Mtengo Wokhala ndi Hepatitis C: Nkhani ya Connie

Zamkati

• Kusamalira zotsatira zoyipa zamankhwala
• Kuyembekezera kuti mankhwala atsopano azipezeka
• Kulipira chisamaliro
• Mtengo wa mayeso ndi chithandizo
• Kulimbana ndi manyazi a matenda

Mu 1992, a Connie Welch adachitidwa opareshoni kuchipatala cha odwala ku Texas. Pambuyo pake adazindikira kuti adatenga kachilombo ka hepatitis C kuchokera ku singano yonyansa ali kumeneko.

Asanamuchite opaleshoni, katswiri wa zamankhwala anatenga jakisoni m'thireyi yake, anadzibaya jekeseni wa mankhwala omwe anali nawo, ndikuwonjezera jekeseniyo ndi mankhwala amchere asanayikenso. Itakwana nthawi yoti Connie akhale pansi, anamubaya jekeseni yemweyo.

Patadutsa zaka ziwiri, adalandira kalata kuchokera kuchipatala: Katswiriyo adamugwira akuba mankhwala a narcotic m'masilinji. Anayesanso kuti ali ndi kachilombo ka hepatitis C.

Hepatitis C ndi matenda omwe amayambitsa kutupa kwa chiwindi ndi kuwonongeka. Nthawi zina matenda a chiwindi a pachimake a C, anthu amatha kuthana ndi matendawa popanda chithandizo. Koma nthawi zambiri, amakhala ndi matenda otupa chiwindi a mtundu wa C - matenda okhalitsa omwe amafunikira chithandizo chamankhwala ochepetsa mphamvu ya ma virus.

Anthu pafupifupi 2.7 mpaka 3.9 miliyoni ku United States ali ndi matenda otupa chiwindi a nthawi yayitali C. Ambiri alibe zizindikilo ndipo sazindikira kuti atenga kachilomboka. Connie anali m'modzi mwa anthuwa.

"Dokotala wanga adandiimbira ndikundifunsa ngati ndalandira chidziwitso cha zomwe zidachitika, ndipo ndidati ndidatero, koma ndidasokonezeka nazo," a Connie adauza Healthline. "Ndinati, 'Kodi sindikanadziwa kuti ndinali ndi matenda a chiwindi?'"

Dokotala wa Connie adamulimbikitsa kuti akayezetse. Motsogozedwa ndi gastroenterologist komanso hepatologist, adayesedwa magazi katatu. Nthawi iliyonse, amayesedwa kuti ali ndi kachilombo ka hepatitis C.

Anakhalanso ndi chiwindi cha chiwindi. Idawonetsa kuti anali atavulala kale pachiwindi pang'ono kuchokera kumatendawa. Matenda a Hepatitis C amatha kuwononga ndi mabala osasinthika pachiwindi, otchedwa cirrhosis.

Zitha kutenga zaka makumi awiri, mankhwala ozungulira ma virus katatu, ndipo madola masauzande ambiri adalipira mthumba kuti kachilomboko kathetsedwe mthupi lake.

Kusamalira zotsatira zoyipa zamankhwala

Connie atamupeza ndi matendawa, panali njira imodzi yokha yothandizira ma virus a hepatitis C omwe amapezeka. Mu Januwale 1995, adayamba kulandira jakisoni wa interferon wopanda pegylated.

Connie adakumana ndi zovuta "zoyipa" kuchokera kumankhwala. Analimbana ndi kutopa kwambiri, minofu ndi ziwalo, ziwalo za m'mimba, komanso tsitsi.

"Masiku ena anali abwino kuposa ena," akukumbukira, "koma kwakukulu, anali ovuta."

Zikanakhala zovuta kugwira ntchito yanthawi zonse, adatero. Anagwira ntchito kwa zaka zambiri ngati katswiri wazachipatala komanso wothandizira kupuma. Koma adasiya atatsala pang'ono kukayezetsa hepatitis C, ndimalingaliro obwerera kusukulu ndikukachita digiri ya unamwino - mapulani omwe adawasiya atazindikira kuti adatenga matendawa.

Zinali zovuta kuti athe kusamalira maudindo ake kunyumba ndikulimbana ndi zovuta zamankhwala. Panali masiku omwe zinali zovuta kudzuka pabedi, osasamala za kusamalira ana awiri. Anzake ndi abale adalowererapo kuti athandizire kusamalira ana, ntchito zapakhomo, kutumizira ena ntchito, ndi ntchito zina.

"Ndinali mayi wanthawi zonse, ndipo ndimayesetsa kuti chilichonse kunyumba chizikhala monga momwe tingathere, kwa ana athu, kusukulu, ndi chilichonse," adakumbukira, "koma panali nthawi zina ndimayenera kukhala ndi zina Thandizeni."

Mwamwayi, sanafunikire kulipira thandizo lina. "Tidali ndi abwenzi komanso achibale ambiri achisomo omwe adatithandizira, chifukwa chake padalibe ndalama. Ndinali woyamikira kwambiri chifukwa cha zimenezi. ”

Kuyembekezera kuti mankhwala atsopano azipezeka

Poyamba, jakisoni wa interferon wopanda pegylated amaoneka ngati akugwira ntchito. Koma pamapeto pake, gawo loyamba la mankhwalawa silinapambane. Kuchuluka kwa mavairasi a Connie kunachulukirachulukira, kuchuluka kwake kwa enzyme ya chiwindi kudakulirakulira, ndipo zotsatirapo za mankhwalawo zidakhala zazikulu kwambiri kuti zipitirire.

Popanda njira zina zamankhwala, Connie adadikirira zaka zingapo kuti ayesere mankhwala atsopano.

Anayamba kulandira mankhwala achiwiri mchaka cha 2000, ndikutenga pegylated interferon ndi ribavirin yomwe idavomerezedwa posachedwa kwa anthu omwe ali ndi matenda a hepatitis C.

Mankhwalawa sanapambane.

Apanso, amayenera kudikirira zaka zingapo asanalandire chithandizo chatsopano.

Zaka khumi ndi ziwiri pambuyo pake, mu 2012, adayamba gawo lake lachitatu komanso lomaliza la mankhwala ochepetsa ma virus. Zinaphatikizapo kuphatikiza kwa pegylated interferon, ribavirin, ndi telaprevir (Incivek).

“Panali mtengo wambiri wokhudzidwa chifukwa mankhwalawo anali okwera mtengo kwambiri kuposa mankhwala oyamba, kapena mankhwala awiri oyamba, koma timayenera kuchita zomwe timafunikira kuchita. Ndinadalitsidwa kwambiri chifukwa chithandizochi chinapambana. ”

M'masabata ndi miyezi yotsatira atalandira chithandizo chamagetsi chachitatu, kuyezetsa magazi kambiri kudawonetsa kuti adakwanitsa kuyankha ma virus (SVR). Kachilomboko kanali katatsika msinkhu wosaoneka m'magazi ake ndipo sikanapezeke. Anachiritsidwa nthenda ya hepatitis C.

Kulipira chisamaliro

Kuyambira pomwe adatenga kachilomboka mu 1992 mpaka nthawi yomwe adachiritsidwa mu 2012, Connie ndi banja lake adalipira ndalama zambiri kuthumba kuti athetse matenda a hepatitis C.

"Kuyambira 1992 mpaka 2012, imeneyo inali nthawi yazaka 20, ndipo izi zimakhudza ntchito yambiri yamagazi, ma biopsies awiri a chiwindi, mankhwala awiri osalephera, kupita kuchipatala," adatero, "motero panali ndalama zambiri."

Atamva kuti atha kutenga matenda a hepatitis C, Connie anali ndi mwayi wokhala ndi inshuwaransi yazaumoyo. Banja lake lidagula inshuwaransi yothandizidwa ndi olemba ntchito kudzera mu ntchito ya amuna awo. Ngakhale zili choncho, ndalama zakuthumba "zidayamba kukwera" mwachangu.

Amalipira pafupifupi $ 350 pamwezi pamalipiro a inshuwaransi ndipo amachotsera $ 500 pachaka, zomwe amayenera kukumana nawo asanapatsidwe inshuwaransi yawo.

Atalandira deductible yapachaka, adapitiliza kukumana ndi chindapusa cha $ 35 paulendo uliwonse wopita kwa katswiri. Kumayambiriro kwa matenda ake, adakumana ndi gastroenterologist kapena hepatologist kangapo kamodzi pamlungu.

Nthawi ina, banja lake linasintha mapulani a inshuwaransi, koma atazindikira kuti gastroenterologist wake anali kunja kwa netiweki yawo yatsopano.

"Tidauzidwa kuti gastroenterologist wanga wapano azikhala ndi dongosolo latsopanoli, ndipo zikuwoneka kuti sanali. Ndipo izi zinali zosokoneza kwambiri chifukwa ndimayenera kupeza dokotala watsopano nthawi imeneyo, ndipo nditakhala ndi dokotala watsopano, zikuyenera kuti muyenera kuyambiranso. ”

Connie anayamba kuwona dokotala watsopano wam'mimba, koma sanakhutire ndi chisamaliro chomwe adamupatsa. Chifukwa chake adabwerera kwa katswiri wake wakale. Amayenera kulipira mthumba kuti adzamuchezere, mpaka banja lake litasinthana mapulani a inshuwaransi kuti amubwezeretse pamaneti awo.

Anati, "Amadziwa kuti tili mu nthawi yopanda inshuwaransi yomwe ingamuthandize, motero anatipatsa kuchotsera."

"Ndikufuna kunena kuti nthawi ina sanandilipire konse kukacheza kuofesi," adapitiliza, "kenako enawo pambuyo pake, adangondilipiritsa zomwe ndimayenera kulipira kukopa."

Mtengo wa mayeso ndi chithandizo

Kuphatikiza pa zolipiritsa pamayendedwe a dokotala, Connie ndi banja lake amayenera kulipira 15% ya bilu pamayeso aliwonse azachipatala omwe amalandila.

Amayenera kukayezetsa magazi asanafike, mkati, komanso pambuyo pake. Anapitilizabe kugwira ntchito yamagazi kamodzi pachaka kwazaka zisanu atakwanitsa SVR. Kutengera mayeso omwe adachitika, adalipira pafupifupi $ 35 mpaka $ 100 pantchito iliyonse yamagazi.

Connie adakumananso ndi ziwindi ziwiri za chiwindi, komanso kuyezetsa chiwindi chake pachaka cha ultrasound. Amalipira pafupifupi $ 150 kapena kupitilira mayeso aliwonse a ultrasound. Pakati pa mayeso amenewo, adokotala amafufuza ngati ali ndi matenda enaake komanso mavuto ena omwe angakhalepo. Ngakhale tsopano kuti wachiritsidwa ku matenda a hepatitis C, ali pachiwopsezo chachikulu chotenga khansa ya chiwindi.

Banja lake lidalipira 15 peresenti yamitengo itatu yamankhwala omwe adalandira. Mankhwalawa amawononga ndalama masauzande masauzande, kuphatikiza gawo lomwe amalipiritsa kwa omwe amawapatsa inshuwaransi.

Iye anati: “Pafupifupi 15 peresenti ya anthu 500 sangakhale oipa kwambiri, koma 15 peresenti ya anthu masauzande angapo akhoza kuwonjezeka.”

Connie ndi banja lake nawonso ankayimbidwa milandu chifukwa chomupatsa mankhwala akuchipatala kuti athane ndi zovuta zamankhwala ake. Izi zinaphatikizapo mankhwala oletsa nkhawa komanso jakisoni kuti amuthandize kuchuluka kwa maselo ofiira amwazi. Adalipira mafuta ndi malo oimikapo magalimoto kuti akakhale nawo nthawi zakuchipatala zambirimbiri. Ndipo amalipira chakudya asanadye nthawi akadwala kwambiri kapena akutanganidwa ndi madotolo kuti aziphika.

Amakhalanso ndi mavuto am'maganizo.

“Hepatitis C ili ngati nthenda ya m'madziwe, chifukwa imakhudza gawo lililonse la moyo wanu, osati pazachuma zokha. Zimakukhudzani m'maganizo ndi m'maganizo, komanso kuthupi. ”

Kulimbana ndi manyazi a matenda

Anthu ambiri ali ndi malingaliro olakwika okhudzana ndi matenda a chiwindi a hepatitis C, omwe amachititsa kuti anthu azisala nawo.

Mwachitsanzo, anthu ambiri sazindikira kuti njira yokhayo yomwe munthu angaperekere kachilomboko kudzera mwa kukhudzana ndi magazi. Ndipo ambiri amaopa kukhudza kapena kuthera nthawi ndi wina yemwe watenga kachilomboka. Mantha oterewa amatha kubweretsa ziganizo zoyipa kapena tsankho kwa anthu omwe amakhala nawo.

Kuti athane ndi zokumana nazozi, a Connie aona kuti zimathandiza kuphunzitsa ena.

"Ndikumva kuwawa kangapo ndi ena," adatero, "koma, ndidawugwiritsa ntchito ngati mwayi woti ndiyankhe mafunso omwe anthu ena anali nawo okhudzana ndi kachilomboka ndikuchotsa nthano zina za momwe amatengera . ”

Tsopano akugwira ntchito yolimbikitsa odwala komanso wothandizira moyo, kuthandiza anthu kuthana ndi zovuta za matenda a chiwindi ndi matenda a hepatitis C. Amalembanso zolemba zingapo, kuphatikiza tsamba lachikhulupiriro lomwe amasunga, Life Beyond Hep C.

Ngakhale anthu ambiri amakumana ndi zovuta popita kuchipatala ndi kulandira chithandizo, Connie amakhulupirira kuti pali chiyembekezo.

“Pali chiyembekezo chachikulu tsopano chodutsa hep C kuposa kale. Kubwerera nditapezeka, panali chithandizo chimodzi chokha. Tsopano lero tili ndi njira zisanu ndi ziwiri zochiritsira matenda otupa chiwindi a C amitundu isanu ndi umodzi. ”

"Pali chiyembekezo kwa odwala ngakhale omwe ali ndi matenda enaake," adapitiliza. “Pali kuyezetsa kwapamwamba kwambiri tsopano kuti athe kuthandiza odwala kuti adziwe msanga ndi kuwonongeka kwa chiwindi. Pali zinthu zambiri zopezeka kwa odwala kuposa kale. ”