Pityriasis Rubra Pilaris

Zamkati

• Mitundu ya pityriasis rubra pilaris
• Zithunzi za PRP
• Nchiyani chimayambitsa PRP?
• Kodi PRP idatengera chiyani?
• Zizindikiro za PRP ndi ziti?
• Kodi PRP imapezeka bwanji?
• Kodi zovuta zotheka ndi PRP ndi ziti?
• Kodi PRP imathandizidwa bwanji?
• Kodi ndingapewe PRP?
• Kodi PRP ichoka?
• Lankhulani ndi dokotala wanu

Chiyambi

Pityriasis rubra pilaris (PRP) ndi matenda osowa pakhungu. Amayambitsa kutupa nthawi zonse komanso kukhetsa khungu. PRP imatha kukhudza ziwalo za thupi lanu kapena thupi lanu lonse. Vutoli limayamba kuyambira ali mwana kapena munthu wamkulu. PRP imakhudza amuna ndi akazi chimodzimodzi.

Mitundu ya pityriasis rubra pilaris

Pali mitundu isanu ndi umodzi ya PRP.

Kuyamba kwachikale kwa achikulire PRP ndiye mtundu wofala kwambiri. Zimachitika munthu wamkulu. Zizindikiro zimatha patadutsa zaka zingapo. Nthawi zina, zizindikiro zimabweranso pambuyo pake.

Kuyamba kwa achikulire koyambirira kwa PRP kumayambanso munthu wamkulu. Komabe, zizindikirazo zimatha zaka zoposa 20.

Kuyamba kwachinyamata kwachinyamata PRP kumayamba ali mwana. Zizindikirozi zimatha chaka chimodzi, koma zimatha kubweranso pambuyo pake.

PRP yachinyamata yolembedwa yoyambira imayamba msinkhu wosatha msinkhu. Zimakhudza kwambiri mitengo ya kanjedza ya ana, mapazi awo, ndi mawondo awo ndi zigongono. Zizindikiro zimatha pakatha zaka zaunyamata.

Achinyamata oyambilira PRP nthawi zina amabadwa nawo. Izi zikutanthauza kuti wadutsa kudzera m'banja. Ikhoza kupezeka pobadwa kapena kukula kuyambira ali mwana. Zizindikiro nthawi zambiri zimakhala moyo wonse.

PRP yokhudzana ndi HIV imalumikizidwa ndi HIV. Ndizovuta kwambiri kuchiza.

Zithunzi za PRP

Nchiyani chimayambitsa PRP?

Zomwe zimayambitsa PRP sizikudziwika. PRP nthawi zambiri imapezeka popanda chifukwa chomveka. Ngakhale milandu ina ya PRP idatengera, ambiri sali. PRP yobadwa nayo imakhala yovuta kwambiri.

Kuyamba kwachikale kwa achikulire PRP kumatha kulumikizidwa ndi khansa yapakhungu yoyambitsa. Komabe, kangati khansa yapakhungu imachitika ndi mtundu uwu wa PRP sichidziwika. Ngati muli ndi PRP yoyambira, onetsetsani kuti mwawona dokotala wanu kuti akafufuze khansa yapakhungu.

Malinga ndi bungwe la National Organisation for Rare Disorders, kafukufuku woyambirira akuwonetsa kuti PRP itha kukhala chifukwa cha vuto momwe thupi limagwiritsira ntchito vitamini A. Komabe, kafukufuku wina amafunika kuti adziwe ngati izi ndi zowona.

PRP itha kulumikizananso ndi kuyankha kwamthupi, malinga ndi Genetic and Rare Diseases Information Center.

Kodi PRP idatengera chiyani?

PRP itha kubadwa. Mutha kulandira PRP ngati m'modzi mwa makolo anu adutsa jini lomwe limayambitsa vutoli. Kholo lanu limatha kukhala chonyamulira cha jini, zomwe zikutanthauza kuti ali ndi jini koma alibe matendawa. Ngati mmodzi wa makolo anu ali wonyamula jini, pali mwayi wa 50 peresenti kuti jiniyo idaperekedwa kwa inu. Komabe, mwina simungakhale ndi PRP ngakhale mutatengera jini.

Zizindikiro za PRP ndi ziti?

PRP imapangitsa zigamba zapinki, zofiira, kapena zofiira lalanje pakhungu lanu. Zigambazo nthawi zambiri zimakhala zoyipa. Mutha kukhala ndi zigamba pamakanda ena amthupi lanu. Nthawi zambiri zimachitika pa:

• zigongono
• mawondo
• manja
• mapazi
• akakolo

Khungu lomwe lili m'manja mwanu komanso pansi pa mapazi anu amathanso kukhala ofiira komanso akunenepa. Zikwangwani zimatha kufalikira thupi lonse.

Kodi PRP imapezeka bwanji?

PRP nthawi zambiri imasokonekera chifukwa cha khungu lina, lofala kwambiri, monga psoriasis. Zitha kutanthauzidwanso kuti ndizocheperako, monga lichen planus ndi pityriasis rosea. Psoriasis imadziwika ndi khungu loyera, lanthenda khungu lomwe nthawi zambiri limakhala lofiira. Komabe, mosiyana ndi PRP, psoriasis imatha kuchiritsidwa mosavuta komanso bwino. PRP sangapezeke mpaka mabalawo atalephera kuyankha mankhwala a psoriasis.

Ngati dokotala akukayikira kuti PRP, amatha kupanga khungu kuti awathandize kuzindikira. Pochita izi, dokotala wanu amachotsa khungu lanu pang'ono. Kenako amayang'ana pa makina oonera zinthu zing'onozing'ono kuti aifufuze bwinobwino.

Kodi zovuta zotheka ndi PRP ndi ziti?

Nthawi zambiri, PRP imatha kukhala yovuta komanso yosasangalatsa. Zizindikirozi zimatha kuchepa pakapita nthawi, ngakhale zotupa zikuwoneka ngati zikuipiraipira. Vutoli nthawi zambiri silimayambitsa zovuta zambiri.

Komabe, PRP Support Group ikunena kuti izi nthawi zina zimatha kubweretsa zovuta zina, monga ectropion. Momwemonso, chikope chimatulukira, ndikuwulula nkhope yake. PRP ikhozanso kuyambitsa mavuto ndikutulutsa pakamwa. Izi zitha kupangitsa kukwiya komanso kupweteka.

Popita nthawi, PRP imatha kubweretsa keratoderma. Magaziniyi imapangitsa khungu lanu m'manja ndi m'mapazi mwanu kukhala lolimba kwambiri. Ming'alu yakuya pakhungu, yotchedwa ming'alu, imatha kumera.

Anthu ena omwe ali ndi PRP amakhalanso ndi chidwi ndi kuwala. Atha kukhala ndi vuto kutuluka thukuta kapena kuwongolera kutentha kwa thupi pakatentha.

Kodi PRP imathandizidwa bwanji?

Palibe mankhwala apano a PRP, koma chithandizo chamankhwala chimatha kuthetsa zisonyezo. Dokotala wanu akhoza kukupatsani chithandizo chimodzi kapena zingapo izi:

• Mavitamini apadera okhala ndi urea kapena lactic acid. Izi zimapita molunjika pakhungu lanu.
• Retinoids pakamwa. Zitsanzo ndi isotretinoin kapena acitretin. Izi ndizomwe zimachokera ku vitamini A zomwe zimachedwetsa kukula ndi kukhetsa kwa khungu.
• Vitamini A. wamlomo Izi zitha kukhala zothandiza kwa anthu ena, koma pamlingo waukulu kwambiri. Retinoids ndi othandiza kwambiri komanso amagwiritsidwa ntchito kwambiri kuposa vitamini A.
• Methotrexate. Ichi ndi mankhwala amkamwa omwe atha kugwiritsidwa ntchito ngati ma retinoid sagwira ntchito.
• Odwala matenda opatsirana pogonana. Awa ndi mankhwala akumwa omwe amaletsa chitetezo chamthupi. Mulinso cyclosporine ndi azathioprine.
• Zamoyo. Awa ndi mankhwala ojambulidwa kapena obaya (IV) omwe amakhudza chitetezo chamthupi. Amaphatikizapo mankhwalawa adalimumab, etanercept, ndi infliximab.
• Chithandizo cha kuwala kwa ultraviolet. Izi zimaperekedwa limodzi ndi psoralen (mankhwala omwe amakupangitsani kuti musamakhudzidwe ndi dzuwa) komanso retinoid.

Kodi ndingapewe PRP?

Sizingatheke kupewa PRP popeza zomwe zimayambitsa ndikuyamba sizikudziwika. Ngati mukuganiza kuti muli ndi PRP, pitani kuchipatala. Kuyamba chithandizo chomwe chimakugwirirani ntchito mukangodziwitsidwa ndikofunikira kuti muchepetse matenda anu.

Kupeza mankhwala othandiza ndikofunikanso chifukwa mutha kukhala ndi mtundu umodzi wokha wa PRP panthawi yamatendawa.

Kodi PRP ichoka?

Kutengera mtundu wa PRP womwe muli nawo, zizindikilo zanu zitha kapena sizitha. Ngati muli ndi PRP wachikulire, zizindikiro zanu zimatha zaka zochepa kapena zochepa osabwereranso.

Zizindikiro za mitundu ina ya PRP zitha kukhala zazitali. Komabe, chithandizo chamankhwala chimapangitsa kuti zizindikilozo zisawonekere.

Lankhulani ndi dokotala wanu

PRP ndi matenda akhungu osowa omwe amadziwika ndi kutupa kosalekeza komanso khungu lanu. Zitha kukhudza thupi lanu lonse kapena ziwalo zake. Ikhoza kuyamba nthawi iliyonse m'moyo wanu. Ngakhale kulibe mankhwala pakadali pano, mankhwala angathandize kuchepetsa zizindikilo zanu.

Chithandizo cha PRP chimaphatikizapo mankhwala apakhungu, pakamwa, ndi jakisoni. Mulinso mankhwala a kuwala kwa ultraviolet. Gwiritsani ntchito ndi dokotala wanu kuti mupeze chithandizo chomwe chimagwira bwino ntchito kuti muchepetse zizindikiro za PRP.