Chronicon Amapanga Malo Aanthu Omwe Ali Ndi Zinthu Zosatha Kuti Agwirizane ndi Kuphunzira

Zamkati

• Onani zojambulazo kuyambira Okutobala 28th 2019.
• Gig imodzi yolankhula yasintha zonse
• Mwayi wolumikiza, kuphunzira, ndi kupereka chithandizo
• Kuthetsa kusungulumwa

Healthline adayanjana ndi Chronicon pamwambo watsiku limodzi.

Onani zojambulazo kuyambira Okutobala 28th 2019.

Ali ndi zaka 15, Nitika Chopra adaphimbidwa kuyambira kumutu mpaka kumapazi ndi psoriasis yowawa, zomwe adapezeka kuti ali nazo ali ndi zaka 10.

“Nthawi zonse ndimamva mosiyana ndi moyo. Ndinali wachibwana, ndipo sindinali wamkulu pasukulu, ndipo ndinali m'modzi mwa ana abulauni pasukulu. Psoriasis adamva ngati kupatukana kwina pakati pa ine ndi wina aliyense yemwe anali wogwira mawu, sanatchule mwachizolowezi, "Chopra akuuza Healthline.

Matenda ake adamupangitsanso kuti azivutika kupeza cholinga.

"Ndinali pamalo otsika ndipo ndikukumbukira ndikupemphera ndikufunsa Mulungu," Ndili pano chifukwa chiyani? Sindikufunanso kukhala pano, ’ndipo uthenga womwe ndidabwerera unali womveka ngati tsiku ndipo wanditsogolera pa zonse zomwe ndachita. Uthengawo udali kuti: Izi sizikukhudza iwe, ”adatero Chopra.

Maganizo ake adamuthandiza kupirira kwazaka zambiri, ngakhale atamupeza ndi matenda a psoriatic ali ndi zaka 19.

"Ndinali ku koleji m'chipinda changa chogona ndipo ndimayesera kutsegula thumba mkati mwa bokosi lazinthu ndipo manja anga samagwira. Sindinayambe ndakhalapo ndi vuto lililonse, koma nditapita kwa dokotala anandiuza kuti ndili ndi nyamakazi, ”akukumbukira Chopra.

Kwa zaka zisanu ndi ziwiri zotsatira, mafupa ake adayamba kupunduka msanga mpaka pomwe samatha kuyenda popanda kupweteka kwambiri pamapazi ake. Ali ndi zaka 25, adakumana ndi rheumatologist yemwe adamupatsa mankhwala othandizira kuti achepetse kuchepa. Anapemphanso machiritso athunthu komanso amzimu, komanso psychotherapy.

“Machiritso si ofanana. Ndidakali ndi psoriasis, ngakhale sinali momwe ndidapangira, koma ndiulendo wautali ngati momwe ziliri ndi anthu ambiri omwe ali ndi matenda osachiritsika, "akutero a Chopra.

Gig imodzi yolankhula yasintha zonse

Pafupifupi zaka 10 zapitazo, Chopra anali kuchita nawo pulogalamu yophunzitsa moyo pomwe adamva kufunitsitsa kugawana malingaliro ake ndi dziko lapansi.Anayambitsa blog mu 2010, adayambitsa zokambirana zake, ndipo adayamba kukhala pagulu lankhondo lodzikonda.

"Zinthu zonsezi zidayamba kuchitika koma sindimayang'ana kwambiri matenda aakulu. Ndinkachita mantha kulowa matenda anga chifukwa sindinkafuna kuoneka ngati ndikufunafuna chisamaliro, ”akutero.

Komabe, izi zidasintha pomwe adasungira gig yoyankhula kumapeto kwa 2017. Ngakhale adalembedwa ntchito kuti ayankhule zodzikondanso, adasankha kuyang'ana pamutuwu monga momwe zimakhudzira thupi, thanzi, komanso makamaka matenda osachiritsika.

"Chochitikacho chidasintha chidaliro changa poyankhula za izi chifukwa pambuyo pake panali azimayi 10 omwe amafunsa mafunso ndipo 8 mwa azimayiwa anali ndi matenda osatha ochokera ku matenda ashuga komanso lupus mpaka khansa," akutero a Chopra. “Ndinalankhula ndi azimayiwo m'njira yomwe sindimadziwa kuti ndingathe pagulu. Kunali kuchokera pansi penipeni pa chowonadi changa ndipo ndimatha kudziwa kuti ndawathandizadi m'njira yomwe amadzimva kuti sakuwoneka.

Mwayi wolumikiza, kuphunzira, ndi kupereka chithandizo

Njira yake yatsopano yothandizira ena ndikugwirizana ndi Healthline kuti ichitire Chronicon, chochitika cha tsiku limodzi chikuchitika pa Okutobala 28, 2019 ku New York City.

Tsikuli lidzadzazidwa ndi uthenga wolandilidwa kuchokera ku Chopra, nyimbo, ndi magawo ndi magawo onse okhudzana ndi matenda aakulu. Mitu ndi monga chibwenzi, zakudya, komanso kudzilimbikitsa.

"Idzangokhala ngati nyumba yosangalatsa tsiku lonse, koma yokhazikika pachiwopsezo komanso chowonadi, komanso oyankhula ena mwamphamvu," akutero a Chopra.

Mmodzi mwa oyankhula pamwambowu, a Eliz Martin, afotokoza momwe amachitira ndi anthu osamvetsetsa kuchuluka kwa ululu womwe amapirira kuchokera ku multiple sclerosis (MS), komanso momwe amathandizira manyazi okhudzana ndi matenda ake.

Martin anapezeka ndi MS mwadzidzidzi pa Marichi 21, 2012.

"Ndidadzuka tsiku lomwelo ndikulephera kuyenda, ndipo pofika madzulo a tsikulo ndidatsimikizika nditatha kuwona MRI yaubongo, khosi, ndi msana wanga," Martin akuuza Healthline.

Anasiya kukhala mayi wodziyimira pawokha, wopambana pantchito ndikukhala wolumala ndikukhala ndi makolo ake.

“Tsiku lililonse ndimakhala ndikulimbana ndi kuyenda komanso kugwiritsa ntchito ndodo kapena chikuku ... koma gawo lomwe ndakhudzidwa kwambiri m'moyo wanga ndangokhala ndimatenda osachiritsika. Ndi chinthu chomwe chidzakhale ndi ine kwamuyaya. Umenewo ndi matenda oopsa, ”akutero.

Martin adalumikizana ndi Chronicon kuti athandizire kuchepetsa katunduyo.

"Nthawi zonse ndimamva kuchokera kwa anzanga omwe ali ndi MS momwe zimakhalira kudzipatula," akutero Martin. "Chronicon ikubweretsa malingaliro ammudzi omwe ndiwowoneka - ndi malo oti tisonkhane ndi kulumikizana ndikuphunzira ndikuthandizidwa."

Kuthetsa kusungulumwa

Wokamba mnzake komanso chithunzi cha Stacy London nawonso amatenga nawo gawo pazifukwa zomwezi. Pakati pa Chronicon, akhala pansi ndi Chopra kuti akambirane zaulendo wake wokhala ndi psoriasis kuyambira ali ndi zaka 4, komanso ndi psoriatic nyamakazi kuyambira zaka 40.

London ikambirananso zaumoyo wamaganizidwe, komanso zowawa komanso zopweteka zomwe zimadza ndikudwala matenda osachiritsika.

"Vuto la matenda ambiri omwe amabwera chifukwa chodzitchinjiriza [ndi matenda osachiritsika] ndikuti amakulemetsani, ndipo nthawi zina lingaliro lakukhala ndi chinthu chakupha limakhala lingaliro lokhazika mtima pansi kuposa kuti, 'Ndiyenera kusamalira izi kwathunthu moyo, '”London akuwuza Healthline.

Anatinso Chronicon atha kuthandiza kusintha kusungulumwa kukhala chiyembekezo.

"Ndi lingaliro labwino kwambiri mukaganiza za anthu mamiliyoni ambiri padziko lonse lapansi omwe ali ndi matenda osachiritsika omwe amawasiya akumenyera kunyumba kapena akuvutika - kaya ndi amisala kapena akuthupi kapena onse. Ku Chronicon, simudzakhalanso osungulumwa. Mwina simukhala ndi matenda osachiritsika ofanana ndi omwe ali pafupi nanu, koma kuwayang'ana ndikunena kuti, 'Mtsikana, ndikudziwa momwe kulimbana uku kumamvera' ndizodabwitsa. ”

Chopra akuvomereza. Chiyembekezo chake chachikulu cha Chronicon ndikuti zimathandiza kuthetsa kudzipatula.

"Kwa iwo omwe ali pantchito yosangalala ndi matenda awo osatha, amakumana ndi anthu ndipo amadzimva kukhala osungulumwa komanso olimbikitsidwa kuti achite bwino kwambiri," akutero. "Kwa iwo omwe akuvutika ndi matenda awo osatha, sadzasungulumwa ndikulimbitsa ubale wabwino mdera lawo."

"Ndikamalimbana ndi matenda anga, ndimatsekera anthu kunja, koma ndikhulupilira kuti Chronicon amapatsa anthu zida ndi chithandizo mdera lathu kuti athe kupita kumayanjano awo [molimba mtima]," akutero.

Gulani matikiti anu a Chronicon apa.

Cathy Cassata ndi wolemba pawokha wodziwikiratu pa nkhani zathanzi, thanzi lam'mutu, komanso machitidwe amunthu. Ali ndi luso lolemba ndi kutengeka komanso kulumikizana ndi owerenga mwanzeru komanso moyenera. Werengani zambiri za ntchito yake Pano.