Kupeza Thandizo Ngati Muli ndi CLL: Magulu, Zothandizira, ndi Zambiri

Zamkati

• Akatswiri a khansa ya m'magazi
• Zambiri zosavuta kumva
• Thandizo lamalingaliro komanso chikhalidwe
• Thandizo lazachuma
• Kutenga

Matenda a lymphocytic leukemia (CLL) amatha kupita patsogolo pang'onopang'ono, ndipo mankhwala ambiri amapezeka kuti athetse vutoli.

Ngati mukukhala ndi CLL, akatswiri azaumoyo atha kukuthandizani kuti mumvetsetse ndikuyeza zomwe mungasankhe. Zina zothandiziranso zilipo kuti zikuthandizireni kuthana ndi zovuta zomwe zitha kukhala mmoyo wanu.

Werengani kuti mudziwe zambiri pazazinthu zina zomwe zimapezeka kwa anthu omwe ali ndi CLL.

Akatswiri a khansa ya m'magazi

Ngati muli ndi CLL, ndibwino kuti muwone katswiri wa khansa ya m'magazi yemwe amadziwa kuthana ndi vutoli. Amatha kukuthandizani kuti muphunzire zamankhwala aposachedwa ndikupanga dongosolo la chithandizo.

Dokotala wanu woyang'anira chisamaliro chachikulu kapena malo omwe ali ndi khansa mdera lanu atha kukutumizirani kwa katswiri wa khansa ya m'magazi mdera lanu. Muthanso kufunafuna akatswiri pafupi nanu pogwiritsa ntchito nkhokwe za pa intaneti zosungidwa ndi American Society of Clinical Oncology ndi American Society of Hematology.

Zambiri zosavuta kumva

Kuphunzira zambiri za CLL kungakuthandizeni kumvetsetsa momwe mukudalira komanso momwe mungapangire chithandizo chamankhwala, chomwe chingakuthandizeni kuti muzitha kudziletsa komanso kudzidalira.

Mutha kudziwa zambiri zamtunduwu pa intaneti, koma magwero ena paintaneti ndi odalirika kuposa ena.

Kuti mumve zambiri zodalirika, ganizirani zakuwunika zomwe mabungwe awa akutsatira:

• American Cancer Society
• American Society of chipatala Oncology
• Bungwe la CLL
• Khansa ya m'magazi & Lymphoma Society

Akatswiri azachidziwitso ochokera ku Leukemia & Lymphoma Society aliponso kuti athandizire kuyankha mafunso okhudzana ndi matendawa. Mutha kulumikizana ndi katswiri wazachidziwitso pogwiritsa ntchito njira yocheza pa intaneti, kudzaza imelo pa intaneti, kapena kuyimbira 800-955-4572.

Thandizo lamalingaliro komanso chikhalidwe

Ngati mukukumana ndi zovuta kuthana ndi zovuta zakukhala ndi khansa, dziwitsani gulu lanu lazachipatala. Atha kukutumizirani kwa katswiri wazamankhwala kapena othandizira.

Muthanso kulankhulana ndi mlangizi waluso kudzera mu Cancer Care's Hopeline. Aphungu awo akhoza kukupatsani chilimbikitso ndikukuthandizani kupeza zofunikira pakuwongolera matenda anu. Kuti mugwirizane ndi ntchitoyi, imbani 800-813-4673 kapena imelo [email protected].

Anthu ena zimawathandizanso kulumikizana ndi anthu ena omwe amakhala ndi CLL.

Kupeza anthu ena omwe akhudzidwa ndi izi:

• Funsani gulu lanu lazachipatala kapena malo omwe ali ndi khansa mdera lanu ngati akudziwa zamagulu amathandizidwe amomwe amasonkhana mdera lanu.
• Fufuzani gulu lothandizira odwala la CLL, lembetsani nawo maphunziro a odwala, kapena pitani ku zochitika za CLL Society.
• Fufuzani magulu othandizira am'deralo, lembetsani zokambirana pagulu pa intaneti, kapena lumikizanani ndi odzipereka anzanu kudzera mu Leukemia & Lymphoma Society.
• Sakani nkhokwe ya American Cancer Society kuti mupeze magulu othandizira.
• Lowani gulu lothandizira pa intaneti kudzera pa Cancer Care.

Thandizo lazachuma

Ngati mukuvutika kuti muzitha kusamalira ndalama zothandizira CLL, zitha kuthandiza:

• Lolani mamembala a gulu lanu lachipatala adziwe kuti ndalamazo ndizofunika. Akhozanso kusintha njira yomwe mwalandira kapena angakutumizireni ku zothandizira zandalama.
• Lumikizanani ndi omwe amakupatsani inshuwaransi yazaumoyo kuti mudziwe omwe akukuthandizani, chithandizo chamankhwala, ndi mayeso omwe amapezeka pansi pa pulani yanu. Mutha kusungira ndalama posintha wothandizira inshuwaransi, dongosolo la inshuwaransi, kapena dongosolo la chithandizo.
• Funsani malo anu a khansa mdera lanu ngati amapereka mapulogalamu aliwonse othandizira ndalama. Angathe kukutumizirani kwa aphungu azachuma, mapulogalamu othandizira odwala, kapena zinthu zina kuti muthandizire kusamalira mtengo wa chisamaliro.
• Onani tsamba lawebusayiti kuti mupeze mankhwala aliwonse omwe mungatenge ngati akupereka kuchotsera kwa wodwala kapena mapulogalamu ena obwezerera.

Mabungwe otsatirawa amaperekanso upangiri ndi zothandizira pakuwononga mtengo wa chisamaliro cha khansa:

• American Cancer Society
• American Society of chipatala Oncology
• Kusamalira Khansa
• Khansa Yothandizirana Ndi Cancer
• Khansa ya m'magazi & Lymphoma Society
• National Cancer Institute

Kutenga

Kusamalira matenda a CLL kungakhale kovuta, koma pali zinthu zambiri zomwe zingakuthandizeni kuthana ndi zovuta zakuthupi, zamaganizidwe, komanso zachuma zomwe zingabweretse.

Gulu lanu lazachipatala kapena malo a khansa mderalo atha kukuthandizaninso kupeza zothandizira pa intaneti kapena mdera lanu. Auzeni omwe akukuthandizani kudziwa ngati muli ndi mafunso kapena nkhawa zokhudzana ndi matenda anu kapena zosowa zanu.