Kodi Kukhululuka Kungachitike ndi MS Progressive MS? Kulankhula ndi Dotolo Wanu

Zamkati

• Kodi chikhululukiro chitha kuchitika ndi SPMS?
• Kodi Zizindikiro za SPMS ndi ziti?
• Kodi ndingatani kuti ndithane ndi matenda a SPMS?
• Kodi nditaya mwayi wanga woyenda ndi SPMS?
• Kodi ndiyenera kupita kangati kukaonana ndi dokotala kukayezetsa?
• Kutenga

Chidule

Anthu ambiri omwe ali ndi MS amapezeka kuti ali ndi MS (RRMS) yobwereranso. Mu mtundu uwu wa MS, nthawi zamatenda zimatsatiridwa ndi nthawi yakuchira pang'ono kapena kwathunthu. Nthawi zobwezeretsazi zimatchedwanso chikhululukiro.

Pambuyo pake, anthu ambiri omwe ali ndi RRMS amapitiliza kukulira MS (SPMS) yachiwiri. Mu SPMS, kuwonongeka kwa mitsempha ndi kulemala kumakhala kopitilira patsogolo pakapita nthawi.

Ngati muli ndi SPMS, kulandira chithandizo kungathandize kuchepetsa kukula kwa vutoli, kuchepetsa zizindikilo, ndikuchedwa kulemala. Izi zitha kukuthandizani kuti mukhalebe achangu komanso athanzi pakapita nthawi.

Nawa mafunso omwe mungafunse dokotala wanu za moyo ndi SPMS.

Kodi chikhululukiro chitha kuchitika ndi SPMS?

Ngati muli ndi SPMS, mwina simudzadutsa nyengo zakukhululukidwa kwathunthu pomwe zizindikilo zonse zimatha. Koma mutha kudutsa nthawi yomwe matendawa amakhala osagwira ntchito kwambiri.

SPMS ikamagwira ntchito kwambiri ndikukula, zizindikilo zimakulanso ndipo kulemala kumawonjezeka.

SPMS ikakhala yosagwira ntchito popanda kupita patsogolo, zizindikilo zimatha kukhala chiphalaphala kwakanthawi.

Pofuna kuchepetsa ntchito ndi kupititsa patsogolo kwa SPMS, dokotala wanu akhoza kukupatsani mankhwala osinthira matenda (DMT). Mankhwala amtunduwu atha kuchepetsa kapena kulepheretsa anthu kulemala.

Kuti mudziwe zaubwino ndi zoopsa zomwe mungapeze mukatenga DMT, lankhulani ndi dokotala wanu. Amatha kukuthandizani kumvetsetsa ndi kuyeza njira zomwe mungasankhe.

Kodi Zizindikiro za SPMS ndi ziti?

SPMS imatha kuyambitsa zizindikilo zosiyanasiyana, zomwe zimasiyanasiyana malinga ndi munthu. Pamene matendawa akupita, zizindikiro zatsopano zimatha kupezeka kapena zizindikiro zomwe zikuwonjezeka zimatha kukulirakulira.

Zizindikiro zina monga:

• kutopa
• chizungulire
• ululu
• kuyabwa
• dzanzi
• kumva kulira
• kufooka kwa minofu
• kufalikira kwa minofu
• mavuto owoneka
• mavuto moyenera
• mavuto oyenda
• mavuto chikhodzodzo
• Mavuto amatumbo
• Kulephera kugonana
• kusintha kwa kuzindikira
• kusintha kwamalingaliro

Mukakhala ndi zizindikilo zatsopano kapena zazikulu, dziwitsani dokotala wanu. Afunseni ngati pali zosintha zilizonse zomwe zingapangidwe pa dongosolo lanu lothandizira kuti muchepetse kapena kuchepetsa zizolowezi.

Kodi ndingatani kuti ndithane ndi matenda a SPMS?

Pofuna kuthandizira kuthana ndi SPMS, dokotala wanu akhoza kukupatsani mankhwala amodzi kapena angapo.

Atha kulimbikitsanso kusintha kwamachitidwe ndi njira zakukonzanso kuti zikuthandizireni kukhala ndi thanzi labwino, kukhala ndi moyo wabwino, komanso kudziyimira pawokha.

Mwachitsanzo, mutha kupindula ndi:

• chithandizo chamankhwala
• chithandizo pantchito
• chithandizo cha chilankhulo
• kukonzanso kuzindikira
• kugwiritsa ntchito chida chothandizira, monga ndodo kapena choyendera

Ngati mwakhala mukukumana ndi zovuta kuthana ndi zovuta zam'magulu kapena nkhawa za SPMS, ndikofunikira kupeza chithandizo. Dokotala wanu akhoza kukutumizirani ku gulu lothandizira kapena katswiri wazamisala kuti mukalandire upangiri.

Kodi nditaya mwayi wanga woyenda ndi SPMS?

Malinga ndi National Multiple Sclerosis Society (NMSS), anthu opitilira awiri mwa atatu mwa anthu omwe ali ndi SPMS amatha kuyenda. Ena a iwo zimawawona kukhala zothandiza kugwiritsa ntchito ndodo, choyendera, kapena chida china chothandizira.

Ngati simungayendenso mtunda waufupi kapena wautali, dokotala wanu angakulimbikitseni kuti mugwiritse ntchito njinga yamoto kapena njinga yamagudumu poyenda. Zipangizozi zimatha kukuthandizani kuti musamayende bwino komanso kuti muziyimirira panokha.

Adziwitseni dokotala ngati mukuvutika kuyenda kapena kumaliza ntchito zina za tsiku ndi tsiku nthawi ikamapita. Amatha kukupatsirani mankhwala, chithandizo chothandizira, kapena zida zothandizira kuti athetse vutoli.

Kodi ndiyenera kupita kangati kukaonana ndi dokotala kukayezetsa?

Kuti mudziwe momwe matenda anu akuyendera, muyenera kukayezetsa magazi kamodzi pachaka, malinga ndi NMSS. Dokotala wanu ndipo mutha kusankha kangati momwe mungagwiritsire ntchito maginito opanga maginito (MRI).

Ndikofunikanso kuti dokotala adziwe ngati zizindikilo zanu zikuipiraipira kapena mukukumana ndi zovuta kumaliza ntchito kunyumba kapena kuntchito. Momwemonso, muyenera kuuza dokotala ngati zikukuvutani kutsatira ndondomeko yanu yothandizira. Nthawi zina, angalimbikitse kusintha kwa chithandizo chanu.

Kutenga

Ngakhale pakadali pano palibe mankhwala a SPMS, chithandizo chitha kuthandiza kuchepetsa kukula kwa vutoli ndikuchepetsa zovuta pamoyo wanu.

Pofuna kuthandizira kuthana ndi zovuta ndi zotsatira za SPMS, dokotala wanu akhoza kukupatsani mankhwala amodzi kapena angapo. Kusintha kwa moyo, njira zothandizira, kapena njira zina zingathandizenso kuti mukhale ndi moyo wabwino.