Ndili ndi zaka 32, Ndidazindikira Kuti Ndili Ndi MS. Izi ndi zomwe ndidachita m'masiku omwe adatsata.

Zamkati

• Munayamba bwanji kudziwa kuti muli ndi MS?
• Kodi panali masitepe ati otsatira?
• Kodi mumadziwa za MS mukalandira matenda anu?
• Ndi mavuto ati omwe anali oyamba poyamba, ndipo munathana nawo bwanji?
• Kodi mumamva ngati muli ndi zida zokwanira zothanirana ndi MS, mwakuthupi ndi mwamaganizidwe?
• Kodi ndani omwe anali magwero anu a chitsogozo ndi chithandizo m'masiku oyambirira aja?
• Mukafunsidwa kuti mukafunse pa pulogalamu ya MS Buddy, ndi zinthu ziti zomwe mukuganiza kuti ndizofunikira kwambiri kuti opanga akhale olondola?
• Patha zaka khumi kuchokera pomwe mudapezeka. Nchiyani chimakulimbikitsani kuti mumenye nkhondo ya MS?
• Kodi ndi chinthu chiti chimodzi chokhudza MS chomwe mukufuna kuti anthu ena amvetse?

Opitilira 2.3 miliyoni padziko lonse lapansi ali ndi matenda ofoola ziwalo. Ndipo ambiri a iwo adapezeka ndi zaka zapakati pa 20 ndi 40. Ndiye, zimakhala bwanji kulandira matenda ali aang'ono pomwe anthu ambiri akuyambitsa ntchito, kukwatira, ndikuyambitsa mabanja?

Kwa ambiri, masiku oyamba ndi masabata atatulutsidwa ndi MS sizongododometsa zadongosolo, koma njira yowonongeka yokhudza momwe zinthu ziliri ndi dziko lomwe samadziwa kuti kulipo.

Ray Walker amadziwa izi. Ray adadziwika kuti ali ndi MS wobwereranso mu 2004 ali ndi zaka 32. Amakhalanso woyang'anira malonda kuno ku Healthline ndipo watenga gawo lalikulu pakufunsira kwa MS Buddy, pulogalamu ya iPhone ndi Android yomwe imalumikiza anthu omwe ali ndi MS ndi wina ndi mnzake kuti mupeze upangiri, chithandizo, ndi zina zambiri.

Tinakhala pansi kuti ticheze ndi Ray za zomwe adakumana nazo miyezi ingapo yoyambirira atamupeza ndi chifukwa chake kuthandizidwa ndi anzawo ndikofunikira kwambiri kwa aliyense amene ali ndi matenda aakulu.

Munayamba bwanji kudziwa kuti muli ndi MS?

Ndinali pa bwalo la gofu pomwe ndinalandila foni kuchokera ku ofesi yanga ya dokotala. Namwinoyo anati, “Wawa, Raymond, ndikukuyimbira kuti uzikonza msana wako.” Izi zisanachitike, ndinali nditangopita kwa dokotala chifukwa ndinali ndi dzanzi m'manja ndi m'mapazi kwa masiku angapo. Adotolo adandipatsa kamodzi ndipo sindinamve chilichonse mpaka pomwe opina msana amayimba. Zinthu zowopsa.

Kodi panali masitepe ati otsatira?

Palibe mayeso amodzi a MS. Mumakumana ndi mayeso osiyanasiyana ndipo, ngati angapo ali ndi chiyembekezo, dokotala wanu akhoza kutsimikizira kuti ali ndi matendawa. Chifukwa palibe mayeso omwe akuti, "Inde, muli ndi MS," madokotala amachedwa.

Mwina anali milungu ingapo dokotala asananene kuti ndili ndi MS. Ndinapanga matepi awiri a msana, ndinayesa kuyesa kwa diso (komwe kumayesa momwe zomwe mukuwonera zikupangira ubongo wanu), kenako ma MRIs pachaka.

Kodi mumadziwa za MS mukalandira matenda anu?

Sindinali konse. Ndimangodziwa chinthu chimodzi, kuti Annette Funicello (wochita sewero wazaka za m'ma 50) anali ndi MS. Sindinadziwe ngakhale zomwe MS amatanthauza. Nditamva kuti ndizotheka, nthawi yomweyo ndinayamba kuwerenga. Tsoka ilo, mumangopeza zizindikiro zoyipa kwambiri komanso zotheka.

Ndi mavuto ati omwe anali oyamba poyamba, ndipo munathana nawo bwanji?

Chimodzi mwamavuto akulu pomwe ndidapezeka koyamba ndikusanthula zonse zomwe zapezeka. Pali zambiri zoyipa zoti muwerenge ngati MS. Simungathe kuneneratu zamachitidwe ake, ndipo sichitha.

Kodi mumamva ngati muli ndi zida zokwanira zothanirana ndi MS, mwakuthupi ndi mwamaganizidwe?

Ndinalibe mwayi wosankha, ndimangofunika kuthana nawo. Ndinali nditangokwatira kumene, wosokonezeka, komanso wosabisa mawu, wamantha pang'ono. Poyamba, kupweteka kulikonse, kupweteka, kapena kumva ndi MS. Kenako, kwa zaka zochepa, palibe vuto lililonse la MS. Ndimasinthasintha mwamalingaliro.

Kodi ndani omwe anali magwero anu a chitsogozo ndi chithandizo m'masiku oyambirira aja?

Mkazi wanga watsopano anali nane. Mabuku ndi intaneti nawonso anali gwero lalikulu lazidziwitso. Ndidatsamira kwambiri ku National Multiple Sclerosis Society koyambirira.

M'mabuku, ndidayamba kuwerenga zolemba za maulendo a anthu. Ndinatsamira nyenyezi poyamba: Richard Cohen (mamuna wa Meredith Vieira), Montel Williams, ndi David Lander onse anapezeka nthawi imeneyo. Ndinkafuna kudziwa momwe MS imawakhudzira iwo komanso maulendo awo.

Mukafunsidwa kuti mukafunse pa pulogalamu ya MS Buddy, ndi zinthu ziti zomwe mukuganiza kuti ndizofunikira kwambiri kuti opanga akhale olondola?

Zinali zofunikira kwa ine kuti alimbikitse ubale wamtundu waupangiri. Mukapezeka koyamba, mumasowa ndikusokonezeka. Monga ndanenera poyamba, pali zambiri zambiri kunja uko, mumatha kumira.

Inemwini ndikadakonda kuti msirikali wakale wa MS andiuze zonse zikhala bwino. Ndipo omenyera nkhondo a MS ali ndi chidziwitso chochuluka choti agawane.

Patha zaka khumi kuchokera pomwe mudapezeka. Nchiyani chimakulimbikitsani kuti mumenye nkhondo ya MS?

Zikumveka mwachidule, koma ana anga.

Kodi ndi chinthu chiti chimodzi chokhudza MS chomwe mukufuna kuti anthu ena amvetse?

Chifukwa choti nthawi zina ndimakhala wofooka, sizitanthauza kuti inenso sindingakhale wolimba.

Pafupifupi anthu 200 amapezeka ndi MS sabata iliyonse ku United States kokha. Mapulogalamu, mabwalo, zochitika, ndi magulu azama media omwe amalumikiza anthu omwe ali ndi MS wina ndi mnzake atha kukhala ofunikira kwa aliyense amene akufuna mayankho, upangiri, kapena wina woti alankhule naye.

Kodi muli ndi MS? Onani malo athu okhala ndi MS pa Facebook ndikulumikizana ndi ma blogger apamwamba awa a MS!