PANDAS: Upangiri wa Makolo

Zamkati

• Zizindikiro zake ndi ziti?
• Zimayambitsa chiyani?
• Ndani ali pachiwopsezo?
• Kodi amapezeka bwanji?
• Chithandizo chake ndi chiyani?
• Kuchiza matenda opatsirana
• Kuchiza zizindikiro zamaganizidwe
• Kodi pali zovuta zina zomwe zingachitike?
• Kodi ndingapeze kuti thandizo?
• Maganizo ake ndi otani?

Kodi PANDAS ndi chiyani?

PANDAS imayimira zovuta za ana zomwe zimayambitsa matenda a neuropsychiatric okhudzana ndi streptococcus. Matendawa amakhudza kusintha kwadzidzidzi komanso kwakukulu pamunthu, machitidwe, ndi mayendedwe mwa ana kutsatira matenda omwe akukhudzidwa Streptococcus pyogenes (streptococcal-Matenda).

Matenda opatsirana amatha kukhala ofatsa, osangopangitsa kuti pakhale kachilombo kakang'ono pakhungu kapena pakhosi. Komano, zimatha kuyambitsa zilonda zam'mero, malungo ofiira, ndi matenda ena. Strep imapezeka mkati pakhosi komanso pankhopa. Mumatenga kachilomboka munthu wodwala matendawa akatsokomola kapena kuyetsemula ndipo mumapuma m'madontho kapena kugwira malo owonongeka, kenako ndikumakhudza nkhope yanu.

Anthu ambiri omwe ali ndi matenda opatsirana amachira. Komabe, ana ena amakhala ndi zizindikiro zadzidzidzi zakuthupi ndi zamaganizidwe milungu ingapo atadwala. Akayamba, zizindikirozi zimangokulirakulirabe.

Pitirizani kuwerenga kuti mudziwe zambiri za zizindikiro za PANDAS, momwe amathandizidwira, komanso komwe mungapeze thandizo.

Zizindikiro zake ndi ziti?

Zizindikiro za PANDAS zimayamba mwadzidzidzi, pafupifupi milungu inayi kapena isanu ndi umodzi mutatha matenda opatsirana. Amaphatikizapo zizolowezi zofananira ndi matenda osokoneza bongo (OCD) ndi Tourette syndrome. Zizindikirozi zimatha kusokoneza maphunziro kusukulu ndipo zimayamba kufooketsa. Zizindikiro zimawonjezeka ndikufika pachimake nthawi zambiri m'masiku awiri kapena atatu, mosiyana ndi matenda ena amisala aubwana omwe amakula pang'onopang'ono.

Zizindikiro zamaganizidwe atha kukhala:

• zokakamira, zokakamiza, komanso zobwerezabwereza
• nkhawa zopatukana, mantha, komanso mantha
• Kufuula kosalekeza, kukwiya, komanso kusintha kwamaganizidwe pafupipafupi
• kusintha kwamalingaliro ndi chitukuko
• ziwonetsero zowoneka kapena zowonera
• kukhumudwa komanso malingaliro ofuna kudzipha

Zizindikiro zakuthupi zingaphatikizepo:

• ma tiki komanso mayendedwe achilendo
• chidwi chakuwala, mawu, ndi kukhudza
• kuwonongeka kwa maluso ang'onoang'ono oyendetsa magalimoto kapena zolemba pamanja zosavomerezeka
• kusakhudzidwa kapena kulephera kuyang'ana
• mavuto okumbukira
• kuvuta kugona
• kukana kudya, zomwe zingayambitse kuonda
• kupweteka pamodzi
• kukodza pafupipafupi komanso kukhathamira pabedi
• pafupi ndi dziko la catatonic

Ana omwe ali ndi PANDAS samakhala ndi zizindikilo izi nthawi zonse, koma nthawi zambiri amakhala ndi zosakaniza zingapo zakuthupi ndi zamisala.

Zimayambitsa chiyani?

Chifukwa chenicheni cha PANDAS ndi mutu wa kafukufuku wopitilira.

Nthano ina imanena kuti mwina chifukwa cha kusachita bwino kwa chitetezo cha mthupi ku strep matenda. Mabakiteriya oterewa ndi abwino kubisalira chitetezo cha mthupi. Amadzibisa okha ndi mamolekyulu omwe amafanana ndi mamolekyulu abwinobwino omwe amapezeka mthupi.

Chitetezo cha mthupi chimatha kugwira mabakiteriya a strep ndikuyamba kupanga ma antibodies. Komabe, kubisala kukupitilizabe kusokoneza ma antibodies. Zotsatira zake, ma antibodies amalimbana ndi minyewa ya thupi. Ma antibodies omwe amayang'ana gawo linalake la ubongo, basal ganglia, amatha kuyambitsa matenda a neuropsychiatric a PANDAS.

Zizindikiro zomwezo zimatha kubweretsedwa ndi matenda omwe samakhudza mabakiteriya a strep. Zikatero, amatchedwa matenda a ana-acute-onset neuropsychiatric syndrome (PANS).

Ndani ali pachiwopsezo?

PANDAS amatha kukula mwa ana azaka zapakati pa 3 ndi 12 omwe akhala ndi matenda opatsirana m'masabata anayi kapena asanu ndi limodzi apitawa.

Zina mwazomwe zingayambitse chiopsezo ndizophatikizira chibadwa ndi matenda omwe amabwerezabwereza.

Mwana wanu amakhala ndi kachilombo koyambitsa matendawa kumapeto kwa nthawi yophukira ndi kumayambiriro kwa masika, makamaka akakhala pafupi ndi magulu akuluakulu a anthu. Pofuna kuteteza matenda opatsirana, phunzitsani mwana wanu kuti asamagawane ziwiya zodyera kapena kumwa magalasi, komanso kusamba m'manja nthawi zambiri. Ayeneranso kupewa kukhudza maso ndi nkhope zawo momwe zingathere.

Kodi amapezeka bwanji?

Ngati mwana wanu akuwonetsa zachilendo atadwala matenda amtundu uliwonse, konzekerani ndi dokotala wanu nthawi yomweyo. Kungakhale kothandiza kusunga zolemba zofotokozera za zisonyezozi, kuphatikiza pomwe adayamba komanso momwe zimakhudzira moyo wa mwana wanu. Bweretsani mfundoyi, limodzi ndi mndandanda wazakumwa zilizonse zomwe mwana wanu amamwa kapena wamwa posachedwa, mukapita kukaonana ndi dokotala. Onetsetsani kuti mufotokoze matenda aliwonse omwe akhala akuyenda kusukulu kapena kunyumba.

Kuti mupeze matenda opatsirana, dokotala wanu amatha kutenga chikhalidwe cha pakhosi kapena kuyesa magazi. Komabe, palibe ma labotale kapena kuyesa kwamitsempha kuti mupeze PANDAS. M'malo mwake, dokotala wanu angafune kuyesa magazi ndi mkodzo osiyanasiyana kuti athetse matenda ena aubwana.

Kuzindikira kwa PANDAS kumafuna mbiri yakale yachipatala ndikuwunika kwakuthupi. Zomwe mungadziwire ndi izi:

• kukhala wazaka zitatu mpaka kutha msinkhu
• kuyambika mwadzidzidzi kapena kukulirakulira kwa zizindikiro zomwe zilipo kale, ndipo zizindikilo zimakhala zowopsa kwakanthawi
• kupezeka kwamakhalidwe okakamiza, kusokonezeka kwa maphunziro, kapena zonsezi
• umboni wazizindikiro zina zama neuropsychiatric, monga kusakhazikika, kusintha kwa malingaliro, kusintha kwa chitukuko, kapena nkhawa
• kachilombo koyambirira kapena kameneka kachilombo ka HIV, kamatsimikiziridwa ndi chikhalidwe cha mmero kapena kuyesa magazi

Chithandizo chake ndi chiyani?

Kuchiza PANDAS kumaphatikizapo kuthana ndi zizindikilo zakuthupi ndi zamisala. Poyamba, dokotala wa ana akuyang'ana pakuwonetsetsa kuti kachilombo ka strep katha. Muyeneranso kugwira ntchito ndi katswiri wololeza zamisala wodziwa OCD ndi PANDAS.

Kuchiza matenda opatsirana

Matenda opatsirana amachiritsidwa ndi maantibayotiki. Matenda ambiri opatsirana amachiritsidwa bwino ndi njira imodzi yokha ya maantibayotiki. Maantibayotiki ena omwe amagwiritsidwa ntchito pochiza strep ndi awa:

• amoxicillin
• azithromycin
• cephalosporin
• penicillin

Muyeneranso kulingalira kuti abale anu ena ayesedwe chifukwa cha strep chifukwa ndizotheka kunyamula mabakiteriya ngakhale mulibe zisonyezo. Pofuna kupewa kupatsanso kachilombo, tengani mswachi wa mwana wanu nthawi yomweyo ndikamaliza mankhwala awo onse.

Kuchiza zizindikiro zamaganizidwe

Zizindikiro zamisala zimatha kuyamba kusintha ndi maantibayotiki, koma amafunikirabe kuthandizidwa padera. OCD ndi matenda ena amisala nthawi zambiri amachiritsidwa ndimankhwala amisala.

OCD nthawi zambiri imayankha bwino posankha serotonin reuptake inhibitors, mtundu wa antidepressant. Zina mwazofala ndizo:

• fluoxetine
• fluvoxamine
• alirezatalischi
• paroxetine

Mankhwalawa amapatsidwa mankhwala ochepa kuti ayambe. Amatha kuwonjezeka pang'onopang'ono ngati kuli kofunikira.

Mankhwala ena amatsutsana ndipo amayenera kugamulidwa pamlanduwu. Madokotala ena amatha kupatsa corticosteroids, monga prednisone, kuti athe kusintha zizindikilo za OCD. Komabe, ma steroids amatha kupangitsa ma tiki kukhala ovuta kwambiri. Kuphatikiza apo, ma steroids akagwira ntchito, amatha kugwiritsidwa ntchito kwakanthawi kochepa. Pakadali pano, ma steroids samalimbikitsidwa pafupipafupi pochiza PANDAS.

Matenda ena ovuta a PANDAS sangayankhe mankhwala ndi mankhwala. Izi zikachitika, kusinthana kwa madzi am'magazi kuti muchotse ma antibodies olakwika m'magazi awo nthawi zina kumalimbikitsidwa. Katswiri wanu wamankhwala angakulimbikitseni kulandira mankhwala opatsirana pogwiritsa ntchito immunoglobulin. Njirayi imagwiritsa ntchito zopangira m'magazi zopatsa thanzi zopatsa thanzi kuti zithandizire chitetezo cha mwana wanu. Pomwe azachipatala ena amafotokoza kupambana ndi mankhwalawa, palibe kafukufuku wotsimikizira kuti amagwira ntchito.

Kodi pali zovuta zina zomwe zingachitike?

Zizindikiro za PANDAS zitha kusiya mwana wanu kuti asagwire ntchito kusukulu kapena m'malo ochezera. Popanda kuchiritsidwa, zizindikiro za PANDAS zitha kupitilirabe kukulira ndipo zimatha kuwononga chidziwitso chokhazikika. Kwa ana ena, PANDAS amatha kukhala ndi vuto lokhalokha lokhalokha.

Kodi ndingapeze kuti thandizo?

Kukhala ndi mwana ndi PANDAS kungakhale kovuta kwambiri chifukwa kumangobwera popanda chenjezo. Pakapita masiku angapo, mutha kuwona kusintha kwamakhalidwe modabwitsa popanda chifukwa chilichonse. Chowonjezera pavutoli ndikuti palibe mayeso amodzi a PANDAS, ngakhale njira zodziwitsira zakonzedwa. Ndikofunika kuonetsetsa kuti njirazi zakwaniritsidwa musanazindikire PANDAS.

Ngati mukumva kukhumudwa, ganizirani izi:

• PANDAS Network imapereka chidziwitso chambiri, nkhani zokhudzana ndi kafukufuku waposachedwa, ndi mindandanda ya madokotala ndi magulu othandizira.
• International OCD Foundation ili ndi chidziwitso chokhudza OCD mwa ana komanso pepala lotsitsa poyerekeza OCD ndi PANDAS ndi PANS. Izi ndizothandiza makamaka ngati dokotala wa ana sakudziwa bwino PANDAS.
• PANDAS Physicians Network imapereka PANDAS Practitioner Directory, nkhokwe yosaka ya madotolo omwe amadziwa PANDAS.

Mwana wanu angafunikire thandizo lina kusukulu. Lankhulani ndi aphunzitsi awo kapena oyang'anira masukulu za matendawa, tanthauzo lake, komanso momwe mungagwirire ntchito limodzi mokomera mwana wanu.

Maganizo ake ndi otani?

PANDAS sichinadziwike mpaka 1998, kotero palibe maphunziro a nthawi yayitali a ana omwe ali ndi PANDAS. Komabe, izi sizikutanthauza kuti mwana wanu sangakhale bwino.

Ana ena amakula msanga atayamba maantibayotiki, ngakhale zizindikilo zimatha kubwereranso ngati atapeza kachilombo koyambitsa matenda ena. Ambiri amachira popanda zizindikiritso zazitali. Kwa ena, limatha kukhala vuto lomwe limafunikira kugwiritsa ntchito maantibayotiki nthawi ndi nthawi popewa matenda omwe angayambitse mavuto.