Kupita Wakhungu ndi Wosamva, Mzimayi Mmodzi Akuyamba Kupota

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Pokumana ndi zomwe Rebecca Alexander adakumana nazo, anthu ambiri sangaimbidwe mlandu wosiya kuchita masewera olimbitsa thupi. Ali ndi zaka 12, Alexander adazindikira kuti akuchita khungu chifukwa cha matenda amtundu wina. Kenako, ali ndi zaka 18, adagwa pazenera lachiwiri, ndipo thupi lake lakale lothamanga lidayenda pa njinga ya olumala kwa miyezi isanu. Pambuyo pake, adazindikira kuti akumvanso akumva.

Koma Alexander sanalole izi kumulepheretsa: Ali ndi zaka 35, ndi psychotherapist wokhala ndi ma degree awiri, mphunzitsi wopota, komanso wopirira yemwe amakhala ku New York City. M'buku lake latsopano, Osati Kutha Kwambiri: Chikumbutso cha Maganizo Otayika ndi Opezeka, Rebecca akulemba zakusamalira kulumala kwake molimbika mtima komanso molimbika. Apa, akutiwuza zambiri za momwe kulimba mtima kumamuthandizira kuthana ndi zovuta zake za tsiku ndi tsiku komanso maphunziro ofunikira omwe aliyense angatenge kuchokera pazomwe adakumana nazo.

Maonekedwe: Nchiyani chakupangitsani inu kusankha kulemba zolemba zanu?

Rebecca Alexander (RA): Kutaya masomphenya ndi kumva kwanu si chinthu wamba, koma ndikuganiza pali anthu ambiri omwe amatha kumvetsetsa. Kuwerenga zokumana nazo za anthu ena kwandithandiza kwambiri kuti ndithane ndi mavuto anga. Ndine wokonda kwambiri kugawana nawo mbiri ya moyo ndi zokumana nazo.

Maonekedwe: Munaphunzira kuti munali ndi Usher Syndrome Type III, yomwe imayambitsa kusawona ndi kumva, muli ndi zaka 19. Kodi poyamba munapirira bwanji ndi matendawa?

RA: Pamenepo, ndinayamba kudya movutikira. Ndinaganiza kuti ndidzipanga kukhala wangwiro momwe ndingathere, kotero kuti palibe amene angadziwe kuti pali cholakwika kwa ine. Ndinkafuna kukhala ndi mphamvu pazinthu zonse zomwe ndikanatha, chifukwa cha zinthu zonse zomwe sindinathe kuzilamulira. Ndipo pakuchira kwanga pangoziyo, minofu yanga yambiri inali ndi atrophied, choncho ndinagwiritsa ntchito masewera olimbitsa thupi kuti ndikonzenso minofu yanga, koma kenako ndinayamba kuchita masewera olimbitsa thupi ngati wopenga pa koleji. Ndinkatha ola limodzi kapena awiri pa masewera olimbitsa thupi pa treadmill kapena Stairmaster.

Maonekedwe: Kodi mudayamba bwanji kukhala ndiubwenzi wabwino ndi masewera olimbitsa thupi?

RA: Ndinayamba kuzindikira kuti ndimakonda zolimbitsa thupi ziti. Simusowa kuchita masewera olimbitsa thupi kwa maola awiri kapena atatu-kuwonjezera kwakanthawi kofulumira kwambiri kumapangitsa kusiyana kwakukulu. Ndipo ngati sindikusangalala ndikachita masewera olimbitsa thupi, sizikhala choncho. Ndimapita ku The Fhitting Room (situdiyo yophunzitsira mwamphamvu ku NYC) pafupifupi tsiku lililonse. Ndikuphulika kwathunthu kumeneko. Ndimakonda malo ake olimbikitsa komanso osangalatsa. Kuchita masewera olimbitsa thupi kwa ine si chinthu chakuthupi, ndi chinthu chamaganizo. Zimandithandiza kuti ndichepetse nkhawa ndikubwezeretsanso mphamvu zambiri ndikadzimva kuti ndilibe mphamvu ndi chilema ichi.

Maonekedwe: Nchiyani chinakupangitsani inu kufuna kukhala wophunzitsa njinga?

RA: Ndinakhala mphunzitsi pamene ndinali kusukulu ya sekondale ku Columbia chifukwa ndinkafuna umembala wa masewera olimbitsa thupi aulere-Ndakhala ndikuphunzitsa kwa zaka pafupifupi 11. Chimodzi mwazinthu zabwino kwambiri pophunzitsa kupota ndikuti ndili pa njinga yomwe siyenda kulikonse, chifukwa chake sindiyenera kuda nkhawa kuti nditha kugwa. Ndipo sindiyenera kuda nkhawa ndikamamva mlangizi, chifukwa ndine wophunzitsa. Kupunduka kapena ayi, ndakhala ndikudandaula kwambiri, ndiye iyi ndi njira yosinthira izi. Zimandithandizanso kumva kuti ndili ndi mphamvu. Palibe kumverera kwabwinoko kuposa kukakamira kalasi ndikulimbikitsa anthu kuti azigwira ntchito molimbika - osati chifukwa chakuti mumawakalipira kuti achite bwino, koma chifukwa choti muli nawo nthawi yayitali, mukuyang'ana momwe mumamverera mwamphamvu ndikupeza zomwe mumachita Nditha kutero.

Maonekedwe: Kodi masomphenya ndi kumva kwanu kuli bwanji lero?

RA: Ndili ndi zodzala ndi cochlear khutu langa lakumanja. Ponena za masomphenya anga, munthu woona bwino amakhala ndi madigiri 180, ndipo ine ndiri ndi 10. Kukhala mumzinda ngati New York ndi wamisala. Ndi malo abwino komanso oyipa kwambiri kwa munthu ngati ine. Ndiwofikiratu ndimayendedwe apagulu, koma pali anthu kulikonse. Ndimagwiritsa ntchito ndodo yanga usiku tsopano, yomwe inali sitepe yaikulu. Ndimayang'ana nthawi yambiri ndikukhala wolimba monga momwe ndingathere kuti kugwiritsa ntchito ndodo usiku ndikumva ngati ndikulowa, koma tsopano ndazindikira kuti ndikamagwiritsa ntchito ndodo yanga ndimayenda mwachangu, molimba mtima, komanso anthu andichoka. Sichinthu chabwino kwenikweni kutuluka mukamapita kunja kwa tawuni ndikukhala osakwatira, koma ndipita ndi zibwenzi kuti ndikuthandizeni.

Maonekedwe: Kodi mungatani kuti mukhalebe osangalala?

RA: Ndikuganiza kuti anthu ali ndi lingaliro lopotoka la momwe moyo uyenera kukhalira-kuti tikuyenera kukhala pamasewera A athu, ndikukhala osangalala nthawi zonse-ndipo siwo moyo. Moyo ukhoza kukhala wovuta nthawi zina. Mutha kukhala wokhumudwa, ndipo zili bwino. Muyenera kudzilola kuti mukhale ndi nthawiyo. Ndipita kunyumba ndikalire ngati ndiyenera, chifukwa ndiyenera kuchita izi kuti ndipite patsogolo. Koma zinthu zimandichitikira kwambiri, monga kuthamangira china chake kapena winawake, kuti ngati nditayima nthawi zonse ndikulira, sindingathe kuchita chilichonse. Mukungoyenera kupitiriza kuyendetsa galimoto.

Maonekedwe: Ndi uthenga uti womwe mukufuna kuti ena atengere Osazirala?

RA: Kuti simuli nokha. Tonse tili ndi zinthu zomwe timachita nazo. Ndinu olimba mtima komanso otha kuchita zambiri kuposa momwe mumadzipangira mbiri. Ndipo ndikuganiza kuposa china chilichonse, ndikofunikira kukhala ndi moyo tsopano. Ndikanati ndiganize zoti ndidzakhala wogontha komanso wakhungu, n’chifukwa chiyani ndikanafuna kusiya nyumba yanga? Ndi malingaliro ochuluka kwambiri. Tiyenera kutenga moyo monga momwe ulili tsopano ndikuchita zomwe tingathe pakadali pano.

Kuti mudziwe zambiri za Rebecca Alexander, chonde pitani patsamba lake.

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