Hailey Bieber Avumbulutsidwa Ali Ndi Chibadwa Chomwe Amamutcha Kuti Ectrodactyly — Koma Ndi Chiyani Icho?

Zamkati

• Kodi ectrodactyly ndi chiyani?
• Nchiyani chimayambitsa ectrodactyly?
• Onaninso za

Ma troll a pa intaneti apeza njira iliyonse yomwe angatsutsire matupi a anthu otchuka — ndichimodzi mwazinthu zoopsa kwambiri pazanema. Hailey Bieber, yemwe sanalankhulepo zamankhwala momwe zimakhudzira thanzi lake lam'mutu, posachedwa adapempha ma troll a Instagram kuti asiye "kuwotcha" gawo la mawonekedwe ake mwina simungayembekezere kuyang'aniridwa poyambirira: ma pinkies ake.

"Chabwino tiyeni tikambirane za pinky .. chifukwa ndakhala ndikuseka za izi kwamuyaya kuti ndikhoze kungouza aliyense chifukwa chake [ma pinki anga] ndi opotoka komanso owopsa," a Bieber adalemba mu Instagram Story kuti adawonetsa chithunzi cha pinky wake wowoneka, wovomerezeka, wopindika pang'ono.

Kenako akuti adagawana chithunzi chomwe chafufutidwa patsamba la Wikipedia pamtundu wotchedwa ectrodactyly, malinga ndi Tsiku Lililonse. "Ndili ndi chinthu chotchedwa ectrodactyly ndipo chimapangitsa zala zanga za pinki kuwoneka momwe zikuwonekera," a Bieber akuti adalemba pambali pa chithunzi cha Wikipedia, pa nyuzipepala yaku UK. "Ndizobadwa, ndakhala nazo moyo wanga wonse. Choncho anthu akhoza kusiya kundifunsa kuti 'wtf ndi yolakwika ndi zala zake za pinky.' " (Zokhudzana: Izi Zokhudza Ma social Media Zimapangitsa Kuti Kukhale Kosavuta Kuteteza Ndemanga Zachidani ndi Kulimbikitsa Kukoma Mtima)

Kodi ectrodactyly ndi chiyani?

Ectrodactyly ndi mtundu wa kupindika kwa dzanja / kugawanika kwa miyendo (SHFM), matenda amtundu "omwe amadziwika kuti pakhale zala zakumapazi kapena zala, zomwe nthawi zambiri zimaphatikizidwa ndi zikwapu m'manja kapena m'miyendo," malinga ndi National Organisation for Rare Kusokonezeka (NORD). Vutoli limatha kupatsa manja ndi mapazi mawonekedwe ngati "zikhadabo", ndipo nthawi zina, limatha kuyambitsa mawonekedwe pakati pa zala kapena zala (zotchedwa syndactyly), malinga ndi NORD.

Ngakhale SHFM imatha kupereka m'njira zosiyanasiyana, pali mitundu iwiri yayikulu. Yoyamba imatchedwa mitundu ya "lobster claw", momwe "nthawi zambiri palibe" chala chapakati; "kupindika kooneka ngati kondomu" pamalo a chala kumangogawaniza dzanja m'zigawo ziwiri (kupangitsa dzanja kuwoneka ngati chikhomera chifukwa chake dzinalo), malinga ndi NORD. Fomu iyi ya SHFM nthawi zambiri imachitika m'manja onse, ndipo imathanso kukhudza mapazi, bungwe. Monodactyly, mtundu wina waukulu wa SHFM, umatanthawuza zakusowa kwa zala zonse kupatula pinky, malinga ndi NORD.

Sizikudziwika bwinobwino kuti SHFM Bieber akuti ali ndi chiyani - zikuwonekeratu kuti ali ndi zala zonse 10 m'manja mwake - koma monga NORD amanenera, pali mitundu ingapo yamitundu yosiyanasiyana yomwe ingachitike ndi SHFM, komanso momwe zinthu zilili " mwachangu kwambiri." (Zogwirizana: Mtundu uwu wokhala ndi Matenda Abwino Akuthana Ndi Zofufuza)

Nchiyani chimayambitsa ectrodactyly?

Monga akunenera Bieber mu Instagram Stories yake, ectrodactyly ndi chibadwa, kutanthauza kuti omwe ali nawo amabadwa nawo (mwina chifukwa cha majini kapena kusintha kwa majini), malinga ndi Genetic and Rare Diseases Information Center (GARD). SHFM, nthawi zambiri, imatha kukhudza ana aamuna ndi aakazi mofanana. Pafupifupi mwana mmodzi mwa ana 18,000 aliwonse amabadwa ndi vuto linalake, malinga ndi NORD. Ngakhale SHFM imatha kukhudza anthu am'banja limodzi, vutoli limatha kukhala losiyana mwa munthu aliyense. Amadziwika chifukwa cha "mawonekedwe amthupi omwe amapezeka pakubadwa" komanso kusokonezeka kwa chigoba komwe kumadziwika ndi makina a X-ray, ikutero NORD.

Nthawi zambiri, anthu omwe ali ndi mtundu wa SHFM amakhala moyo wabwinobwino, ngakhale ena amakhala ndi "zovuta pakuchita bwino," kutengera momwe malformation awo aliri owopsa, malinga ndi NORD. Palinso "milandu yochepa kwambiri ya SHFM" yomwe nthawi zina imatsagana ndi kugontha, malinga ndi kafukufuku wa 2015 wofalitsidwa mu CHRISMED Journal ya Zaumoyo ndi Kafukufuku.

Kupatula Bieber, palibe anthu ambiri omwe ali ndi mtundu wina wa SHFM (kapena osachepera ambiri omwe akhala omasuka kuti ali ndi vutoli). Wogwirizira nkhani komanso wowonetsa zokambirana, Bree Walker pamapeto pake adadziwitsa anthu kuti ali ndi kachilombo koyambitsa matendawa (omwe amadziwika ndi zala ziwiri kapena zingapo zophatikizika). Kubwerera m'ma 80s, Walker adanena Anthu nthawi zambiri amamuchitira nkhanza monga kuyang'anitsitsa komanso kuyankha osafunsidwa kuchokera kwa alendo za momwe manja ndi mapazi ake amawonekera. Walker wakhala akukhala womenyera ufulu wolumala kwa omwe ali ndi mikhalidwe yofananira. (Zogwirizana: Jameela Jamil Wangowulula Kuti Ali ndi Ehlers-Danlos Syndrome)

Kumbali ya Bieber, sanafotokoze mwatsatanetsatane momwe, ndendende, ectrodactyly yakhudzira moyo wake, komanso sanatchulepo ngati ali ndi zolakwika zina kupatula mawonekedwe a chala chake cha pinki.

Izi zanenedwa, nthawi zonse ndi bwino kukumbukira kuti kuyankha pathupi la munthu wina sikosangalatsa.

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