Kuyesa Thukuta kwa Cystic Fibrosis

Zamkati

• Kuyesa thukuta ndi chiyani?
• Amagwiritsidwa ntchito yanji?
• Chifukwa chiyani ndikufunika kuyesa thukuta?
• Kodi chimachitika ndi chiyani ndikamayesa thukuta?
• Kodi ndiyenera kuchita chilichonse kukonzekera mayeso?
• Kodi pali zoopsa zilizonse pamayeso?
• Kodi zotsatirazi zikutanthauza chiyani?
• Kodi pali china chilichonse chomwe ndiyenera kudziwa pamayeso a thukuta?
• Zolemba

Kuyesa thukuta ndi chiyani?

Kuyesa thukuta kumayeza kuchuluka kwa kloride, gawo lamchere, mu Thukuta. Amagwiritsidwa ntchito pofufuza cystic fibrosis (CF). Anthu omwe ali ndi CF ali ndi kloride wokwanira thukuta lawo.

CF ndi matenda omwe amayambitsa mamina m'mapapu ndi ziwalo zina.Zimapweteketsa mapapu ndipo zimapangitsa kuti zikhale zovuta kupuma. Zitha kupanganso matenda opatsirana pafupipafupi komanso kusowa zakudya m'thupi. CF ndi matenda obadwa nawo, omwe amatanthauza kuti amachokera kwa makolo anu, kudzera mumajini.

Chibadwa ndi ziwalo za DNA zomwe zimanyamula zidziwitso zomwe zimatsimikizira mawonekedwe anu apadera, monga kutalika ndi mtundu wamaso. Chibadwa chimayambitsanso mavuto ena azaumoyo. Kuti mukhale ndi cystic fibrosis, muyenera kukhala ndi jini ya CF kuchokera kwa amayi anu ndi abambo anu. Ngati kholo limodzi lokha lili ndi jini, simudzadwala.

Mayina ena: thukuta la chloride thukuta, cystic fibrosis sweat test, sweat electrolytes

Amagwiritsidwa ntchito yanji?

Kuyesa thukuta kumagwiritsidwa ntchito kuti mupeze cystic fibrosis.

Chifukwa chiyani ndikufunika kuyesa thukuta?

Kuyesa thukuta kumatha kuzindikira kuti cystic fibrosis (CF) mwa anthu azaka zonse, koma nthawi zambiri imachitidwa kwa makanda. Mwana wanu angafunike kukayezetsa thukuta ngati atapezeka kuti ali ndi CF poyesa magazi omwe abadwa kumene. Ku United States, makanda atsopano nthawi zambiri amayesedwa matenda osiyanasiyana kuphatikiza CF. Mayeso ambiri a thukuta amachitika ana ali ndi milungu iwiri kapena iwiri yakubadwa.

Mwana wachikulire kapena wamkulu yemwe sanayesedwepo ndi CF angafunike kuyesedwa kwa thukuta la cystic fibrosis ngati wina m'banjamo ali ndi matendawa kapena / kapena ali ndi zizindikiro za CF. Izi zikuphatikiza:

• Khungu lokoma mchere
• Kutsokomola pafupipafupi
• Matenda am'mapapo pafupipafupi, monga chibayo ndi bronchitis
• Kuvuta kupuma
• Kulephera kunenepa, ngakhale mutakhala ndi njala yabwino
• Zakudya zonyezimira, zazikulu
• Mwa akhanda, palibe chimbudzi chomwe chimapangidwa atangobadwa

Kodi chimachitika ndi chiyani ndikamayesa thukuta?

Wothandizira zaumoyo wanu adzafunika kuti atolere thukuta kuti ayesedwe. Njira yonseyi itenga pafupifupi ola limodzi ndipo mwina ikuphatikiza izi:

• Wothandizira zaumoyo adzaika pilocarpine, mankhwala omwe amachititsa thukuta, pamalo ang'onoang'ono pamphumi.
• Wopereka wanu adzaika elekitirodi m'derali.
• Pakadali pano pakuchepa mphamvu kudzera pa elekitirodiyo. Izi zimapangitsa kuti mankhwalawo alowe pakhungu. Izi zitha kuyambitsa kulira pang'ono kapena kutentha.
• Pambuyo pochotsa maelekitirodi, omwe amakupatsani amajambula tepi kapena gauze pampando kuti atolere thukuta.
• Thukuta lidzasonkhanitsidwa kwa mphindi 30.
• Thukuta lomwe lasonkhanitsidwa litumizidwa ku labu kukayezetsa.

Kodi ndiyenera kuchita chilichonse kukonzekera mayeso?

Simukusowa kukonzekera kulikonse kwa mayeso a thukuta, koma muyenera kupewa kugwiritsa ntchito mafuta kapena mafuta pakhungu kwa maola 24 isanakwane.

Kodi pali zoopsa zilizonse pamayeso?

Palibe chiopsezo chodziwitsidwa thukuta. Mwana wanu amatha kumva kulira kwamphamvu, koma sayenera kumva kupweteka.

Kodi zotsatirazi zikutanthauza chiyani?

Ngati zotsatira zikuwonetsa kuchuluka kwa mankhwala enaake, pali mwayi woti mwana wanu ali ndi cystic fibrosis. Wothandizira zaumoyo wanu atha kuyitanitsa mayeso ena a thukuta ndi / kapena mayesero ena kuti atsimikizire kapena kuthana ndi matenda. Ngati muli ndi mafunso okhudza zotsatira za mwana wanu, lankhulani ndi omwe amakuthandizani.

Dziwani zambiri zamayeso a labotale, magawo owerengera, ndi zotsatira zakumvetsetsa.

Kodi pali china chilichonse chomwe ndiyenera kudziwa pamayeso a thukuta?

Ngakhale kulibe mankhwala a cystic fibrosis (CF), pali mankhwala omwe amapezeka omwe amathandiza kuchepetsa zizindikilo ndikukhalitsa moyo wabwino. Ngati mwana wanu anapezeka ndi CF, lankhulani ndi omwe amakuthandizani zaumoyo za njira zamankhwala zothandizira kuthana ndi matendawa.

Zolemba

1. American Lung Association [Intaneti]. Chicago: Msonkhano wa American Lung; c2018. Kuzindikira ndi Kuchiza Cystic Fibrosis [yotchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 4]. Ipezeka kuchokera: http://www.lung.org/lung-health-and-diseases/lung-disease-lookup/cystic-fibrosis/diagnosing-and-treating-cf.html
2. Cystic Fibrosis Foundation [Intaneti]. Bethesda (MD): Mzere wa Cystic Fibrosis; Za cystic Fibrosis [yotchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 2]. Ipezeka kuchokera: https://www.cff.org/What-is-CF/About-Cystic-Fibrosis
3. Cystic Fibrosis Foundation [Intaneti]. Bethesda (MD): Mzere wa Cystic Fibrosis; Kuyesa kwa Thukuta [kutchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 3]. Ipezeka kuchokera: https://www.cff.org/What-is-CF/Testing/Sweat-Test
4. Hinkle J, Cheever K. Brunner & Suddarth's Handbook of Laboratory and Diagnostic Test. 2nd Ed, Wokoma. Philadelphia: Wolters Kluwer Health, Lippincott Williams & Wilkins; c2014. Kuyesa Thukuta; p. 473-74.
5. Johns Hopkins Medicine [Intaneti]. Baltimore: Yunivesite ya Johns Hopkins; Laibulale Yathanzi: Cystic Fibrosis [yotchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 3]. Ipezeka kuchokera: https://www.hopkinsmedicine.org/healthlibrary/conditions/adult/respiratory_disorders/cystic_fibrosis_85,p01306
6. Kuyesa kwa Labu Paintaneti [Intaneti]. Washington DC: American Association for Clinical Chemistry; c2001–2018. Cystic Fibrosis [yasinthidwa 2017 Oct 10; adatchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 2]. Ipezeka kuchokera: https://labtestsonline.org/conditions/cystic-fibrosis
7. Kuyesa kwa Labu Paintaneti [Intaneti]. Washington DC: American Association for Clinical Chemistry; c2001–2018. Kuwunika Kwatsopano [kusinthidwa 2018 Mar 18; adatchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 2]. Ipezeka kuchokera: https://labtestsonline.org/screenings/newborns
8. Kuyesa kwa Labu Paintaneti [Intaneti]. Washington DC: American Association for Clinical Chemistry; c2001–2018. Mayeso a Sweat Chloride [kusinthidwa 2018 Mar 18; adatchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 2]. Ipezeka kuchokera: https://labtestsonline.org/tests/sweat-chloride-test
9. Merck Manual Consumer Version [Intaneti]. Kenilworth (NJ): Merck & Co. Inc. .; c2018. Cystic Fibrosis (CF) [yotchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 2]. Ipezeka kuchokera: https://www.merckmanuals.com/home/children-s-health-issues/cystic-fibrosis-cf/cystic-fibrosis-cf
10. National Heart, Lung, ndi Blood Institute [Internet]. Bethesda (MD): Dipatimenti ya Zaumoyo ndi Zantchito ku U.S. Cystic Fibrosis [yotchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 3]. Ipezeka kuchokera: https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis
11. University of Rochester Medical Center [Intaneti]. Rochester (NY): Yunivesite ya Rochester Medical Center; c2018. Health Encyclopedia: Mayeso a Thukuta la Cystic Fibrosis [otchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 2]. Ipezeka kuchokera: https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid;=cystic_fibrosis_sweat
12. UW Health [Intaneti]. Madison (WI): Zipatala za University of Wisconsin ndi Clinics Authority; c2018. Zambiri Zaumoyo: Zokhudza Zaumoyo Kwanu: Kuyesa Thukuta la Ana [kusinthidwa 2017 Meyi 11; adatchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 3]. Ipezeka kuchokera: https://www.uwhealth.org/healthfacts/parenting/5634.html
13. UW Health: Chipatala cha American Family Children [Internet]. Madison (WI): Zipatala za University of Wisconsin ndi Clinics Authority; c2018. Ana Health: Cystic Fibrosis [yotchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 5]. Ipezeka kuchokera: https://www.uwhealthkids.org/kidshealth/kids/kids-health-problems/heart-lungs/cystic-fibrosis/22267.html
14. UW Health: Chipatala cha American Family Children [Internet]. Madison (WI): Zipatala za University of Wisconsin ndi Clinics Authority; c2018. Ana Health: Cystic Fibrosis (CF) Chloride Sweat Test [yotchulidwa 2018 Mar 18]; [pafupifupi zowonetsera 5]. Ipezeka kuchokera: https://www.uwhealthkids.org/kidshealth/parents/general-health/sick-kids/cystic-fibrosis-(cf)-chloride-sweat-test/24942.html

Zomwe zili patsamba lino siziyenera kugwiritsidwa ntchito m'malo mwa chithandizo chamankhwala kapena upangiri. Lumikizanani ndi othandizira azaumoyo ngati muli ndi mafunso okhudzana ndi thanzi lanu.