Endometriosis: Kufunafuna Mayankho

Zamkati

• Kuthetsa malingaliro olakwika
• Njira yovuta yodziwira
• Moyo wopitilira kuzindikira
• Kulimbikitsa chisamaliro chabwino

Patsiku lomaliza maphunziro ake kukoleji zaka 17 zapitazo, Melissa Kovach McGaughey adakhala pakati pa anzawo kuyembekezera kuti dzina lake litchulidwe. Koma m'malo mosangalala ndi mwambowu, akukumbukira china chomwe sichimamusangalatsa kwambiri: kupweteka.

Chifukwa chodandaula kuti mankhwala omwe adamwa kale atha pa mwambowu, adakonzekereratu. "Ndidavala chikwama pansi pa diresi yanga yomaliza maphunziro - ndi botolo laling'ono lamadzi ndi botolo la mapiritsi - kuti ndikhoze kumwa mankhwala anga opweteka osadzuka," akukumbukira.

Aka sikanali koyamba kapena komaliza kuti azikhala ndi nkhawa ndi hendometriosis yomwe ikuyambira pakatikati. Matenda azimayi, omwe amayambitsa minofu kuchokera m'chiberekero cha chiberekero kuti ikule m'ziwalo zina - amadziwika makamaka, komanso momveka bwino, ndi ululu.

McGaughey, membala wakale wa Wisconsin wokhala m'bungwe la Endometriosis Association, watha zaka makumi angapo akuthetsa mavuto ake. Amatha kutsatira zomwe adachita kuyambira ali mwana.

"Ndidayamba kukayikira kuti china chake sichili bwino ndili ndi zaka 14 pomwe ndimawoneka kuti ndikumvutika kwambiri ndi msambo kuposa anzanga," akutero Healthline.

Pambuyo pazaka zingapo osapeza mpumulo kudzera mwa ibuprofen, komabe, madotolo omwe amawawona omwe adawaletsa zakulera zama mahomoni kuti achepetse kupweteka kwake. Koma mapiritsiwo sanachite chilichonse. McGaughey, wazaka 38, anati: "Miyezi itatu iliyonse, ndinkapatsidwa mtundu wina."

Pambuyo pa miyezi yambiri osapeza yankho, madokotala ake adamuwuza zomwe zimamveka ngati zakumapeto: Amatha kupitilirabe ndi ululu wopweteka osadziwa chifukwa chake kapena kupita pansi pa mpeni kuti adziwe chomwe chinali vuto.

Ngakhale njira zopangira ma laparoscopic zimatha kukhala zowopsa pang'ono, "Lingaliro la kuchitidwa opareshoni kuti apeze matenda anali ovuta kumeza ndili ndi zaka 16," akukumbukira.

Atasiyidwa ndi zochepa, McGaughey pamapeto pake adasankha kuti asapite patsogolo ndi opaleshoniyi. Chisankho, akuti, adzanong'oneza bondo pambuyo pake, chifukwa izi zidatanthauza kuti adakhala zaka zambiri akumva kuwawa.

Mpaka atamaliza maphunziro ake kukoleji ali ndi zaka 21 pomwe adadzimva kuti ali wokonzeka kuchita izi ndipo pamapeto pake amapeza matenda.

Iye anati: "Dokotalayo anapeza endometriosis ndipo anachotsa momwe angathere." Koma njirayi sinali mankhwala-zonse omwe amayembekeza. "Kupweteka kwanga kumachepa kwambiri pambuyo pake, koma chaka ndi chaka ululu umabwerera pamene endo amakula."

Kwa pafupifupi 1 mwa amayi 10 azaka zoberekera ku America omwe akhudzidwa ndi vutoli, masewerawa amphaka ndi mbewa amadziwika bwino. Koma mosiyana ndi matenda ena omwe ali ndi yankho lomveka bwino, palibe mankhwala odziwika a endometriosis.

Zomwe ambiri mwa azimayiwa amakumana nazo, komabe, ndikusokonezeka.

Pomwe woyambitsa ndi CEO wa Flutter Health, Kristy Curry, anali ndi zaka za m'ma 20, adadziwa kuti china chake sichili bwino atangotsala pang'ono kumasamba chifukwa chakusamba.

Ngakhale sanali wachilendo kwakanthawi kowawa kwambiri, nthawi ino inali yosiyana. "Sindinakwanitse kupita kuntchito kapena kusukulu kwa masiku angapo ndipo ndinali nditagona," akukumbukira wokhala ku Brooklyn. "Ndinaganiza kuti zinali zachilendo chifukwa sungathe 'kuyerekezera' kupweteka kwa msambo ndi munthu wina [wina]."

Zonsezi posakhalitsa zidasintha, pomwe adapezeka kuti akupita kuchipinda chadzidzidzi.

"Matenda azimayi oberekera amawoneka kuti akuphatikizana ndi mavuto ena m'deralo," akutero a Curry, omwe angakhale ndi zaka zingapo ku ER akuyendera zowawa zam'mimba zomwe sizinadziwike ngati IBS kapena zina zokhudzana ndi GI.

Popeza kuti endometriosis imapangitsa kuti minofu yotsekedwa ikule ndikufalikira kunja kwa dera la chiuno, ziwalo zomwe zakhudzidwa monga thumba losunga mazira ndi matumbo zimakumana ndimasinthidwe am'thupi munthawi yamayi, ndikupangitsa kutupa kowawa.

Ndipo ngati zizindikiro zanu ndizovuta ndikukhala m'malo ena amthupi lanu kunja kwa njira yanu yoberekera, Curry akuti, tsopano muthana ndi akatswiri ochulukirapo.

Kuthetsa malingaliro olakwika

Zomwe zimayambitsa endometriosis sizikudziwika bwinobwino. Koma imodzi mwa ziphunzitso zoyambirira zikusonyeza kuti zimafikira pa zomwe zimadziwika kuti kusamba mobwerezabwereza - njira yomwe imakhudza magazi akusamba omwe amabwerera kudzera mumachubu zam'mimbazi kulowa m'chiuno m'malo modutsa mumaliseche.

Ngakhale matendawa atha kusamalidwa, chimodzi mwazinthu zovuta kwambiri koyambirira kwa matendawa sikumalandira chithandizo chamankhwala. Palinso kusatsimikizika ndi mantha osapeza mpumulo.

Malinga ndi kafukufuku waposachedwa wochitidwa ndi HealthyWomen azimayi opitilira 1,000 ndi akatswiri azachipatala 352 (HCPs), kupweteka munthawi ndi pakati ndizizindikiro zazikulu zomwe zidapangitsa ambiri omwe amafunsidwa kupita ku HCP kuti akapeze matenda. Chifukwa chachiwiri ndi chachitatu chimaphatikizapo mavuto am'mimba, zowawa panthawi yogonana, kapena matumbo opweteka.

Ofufuzawa adapeza kuti ngakhale azimayi 4 mwa 5 omwe alibe matenda amvekanso za endometriosis kale, ambiri amangodziwa zochepa za zomwe zizindikirazi zikuwoneka. Ambiri amakhulupirira kuti zizindikirazo zimaphatikizapo kupweteka pakati komanso nthawi yogonana. Ndi ocheperako omwe amadziwika ndi zizindikilo zina, monga kutopa, matenda am'mimba, kukodza kopweteka, komanso matumbo opweteka.

Chowunikiranso kwambiri, ndichakuti pafupifupi theka la azimayi omwe alibe matendawa sadziwa kuti palibe mankhwala.

Zotsatira zakufufuzaku zikuwonetsa vuto lalikulu lokhudza vutoli. Ngakhale kuti endometriosis imadziwika kwambiri kuposa kale, nthawi zambiri imamvetsedwa, ngakhale azimayi amakhala ndi matenda.

Njira yovuta yodziwira

Kafukufuku wina amene gulu la ochita kafukufuku ku UK linachita akuti pali zifukwa zingapo zomwe zingathandize, "chifukwa chimodzi chachikulu chomwe chikupangitsa kuti matendawa apitirire mwina ndichedwa kutengera matendawa."

Ngakhale ndizovuta kudziwa ngati izi zikuchitika chifukwa chokwanira kafukufuku wamankhwala, popeza zizindikilozo zimatha kutsanzira zinthu zina monga zotupa m'mimba ndi matenda otupa m'chiuno, chinthu chimodzi ndichodziwikiratu: Kupeza matenda si vuto laling'ono.

A Philippa Bridge-Cook, PhD, wasayansi ku Toronto yemwe amatumikira ku board of director a The Endometriosis Network Canada, akukumbukira kuti adauzidwa ndi adotolo achibale ake azaka zapakati pa 20 kuti palibe chifukwa chofufuzira chifukwa palibe chomwe zitha kuchitidwa za endometriosis mulimonse. "Zomwe sizowona, koma sindimadziwa kuti panthawiyo," Bridge-Cook akufotokoza.

Izi zabodza zitha chifukwa chake pafupifupi theka la azimayi omwe sanazindikiridwe mu kafukufuku wa HealthyWomen anali osadziwa njira zodziwira.

Pambuyo pake, Bridge-Cook atapita padera kangapo, akuti ma OB-GYN anayi adamuwuza kuti sangakhale ndi matendawa, chifukwa akadakhala kuti sangabereke. Mpaka nthawi imeneyo, Bridge-Cook anali atakhala ndi pakati popanda zovuta.

Ngakhale zili zowona kuti zovuta zakubereka ndi chimodzi mwazovuta zazikulu zomwe zimalumikizidwa ndi endo, malingaliro olakwika wamba ndikuti amalepheretsa amayi kutenga pakati ndikunyamula mwana mpaka nthawi yayitali.

Chidziwitso cha Bridge-Cook sichikuwulula chabe kusazindikira m'malo mwa ma HCP ena, komanso kusazindikira za vutoli.

Poganizira kuti mwa ofufuza 850 omwe anafunsidwa, ndi 37% okha omwe adadziwika kuti ali ndi matenda a endometriosis, funso lidakalipo: Chifukwa chiyani kulandira matenda ndi njira yovuta kwa akazi?

Yankho limangokhala la amuna kapena akazi okhaokha.

Ngakhale kuti mzimayi m'modzi mwa anayi pazakafukufukuyu adati endometriosis imasokoneza moyo wawo watsiku ndi tsiku - ndipo 1 mwa 5 akuti imatero nthawi zonse - omwe adafotokozera ma HCPs nthawi zambiri amatsutsidwa. Kafukufukuyu adawonetsanso kuti azimayi 15 pa 100 alionse adauzidwa kuti "Zonse zili m'mutu mwanu," pomwe m'modzi mwa atatu adauzidwa kuti "Sizachilendo." Kuphatikiza apo, 1 m'modzi mwa atatu adauzidwa kuti "Ndi gawo loti akhale mkazi," ndipo azimayi m'modzi mwa amayi asanu amayenera kuwona ma HCP anayi kapena asanu asanalandire matenda.

Izi sizodabwitsa chifukwa chakumva kuwawa kwa amayi nthawi zambiri kumanyalanyazidwa kapena kunyalanyazidwa pakampani yazachipatala. Kafukufuku wina anapeza kuti "Kawirikawiri, amayi amafotokoza zopweteka kwambiri, zopweteka zambiri, ndi zowawa zazitali kuposa amuna, komabe amathandizidwa ndi zowawa zochepa."

Ndipo nthawi zambiri zimakhala chifukwa chakumva kupwetekaku komwe azimayi ambiri samafuna thandizo mpaka zizindikilo zawo zitafika povuta. Ambiri mwa omwe adafunsidwa adadikirira zaka ziwiri kapena zisanu asanawone HCP kuti ayambe kuziziritsa, pomwe 1 mwa 5 adadikirira zaka zinayi mpaka zisanu.

"Ndikumva za odwala ambiri a endo omwe sanapatsidwe mankhwala opweteka," akufotokoza McGaughey, yemwe akuti amamvetsetsa kuti madotolo safuna kuti wina azidalira ma opioid kapena kusokoneza chiwindi kapena m'mimba ndi anti-inflammatories. "Koma izi zasiya azimayi ndi atsikana ambiri akumva kuwawa kwambiri," akutero. "Wovuta kwambiri sungayende, [ndi ambiri] akuganiza kuti angotenga Advil awiri."

Kafukufuku amamuthandiza pa izi - monga wina adanenanso kuti azimayi sangapatsidwe mankhwala opha ululu mu ER, ngakhale amamva kuwawa m'mimba.

Gawo lavutoli limabwera kwa azimayi ndi atsikana okhulupirira, McGaughey akuwonjezera. Amakumbukira kuuza dokotala wina kuti akumva kuwawa koopsa ndikumasamba, koma sizinalembetse. Pokhapokha atafotokozera kuti zimamupangitsa kuti aziphonya masiku angapo ogwira ntchito mwezi uliwonse pomwe dokotala amamvera ndikuzindikira.

"Kuyambira pamenepo, ndinadziwitsa zowawa zanga kwa akatswiri masiku omwe ndagwira ntchito," akutero. "Izi ndizofunika koposa kungokhulupirira zolemba zanga zamasiku ovutika."

Zifukwa zothetsera zowawa za amayi ndizodzikongoletsa mu chikhalidwe cha jenda, komanso, monga kafukufukuyu akuwonetsera, "kusowa koyambirira kwa endometriosis ngati vuto lazaumoyo la amayi."

Moyo wopitilira kuzindikira

Atangomaliza maphunziro ake kukoleji, McGaughey akuti adakhala nthawi yochulukirapo akumusamalira. "Ndizodzipatula komanso zokhumudwitsa komanso zotopetsa."

Amalingalira momwe moyo wake ungakhalire akadakhala kuti alibe matendawa. "Ndili ndi mwayi kukhala ndi mwana wanga wamkazi, koma ndimadzifunsa ngati ndingakhale wofunitsitsa kuyesa mwana wachiwiri ndikadapanda matenda a endometriosis," akufotokoza, zomwe zidachedwetsa kutenga pakati pazaka zosabereka ndipo zidafika pochitidwa opaleshoni . "[Vutoli] likunditaya mphamvu zanga m'njira yoti mwana wachiwiri aziwoneka kuti sangakwanitse."

Momwemonso, Bridge-Cook akuti kuphonya nthawi ndi banja lake ali ndi zowawa zambiri kuti adzuke pabedi kwakhala gawo lovuta kwambiri pamoyo wake.

Ena monga Curry akuti vuto lalikulu kwambiri lakhala chisokonezo ndi kusamvetsetsa. Komabe, akuyamika chifukwa chodziwa msanga za matenda ake. "Ndinali ndi mwayi, zaka makumi awiri, kuti OB-GYN wanga woyamba akuganiza kuti ndi endometriosis ndipo adachita opaleshoni yochotsa laser." Koma, akuwonjezera, izi zinali zosiyana ndi lamuloli, chifukwa zambiri zomwe HCP adachita sizomwe zidazindikira. "Ndikudziwa kuti ndapeza mwayi ndipo amayi ambiri omwe ali ndi endo sali ndi mwayi."

Pomwe udindo wowonetsetsa kuti azimayi azidziwa bwino za mavutowa udakalipo pa HCPs, McGaughey akugogomezera azimayi kuti azichita kafukufuku wawo ndi kudzilimbikitsa. "Ngati dokotala sakukhulupirirani, pezani dokotala watsopano," akutero McGaughey.

Mofanana ndi opitilira theka la omwe anafunsidwa omwe anafufuzidwanso ndi OB-GYN, ulendo wa Endry wa Curry sunali utatha. Ngakhale atalandira matenda ndi opareshoni, adakhala zaka makumi awiri zikubwerazi akusaka mayankho ndi thandizo.

"Madokotala azachipatala ambiri sachiza endometriosis moyenera," akutero Bridge-Cook, yemwe adadikirira zaka 10 kuyambira pomwe adayamba kukayikira kuti china chake sichili bwino mzaka zake za 20 asadapezeke ndi matenda. Iye anati: "Kuchita opaleshoni yochotsa matendawa kumachitika mobwerezabwereza, koma opaleshoni yochotsa matenda, yomwe madokotala ambiri achikazi sachita, imathandiza kwambiri kuti matenda azikhala ochepa kwa nthawi yayitali."

Posachedwa amamuthandiza pa izi, popeza ofufuza adapeza kusintha kwakukulira kwam'mimba kwam'chiuno komwe kumayambitsidwa ndi endometriosis chifukwa chodumpha kwaparoscopic poyerekeza ndi kuchotsa.

Malinga ndi Bridge-Cook, kuphatikiza njira zingapo zothandizira kumapereka zotsatira zabwino. Amagwiritsa ntchito opareshoni yosakaniza, zakudya, masewera olimbitsa thupi, komanso ma physiotherapy a m'chiuno kuti apeze mpumulo. Koma adazindikiranso kuti yoga ndiyothandiza kuthana ndi kupsinjika komwe kumadza chifukwa chokhala ndi matenda osachiritsika.

Ngakhale McGaughey akunena kuti maopaleshoni ake onsewa adakhudza kwambiri kuchepetsa ululu wake ndikubwezeretsanso moyo wake, amalimbikira kuti palibe zokumana nazo ziwiri zomwezo. "Nkhani ya aliyense ndiyosiyana."

"Si aliyense amene angachite maopaleshoni apamwamba kwambiri ndi madokotala ochita opaleshoni ophunzitsidwa kuzindikira ndi kutulutsa endometriosis," akufotokoza, ndipo anthu ena amakonda kutuluka zilonda zopweteka kuposa ena. Kufupikitsa nthawi yoti apezeke kudzera munjira yopanda chithandizo pakuwunika, akuwonjezera, kungapangitse kusiyana konse.

Kulimbikitsa chisamaliro chabwino

Momwe ma HCP amathandizira azimayi omwe akumva kuwawa ndichimodzimodzi, kapena kupitilira apo, ndikofunikira momwe angathetsere vutoli. Kuzindikira kusankhana pakati pa amuna ndi akazi ndi gawo loyamba, koma chotsatira chimaphatikizapo kukhala ndi chidziwitso chochulukirapo komanso kulumikizana momvera chisoni.

Kupambana kwakukulu paulendo wa Curry endo kudafika atangomaliza kumene kukumana ndi dokotala yemwe samangodziwa chabe, komanso wachifundo. Atayamba kumufunsa mafunso osagwirizana ndi endometriosis omwe palibe dokotala wina yemwe anali nawo mzaka 20, adayamba kulira. "Ndidamva kupumula kwakanthawi ndikutsimikiza."

Pomwe udindo wowonetsetsa kuti azimayi azidziwa bwino za mavutowa udakalipo pa HCPs, McGaughey akugogomezera azimayi kuti azichita kafukufuku wawo ndi kudzilimbikitsa. Amafunsa kuti akafunse madokotala ochita opaleshoni, kulowa nawo mabungwe a endo, ndikuwerenga mabuku pamutuwu. "Ngati dokotala sakukhulupirirani, pezani dokotala watsopano," akutero McGaughey.

"Osadikirira zaka zowawa ngati zomwe ndinachita chifukwa choopa opaleshoni ya laparoscopic." Amalimbikitsanso kuti azimayi azilimbikitsa kulandira chithandizo chowawa, monga Toradol yopanda chilema.

Kutali ndi kufunafuna mayankho kwazaka zambiri, azimayiwa amafunanso kulimbikitsa ena. "Lankhulani za zowawa zanu ndikufotokozerani zonse zamanyazi," akulimbikitsa a Curry. "Muyenera kufotokoza za matumbo anu, kugonana kowawa, ndi mavuto a chikhodzodzo."

"Zinthu zomwe palibe amene akufuna kukambirana zitha kukhala zofunikira kuti mupeze matenda anu ndi njira yosamalira," akuwonjezera.

Chimodzi mwazinthu zomwe zidawonekera pofufuza kuchokera ku HealthyWomen ndikuti ukadaulo umatha kukhala wothandizana kwambiri ndi amayi zikafika podziwa zambiri. Zotsatirazi zikuwonetsa kuti azimayi ambiri omwe sapezeka akufuna kudziwa zambiri za endometriosis kudzera pa imelo ndi intaneti - ndipo izi zimagwiranso ntchito kwa iwo omwe amapezeka ndipo alibe chidwi chofuna kuphunzira zambiri.

Koma itha kugwiritsidwanso ntchito ngati njira yolumikizirana ndi ena mgulu la endo.

Ngakhale zaka zonse zakukhumudwa komanso kusamvetsetsa, gawo limodzi la siliva la Curry lakhala azimayi omwe adakumana nawo omwe ali paulendo womwewo. "Ndiwothandizana ndipo aliyense akufuna kuthandizana m'njira iliyonse yomwe angathe."

"Ndikuganiza tsopano kuti anthu ambiri akudziwa za endometriosis ndizosavuta kukambirana," akutero Curry. "M'malo mongonena kuti simukumva bwino chifukwa cha 'ululu wamayi' mutha kunena kuti 'ndili ndi endometriosis' ndipo anthu akudziwa."

Cindy Lamothe ndi mtolankhani wodziyimira pawokha wokhala ku Guatemala. Amalemba zambiri zamalumikizidwe pakati pa thanzi, ukhondo, ndi sayansi yamakhalidwe amunthu. Adalembedwera The Atlantic, New York Magazine, Teen Vogue, Quartz, The Washington Post, ndi ena ambiri. Pezani iye pa cindylowa.it.