Upangiri Wokambirana Kwa Doctor: Zomwe Muyenera Kufunsa Zokhudza PPMS

Zamkati

• 1. Ndinapeza bwanji PPMS?
• 2. Kodi PPMS imasiyana bwanji ndi mitundu ina ya MS?
• 3. Kodi mungapeze bwanji matenda anga?
• 4. Kodi zilonda mu PPMS ndi ziti?
• 5. Zimatenga nthawi yayitali bwanji kuti mupeze PPMS?
• 6. Kodi ndiyenera kuyesedwa kangati?
• 7. Kodi matenda anga ayamba kukulirakulira?
• 8. Ndi mankhwala ati omwe mungapatse?
• 9. Kodi pali njira zochiritsira zosagwiritsidwa ntchito masiku onse zomwe ndingayesere?
• 10. Ndingatani kuti ndikwaniritse matenda anga?
• 11. Kodi pali mankhwala a PPMS?

Kuzindikira kwa primary progressive multiple sclerosis (PPMS) kungakhale kovuta poyamba. Vutoli palokha ndilovuta, ndipo pali zinthu zambiri zosadziwika chifukwa cha momwe ma sclerosis (MS) amawonetsera mosiyana pakati pa anthu.

Izi zati, mutha kuchitapo kanthu pano zomwe zingakuthandizeni kuyang'anira PPMS poletsa zovuta zomwe zingakulepheretseni kukhala ndi moyo wabwino.

Gawo lanu loyamba ndikukambirana moona mtima ndi dokotala wanu. Ganizirani kubweretsa mndandanda wa mafunso 11 kuti musankhidwe ngatiupangiri wa PPMS.

1. Ndinapeza bwanji PPMS?

Zomwe zimayambitsa PPMS, ndi mitundu ina yonse ya MS, sizikudziwika. Ochita kafukufuku amakhulupirira kuti zachilengedwe komanso majini atha kuthandizira pakukula kwa MS.

Komanso, malinga ndi National Institute of Neurological Disorders and Stroke (NINDS), pafupifupi 15 peresenti ya anthu omwe ali ndi MS ali ndi achibale amodzi omwe ali ndi vutoli. Anthu omwe amasuta amakhalanso ndi MS.

Dokotala wanu sangathe kukuwuzani momwe munakhalira PPMS. Komabe, atha kufunsa mafunso okhudzana ndi mbiri yaumoyo wanu komanso banja lanu kuti mumve bwino.

2. Kodi PPMS imasiyana bwanji ndi mitundu ina ya MS?

PPMS ndiyosiyana m'njira zingapo. Chikhalidwe:

• imayambitsa kulumala posachedwa kuposa mitundu ina ya MS
• zimayambitsa kutupa kochepa
• amapanga zotupa zochepa muubongo
• zimayambitsa zilonda zamtsempha zambiri
• zimakonda kukhudza achikulire mtsogolo
• ndizovuta kwambiri kuzindikira

3. Kodi mungapeze bwanji matenda anga?

PPMS imatha kupezeka ngati muli ndi chotupa chimodzi chaubongo, zotupa ziwiri za msana, kapena cholozera cha immunoglobulin G (IgG) chokwera mumtsempha wanu wamtsempha.

Komanso, mosiyana ndi mitundu ina ya MS, PPMS ikhoza kuwonekera ngati mwakhala ndi zizindikilo zomwe zimangokulirakulira kwa chaka chimodzi osakhululukidwa.

Mu mtundu wobwezeretsanso wa MS, pakuchulukirachulukira (zolakwitsa), kuchuluka kwa kulemala (zizindikilo) kumakulirakulira, kenako nkutha kapena kutha pang'ono pang'ono pakakhululukidwa. PPMS itha kukhala ndi nthawi yomwe zizindikilo sizikuipiraipira, koma zizindikirazo sizikucheperachepera.

4. Kodi zilonda mu PPMS ndi ziti?

Zilonda, kapena zikwangwani, zimapezeka mu mitundu yonse ya MS. Izi zimachitika makamaka muubongo wanu, ngakhale zimakula msana wanu mu PPMS.

Zilonda zimayamba kukhala zotupa pamene chitetezo chamthupi chanu chimawononga myelin yake. Myelin ndichimake choteteza chomwe chimazungulira ulusi wamitsempha. Zilondazi zimakula pakapita nthawi ndipo zimadziwika kudzera mu sikani ya MRI.

5. Zimatenga nthawi yayitali bwanji kuti mupeze PPMS?

Nthawi zina kudziwa kuti PPMS kumatha kutenga zaka ziwiri kapena zitatu kuposa kuzindikira kuti MS (RRMS) yobwereranso, malinga ndi National Multiple Sclerosis Society. Izi ndichifukwa cha zovuta za vutoli.

Ngati mwangolandira kumene matenda a PPMS, mwina adachokera miyezi kapena zaka zoyesa ndikutsatira.

Ngati simunalandire matenda amtundu wa MS pano, dziwani kuti zingatenge nthawi yayitali kuti muzindikire. Izi ndichifukwa choti dokotala wanu adzafunika kuyang'ana kudzera mu ma MRIs angapo kuti azindikire momwe ubongo wanu ndi msana wanu ulili.

6. Kodi ndiyenera kuyesedwa kangati?

National Multiple Sclerosis Society imalimbikitsa MRI yapachaka komanso kuyesa minyewa kamodzi pachaka.

Izi zidzakuthandizani kudziwa ngati matenda anu akubwereranso kapena akupita patsogolo. Kuphatikiza apo, ma MRIs amatha kuthandiza adotolo kusanja PPMS yanu kuti athe kulangiza chithandizo choyenera. Kudziwa kukula kwa matendawa kungathandize kulepheretsa kuyamba kwa chilema.

Dokotala wanu akupatsani malingaliro otsatirawa. Mwinanso mungafunike kuwachezera nthawi zambiri mukayamba kukumana ndi zovuta zowonjezeka.

7. Kodi matenda anga ayamba kukulirakulira?

Kuyamba ndi kukula kwa zizindikiro mu PPMS kumachitika msanga kuposa mitundu ina ya MS. Choncho, zizindikiro zanu sizingasinthe monga momwe zimakhalira pakubwezeretsanso mitundu yamatenda koma kupitilirabe kukulirakulira.

Pamene PPMS ikupita, pamakhala chiopsezo cha olumala. Chifukwa cha zotupa zambiri kumsana wanu, PPMS imatha kuyambitsa zovuta zina zoyenda. Muthanso kukhala ndi nkhawa, kutopa, komanso luso lopanga zisankho.

8. Ndi mankhwala ati omwe mungapatse?

Mu 2017, Food and Drug Administration (FDA) idavomereza ocrelizumab (Ocrevus), mankhwala oyamba omwe angagwiritsidwe ntchito pochiza PPMS. Mankhwala osinthira matendawa amavomerezedwanso kuti athetse RRMS.

Kafukufuku akupitilirabe kupeza mankhwala omwe amachepetsa zovuta zamitsempha ya PPMS.

9. Kodi pali njira zochiritsira zosagwiritsidwa ntchito masiku onse zomwe ndingayesere?

Njira zina zochiritsira zomwe zagwiritsidwa ntchito pa MS ndi izi:

• yoga
• kutema mphini
• mankhwala azitsamba
• wachidwi
• aromachi
• tai chi

Chitetezo ndi njira zina zochiritsira ndichodetsa nkhawa. Ngati mutamwa mankhwala aliwonse, mankhwala azitsamba amatha kuyanjana. Muyenera kuyesa yoga ndi tai chi ndi mlangizi wotsimikizika yemwe amadziwa bwino MS - motere, atha kukuthandizani kuti musinthe zovuta zilizonse momwe zingafunikire.

Lankhulani ndi dokotala musanayese njira zina za PPMS.

10. Ndingatani kuti ndikwaniritse matenda anga?

Kuwongolera kwa PPMS kumadalira kwambiri:

• kukonzanso
• thandizo loyenda
• chakudya chopatsa thanzi
• kuchita masewera olimbitsa thupi
• kuthandizidwa m'maganizo

Kuphatikiza pa kupereka malingaliro m'malo awa, dokotala wanu amathanso kukutumizirani ku mitundu ina ya akatswiri. Izi zikuphatikiza othandizira mwakuthupi kapena pantchito, odyetsa, komanso othandizira othandizira magulu.

11. Kodi pali mankhwala a PPMS?

Pakadali pano, palibe mankhwala amtundu uliwonse wa MS - izi zikuphatikiza PPMS. Cholinga ndiye kusamalira matenda anu kuti muchepetse kukulira kwa zizindikilo ndikulemala.

Dokotala wanu adzakuthandizani kudziwa njira yabwino yoyendetsera PPMS. Musaope kupanga maimidwe otsatila ngati mukumva ngati mukufuna malangizo ena owongolera.