Mkhalidwe Wowopsa wa Alzheimer's: Kumva Chisoni Kwa Munthu Yemwe Ali Ndi Moyo

Zamkati

• Wogwirizana ndi bambo anga mpaka kumapeto
• Amayi anga pang'ono ndi pang'ono amataya chikumbukiro chawo
• Kusamvetseka kwa kutayika wina chifukwa cha Alzheimer's

Ndimakhudzidwa ndi kusiyana pakati pa kutaya bambo anga ndi khansa ndi amayi anga - omwe akadali amoyo - ku Alzheimer's.

Mbali Yina Yachisoni ndi mndandanda wazakusintha kwa moyo kutaya. Nkhani zamphamvu izi zimafufuza zifukwa ndi njira zambiri zomwe timamvera ndikutsatira njira yatsopano.

Abambo anali ndi zaka 63 pomwe adauzidwa kuti ali ndi khansa ya m'mapapo yosakhala yaying'ono. Palibe amene adaziwona zikubwera.

Anali wathanzi komanso wathanzi, khola lochita masewera olimbitsa thupi lakale lomwe silinkasuta lomwe limadalira zamasamba. Ndinakhala sabata limodzi osakhulupirira, ndikupempha chilengedwe chonse kuti chisamuphe.

Amayi sanapezedwe mwalamulo kuti ali ndi matenda a Alzheimer's, koma zizindikilozi zidawonekera ali ndi zaka zoyambirira za 60. Tonse tidaziwona zikubwera. Amayi ake anali ndi matenda a Alzheimer's oyambirira ndipo adakhala nawo pafupifupi zaka 10 asanamwalire.

Palibe njira yosavuta yotaya kholo, koma ndimakhudzidwa ndikusiyana pakati pa imfa ya abambo anga ndi mayi anga.

Kusamvetseka kwa matenda a Amayi, kusadziŵika kwa zizindikiro zake ndi momwe akumvera, komanso kuti thupi lake lili bwino koma wataya zambiri kapena kukumbukira kwake kumakhala kopweteka mwapadera.

Wogwirizana ndi bambo anga mpaka kumapeto

Ndinakhala ndi bambo kuchipatala atamuchita opareshoni kuti atulutse mbali zina zamapapu ake zodzaza ndi maselo a khansa. Machubu ndi zokopa zachitsulo zimadutsa pachifuwa pake mpaka kumbuyo. Iye anali atatopa koma ali ndi chiyembekezo. Zachidziwikire kuti moyo wake wathanzi ungatanthauze kuchira mwachangu, amayembekeza.

Ndinkafuna kutenga zabwino kwambiri, koma ndinali ndisanawawonepo bambo ngati awa - otumbululuka komanso oponderezedwa. Nthawi zonse ndimamudziwa kuti akusuntha, akuchita, ndicholinga. Ndidafunitsitsa kuti iyi ikhale gawo lowopsa lomwe titha kukumbukira mwachifundo zaka zikubwerazi.

Ndidachoka mtawuni zotsatira za biopsy zisanabwerere, koma atandiimbira foni kuti akufuna chemo ndi radiation, adawoneka wokhulupirira. Ndinadzimva kuti ndatulukamo, ndinachita mantha mpaka kunjenjemera.

Pa miyezi 12 yotsatira, bambo adachira ku chemo ndi radiation ndipo kenako adasintha. Ma X-ray ndi ma MRIs adatsimikizira zoyipa kwambiri: Khansara idafalikira m'mafupa ndi ubongo wake.

Amandiimbira kamodzi pa sabata ndi malingaliro atsopano azithandizo. Mwinanso "cholembera" chomwe chimayang'ana zotupa popanda kupha minofu yozungulira chingamugwire. Kapenanso malo oyeserera oyesera ku Mexico omwe amagwiritsa ntchito maso a apurikoti ndi ma enemas amatha kuthamangitsa ma cell akupha. Tonse tidadziwa kuti ichi chinali chiyambi cha mapeto.

Ine ndi abambo tidawerenga buku lonena za chisoni limodzi, kutumizirana maimelo kapena kukambirana tsiku lililonse, kukumbukira ndi kupepesa pazomwe tidakumana nazo kale.

Ndinalira kwambiri pamasabata amenewo ndipo sindinagone mokwanira. Sindinali ngakhale 40. Sindingakhale ndikutaya bambo anga. Tinkayenera kuti tatsala ndi zaka zambiri limodzi.

Amayi anga pang'ono ndi pang'ono amataya chikumbukiro chawo

Amayi atayamba kuterera, nthawi yomweyo ndinkaganiza kuti ndikudziwa zomwe zikuchitika. Zoposa zomwe ndimadziwa ndi abambo.

Mkazi wachidaliro uyu, wokonda tsatanetsatane amataya mawu, ndikudzibwereza, ndikuchita zosatsimikizika nthawi yayitali.

Ndinamukankha mwamuna wake kuti ndimutengere kwa dokotala. Ankaganiza kuti ali bwino - kungotopa. Iye analumbira kuti sanali Alzheimer's.

Sindikumuimba mlandu. Palibe ndi m'modzi mwa iwo amene amafuna kulingalira kuti izi ndi zomwe zinali kuwachitikira Amayi. Onsewa angawone kholo likumachoka pang'onopang'ono. Iwo ankadziwa momwe izo zinali zowopsya.

Kwa zaka zisanu ndi ziwiri zapitazi, Amayi adalowerera mkati mwake ngati boti mumchenga wachangu. Kapena, m'malo mwake, mchenga wopepuka.

Nthawi zina, zosinthazo zimachitika pang'onopang'ono ndipo sizimveka, koma popeza ndimakhala kudera lina ndikumangomuwona miyezi ingapo, amandizungulira.

Zaka zinayi zapitazo, adasiya ntchito yake yogulitsa nyumba ndi nyumba atavutikira kuti asunge tsatanetsatane wa mapangano kapena malamulo.

Ndinakwiya kuti sangayezedwe, kukwiya akayesa kuti sakuwona kuchuluka kwake komwe akuterera. Koma makamaka, ndimadzimva wopanda thandizo.

Panalibe chilichonse chomwe ndikadachita kupatula kumuimbira foni tsiku lililonse kuti ndicheze ndikumulimbikitsa kuti atuluke ndikupanga zinthu ndi abwenzi. Ndinali kulumikizana naye monga momwe ndimakhalira ndi bambo, kupatula kuti sitinali kunena zowona pazomwe zimachitika.

Posakhalitsa, ndinayamba kudzifunsa ngati amandidziwadi kuti ndindani ndikawayimbira foni. Anali wofunitsitsa kuyankhula, koma samatha kutsatira ulusi nthawi zonse. Anasokonezeka pomwe ndimayankhula zokambirana ndi mayina a ana anga aakazi. Anali ndani ndipo chifukwa chiyani ndimamuuza za iwo?

Paulendo wotsatira zinthu zinaipiraipira. Anatayika mtawuni yomwe ankadziwa ngati kumbuyo kwa dzanja lake. Kukhala mu lesitilanti kunali kopatsa mantha. Anandidziwitsa kwa anthu monga mlongo wake kapena amayi ake.

Ndizodabwitsa kuti zinamveka zopanda pake kuti sanandidziwenso ngati mwana wake. Ndinkadziwa kuti izi zikubwera, koma zinandikhudza kwambiri. Kodi izi zimachitika bwanji, kuti amaiwala mwana wanu?

Kusamvetseka kwa kutayika wina chifukwa cha Alzheimer's

Ngakhale kuti zinali zopweteka kwambiri kuona bambo anga akuthawa, ndinkadziwa mavuto awo.

Panali zojambula, makanema omwe timatha kuwanyamula, zolemba magazi. Ndinkadziwa zomwe chemo ndi radiation zingachite - momwe angawonekere ndikumverera. Ndidafunsa komwe zimapweteka, ndingatani kuti ndikhale wabwinoko. Ndinasisita mafuta m'manja mwake khungu lake litawotchedwa ndi radiation, ndikupukuta ng'ombe zake zikakhala zowawa.

Mapeto atafika, ndidakhala pambali pake pomwe adagona pakama wachipatala mchipinda chabanja. Sanathe kuyankhula chifukwa cha chotupa chachikulu chotsekera pakhosi pake, motero anafinya manja anga mwamphamvu itakwana nthawi ya morphine.

Tidakhala limodzi, mbiri yathu yogawana pakati pathu, ndipo atalephera kupitanso, ndidatsamira, ndikudyetsa mutu wake m'manja mwanga, ndikunong'oneza, "Palibe vuto, Pop. Mutha kupita tsopano. Tidzakhala bwino. Simuyenera kuvulanso. ” Anatembenuza mutu wake kuti andiyang'ane ndikugwedeza mutu, natenga mpweya womaliza, ndikumapumira, ndikupita.

Inali nthawi yovuta kwambiri komanso yokongola kwambiri m'moyo wanga, podziwa kuti adandikhulupirira kuti ndimugwira akamwalira. Patatha zaka zisanu ndi ziwiri, ndimakhalabe ndi chotupa pakhosi ndikaganiza.

Mosiyana, ntchito yamagazi ya Amayi ndiyabwino. Palibe chilichonse muubongo wake chomwe chimafotokozera kusokonezeka kwake kapena chomwe chimapangitsa kuti mawu ake atuluke molakwika kapena kumamatira kukhosi. Sindikudziwa zomwe ndingakumane nazo ndikamuchezera.

Ataya zidutswa zake zambiri pakadali pano kuti ndizovuta kudziwa zomwe zilipo. Satha kugwira ntchito kapena kuyendetsa galimoto kapena kuyankhula pafoni. Sangamvetsetse chiwembu cha buku kapena mtundu pakompyuta kapena kusewera piyano. Amagona maola 20 patsiku ndipo amakhala nthawi yonseyi akuyang'ana pazenera.

Ndikamuchezera amakhala wokoma mtima, koma samandidziwa konse. Kodi alipo? Ndine? Kuyiwalidwa ndi amayi anga ndichinthu chosungulumwa chomwe ndidakumana nacho.

Ndinadziwa kuti bambo anga ataya khansa. Nditha kuneneratu molondola momwe zidzachitike komanso liti. Ndinali ndi nthawi yolira maliro omwe abwera motsatizana mwachangu. Koma koposa zonse, amandidziwa yemwe ndinali mpaka millisecond womaliza. Tidali ndi mbiri yofananira ndipo malo anga mmenemo anali okhazikika m'malingaliro athu onse. Ubalewo udalipo malinga ndi momwe adaliri.

Kutaya Amayi kwakhala kodabwitsa kwambiri, ndipo kumatha zaka zambiri zikubwera.

Thupi la amayi ndilopatsa thanzi komanso lamphamvu. Sitikudziwa chomwe chidzamuphe kapena liti. Ndikamuchezera, ndimazindikira manja ake, kumwetulira kwake, mawonekedwe ake.

Koma zimakhala ngati kukonda winawake kudzera pagalasi lanjira ziwiri. Nditha kumuwona koma samandiona. Kwa zaka zambiri, ndakhala ndekha wosunga mbiri ya ubale wanga ndi Amayi.

Abambo akamwalira, tinkatonthozana wina ndi mnzake ndikudziwitsa kuvutika kwathu. Monga zowawa momwe zimakhalira, tinali mmenemo ndipo panali zotonthoza pamenepo.

Amayi ndi ine tonse tagwidwa mdziko lathu popanda chilichonse chothetsa magawano. Kodi ndimalira bwanji imfa ya munthu amene adakali ndi thupi pano?

Nthawi zina ndimaganiza kuti padzakhala mphindi imodzi yabwino akadzayang'ana m'maso mwanga ndikundidziwa kuti ndine ndani, komwe amakhalanso gawo limodzi la amayi anga, monga momwe abambo anachitira mu sekondi yomaliza yomwe tidagawana limodzi.

Pamene ndikumva chisoni zaka zolumikizana ndi Amayi zomwe zidasokonekera chifukwa cha matenda a Alzheimer's, nthawi yokhayo ndi yomwe ingadziwe ngati tingapeze nthawi yomaliza yodziwika limodzi.

Kodi ndinu kapena mukudziwa winawake akusamalira munthu yemwe ali ndi Alzheimer's? Pezani zambiri zothandiza kuchokera ku Alzheimer's Association Pano.

Mukufuna kuwerenga nkhani kuchokera kwa anthu omwe akuyenda movutikira, zosayembekezereka, komanso nthawi zina zachisoni? Onani mndandanda wathunthu Pano.

Kari O'Driscoll ndi wolemba komanso mayi wa awiri omwe ntchito yawo idawonekera m'malo ogulitsira monga Ms Magazine, Motherly, GrokNation, ndi The Feminist Wire. Adalembanso zolemba za ufulu wobereka, kulera, ndi khansa ndipo adamaliza chikumbutso posachedwa. Amakhala ku Pacific Kumpoto chakumadzulo ndi ana aakazi awiri, ana agalu awiri, ndi mphaka wazaka.