Munthu Yemwe Amayambitsa Vutoli ALS Akumira M'mabilu Achipatala

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Katswiri wakale wa baseball ku Boston College, Pete Frates, adapezeka ndi matenda a ALS (amyotrophic lateral sclerosis), omwe amadziwikanso kuti Lou Gehrig's matenda, mu 2012. Patatha zaka ziwiri, adapeza lingaliro lopeza ndalama zothandizira matendawa poyambitsa vuto la ALS lomwe pambuyo pake. idakhala chodabwitsa pazama media.

Komabe, lero, pomwe Frates amagona pakuthandizira moyo kunyumba, banja lake zikukuvutani kupeza $ 85,000 kapena $ 95,000 pamwezi zofunika kuti akhale ndi moyo. "Banja lirilonse likhoza kusweka chifukwa cha izi," abambo a Frates, a John, adauza WBZ ku CNN. "Pambuyo pazaka ziwiri ndi theka za ndalama zamtunduwu, zakhala zosatheka kwathunthu kwa ife. Sitingakwanitse."

Chimaliziro

Lingaliro la vuto la ALS linali losavuta: munthu amataya chidebe chamadzi ozizira pamutu pawo ndikuyika chinthu chonsecho pa TV. Kenako, amatsutsa abwenzi ndi abale kuti nawonso achite chimodzimodzi kapena apereke ndalama ku The ALS Association. (Zokhudzana: Odziwika Athu 7 Omwe Anatenga ALS Ice Bucket Challenge)

Pakadutsa milungu isanu ndi itatu, malingaliro anzeru a Frates adakweza ndalama zoposa $ 115 miliyoni chifukwa cha anthu 17 miliyoni omwe adatenga nawo gawo. Chaka chatha, bungwe la ALS Association lidalengeza kuti zoperekazo zawathandiza kudziwa kuti ndi jini lomwe limayambitsa matendawa lomwe limapangitsa kuti anthu azitha kuyendetsa minofu, pamapeto pake amachotsa kudya, kulankhula, kuyenda komanso pamapeto pake kupuma.

Osati zokhazo koma koyambirira kwa mwezi uno a FDA adalengeza kuti posachedwapa pakhala mankhwala atsopano ochiritsira ALS-njira yoyamba yothandizira yatsopano yomwe ikupezeka zaka zopitilira makumi awiri. Tsoka ilo, ndizovuta kudziwa ngati izi zithandizira Frates munthawi yake. Winanso woyambitsa vutoli, Anthony Senerchia wazaka 46, anamwalira kumapeto kwa November 2017 atatha zaka 14 akumenyana ndi matendawa.

Ngakhale pamafunika $ 3,000 patsiku kuti akhalebe ndi moyo, mkazi wa Frates, Julie akukana kusamutsa mwamuna wake, ngakhale zitakhala zotsika mtengo kubanja. "Tikufuna kumusunga kunyumba ndi banja lake," adauza WBZ, kuwonetsa kuti kucheza ndi mwana wake wamkazi wazaka ziwiri ndi chimodzi mwazinthu zochepa zomwe zimapangitsa Frates kumenyera moyo wake.

Chiyambi cha Kukonzekera

Tsopano, banja la a Frates likufikiranso pagulu popanga thumba latsopano kudzera ku ALS Association yothandizira mabanja ngati Pete kuti athe kusunga okondedwa awo kunyumba. Wotchedwa Home Health Care Initiative, cholinga chake ndikufikira $ 1 miliyoni, ndipo fundraiser idzachitika pa Juni 5. Pitani ku ALS Association kuti mumve zambiri.

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