Mavuto Amatenda: Dokotala Wanga Anena Kuti Ndilibe EDS. Tsopano chiani?

Zamkati

• Koma apa pali chinthuchi: chodabwitsa kwambiri chomwe ndaphunzira ndikuti kupwetekedwa bwino kwambiri sikupezeka mwa mankhwala.

Ndinkafuna zotsatira zabwino chifukwa ndimafuna mayankho.

Takulandilani ku Tissue Issues, gawo la upangiri kuchokera kwa comedian Ash Fisher wokhudzana ndi vuto lamagulu, matenda a Ehlers-Danlos (EDS), ndi mavuto ena azovuta. Ash ali ndi EDS ndipo ndiwotsogola kwambiri; kukhala ndi gawo lazolangizira ndikulota. Muli ndi funso kwa Ash? Fikirani kudzera pa Twitter kapena Instagram @AshFisherHaha.

Nkhani Zokondedwa,

Mnzanga wina anapezeka ndi EDS posachedwapa. Ndinali ndisanamvepo za izi, koma nditawerenga, zinangokhala ngati ndikuwerenga za moyo wanga womwe! Nthawi zonse ndimakhala wosinthasintha komanso ndimatopa kwambiri, ndipo ndakhala ndikumva kuwawa molumikizana mpaka ndikukumbukira.

Ndidalankhula ndi dokotala wanga woyamba ndipo adanditengera kwa wamajini. Nditadikirira miyezi iwiri, pamapeto pake ndidasankhidwa. Ndipo adati ndilibe EDS. Ndikumva chisoni. Sikuti ndikufuna kudwala, koma ndikufuna yankho la chifukwa chake ndikudwala! Thandizeni! Ndichite chiyani kenako? Ndipita bwanji patsogolo?

- {textend} Zikuwoneka kuti si Mbidzi

Wokondedwa Mwachiwonekere Osati Mbidzi,

Ndikudziwa bwino kwambiri kupemphera, kufuna, ndikuyembekeza kuti kukayezetsa kuchipatala kudzabweranso ndili ndi kachilombo. Ndinkachita mantha zomwe zidandipangitsa kukhala hypochondriac wofunafuna chidwi.

Koma kenako ndidazindikira kuti ndikufuna zotsatira zabwino chifukwa ndimafuna mayankho.

Zinanditengera zaka 32 kuti ndipeze matenda anga a EDS ndipo ndidakali wokwiya pang'ono kuti palibe dokotala yemwe adazindikira msanga.

Ntchito yanga yabuu nthawi zonse imabweranso yoyipa - {textend} osati chifukwa ndimachita faking, koma chifukwa magwiridwe antchito amwazi sangathe kuzindikira zovuta zamagulu.

Ndikudziwa mumaganiza kuti EDS ndiyankho ndipo zinthu zisintha kuchokera pano. Pepani kuti mwagundanso panjira ina.

Koma ndiroleni ndikupatseni lingaliro lina: ichi ndi nkhani yabwino. Mulibe EDS! Ndicho chimodzi mwa matenda omwe mwachotsa, ndipo mutha kukondwerera kuti mulibe matendawa.

Ndiye muyenera kuchita chiyani kenako? Ndikukulangizani kuti mupange nthawi yokumana ndi dokotala wanu woyang'anira chisamaliro choyambirira.

Musanalowe, lembani zonse zomwe mukufuna kukambirana. Kenako sankhani zovuta zanu zitatu ndikuwonetsetsa kuti mwazikwaniritsa.

Ngati pali nthawi, kambiranani za china chilichonse. Khalani owona mtima kwa dokotala wanu za mantha anu, zokhumudwitsa zanu, ululu wanu, ndi zizindikiro zanu. Funsani chithandizo chamankhwala. Onani zomwe akuvomereza.

Koma apa pali chinthuchi: chodabwitsa kwambiri chomwe ndaphunzira ndikuti kupwetekedwa bwino kwambiri sikupezeka mwa mankhwala.

Ndipo ndikudziwa kuti suuuuucks. Ndipo ngati zingamveke ngati zonyozeka, pepani, chonde ndipirireni.

Nditapezeka ndi EDS, mwadzidzidzi zambiri pamoyo wanga zinali zomveka. Momwe ndimagwirira ntchito chidziwitso chatsopanochi, ndidayamba kuyang'ana kwambiri.

Ndimawerenga zolemba kuchokera kumagulu a EDS Facebook tsiku lililonse. Ndinali ndi mavumbulutso osalekeza onena za ichi tsiku m'mbiri yanga kapena kuti kuvulala kumodzi kapena kuti kuvulala kwina, o! Ameneyo anali a EDS! Zonse ndi EDS!

Koma nkhani ndiyakuti, si onse a EDS. Ngakhale ndili wokondwa kudziwa zomwe zimayambitsa matenda osamvetseka, EDS sichimatanthauza.

Nthawi zina khosi langa limapweteka, osati kuchokera ku EDS, koma chifukwa ndimangowerama kuti ndiyang'ane foni yanga - {textend} monganso khosi lililonse limapwetekera chifukwa nthawi zonse amaweramira kuti ayang'ane mafoni awo.

Tsoka ilo, nthawi zina simumapezeka ndi matendawa. Ndikuganiza kuti ichi mwina ndichimodzi mwazomwe mumawopa kwambiri, koma ndimvereni!

Ndikukutsutsani kuti muziyang'ana pa chithandizo chamankhwala komanso kuchira m'malo mongolimbikira cholakwika. Mwina simudziwa. Koma pali zambiri zomwe mungachite, panokha, kunyumba, ndi abwenzi kapena mnzanu.

Katswiri wanga wamankhwala wanzeru kwambiri wandiwuza kuti "chifukwa" chazomwe ziliri zopweteka sizofunikira monga "momwe ungachitire."

Mutha kumva bwino ndikulimba ngakhale simukudziwa chomwe chimayambitsa matenda anu. Pali thandizo lochuluka kunja uko ndipo ndikukhulupirira kuti mutha kuyamba kumva bwino posachedwa.

Ndikulangiza kwambiri pulogalamuyi yochiritsidwa, yomwe imagwiritsa ntchito njira zosiyanasiyana, kuphatikiza zidziwitso zamakhalidwe, kuti muchepetse ululu wosatha. Ndinali wokayikira koma ndadabwitsidwa ndi zomwe ndaphunzira zakomwe ululu umachokera komanso momwe ndingazigwiritsire ntchito pogwiritsa ntchito malingaliro anga okha. Yesani.

Kuchiritsidwa kunandiphunzitsa kuti kuyerekezera matenda nthawi zambiri kumakhala kopanda tanthauzo posonyeza zomwe zimayambitsa kupweteka komanso kuti kuthamangitsa matenda ndi zifukwa sizikuthandizani kupweteka kwanu. Ndikukulimbikitsani kuti muyesere. Ndipo ngati mumadana nazo, omasuka kuti munditumizire imelo kuti ndisasangalale nazo!

Pakadali pano, yang'anani pazomwe tikudziwa kuti zimathandizira kupweteka kwakanthawi: kuchita masewera olimbitsa thupi, kulimbitsa minofu, PT, kugona mokhazikika, kudya zakudya zabwino, ndi kumwa madzi ambiri.

Bwererani ku zoyambira: kusuntha, kugona, kuchitira thupi lanu ngati lofunika komanso lachivundi (zilidi zonse).

Ndipatseni ndondomeko. Ndikukhulupirira kuti mupeza mpumulo posachedwa.

Wodzikuza,

Phulusa

Ash Fisher ndi wolemba komanso woseketsa yemwe amakhala ndi matenda a hypermobile Ehlers-Danlos. Akakhala kuti alibe tsiku logwedezeka-la-mbawala, akuyenda ndi corgi wake, Vincent. Amakhala ku Oakland. Dziwani zambiri za iye pa iye tsamba la webusayiti.