Kukonzekera Tsiku Lanu Tsiku Ndi Tsiku Mukamakhala ndi IPF

Zamkati

• Kuyendera madokotala
• Mankhwala
• Chitani masewera olimbitsa thupi
• Tulo
• Nyengo
• Chakudya
• Kuthandiza
• Nthawi yocheza
• Tsiku losuta fodya
• Misonkhano yamagulu othandizira

Ngati mukukhala ndi idiopathic pulmonary fibrosis (IPF), mukudziwa momwe matendawa sangadziwikire. Zizindikiro zanu zimatha kusintha kwambiri mwezi ndi mwezi - kapena tsiku ndi tsiku. Kumayambiriro kwa matenda anu, mutha kumva bwino kuti mugwire ntchito, kuchita masewera olimbitsa thupi, komanso kutuluka ndi anzanu. Koma matendawa akayamba, kutsokomola kwanu komanso kupuma movutikira kumatha kukhala koopsa kwakuti mungakhale ndi vuto kusiya nyumba yanu.

Kusasintha kwa zizindikilo za IPF kumapangitsa kukhala kovuta kukonzekera mtsogolo. Kukonzekera pang'ono kungapangitse kukhala kosavuta kuthana ndi matenda anu. Yambani kusunga kalendala ya tsiku ndi tsiku, sabata iliyonse, kapena mwezi uliwonse, ndipo lembani izi ndi ntchito zofunika kuchita ndi zikumbutso.

Kuyendera madokotala

IPF ndi matenda osachiritsika komanso opita patsogolo. Zizindikiro zanu zimatha kusintha pakapita nthawi, ndipo chithandizo chomwe chidakuthandizani kuti muchepetse mpweya wanu komanso kutsokomola pamapeto pake chitha kusiya kugwira ntchito. Kuti muchepetse zizindikiritso zanu ndikupewa zovuta, muyenera kukhazikitsa nthawi yoyendera ndi omwe amakuthandizani pa zaumoyo.

Konzani zakuwona dokotala wanu katatu kapena kanayi pachaka. Lembani maulendo awa pakalendala yanu kuti musayiwale za iwo. Komanso onaninso nthawi yomwe mwakhala mukusankhidwa ndi akatswiri ena kuti akayesedwe ndi kulandira chithandizo chamankhwala.

Konzekerani ulendo uliwonse pasadakhale polemba mndandanda wa mafunso ndi nkhawa kwa dokotala wanu.

Mankhwala

Kukhala wokhulupirika pamankhwala anu kumathandizira kuchepetsa zizindikilo zanu ndikuwongolera kukula kwa matenda anu. Mankhwala ochepa amavomerezedwa kuchiza IPF, kuphatikizapo cyclophosphamide (Cytoxan), N-acetylcysteine ​​(Acetadote), nintedanib (Ofev), ndi pirfenidone (Esbriet, Pirfenex, Pirespa). Imwani mankhwala anu kamodzi kapena katatu tsiku lililonse. Gwiritsani ntchito kalendala yanu ngati chikumbutso kuti musaiwale mlingo.

Chitani masewera olimbitsa thupi

Ngakhale mutha kumva kuti mulibe mpweya komanso wotopa kuti muzitha kuchita masewera olimbitsa thupi, kukhalabe achangu kumatha kusintha izi. Kulimbitsa mtima wanu ndi minofu ina kudzakuthandizaninso kukwaniritsa ntchito zanu za tsiku ndi tsiku mosavuta. Simusowa kuchita zolimbitsa thupi kwa ola lathunthu kuti muwone zotsatira. Kuyenda ngakhale kwa mphindi zochepa patsiku kumapindulitsa.

Ngati zikukuvutani kuchita masewera olimbitsa thupi, funsani dokotala wanu za kulembetsa nawo pulogalamu yokonzanso mapapu. Pulogalamuyi, mugwira ntchito ndi katswiri wazolimbitsa thupi kuti muphunzire momwe mungakhalire otetezeka bwino, komanso momwe mungathere.

Tulo

Kugona maola asanu ndi atatu tsiku lililonse ndikofunikira kuti mumve bwino. Ngati mukugona molakwika, lembani nthawi yogona pa kalendala yanu. Yesetsani kukhala ndi chizolowezi pogona ndi kudzuka nthawi yofananira tsiku lililonse - ngakhale kumapeto kwa sabata.

Kukuthandizani kuti mugone pa nthawi yoikidwiratu, chitani zinthu zotsitsimula monga kuwerenga buku, kusamba mofunda, kupuma kwambiri, kapena kusinkhasinkha.

Nyengo

IPF ikhoza kukupangitsani kuti musamalole kutentha kwambiri. M'miyezi yotentha, konzekerani zochita zanu m'mawa kwambiri, pomwe dzuwa ndi kutentha sizikhala zazikulu. Ndandanda yopuma yamasana kunyumba mu mpweya.

Chakudya

Zakudya zazikulu sizikulimbikitsidwa mukakhala ndi IPF. Kumva kukhuta kwambiri kumatha kupangitsa kuti kupume kovuta. M'malo mwake, konzekerani zakudya zazing'ono zingapo ndi zokhwasula-khwasula tsiku lonse.

Kuthandiza

Ntchito za tsiku ndi tsiku monga kuyeretsa m'nyumba ndi kuphika kumatha kukhala kovuta mukavutika kupuma. Anzanu ndi abale anu akamakuthandizani, musangonena kuti inde. Sanjani mu kalendala yanu. Ikani theka la ola kapena ola lotalika kuti anthu azikuphikirani chakudya, azikugulirani, kapena akuthamangireni kukaonana ndi dokotala.

Nthawi yocheza

Ngakhale mutakhala kuti muli pansi pa nyengo, ndikofunikira kuti musamagwirizane ndi anthu kuti musakhale osungulumwa komanso osungulumwa. Ngati simungathe kutuluka mnyumbamo, ikani mafoni kapena Skype mafoni ndi anzanu kapena abale, kapena kulumikizana kudzera pa TV.

Tsiku losuta fodya

Ngati mukukabe kusuta, ino ndiyo nthawi yoti musiye. Kupuma utsi wa ndudu kumatha kukulitsa vuto lanu la IPF. Khazikitsani tsiku pakalendala yanu yoti musiye kusuta, ndipo pitirizani kutero.

Lero tsiku lanu loti musiye kusuta, tulutsani ndudu iliyonse ndi mbale yopopera phulusa m'nyumba mwanu. Kumanani ndi dokotala wanu kuti akuthandizeni upangiri wa momwe mungasiyire. Mutha kuyesa mankhwala kuti muchepetse chilakolako chanu chofuna kusuta, kapena kugwiritsa ntchito mankhwala osinthira chikonga monga chigamba, chingamu, kapena kupopera m'mphuno.

Misonkhano yamagulu othandizira

Kusonkhana ndi anthu ena omwe ali ndi IPF kungakuthandizeni kuti muzimva kulumikizana. Mutha kuphunzira kuchokera - ndikudalira - mamembala ena a gululi. Yesetsani kupezeka pamisonkhano pafupipafupi. Ngati simutenga nawo mbali mgulu lothandizira, mutha kupeza imodzi kudzera mu Pulmonary Fibrosis Foundation.