Umu Ndi Momwe Mabulogu Andipatsira Liwu Nditatulukira Ulcerative Colitis Diagnosis

Zamkati

• Kupanga nsanja yolimbikitsira ena
• Kuphunzira kulimbikitsa thanzi lanu
• Maganizo akusintha ndikufalitsa chiyembekezo

Pochita izi, adapatsa mphamvu amayi ena omwe ali ndi IBD kuti azilankhula za momwe amathandizira.

Mimba inali gawo laubwana wa Natalie Kelley.

"Nthawi zonse tinkangokhalira kunena kuti ine ndili ndi vuto m'mimba," akutero.

Komabe, panthawi yomwe anali ku koleji, Kelley adayamba kuzindikira kusagwirizana pakudya ndikuyamba kuchotsa gilateni, mkaka, ndi shuga akuyembekeza kuti apeza mpumulo.

"Koma ndinkakumbukirabe kuti nthawi zonse ndimaphulika komanso kupweteka m'mimba ndikadya chilichonse," akutero. "Kwa pafupifupi chaka chimodzi, ndimakhala ndikutuluka m'maofesi a madokotala ndikundiuza kuti ndili ndi IBS [matumbo osakwiya, matumbo osatupa] ndipo ndimafunikira kudziwa zakudya zomwe sizinandigwire."

Malangizo ake adabwera chilimwe chisanafike chaka chake chomaliza ku koleji ku 2015. Amapita ku Luxembourg ndi makolo ake pomwe adazindikira mwazi m'mipando yake.

"Ndipamene ndidadziwa kuti china chake chachikulu chikuchitika. Amayi anga anapezeka kuti ali ndi matenda a Crohn ali wachinyamata, kotero tinakhala ngati timayika awiri ndi awiri limodzi ngakhale timayembekeza kuti zinali zopweteka kapena kuti chakudya ku Europe chinali kuchita kena kake kwa ine, "akukumbukira Kelley.

Atabwerera kunyumba, adakonza colonoscopy, zomwe zidamupangitsa kuti adziwe matenda a Crohn.

"Ndinayezetsa magazi miyezi ingapo pambuyo pake, ndipo ndipamene adazindikira kuti ndinali ndi ulcerative colitis," akutero Kelley.

Koma m'malo mokhumudwa ndi matenda ake, Kelley akuti kudziwa kuti ali ndi ulcerative colitis kumamupatsa mtendere wamumtima.

"Ndakhala ndikuyenda kozungulira zaka zambiri ndikumva kupweteka kosalekeza komanso kutopa kwanthawi zonse, chifukwa chake matendawa anali ngati kutsimikizika patatha zaka zambiri ndikudabwa chomwe chikuchitika," akutero. "Ndidadziwa pamenepo kuti ndikadatha kuchita bwino m'malo mongodzidzimutsa ndikuyembekeza kuti china chomwe sindidye chingathandize. Tsopano nditha kupanga dongosolo lenileni komanso kutsatira njira zakutsogolo. ”

Kupanga nsanja yolimbikitsira ena

Pomwe Kelley amaphunzira kugwiritsa ntchito matenda ake atsopanowa, amayang'aniranso blog yake Plenty & Well, yomwe adayamba zaka ziwiri zapitazo. Komabe ngakhale anali ndi nsanja iyi, zikhalidwe zake sizinali mutu womwe anali wofunitsitsa kuti alembe.

"Nditapezeka koyamba, sindinalankhule za IBD kwambiri pa blog yanga. Ndikuganiza kuti gawo lina langa lidafunabe kunyalanyaza. Ndidali chaka changa chomaliza ku koleji, ndipo zingakhale zovuta kuti ndikambirane ndi abwenzi kapena abale, ”akutero.

Komabe, adamva kuyitanidwa kuti adzalankhule pa blog yake ndi akaunti ya Instagram atakhala ndi vuto lalikulu lomwe lidayika mchipatala mu June 2018.

"Kuchipatala, ndidazindikira kuti zinali zolimbikitsa kuwona azimayi ena akunena za IBD ndikuthandizira. Kulemba mabulogu za IBD ndikukhala ndi nsanja yolankhulira momasuka za kukhala ndi matendawa kwandithandiza kuchiritsa m'njira zambiri. Zimandithandiza kumva kuti ndimamvetsetsa, chifukwa ndikamalankhula za IBD ndimapeza zolemba kuchokera kwa ena omwe akumva zomwe ndikukumana nazo. Ndimamva kuti ndili ndekhandekha pankhondoyi, ndipo limeneli ndiye dalitso lalikulu kwambiri. ”

Amafuna kupezeka kwake pa intaneti kuti alimbikitse azimayi ena omwe ali ndi IBD.

Chiyambireni kuyika za ulcerative colitis pa Instagram, akuti alandila mauthenga abwino ochokera kwa azimayi pazomwe adalemba.

"Ndimalandira mauthenga ochokera kwa amayi akundiuza kuti akumva kukhala olimba mtima komanso olimba mtima kuti alankhule za [IBD yawo] ndi abwenzi, abale, komanso okondedwa," akutero Kelley.

Chifukwa cha yankho, adayamba kukhala ndi makanema apa Instagram otchedwa IBD Warrior Women Lachitatu lililonse, akamayankhula ndi azimayi osiyanasiyana omwe ali ndi IBD.

Kelley akuti: "Timalankhula za malangizo othandizira kukhala bwino, momwe tingalankhulire ndi okondedwa athu, kapena momwe tingayendere ntchito yakukoleji kapena 9-to-5," akutero Kelley. "Ndikuyamba zokambiranazi ndikugawana nawo nkhani za azimayi ena papulatifomu yanga, zomwe ndizosangalatsa kwambiri, chifukwa momwe timawonetsera kuti sichinthu chobisala kapena kuchita manyazi ndikuwonetseranso kuti nkhawa zathu, nkhawa zathu, komanso thanzi lathu. [zovuta] zomwe zimabwera ndi IBD ndizovomerezeka, ndipomwe tidzalimbikitsanso amayi. ”

Kuphunzira kulimbikitsa thanzi lanu

Kudzera m'malo ake ochezera, Kelley akuyembekezeranso kulimbikitsa achinyamata omwe ali ndi matenda osachiritsika. Ali ndi zaka 23 zokha, Kelley adaphunzira kulimbikitsa zaumoyo wake. Gawo loyamba linali kupeza chidaliro kufotokozera anthu kuti kusankha zakudya kumamupatsa thanzi.

"Kuphatikizira pamodzi m'malesitilanti kapena kubweretsa chakudya cha Tupperware kuphwando kumafunikira kufotokozera, koma mukamachita zovuta kuchita izi, anthu omwe akukhala pafupi nanu adzakhala omangika," akutero. "Ngati anthu oyenera ali m'moyo wanu, adzalemekeza kuti muyenera kupanga zisankhozi ngakhale zili zosiyana pang'ono ndi za ena onse."

Komabe, Kelley akuvomereza kuti zingakhale zovuta kuti anthu azigwirizana ndi achinyamata omwe ali ndi zaka 20 kapena 20 omwe ali ndi matenda osachiritsika.

"Ndizovuta ndili wachichepere, chifukwa mumawona ngati kuti palibe amene amakumvetsani, chifukwa chake ndizovuta kwambiri kudzichitira umboni kapena kuyankhula poyera. Makamaka chifukwa azaka zanu za 20, mumangofuna kuti mukhale oyenerera, ”akutero.

Kuyang'ana wachichepere komanso wathanzi kumawonjezera kuvutako.

"Chosaoneka cha IBD ndichimodzi mwazinthu zovuta kuzimvetsa, chifukwa momwe mumamverera mkati sizomwe zimawonetsedwa kudziko lapansi, motero anthu ambiri amaganiza kuti mukukokomeza kapena kuzipusitsa, ndikuti imasewera mbali zosiyanasiyana zaumoyo wanu, "akutero Kelley.

Maganizo akusintha ndikufalitsa chiyembekezo

Kuphatikiza pakufalitsa chidziwitso ndi chiyembekezo kudzera pamapulatifomu ake, Kelley akugwirizananso ndi Healthline kuyimira pulogalamu yake yaulere ya IBD Healthline, yomwe imagwirizanitsa omwe amakhala ndi IBD.

Ogwiritsa ntchito amatha kusakatula mbiri yamembala ndikupempha kuti agwirizane ndi membala aliyense wamderalo. Akhozanso kujowina zokambirana zamagulu zomwe zimachitika tsiku ndi tsiku zomwe zimatsogozedwa ndi kalozera wa IBD. Mitu yokambirana ikuphatikiza chithandizo ndi zovuta, zakudya ndi njira zina zochiritsira, thanzi lam'mutu ndi malingaliro, kuyendetsa chithandizo chamankhwala ndi ntchito kapena sukulu, ndikukonzanso matenda atsopano.

Kuphatikiza apo, pulogalamuyi imapereka zaumoyo ndi nkhani zowunikiridwa ndi akatswiri azachipatala a Healthline zomwe zimaphatikizapo zambiri zamankhwala, zoyeserera zamankhwala, komanso kafukufuku waposachedwa wa IBD, komanso kudzisamalira komanso zidziwitso zaumoyo wamaganizidwe ndi nkhani zaumwini za ena omwe amakhala ndi IBD.

Kelley adzalandira macheza awiri amoyo m'magawo osiyanasiyana a pulogalamuyi, pomwe adzafunsa mafunso kuti ophunzira athe kuyankha ndikuyankha mafunso a omwe amagwiritsa ntchito.

"Ndizosavuta kukhala ndi malingaliro ogonjetsedwa tikapezeka ndi matenda osachiritsika," akutero Kelley. "Chiyembekezo changa chachikulu ndikuwonetsa anthu kuti moyo ukhoza kukhala wodabwitsa komanso kuti atha kukwaniritsa maloto awo onse ndi zina zambiri, ngakhale atakhala ndi matenda osachiritsika ngati IBD."

Cathy Cassata ndi wolemba pawokha wodziwikiratu pa nkhani zathanzi, thanzi lam'mutu, komanso machitidwe amunthu. Ali ndi luso lolemba ndi kutengeka komanso kulumikizana ndi owerenga mwanzeru komanso moyenera. Werengani zambiri za ntchito yake Pano.