Mabwalo 8 a MS Kumene Mungapeze Thandizo

Zamkati

• Kulumikiza kwa MS
• MSWorld
• MyMSTeam
• OdwalaNgatiMe
• Izi ndi MS
• Masamba a Facebook
• Kusintha MS
• Tengera kwina

Chidule

Pambuyo pa matenda a multiple sclerosis (MS), mutha kupeza uphungu kuchokera kwa anthu omwe akukumana ndi zokumana nazo zomwezi. Chipatala chakwanuko chitha kukudziwitsani ku gulu lothandizira. Kapena, mwina mumadziwa mnzanu kapena wachibale yemwe wapezeka ndi MS.

Ngati mukufuna gulu lotukuka, mutha kupita ku intaneti komanso mitundu yambiri yamabwalo ndi magulu othandizira omwe amapezeka kudzera m'mabungwe a MS komanso magulu odwala.

Izi zitha kukhala malo abwino kuyamba ndi mafunso. Mutha kuwerengenso nkhani kuchokera kwa ena omwe ali ndi MS ndikufufuza chilichonse chokhudzana ndi matendawa, kuchokera pakuwunika ndikuwachiza mpaka kubwereranso ndikukula.

Ngati mukusowa thandizo, mabwalo asanu ndi atatu awa a MS ndi malo abwino kuyamba.

Kulumikiza kwa MS

Ngati mwapezeka kuti muli ndi MS, mutha kulumikizana ndi anthu omwe akukhala ndi matendawa ku MS Connection. Kumeneko, mupezanso anthu omwe aphunzitsidwa kuyankha mafunso anu. Malumikizowo othandizira anzawo akhoza kukhala chinthu chothandiza mutangodziwa.

Magulu ang'onoang'ono mu MS Connection, monga Gulu Latsopano Lodziwika, apangidwa kuti agwirizane ndi anthu omwe akufuna thandizo kapena chidziwitso chokhudza mitu ina yokhudzana ndi matendawa. Ngati muli ndi wokondedwa wanu yemwe akukuthandizani kapena akusamalirani, atha kupeza Carepartner Support Group yothandiza komanso yothandiza.

Kuti mupeze masamba ndi zochitika za gululi, muyenera kupanga akaunti ndi MS Connection. Mabwalowa ndi achinsinsi ndipo muyenera kulowa kuti muwawone.

MSWorld

MSWorld idayamba mu 1996 ngati gulu la anthu asanu ndi limodzi ochezera. Masiku ano, tsambali limayendetsedwa ndi odzipereka ndipo limatumikira anthu oposa 220,000 omwe ali ndi MS padziko lonse lapansi.

Kuphatikiza pazipinda zochezera ndi ma board board, MSWorld imapereka malo abwinopo ndi malo opangira momwe mungagawire zinthu zomwe mudapanga ndikupeza malangizo okhala ndi moyo wabwino. Muthanso kugwiritsa ntchito mindandanda yazomwe zili patsamba lino kuti mupeze zidziwitso pamitu kuchokera kumankhwala mpaka zothandizira.

MyMSTeam

MyMSTeam ndi malo ochezera a anthu omwe ali ndi MS. Mutha kufunsa mafunso mgawo lawo la Q&A, werengani zolemba, ndikupeza chidziwitso kuchokera kwa anthu ena omwe ali ndi matendawa. Muthanso kupeza ena pafupi nanu omwe akukhala ndi MS ndikuwona zosintha za tsiku ndi tsiku zomwe amalemba.

OdwalaNgatiMe

Tsamba la PatientsLikeMe ndi chida chothandizira anthu omwe ali ndi matenda ambiri komanso mavuto azaumoyo.

Kanema wa MS wapangidwira makamaka anthu omwe ali ndi MS kuti aziphunzira kuchokera kwa anzawo ndikukhala ndi luso lotha kuyang'anira. Mamembala opitilira 70,000 ali mgululi. Mutha kusefa kudzera m'magulu omwe ali odzipereka ku mtundu wa MS, zaka, komanso zisonyezo.

Izi ndi MS

Nthawi zambiri, mabungwe azokambirana akale atha kulowa m'malo ochezera a pa Intaneti. Komabe, gulu lazokambirana Izi ndi MS limakhalabe logwira ntchito mwakhama pagulu la MS.

Magawo odzipereka kuchipatala ndi moyo amakulolani kufunsa mafunso ndikuyankha ena. Mukamva za chithandizo chatsopano kapena kuthekera komwe kungachitike, mutha kupeza ulusi mkati mwa tsambali womwe ungakuthandizeni kumvetsetsa nkhaniyo.

Masamba a Facebook

Mabungwe ambiri ndi magulu am'magulu amakhala ndi magulu a MS Facebook. Zambiri ndizokhoma kapena zachinsinsi, ndipo muyenera kupempha kuti mulowe nawo ndi kulandira chilolezo kuti mupereke ndemanga ndikuwona zolemba zina.

Gulu la anthuli, lomwe limasungidwa ndi Multiple Sclerosis Foundation, limakhala ngati malo oti anthu azifunsa mafunso ndikufotokozera nkhani pagulu la mamembala pafupifupi 30,000. Ma Admin a gululi amathandizira zolemba zochepa. Amagawana makanema, amapereka malingaliro atsopano, ndipo amatumiza mitu kuti akambirane.

Kusintha MS

ShiftMS ikufuna kuchepetsa kudzipatula komwe anthu ambiri omwe ali ndi MS akumva. Malo ochezera ochezerawa amathandizira mamembala ake kufunafuna zambiri, kupeza chithandizo chamankhwala, ndikupanga zisankho zothana ndi vutoli kudzera m'makanema komanso macheza.

Ngati muli ndi funso, mutha kutumiza kwa mamembala oposa 20,000. Muthanso kupitiliza mitu yosiyanasiyana yomwe yakambidwa kale. Zambiri zimasinthidwa pafupipafupi ndi mamembala amtundu wa ShiftMS.

Tengera kwina

Si zachilendo kumva kuti muli nokha mutalandira matenda a MS. Pali anthu masauzande ambiri pa intaneti omwe mungalumikizane nawo omwe akukumana ndi zomwezi ndikugawana nawo nkhani ndi upangiri wawo. Sungani madamu pamisonkhanoyi kuti mutha kubwerera kwa iwo mukafuna thandizo. Kumbukirani kuti nthawi zonse muzikambirana chilichonse chomwe mumawerenga pa intaneti ndi dokotala musanayese.