Momwe Ndidaphunzirira Kundikumbatira Ndithandizire Kuyenda pa Advanced MS

Zamkati

• Kukumana ndi mantha anu a ndodo, oyenda, ndi olumala
• Kuvomereza zenizeni zanu zatsopano
• Kukumbukira kiyi wanu watsopano wodziyimira panokha
• Kutenga

Multiple sclerosis (MS) itha kukhala matenda opatula kwambiri. Kulephera kuyenda kumatha kutipangitsa ife omwe tikukhala ndi MS kumva kukhala akutali kwambiri.

Ndikudziwa kuchokera pazomwe ndakumana nazo kuti ndizovuta kwambiri kuvomereza mukafunika kuyamba kugwiritsa ntchito njira yothandizira ngati ndodo, woyenda, kapena wilutcheya.

Koma ndidazindikira mwachangu kuti kugwiritsa ntchito zida izi ndibwino kuposa njira zina, monga kugwa pansi ndikudzivulaza kapena kudzimva kuti mwasiyidwa ndikutaya kulumikizana kwanu.

Ichi ndichifukwa chake ndikofunikira kusiya kuganiza zamagetsi osunthira ngati zizindikilo za chilema, ndipo m'malo mwake yambani kuwawona ndikuwagwiritsa ntchito ngati kiyi wodziyimira panokha.

Kukumana ndi mantha anu a ndodo, oyenda, ndi olumala

Kunena zowona, ndimavomereza kuti nthawi zambiri ndimakhala munthu yemwe amandiwopa kwambiri ndikapezeka ndi MS zaka zoposa 22 zapitazo. Mantha anga akulu anali akuti tsiku lina ndidzadzakhala “mkazi amene ndidzayendera njinga ya olumala” imeneyo. Ndipo inde, ndi yemwe ndili tsopano patadutsa zaka 2.

Zinanditengera nthawi kuvomereza kuti apa ndi pomwe matenda anga anali kunditengera. Ndikutanthauza, bwerani! Ndinali ndi zaka 23 zokha pamene dokotala wanga anandiuza mawu amene ndinkachita mantha kwambiri akuti: “Iwe uli ndi MS.”

Sizingatheke kuti zoipa, komabe, sichoncho? Ndinali nditangomaliza kumene digiri yanga yoyamba ku University of Michigan-Flint ndipo ndinali kuyamba ntchito yanga yoyamba "yayikulu" ku Detroit. Ndinali wachinyamata, woyendetsedwa, komanso wokonda kutchuka. MS sakanatha kundiyimira.

Koma pasanathe zaka 5 nditapezeka, sindinathe kuyesetsa kuyimirira njira ya MS komanso zomwe zimakhudza ine. Ndinali nditasiya kugwira ntchito ndipo ndinabwereranso kwa makolo anga chifukwa matenda anga anali ondilamulira msanga.

Kuvomereza zenizeni zanu zatsopano

Ndinayamba kugwiritsa ntchito ndodo pafupifupi chaka chimodzi nditapezeka. Miyendo yanga inali kugwedera ndipo inkandipangitsa kumva kuti ndine wosakhazikika, koma inali ndodo chabe. Palibe vuto lalikulu, sichoncho? Sindinkafunikira nthawi zonse, chifukwa chake lingaliro logwiritsa ntchito silinandivutitse kwenikweni.

Ndikulingalira zomwezo zitha kunenedwanso pakusuntha ndodo kupita ku ndodo ya quad kupita kokayenda. Zida zosunthira izi zinali mayankho anga ku matenda osaleka omwe amapitiliza kutchera myelin.

Ndimangoganiza, "Ndipitabe. Ndipitilizabe kusonkhana ndi anzanga pa chakudya chamadzulo ndi maphwando. ” Ndinali mwana ndipo ndinali ndi mtima wofuna kutchuka.

Koma zokhumba zanga zonse pamoyo sizinali zogwirizana ndi mathithi owopsa komanso opweteka omwe ndidapitilirabe ngakhale ndimakhala ndi zida zondithandizira.

Sindingathe kupitirizabe kukhala moyo wanga ndikuopa kuti nthawi ina ndikadzagwa pansi, ndikudabwa kuti matendawa adzandichitanso chiyani. Matenda anga anali atandilanda kulimba mtima kwambiri.

Ndinkachita mantha, kugundika, komanso kutopa. Njira yanga yomaliza inali njinga yamoto kapena njinga ya olumala. Ndidafunikira yamagalimoto chifukwa MS yanga idafooketsa mphamvu mmanja mwanga.

Kodi moyo wanga unafika bwanji pamenepa? Ndinali nditangomaliza kumene maphunziro awo kukoleji zaka 5 isanakwane ino.

Ngati ndikufuna kukhalabe ndi chitetezo komanso kudziyimira pawokha, ndimadziwa kuti ndiyenera kugula njinga yamoto. Ichi chinali chisankho chowawa popanga ngati 27 wazaka. Ndinachita manyazi ndipo ndinagonjetsedwa, ngati kuti ndinali kudzipereka kudwala. Ndidavomereza pang'onopang'ono chowonadi changa chatsopano ndikugula njinga yamoto yanga yoyamba.

Apa ndipamene ndidabwezeretsa moyo wanga mwachangu.

Kukumbukira kiyi wanu watsopano wodziyimira panokha

Ndikuvutikabe ndikudziŵa kuti MS yandiletsa kuyenda. Matenda anga atafikira ku MS yachiwiri, ndinayenera kupita pa njinga ya olumala. Koma ndimanyadira momwe ndakhalira kuyendetsa njinga ya olumala ngati kiyi wokhalira ndi moyo wabwino kwambiri.

Sindinalole kuti mantha andigonjetse. Popanda njinga yanga ya olumala, sindikadakhala ndi ufulu wokhala kunyumba yanga, kupeza digirii yanga, kuyenda ku United States, ndikukwatiwa ndi Dan, bambo wamaloto anga.

Dan ali ndi MS wobwezeretsanso, ndipo tidakumana pamwambo wa MS mu Seputembara 2002. Tidakondana, tinakwatirana mu 2005, ndipo takhala mosangalala kuyambira nthawi imeneyo. Dan sanandidziwe konse kuti ndiyenda ndipo sanachite mantha ndi chikuku changa.

Nazi zina zomwe takambirana zomwe ndizofunika kukumbukira: Sindikuwona magalasi a Dan. Ndizomwe amafunikira kuvala kuti awone bwino ndikukhala moyo wabwino.

Momwemonso, amandiwona, osati chikuku changa. Ndizomwe ndimafunikira kuti ndiyende bwino ndikukhala moyo wabwino ngakhale ndili ndi matendawa.

Kutenga

Mwa zovuta zomwe anthu omwe ali ndi MS amakumana nazo, kusankha ngati ndi nthawi yoti mugwiritse ntchito chida chothandizira kuyenda ndi chimodzi mwazovuta kwambiri.

Sizingakhale ngati izi ngati titasuntha momwe timaonera zinthu monga ndodo, zoyenda, ndi ma wheelchair. Izi zimayamba ndikuyang'ana kwambiri pazomwe amakulolani kuchita kuti mukhale ndi moyo wosangalatsa.

Malangizo anga kuchokera kwa munthu amene wakhala akuyendetsa njinga ya olumala pazaka 15 zapitazi: Tchulani chida chanu choyendera! Ma wheelchair anga amatchedwa Silver ndi Grape Ape. Izi zimakupatsani chidziwitso cha umwini, ndipo zimatha kukuthandizani kuti muzimuchitira monga mnzanu osati mdani wanu.

Pomaliza, yesani kukumbukira kuti kugwiritsa ntchito chida choyenda sikungakhale kwamuyaya. Pali chiyembekezo nthawi zonse kuti tonsefe tsiku lina tidzayendanso monga momwe tidayendera tisanapeze matenda a MS.

A Dan ndi a Jennifer Digmann ndiomwe akuchita nawo gawo la MS ngati olankhula pagulu, olemba, komanso othandizira. Amapereka pafupipafupi kwa awo blog yopambana, ndipo ndi olemba “Ngakhale MS, kuti Ngakhale MS, ”Nkhani zosimba za moyo wawo pamodzi ndi matenda ofoola ziwalo. Muthanso kuwatsata Facebook, Twitter, ndi Instagram.