Nditatha Kugonana Kwanga: Kugawana Zomwe Ndaphunzira

Zamkati

• Zimakhala bwino pambuyo pa usiku woyamba
• Gonani pansi
• Limbikitsani mphamvu yanu pachimake pasadakhale
• Yesetsani kupukuta
• Phunzirani kukhetsa
• Pezani mapilo ambiri
• Ganizirani zothandizidwa
• Nthawi imachiritsa mabala onse
• Kuchira ndikumverera, osati thupi chabe
• Kufalitsa kuzindikira kwandithandiza
• Kodi BRCA ndi chiyani?

Zolemba za Mkonzi: Chidutswa ichi chidalembedwa koyamba pa Feb. 9, 2016. Tsiku lomwe likufalitsidwa posachedwa likuwonetsa zosintha.

Atangolowa nawo Healthline, Sheryl Rose adazindikira kuti ali ndi kusintha kwa majini a BRCA1 ndipo ali pachiwopsezo cha khansa ya m'mawere ndi yamchiberekero.

Iye anasankha kupita patsogolo wokhala ndi mastectomy wapawiri ndi oophorectomy. Tsopano ndi maopaleshoni kumbuyo kwake, ali panjira yoti achire. Pemphani malangizo ake kwa ena omwe akukumana ndi mavuto omwewo.

Tsopano ndili ndi milungu isanu ndi umodzi kuchokera ku mastectomy ndikumanganso kwanga, ndipo ndakhala ndi nthawi yosinkhasinkha. Ndikuzindikira kuti chaka chino chakhala chovuta kwambiri m'moyo wanga, koma ndine wokondwa ndi zisankho zomwe ndidapanga.

BRCA1 sikuyenera kukhala chilango cha imfa ngati mungayang'anire vutoli, ndipo ndizomwe ndidachita. Ndipo tsopano popeza gawo lovuta kwambiri latha, ndikupeza bwino - mwathupi komanso mwamalingaliro.

Ndimaganiza zamasabata 6 apitawo komanso momwe ndinkakhalira wamankhwala opaleshoni ndisanachite. Ndinadziwa kuti ndinali m'manja abwino kwambiri ndipo ndinali ndi gulu lamaloto - Dr.

Ndi awiri mwabwino kwambiri ku NYU Langone ndipo ndidakhala ndi chidaliro kuti zonse ziyenda bwino. Komabe, ndili ndi zinthu zingapo zomwe ndikulakalaka anthu atandiuza ndisanapite kukachitidwa opaleshoni, choncho ndikufuna kugawana nawo zomwe ndaphunzira.

Tidzawatcha "malingaliro opangira opaleshoni."

Zimakhala bwino pambuyo pa usiku woyamba

Usiku woyamba ndiwovuta, koma wosapiririka. Mudzakhala otopa, ndipo sizikhala zophweka kukhala omasuka kapena kugona mokwanira kuchipatala.

Ingodziwa kuti zinthu zimasintha bwino pambuyo pa usiku woyamba. Osakhala wofera pankhani ya mankhwala opweteka: Ngati mukufuna, tengani.

Gonani pansi

Mukangoyamba kupita kunyumba, zimakhala zovuta kuti muziyenda. Onetsetsani kuti simumapita nokha kunyumba, chifukwa mudzafunikiradi winawake woti azikusamalirani.

Chimodzi mwazinthu zovuta kwambiri ndikulowa ndi kutsika pabedi.Pofika usiku wachiwiri kapena wachitatu, ndidazindikira kuti ndizothandiza kugona pabedi lotsika kapena ngakhale pakama chifukwa ndiye mutha kungoyenda pabedi.

Limbikitsani mphamvu yanu pachimake pasadakhale

Pambuyo pa mastectomy amitundu iwiri, simugwiritsanso ntchito mikono kapena chifuwa (izi mwina sizingachitike ndi mastectomy amodzi). Cholinga changa ndikuti muzichita zina musanachite opaleshoni yanu.

Palibe amene adandiuzapo izi, koma kulimba mtima kwanu ndikofunikira kwambiri m'masiku ochepa oyambilirawa. Kulimba kwake ndikulimba.

Mudzadalira kwambiri minofu yanu yam'mimba kuposa momwe mudazolowera, chifukwa chake ndibwino kuti muwonetsetse kuti maziko ali okonzeka kugwira ntchitoyo.

Yesetsani kupukuta

Ndikudziwa kuti izi zikumveka zachilendo, koma kachiwiri, izi ndi zinthu zazing'ono zomwe zimapangitsa sabata loyambiriralo kukhala losangalatsa kwambiri.

Musanachite opareshoni, mukufuna kuyeserera m'bafa ndi manja onse awiri, chifukwa simukudziwa mkono uti womwe mungayende nawo.

Komanso, sungani ndalama kuti muzipukuta ana chifukwa izi zimapangitsa kuti ntchitoyi ikhale yosavuta. Ichi ndi chimodzi mwazinthu zomwe palibe amene amaganiza, koma ndikhulupirireni, mudzakhala okondwa kukhala ndi kansonga kakang'ono aka.

Kukhala wowononga kwambiri ndi chinthu chomaliza chomwe muyenera kuda nkhawa mukachitidwa opaleshoni yayikulu.

Phunzirani kukhetsa

Mukulumikizidwa ndi ma drains angapo mutatha kuchita masewera olimbitsa thupi, ndipo ngakhale mukuganiza kuti mukudziwa momwe mungawagwiritsire ntchito, lolani anamwino akuwonetseni inu ndi omwe amakusamalirani momwe mungatherere bwino.

Tidaganiza kuti tikudziwa ndipo, motsimikiza, ndidakhala ndi chovala chodzaza magazi tisanawonetsedwe bwino. Osati vuto, lokhumudwitsa komanso lokongola kwambiri.

Pezani mapilo ambiri

Mukufunika mapilo ambiri mosiyanasiyana. Mutha kuzifuna mmanja mwanu, pakati pa miyendo yanu, ndikuthandizira mutu wanu ndi khosi.

Palibe njira yoti ndidziwe momwe mungakhalire omasuka kwambiri. Ndizoyesa pang'ono, koma ndinali wokondwa kukhala ndi mapilo kulikonse.

Ngakhale milungu isanu ndi umodzi kutuluka, ndimagonabe ndi mapilo ang'onoang'ono owoneka ngati mtima pansi pa mikono yanga omwe adapangidwira makamaka odwala omwe ali ndi vuto la postmastectomy, ndipo ndimawakonda!

Ganizirani zothandizidwa

Sikuti aliyense amafunikira izi, koma ngati muli ndi chidwi chilichonse, ndikuganiza kuti chithandizo chamankhwala ndichinthu chabwino kuyang'ana. Ndakhala ndikuchita tsopano kwa masabata atatu ndipo ndine wokondwa kuti ndidapanga chisankho kutero.

Dokotala wanu akhoza kukulozerani munthu wina. Ndapeza kuti zakhala zothandiza kwambiri pakusintha mayendedwe anga ndi zina zotupa zomwe ndakumanapo nazo.

Sizo za aliyense, ndipo ngakhale madotolo atanena kuti simukuwafuna, ndikulonjeza kuti sizingakuvulazeni - zidzakuthandizani kuti mupeze bwino.

Nthawi imachiritsa mabala onse

Mwathupi, ndikumva bwino tsiku lililonse. Ndinatenga tchuthi mwezi umodzi kuti ndikachiritse, ndipo tsopano popeza ndabwerera kuntchito ndikuyenda-yenda, ndikumvako bwino.

Zachidziwikire, zimamveka zachilendo nthawi zina ndimakina anga atsopano, koma kwakukulukulu, ndikumverera kubwerera ku umunthu wanga wakale.

Kuchira ndikumverera, osati thupi chabe

Pambuyo pa kuchira kwakuthupi kwakhala, ulendo wamalingaliro. Nthawi zina ndimayang'ana pagalasi ndikudzifunsa ngati ndikuwoneka "wabodza."

Diso langa nthawi yomweyo limangopita pazofooka zonse, osati kuti pali zambiri, koma zowonadi pali zochepa. Nthawi zambiri, ndikuganiza amawoneka bwino!

Ndinalowa nawo gulu la Facebook la BRCA, pomwe ndimawerenga nkhani za azimayi ena pazomwe amachitcha kuti "nkhwangwa" (ziboda zabodza), ndipo ndine wokondwa kuwona kuti aliyense ali ndi nthabwala za izi.

Tsiku lililonse, mochulukira, ndikuzolowera lingaliro ndikusowa kwakumverera, ndikuzindikira kuti kusintha ndi gawo la moyo. Ndipo, tiwone, palibe m'modzi wa ife amene ali wangwiro.

Ndikuthokozabe kwambiri kuti ndinali ndi mwayi wochita china chake moyenera, ndipo ndikuyembekeza kuti sindidzapeza khansa ya m'mawere (ndili ndi chiopsezo chochepera 5%). Izi zitha kupindulitsa zonse.

Kufalitsa kuzindikira kwandithandiza

Monga gawo la kuchira kwanga, ndakhala ndikuyesetsa kwambiri kutenga nawo mbali ndikudziwitsa anthu za kulembera ndikudzipereka.

Kupyolera mufukufuku wanga, ndinaphunzira za Basser Center ya BRCA ku Penn Medicine. Ndiwo malo otsogola otsogola a khansa yokhudzana ndi BRCA mwa amuna ndi akazi, ndipo akuchita zinthu zodabwitsa.

Ndinawafikira ndipo ndinagawana nawo nkhani yanga ndikufunsa za njira zolowerera nawo, kuposa zopereka.

Ndikugwira nawo ntchito yodziwitsa anthu zomwe zidzagawire zikwangwani m'masunagoge mdera langa, kuthandiza malowa kufikira Ayuda a Ashkenazi, omwe ndi gulu loopsa kwambiri pakusintha kwa BRCA.

Ndine wokondwa kukhala ndi mwayi wobwezera ndipo mwina ndikupangitsani munthu m'modzi yekha kudziwa za BRCA ndi zisankho zomwe ali nazo.

Ponseponse, ndikuchita bwino. Masiku ena amakhala ovuta kuposa ena. Masiku ena, ndimayang'ana chithunzi cha mabere anga akale ndikuganiza momwe moyo wanga ukanakhalira wosavuta ngati izi sizikanachitika.

Koma masiku ambiri, ndimazitenga mopepuka ndikukumbutsidwa kuti ndipindule kwambiri ndi zomwe ndapatsidwa.

Kodi BRCA ndi chiyani?

• Mitundu ya BRCA1 ndi BRCA2 imapanga mapuloteni omwe amaletsa zotupa. Kusintha kulikonse kungapangitse chiopsezo cha khansa.
• Zosintha zitha kutengera kwa kholo lililonse. Chiwopsezo ndi 50 peresenti.
• Kusintha kumeneku kumabweretsa 15% ya khansa yamchiberekero ndi 5 mpaka 10 peresenti ya khansa ya m'mawere (25 peresenti ya khansa yam'mimba yobadwa nayo).