Kwa iwo omwe ali ndi cystic Fibrosis, Yambani Kuyika Thanzi Lanu Poyamba

Wokondedwa,

Simungadziwe kuti ndili ndi cystic fibrosis pondiyang'ana. Vutoli limakhudza mapapu anga ndi kapamba, kupangitsa kuti zikhale zovuta kupuma ndikulemera, koma sindikuwoneka kuti ndili ndi matenda osachiritsika.

Ndinakulira ndikudziyimira pawokha ndi chisamaliro changa, chomwe chinali chimodzi mwazinthu zabwino kwambiri zomwe makolo anga akanandichitira. Panthawi yomwe ndinali kukonzekera kukoleji, ndimakhala ndikusankha mapiritsi anga sabata iliyonse mosadukiza kwa zaka zisanu ndi zitatu. Ndikusukulu yasekondale, nthawi zina ndimapita kukadwala ndekha, ndiye mafunso amkafunsidwa, osati amayi anga. Pambuyo pake, ndimatha kukhala ndekha.

Koma itakwana nthawi yosankha koleji, ndidadziwa kuti kukhala pafupi ndi nyumba ndikofunikira pa thanzi langa. Ndinatenga Towson University ku Maryland, yomwe ili mphindi 45 kuchokera kunyumba kwa makolo anga ndipo pafupifupi mphindi 20 kuchokera ku Chipatala cha Johns Hopkins. Zinali zokwanira kuti ndikhale ndi ufulu wanga wodziyimira pawokha, koma pafupi ndi makolo anga ngati ndikanawafuna. Ndipo, panali kangapo pomwe ndidatero.

Ndinali wamakani kwambiri. Nditayamba kudwala pang'onopang'ono ku koleji, sindinayinyalanyaze. Ndinali wopitirira muyeso pamaphunziro, ndipo sindinalole kuti matenda anga andilepheretse kuchita chilichonse chomwe ndimafunikira kuchita. Ndinkafuna chidziwitso chonse cha koleji.

Pofika kumapeto kwa chaka changa chachiwiri, ndimadziwa kuti ndikudwala, koma ndinali ndi zambiri zomwe ndinkachita kuti ndiyike thanzi langa patsogolo. Ndinali ndi maphunziro omaliza omaliza kuphunzira, udindo wokhala mkonzi wa nyuzipepala yaophunzira, komanso moyo wocheza.

Nditamaliza komaliza komaliza chaka chimenecho, amayi anga adandipititsa pagalimoto yopita kuchipatala cha a Johns Hopkins. Sindingathe kubwereranso kuchipinda changa chogona nditayesedwa. Mapapu anga anali atatsika kwambiri. Sindinakhulupirire kuti ndalimbitsa mphamvu kuti nditenge komaliza.

Chimodzi mwazinthu zovuta kwambiri pakusintha kupita kukoleji ngati munthu yemwe ali ndi cystic fibrosis akuchita thanzi lanu. Komanso ndichimodzi mwazinthu zofunika kwambiri. Muyenera kutsatira mankhwala anu ndikuwona cystic fibrosis dokotala wanu pafupipafupi. Muyeneranso kudzipatsa nthawi yopuma. Ngakhale pano, ndili ndi zaka pafupifupi 30, ndimavutikabe kudziwa malire anga.

Pokumbukira zaka zanga ku Towson, ndikulakalaka ndikadakhala kuti sindimayankhula za cystic fibrosis yanga. Nthawi iliyonse ndikafuna kukana kupita kokacheza chifukwa cha matenda anga, ndinkadziimba mlandu chifukwa ndimaganiza kuti anzanga sakumvetsa. Koma tsopano ndikudziwa kuti thanzi langa limabwera patsogolo. Ndikadakonda kulumpha chochitika chimodzi kapena ziwiri kuposa kuphonya zambiri zamoyo wanga. Zikuwoneka ngati chisankho chabwino, sichoncho?

Modzipereka,

Alissa

Alissa Katz ndi wazaka 29 yemwe adapezeka ndi cystic fibrosis atabadwa. Anzake ndi anzawo ogwira nawo ntchito amanjenjemera pomutumizira mameseji chifukwa iye ndi wolemba kalembedwe komanso wolemba magalamala. Amakonda ma bagel a New York kuposa zinthu zambiri m'moyo. Meyi watha, anali kazembe wa The Great Strides wa Cystic Fibrosis Foundation pakuyenda kwawo ku New York City. Kuti muwerenge zambiri zakukula kwa Alissa cystic fibrosis ndikupereka ku Foundation, dinani apa.