amachotsa minofu kuti ayesedwe. Mosiyana ndi izi, adotolo amatha kutenga nyemba pogwiritsa ntchito chubu chowonda chomwe chimayikidwa m'chibelekero chanu komanso poyamwa pang'ono.
• Amniocentesis yachitika pakati pa masabata a 15 ndi 20 a mimba yanu. Dokotala amalowetsa singano yopyapyala, yopanda kanthu m'mimba mwanu ndikuchotsani madzi amniotic ozungulira mwana wanu. Labu imayesa madzi amadzimadzi a cystic fibrosis.

Mayesowa asanabadwe atha kutenga madola masauzande ochepa, kutengera komwe mwachita kale. Ndondomeko zambiri za inshuwaransi yazaumoyo zithandizira azimayi azaka zopitilira 35 komanso azimayi omwe ali pachiwopsezo chodziwika.

Mukadziwa ngati mwana wanu ali ndi cystic fibrosis, mutha kupanga zisankho zamtsogolo pathupi lanu.

Malangizo a moyo

Kukonzekera pang'ono ndi chisamaliro chowonjezera mukakhala ndi pakati kudzakuthandizani kuwonetsetsa zotsatira zabwino kwa inu ndi mwana wanu. Nazi zinthu zingapo zomwe mungachite.

Idyani bwino

Cystic fibrosis imapangitsa kuti zikhale zovuta kupeza chakudya choyenera panthawi yapakati. Mukamadya ziwiri, ndikofunikira kwambiri kuti mupeze mafuta okwanira ndi michere.

Dokotala wanu angakulimbikitseni kuti muyambe kutenga pakati ndi mndandanda wamagulu osachepera 22. Ngati BMI yanu ili yocheperako, mungafunikire kuwonjezera kuchuluka kwa kalori musanatenge mimba.

Mukakhala ndi pakati, mufunika ma calories owonjezera 300 tsiku lililonse. Ngati simungathe kufikira chiwerengerocho ndi chakudya chokha, imwani zowonjezera zakudya.

Nthawi zina matenda am'mawa kapena cystic fibrosis amatha kukulepheretsani kupeza zopatsa mphamvu zokwanira zosowa za mwana wanu. Poterepa, adotolo angakulimbikitseni kuti mupeze chakudya chokwanira kudzera m'mitsempha. Izi zimatchedwa zakudya za makolo.

Nawa malangizo ena ochepa azaumoyo omwe mungatsatire mukakhala ndi pakati:

• Imwani madzi ambiri, idyani zipatso ndi ndiwo zamasamba zambiri, komanso onjezerani fiber pazakudya zanu kuti mupewe kudzimbidwa.
• Onetsetsani kuti mwapeza folic acid, chitsulo, ndi vitamini D. wokwanira. Zakudya izi ndizofunikira pakukula kwa mwana wanu. Nthawi zina anthu omwe ali ndi cystic fibrosis samapeza okwanira.

Chitani masewera olimbitsa thupi

Kuchita masewera olimbitsa thupi ndikofunikira kuti thupi lanu likhale loberekera komanso kuti mapapu anu akhale athanzi. Dokotala wanu angakulimbikitseni kuti muchite masewera olimbitsa thupi kuti mulimbitse minofu yomwe imakuthandizani kupuma. Funsani dokotala wanu poyamba kuti zomwe mumachita ndizabwino kwa inu.

Komanso, funsani katswiri wa zamankhwala musanayambe pulogalamu iliyonse yatsopano. Mufunikira zakudya zokwanira kuti muthandizire kuchuluka kwama kalori.

Malangizo ena owonetsetsa kuti ali ndi pakati

Onani madokotala anu nthawi zambiri. Konzani maulendo obwera pafupipafupi ndi azimayi anu omwe ali pachiwopsezo chachikulu, komanso pitilizani kuwona dokotala yemwe amachiza cystic fibrosis yanu.

Onetsetsani thanzi lanu. Pitirizani kuwonjezera pa zinthu monga matenda a shuga ndi matenda a chiwindi, ngati muli nawo. Matendawa amatha kuyambitsa zovuta za mimba ngati simukuwathandiza.

Khalani pa mankhwala anu. Pokhapokha ngati dokotala wakuwuzani kuti musiye mankhwala ali ndi pakati, tengani pafupipafupi kuti muzitha kugwiritsa ntchito cystic fibrosis yanu.

Mankhwala oti mupewe muli ndi pakati

Mankhwala ndi gawo lofunikira pakuwongolera cystic fibrosis. Nkhani yabwino ndiyakuti, mankhwala ambiri omwe amathandizira matendawa amawerengedwa kuti ndi otetezeka kwa mwana wanu.

Komabe, pali mankhwala ochepa omwe muyenera kugwiritsa ntchito mosamala. Pali mwayi wochepa woti atha kukulitsa chiwopsezo cha kupunduka kwa kubadwa kapena mavuto ena mwa mwana wanu wosabadwa. Mankhwala owonera ndi awa:

• maantibayotiki monga ciprofloxacin (Cipro), clarithromycin, colistin, doxycycline (Oracea, Targadox), gentamicin (Gentak), imipenem (Primaxin IV), meropenem (Merrem), metronidazole (MetroCream, Noritate), rifampin (Rifadin), trimethoprim Bactrim), vancomycin (Vancocin)
• mankhwala oletsa antifungal monga fluconazole (Diflucan), ganciclovir (Zirgan), itraconazole (Sporanox), posaconazole (Noxafil), voriconazole (Vfend)
• mankhwala osokoneza bongo monga acyclovir (Zovirax)
• bisphosphonates kulimbitsa mafupa
• cystic fibrosis mankhwala ngati ivacaftor (Kalydeco) ndi lumacaftor / ivacaftor (Orkambi)
• ranitidine (Zantac) yothana ndi kutentha pa chifuwa komanso gastroesophageal Reflux
• Thirani mankhwala kuti mupewe kukanidwa, monga azathioprine (Azasan), mycophenolate
• ursodiol (URSO Forte, URSO 250) kupasuka ma gallstones

Lankhulani ndi dokotala ngati mutamwa mankhwalawa. Muyenera kuyeza maubwino ndi kuopsa kokhala pamankhwala aliwonse omwe angayambitse mavuto nthawi yapakati. Dokotala wanu akhoza kukusinthanitsani ndi mankhwala ena mpaka mutabereka.

Malangizo okhalira ndi pakati pa cystic fibrosis

Amayi ambiri omwe ali ndi vutoli amatha kutenga pakati, koma zimatha kutenga nthawi yayitali kuposa masiku onse. Cystic fibrosis imakulitsa mamina m'thupi lonse - kuphatikiza mamina m'mimba mwa chiberekero. Mafinya okwanira amalepheretsa umuna wa munthu kusambira m'chibelekero ndikutulutsa dzira.

Kuperewera kwa zakudya kumatha kukulepheretsani kutulutsa mazira pafupipafupi. Nthawi iliyonse mukatuluka, ovary yanu imatulutsa dzira kuti likhale ndi umuna. Popanda dzira mwezi uliwonse, simungathe kutenga pakati mosavuta.

Ngati mwayesa kutenga miyezi ingapo kuti mukhale ndi pakati, koma simunachite bwino, lankhulani ndi katswiri wa chonde. Mankhwala owonjezera dzira lanu kapena matekinoloje othandizira kubereka monga in-vitro feteleza angakuthandizeni kuti mukhale ndi pakati.

Amuna omwe ali ndi cystic fibrosis amasowa kapena amakhala ndi chotchinga mu chubu chomwe chimanyamula umuna kuchokera ku testicle kupita ku urethra kuti umveke. Chifukwa cha ichi, ambiri sangathe kutenga pakati mwachilengedwe.

Iwo ndi mnzake adzafunika IVF kutenga pakati. Pakati pa IVF, dotolo amachotsa dzira mwa mkazi ndi umuna mwa mwamunayo, amaziphatikiza m'mbale ya labotale, ndikusamutsira mwana wosabadwa m'mimba mwa mayi.

Musanayambe IVF, lankhulani ndi dokotala yemwe amachiza cystic fibrosis yanu. Muyenera kusintha mankhwala anu, chifukwa cystic fibrosis imatha kukhudza kuyamwa kwa mahomoni ofunikira IVF.

Tengera kwina

Kukhala ndi cystic fibrosis sikuyenera kukulepheretsani kuyamba banja. Kukhala ndi pakati kumangotenga kukonzekera pang'ono ndikusamalira.

Mukakhala ndi pakati, gwirani ntchito limodzi ndi onse omwe ali pachiwopsezo chachikulu komanso dokotala yemwe amachiza cystic fibrosis yanu. Mufunika chisamaliro chabwino panthawi yonse yomwe muli ndi pakati kuti muwonetsetse zotsatira zabwino kwa inu ndi mwana wanu.