Mafunso Ofunsidwa Poganizira Chithandizo cha IPF

Zamkati

• 1. Kodi ndingadziwe bwanji ngati IPF yanga ikukulirakulira?
• 2. Ndi mankhwala ati omwe amachiza IPF?
• 3. Kodi mankhwala a oxygen angandithandizire kupuma bwino?
• 4. Kodi pali mapulogalamu okonzanso omwe alipo?
• 5. Kodi ndifunikira kumuika m'mapapo?
• 6. Kodi pali njira zina zochiritsira zosagwiritsidwa ntchito masiku onse?
• 7. Kodi zabwino ndi zoyipa zakuchiza IPF ndi ziti?

Idiopathic pulmonary fibrosis (IPF) ndi mtundu wa pulmonary fibrosis womwe umakhala ndi zifukwa zosadziwika. Ngakhale kuti kupita patsogolo kwathunthu kuli pang'onopang'ono, kumatha kubweretsa kukulira kwadzidzidzi kwa zizindikilo zikakulirakulira.

Popeza izi, mutha kukhala mukuganiza ngati chithandizo ndichotheka ngati dokotala sakudziwa chomwe chidayambitsa IPF yanu. Muthanso kudzifunsa ngati chithandizo ndichabwino.

Sungani mafunso otsatirawa kuti mukakambirane mukadzakumananso ndi dokotala.

1. Kodi ndingadziwe bwanji ngati IPF yanga ikukulirakulira?

Chizindikiro chofala kwambiri cha IPF ndi kupuma pang'ono, komwe kumatchedwanso dyspnea. Kupuma pang'ono kumangowoneka ngati kuti sikumadziwika ndipo nthawi zambiri kumawoneka kolakwika chifukwa cha vuto lina lamapapu. Mutha kukumana nazo munthawi yogwira, komanso popita nthawi, panthawi yopuma. Chifuwa chowuma chimatha kutsagana ndi mpweya wochepa.

IPF yanu ingayambitsenso zizindikiro zina, monga kuchepa thupi, kupweteka kwa minofu, ndi kutopa. Mutha kuzindikiranso kuti zala zanu ndi zala zakumiyendo zimayamba kuzungulira kumapeto kwa nsonga, chizindikiro chotchedwa clubbing.

Zizindikiro za IPF zimasiyanasiyana malinga ndi munthu. Mukawona zovuta za kupuma zomwe zikukulirakulirabe, komanso kuyamba kwa zizindikiro zina, izi zitha kukhala chizindikiro kuti matenda anu akukula. Kambiranani zosankha zanu ndi dokotala wanu.

2. Ndi mankhwala ati omwe amachiza IPF?

Tsoka ilo, palibe mankhwala aliwonse omwe angachiritse IPF. M'malo mwake, mankhwala amagwiritsidwa ntchito kuchepetsa kukula kwa zizindikiritso za IPF. Komanso, mutha kukhala ndi moyo wabwino.

Pali mankhwala awiri omwe avomerezedwa ndi US Food and Drug Administration (FDA) kuti athandizidwe ndi IPF: nintedanib (Ofev) ndi pirfenidone (Esbriet). Amadziwika kuti antifibrotic agents, mankhwalawa amachepetsa kufooka m'mapapu anu. Izi zitha kuthandiza kuchepetsa kupititsa patsogolo kwa IPF ndikuwonjezeranso zizindikiro zanu.

Kuphatikiza apo, dokotala akhoza kukupatsani mankhwala amodzi kapena angapo otsatirawa:

• mankhwala a acid reflux, makamaka ngati muli ndi matenda a reflux a gastroesophageal (GERD)
• maantibayotiki kupewa matenda
• mankhwala oletsa kutupa, monga prednisone
• chifuwa choponderezera, monga benzonatate, hydrocodone, ndi thalidomide

3. Kodi mankhwala a oxygen angandithandizire kupuma bwino?

Thandizo la oxygen ndilothandiza kwa anthu ambiri omwe ali ndi IPF. Ikhoza kukuthandizani kupuma bwino pamene mukuyenda, kugula, kapena kuchita zina zilizonse. Pamene IPF ikupita, mungafunike chithandizo cha oxygen mukamagona kuti zikuthandizeni kupuma bwino.

Thandizo la oxygen silingaletse kupititsa patsogolo kwa IPF, koma itha:

• zikhale zosavuta kuchita masewera olimbitsa thupi
• kukuthandizani kugona ndi kugona
• onetsetsani kuthamanga kwa magazi

4. Kodi pali mapulogalamu okonzanso omwe alipo?

Inde. Kwa IPF, mutha kutumizidwa kukakonzanso pulogalamu yamapapo. Mutha kuganiza za izi ngati chithandizo chantchito kapena mankhwala, kupatula kuti chimangoyang'ana pamapapu anu.

Ndikukonzanso kwamapapu, othandizira anu azikuthandizani ndi:

• njira zopumira
• kuthandizidwa m'maganizo
• zolimbitsa thupi ndi kupirira
• zakudya

5. Kodi ndifunikira kumuika m'mapapo?

Ngati muli ndi zilonda zambiri m'mapapo, mutha kupindula ndikukula kwa mapapo. Ngati mwachita bwino, opaleshoniyi imathandizanso kuti mukhale ndi moyo wautali. Malingana ndi Pulmonary Fibrosis Foundation, pulmonary fibrosis imakhala pafupifupi theka la mapapu onse ku United States.

Komabe, pali chiopsezo chachikulu chokhudzana ndi kumuika m'mapapo, chifukwa si aliyense. Chodetsa nkhawa chachikulu ndikukana mapapu atsopano. Matendawa ndiwonso otheka.

Lankhulani ndi dokotala wanu ngati mukufuna kudziwa zambiri za kuziika m'mapapo komanso ngati kuli koyenera kwa inu.

6. Kodi pali njira zina zochiritsira zosagwiritsidwa ntchito masiku onse?

Njira zochiritsira zina sizinathandizidwe kwambiri pakuwongolera IPF. Komabe, mankhwala kunyumba ndi kusintha kwa moyo kumatha kuthandizira mkhalidwe wanu wonse.

Lankhulani ndi dokotala za:

• kuchita masewera olimbitsa thupi
• thandizo la zakudya
• kusiya kusuta
• kumwa mavitamini, ngati kuli kofunikira
• katemera

Dokotala wanu amathanso kukulimbikitsani mankhwala owonjezera pa-counter (OTC) ndi mankhwala ochizira matenda anu. Zitsanzo zimaphatikizapo kutsitsa kwa chifuwa, kupondereza kwa chifuwa, komanso kuchepetsa ululu. Nthawi zonse muzifunsa kaye dokotala musanamwe mankhwala aliwonse a OTC kuti mupewe zovuta zina komanso momwe mungagwiritsire ntchito mankhwala osokoneza bongo.

7. Kodi zabwino ndi zoyipa zakuchiza IPF ndi ziti?

Popeza kulibe mankhwala a IPF, dokotala wanu atha kuyang'ana pa kasamalidwe ndi chithandizo kuti mutalikitse moyo wanu. Izi zithandizanso kukulitsa moyo wanu ndikupewa zovuta, monga matenda.

Ngakhale IPF ikhoza kukhala yochulukirapo, ndikofunikira kuti musataye mtima. Kuchiza IPF kumatha kupangitsa zochitika zanu za tsiku ndi tsiku kukhala zosangalatsa. Dokotala wanu angakulimbikitseni kuti mutenge nawo mbali pazachipatala, zomwe zingakuwonetseni zamankhwala atsopano.

Zoyipa zamankhwala a IPF ndizotheka zotsatira zoyipa zamankhwala komanso kukanidwa pakutha kwa mapapo.

Poganizira za ubwino ndi kuipa kwa chithandizo chamankhwala, mungaone kuti maubwino ake amapitilira zoopsa zake. Inu ndi dokotala wanu mungasankhe zomwe zingakuthandizeni pa moyo wanu.