Chaka Changa Cha Chemo: Kuyambira Kutaya Tsitsi Langa Ndikumenya Khansa

Zamkati

• Zolemba za cheyann za chemo
• Ogasiti 3, 2016
• Ogasiti 23, 2016
• Seputembara 22, 2016
• Novembala 5, 2016
• Januware 12, 2017
• Marichi 22, 2017
• Novembala 3, 2017
• Epulo 5, 2018

Ndikugawana zolemba zanga za chemo kuti ndithandizire anthu kulandira chithandizo chamankhwala. Ndimayankhula za Doxil ndi Avastin zoyipa, chikwama changa cha ileostomy, tsitsi, komanso kutopa.

Thanzi ndi thanzi zimakhudza aliyense wa ife mosiyanasiyana. Iyi ndi nkhani ya munthu m'modzi.

“Uli ndi khansa.” Palibe amene amafuna kumva mawu amenewa. Makamaka mukakhala zaka 23.

Koma ndi zomwe dokotala wanga anandiuza nditalandira matenda a khansa ya mchiberekero ya siteji 3. Ndiyenera kuyamba mankhwala a chemotherapy nthawi yomweyo ndikulandila chithandizo kamodzi pamlungu, sabata iliyonse.

Sindinkadziwa chilichonse chokhudza chemo nditazindikira kuti ndili ndi matendawa.

Pamene ndimayandikira chemo yanga yoyamba - pafupifupi milungu iwiri nditazindikira - ndinayamba kumva nkhani zowopsa za anthu omwe akudwala kwambiri chifukwa cha mankhwala awo. Zimayamba kukhazikika mu chemo zimatha kukhala zolimba mthupi lanu.

Kunena kuti ndinali ndi mantha kungakhale kunyoza. Ndimangoganiza za kutengeka konse komwe kunandigunda sabata yoyamba ya chemo.

Ndimakumbukira ndikulowa mchipatala kuti ndikalandire chithandizo changa choyamba ndikumva kuti nkhawa yayamba. Ndinadabwa kuti mwadzidzidzi ndinada nkhawa kwambiri, chifukwa paulendo wonse wopita ku chemo, ndimakhala wolimba mtima komanso wamphamvu. Koma mphindi yomwe mapazi anga adagunda pansi, mantha amenewo ndi nkhawa zidanditsuka.

Pakati pa maulendo angapo a chemo, ndimasunga zolemba kuti ndione momwe ndimamvera komanso momwe thupi langa limagwirira ntchito chilichonse.

Ngakhale aliyense amakumana ndi chemo mosiyana, ndikhulupilira kuti zolembedwazi zikuthandizani kumva kuti mukuthandizidwa mukamalimbana ndi khansa.

Zolemba za cheyann za chemo

Ogasiti 3, 2016

Ndinangopezeka kuti ndili ndi khansa ya ovari yapa siteji 3. Sindikukhulupirira izi! Kodi ndili ndi khansa mdziko lapansi motani? Ndine wathanzi komanso 23 okha!

Ndili ndi mantha, koma ndikudziwa kuti ndidzakhala bwino. Ndinamva kuti mtendere uwu ukusamba pamene OB-GYN anandiuza nkhaniyi. Ndidali wamantha, koma ndikudziwa ndikumana ndi izi, chifukwa ndiye chisankho chokha chomwe ndili nacho.

Ogasiti 23, 2016

Lero linali gawo langa loyamba la chemo. Linali tsiku lalitali kwambiri, choncho ndatopa. Thupi langa latopa, koma malingaliro anga ali maso. Namwino adati ndichifukwa cha steroid yomwe amandipatsa isanachitike chemo ... Ndikuganiza kuti ndikhoza kukhala kuti ndakhala maola 72. Izi ziyenera kukhala zosangalatsa.

Ndikuvomereza kuti ndinali wovuta pamaso pa chemo. Sindinadziwe zomwe ndingayembekezere. Mwa zonse zomwe ndimadziwa, ndikadakhala ndikukhala chowoneka ngati chombo ndikukaponyedwa kunja kuti ndikachite chemo. Ndimaganiza kuti zipweteka kapena kuwotcha.

Nditakhala pampando wa chemo (womwe sunali chombo), nthawi yomweyo ndidayamba kulira. Ndinali wamantha kwambiri, wamanjenje, wokwiya kwambiri, ndipo sindinathe kusiya kunjenjemera.

Namwino wanga adawonetsetsa kuti ndili bwino kenako adatuluka kukatenga mwamuna wanga Kaleb, kuti akhale wanga. Sitinadziwe kuti atha kukhala ndi ine pakulowetsedwa. Atangobwerera komweko ndi ine, ndinali bwino.

Ndikukhulupirira kuti mankhwalawa adatenga pafupifupi maola asanu ndi awiri. Iwo anati zidzangokhala zazitali kamodzi pamwezi, ndikalandira madokotala azachipatala kawiri.

Ponseponse, tsiku langa loyamba la chemo silinali lowopsa kwenikweni kuposa momwe ndimaganizira. Sindinakhalepo ndi zovuta zina kupatula kutopa, koma mwachidziwikire ndiyamba kuwona zoyipa zenizeni za mankhwalawa pafupifupi milungu iwiri ina.

Seputembara 22, 2016

Ndili ku Seattle tsopano ndipo ndidzakhala kuno mpaka khansa iyi itatha. Banja langa linaganiza kuti ndibwino nditabwera kuno kuti ndilandire lingaliro lina komanso kuti andithandizenso ine ndi Kaleb tikadutsa izi.

Ndakumana ndi dokotala wanga watsopano lero, ndipo ndimangomukonda kwambiri! Samandipangitsa kumva ngati wodwala wina, koma ngati wachibale. Ndikuyamba chemo kuno, koma tidadziwitsidwa kuti mtundu wa khansa yomwe ndikulimbana nayo ndi yotsika kwambiri ya serous ovarian, yomwe siyodziwika msinkhu wanga. Tsoka ilo, imakhalanso yolimbana ndi chemo.

Sananene kuti sichiritsika, koma zitha kukhala zovuta kwambiri.

Ndataya kale kuchuluka kwa mankhwala a chemo omwe ndalandira, koma mwamwayi chokhacho chomwe ndidakhala nacho ndikumeta tsitsi.

Ndameta mutu wanga masabata angapo apitawa, ndipo ndizabwino kukhala wadazi. Tsopano sindiyenera kuchita tsitsi langa nthawi zonse!

Ndimadzimvabe ngati ndekha, ngakhale ndikuchepetsa thupi kuchokera ku chemo, yomwe imayamwa. Koma zitha kukhala zoyipa kwambiri, ndipo ndikuthokoza kuti tsitsi ndikuchepetsa thupi ndizokhazo zomwe ndikukumana nazo pakadali pano.

Novembala 5, 2016

Ndipafupifupi masiku asanu nditachitidwa opaleshoni yayikulu yochotsa khansa yomwe ndidachita pa Halowini. Ndikupweteka kwambiri.

Zimapweteka kukhosomola, zimapweteka kusuntha, zimapwetekanso kupuma nthawi zina.

Kuchita opaleshoni kumangotenga maola asanu, koma ndikukhulupirira kuti kumatha maola 6 1/2. Ndinam'chotsa minyewa ndipo ndulu yanga, zakumapeto, ndulu, gawo lina la chikhodzodzo changa, ndi zotupa zisanu zinachotsedwa. Chotupa chimodzi chinali kukula kwa mpira wapagombe ndipo chimalemera mapaundi 5.

Ndinachotsedwanso gawo lina la m'matumbo, lomwe linapangitsa kuti chikwama chaching'ono cha ileostomy chiyikidwe.

Ndikuvutikabe kuyang'ana chinthu ichi. Chikwamacho chimakola mpaka potsegula m'mimba mwanga, chotchedwa stoma, ndi momwe ndimasakira kwakanthawi. Izi ndizopenga komanso zoziziritsa nthawi yomweyo. Thupi lamunthu ndichinthu chakuthengo!

Ndikhala ndikuthawa kwa chemo kwa miyezi iwiri kuti thupi langa lipezenso bwino ndikumachira pochita opaleshoniyi.

Dokotala wanga adasiya nkhani zowopsa. Anatha kutulutsa khansa yonse yomwe amatha kuwona panthawi yochita opareshoni, koma ma lymph node ndi ndulu yanga anali ndi khansa, ndipo sakudziwa ngati angachiritsidwe.

Ndimayesedwa gawo 4 tsopano. Izi zinali zovuta kumva.

Koma kumverera kotentherako kunandisambanso, ndipo chotsatira ndinadziwa, ndikumwetulira dokotala wanga ndikumuuza "Ndikhala bwino, ingoyang'ana."

Zachidziwikire ndili ndi mantha, koma sindilola kuti kusayanjanaku kudzaze malingaliro anga. Khansara iyi imatha kumenyedwa ndipo ADZAKHALA!

Januware 12, 2017

Sindikukhulupirira kuti ndi 2017 kale! Ndayamba lero chemo lero, yomwe ndi Doxil-Avastin. Doxil amadziwika kuti ndi "mdierekezi wofiira" ndipo ndi wovuta kwambiri.

Doxil iyi si nthabwala! Sindingathe kuchita masewera olimbitsa thupi kwa masiku asanu, ndiyenera kumwa madzi ofunda, kugwiritsa ntchito madzi ofunda pachilichonse, kuvala zovala zosavala, ndipo sindingatenthe kwambiri, apo ayi ndingapeze matenda am'manja ndi miyendo, pomwe manja anu ndi mapazi ayamba kutuluka ndi kutuluka. Ndizachidziwikire kuti ndiyesetsa kupewa!

Zosintha: Ndipafupifupi 1 koloko m'mawa mwake. Ndili maso kwambiri chifukwa cha steroid, koma pakadali pano palibe chomwe chimamveka mosiyana ndi ma chemo omaliza.

Ndazindikira kuti kumwa tiyi wobiriwira wobiriwira ndisanagone kumandithandiza kugona… kwa maola angapo. Nditha kugona mwina maola anayi ndisanadzukenso, zomwe zili bwino kuposa kusowa tulo, monga kale. Tiyi wobiriwira wotentha kuti apambane!

Marichi 22, 2017

Ndinangotulutsa chikwama changa cha ileostomy! Sindikukhulupirira kuti idapita. Zakhala zabwino kukhalanso pa chemo.

Asanachite opareshoni iliyonse, dotolo wanga amandichotsa chemo pafupifupi mwezi umodzi kenako ndikundiletsa chemo kwa miyezi iwiri pambuyo pake.

Doxil ndiye mtundu wokhawo wa chemo womwe ndimakhala nawo chifukwa chotsalira kuwonda tsitsi, kuwonda, komanso kutopa. Sindingapeze matuza m'manja kapena m'mapazi, koma ndimakhala ndi matuza lilime langa! Makamaka ndikadya zakudya zomwe zimakhala ndi acidity yambiri kwa iwo, monga zipatso. Matuza anali oipa kwambiri nthawi yoyamba moti sindinathe kudya kapena kulankhula kwa masiku asanu.

Mano anga ankatentha matuza ngati angawakhudze. Zinali zoyipa. Dokotala wanga adandipatsa kutsuka mkamwa komwe kudatsegula pakamwa panga ndikuthandizira kwambiri.

Dokotala wanga ndi ine tinapanga dongosolo latsopano lamasewera limodzi. Ndipanga scan mu miyezi ingapo kuti ndiwone ngati mankhwala a Doxil-Avastin akugwira ntchito.

Novembala 3, 2017

Ndangolandira kuyitanidwa. Ndinapanga PET scan tsiku lina, ndipo dokotala wanga anangondiimbira ndi zotsatira. Palibe umboni wa matenda!

Palibe chomwe chidawunikira sikani, ngakhale ma lymph node anga! Ndakhala wamanjenje masiku angapo apitawa kudikirira kuyitanidwa uku, ndipo masiku omwe amatsogola ndisanachitike, ndimangokhala ngozi!

Dokotala wanga akufuna kundisunga pa Avastin, yomwe ndi njira yokonzera chemo, ndikundichotsa ku Doxil, chifukwa saganiza kuti Doxil amandichitira chilichonse. Gawo labwino kwambiri ndiloti chithandizo cha Avastin chimangotsala mphindi 30 zokha milungu itatu iliyonse.

Ndimatenganso letrozole, yomwe ndi chemo yapakamwa, ndipo dokotala wanga amandifunira izi kwa moyo wanga wonse.

Epulo 5, 2018

Ndataya kuwerengera kuchuluka kwa chemo komwe ndalandira. Zimamveka ngati kuzungulira 500, koma kungakhale kukokomeza.

Ndili ndi nkhani zosangalatsa lero. Ndimaganiza kuti ndikakhala pa Avastin kwa moyo wanga wonse, koma zikuwoneka ngati Epulo 27, 2018 ikhala gawo langa lomaliza la chemo !! Sindinkaganiza kuti tsiku lino lidzafika!

Ndatopa kwambiri ndikumva zodabwitsa zambiri. Sindingaleke kulira - misozi yachimwemwe, inde. Ndikumva ngati kuti katundu wolemera wachotsedwa paphewa panga. Epulo 27 sangabwere mwachangu!

Kuyang'ana m'mbuyo ndikudziwona ndekha ndikhala pampando wa chemo koyamba mu 2016 ndikuganiza zokhala pampando wa chemo komaliza pa 27 kumabweretsanso kutengeka komanso misozi yambiri.

Sindinadziwe momwe ndimakhalira wamphamvu mpaka thupi langa litakankhidwa. Sindinadziwe momwe ndinali wolimbikira m'maganizo, mpaka malingaliro anga atakankhidwira kuposa momwe ndimaganizira kuti angakankhidwire.

Ndaphunzira kuti tsiku lililonse sikudzakhala tsiku lanu labwino kwambiri, koma mutha kusintha tsiku lanu loipitsitsa kukhala tsiku labwino pongotembenuza malingaliro anu.

Ndikukhulupirira kuti malingaliro anga abwino, osati panthawi ya khansa yokha, komanso panthawi yachithandizo cha chemo, adandithandiza kuthana ndi moyo watsiku ndi tsiku, ngakhale zinthu zinali zovuta bwanji.

Kuchokera ku Seattle, Washington, Cheyann ndiwosangalatsa pa TV komanso mlengi wa akaunti yotchuka ya Instagram @alirezatalischioriginal ndi njira ya YouTube Cheyann Shaw. Ali ndi zaka 23, adapezeka kuti ali ndi khansa ya ovari yotsika pang'ono, ndipo adasandutsa malo ake ochezera azanema kukhala njira zamphamvu, zopezera mphamvu, komanso kudzikonda. Cheyann tsopano ali ndi zaka 25, ndipo palibe umboni uliwonse wamatenda. Cheyann wasonyeza dziko lapansi kuti ngakhale mukukumana ndi mkuntho uti, mutha kutero.