Ma Voices a MS: Nchiyani Chimayambitsa Zomwe Mumakhudzidwa Kwambiri?
Zamkati
Anthu ambiri omwe ali ndi multiple sclerosis (MS) ali ndi zizindikilo zomwe sizimakambidwa kwambiri. Chimodzi mwazinthu izi ndikumangirira kwambiri. Atazunguliridwa ndi phokoso lochulukirapo, kuwonekera pazowoneka zambiri, kapena kuyika malo atsopano kapena okweza, anthu ambiri omwe ali ndi MS akuti akusokonezeka, kutopa, komanso kumva kupweteka.
Nthawi zina, kukhudzika kwamaganizidwe kumafanana ndi myoclonus, chizindikiritso chodziwika bwino chomwe chingayambitse kugwedezeka kwa minofu mosafunikira.
Tidafunsa mdera lathu la MS pa Facebook zomwe zimayambitsa kukhululuka. Werengani kuti muwone zomwe ananena.
Phokoso
"Phokoso m'malo otsekedwa, monga maphwando, makalasi, zipinda zikuluzikulu, malo ogulitsira, ndi zina zambiri bola ndikangosiya zachilengedwe, ndidzakhala bwino." - Esther D., wokhala ndi MS
“Phokoso! Ndikumva ngati mutu wanga wakomoka. " - Rhonda L., wokhala ndi MS
“Phokoso lamtundu uliwonse. Mphaka wanga yemwe akundiyang'ana amatha kundimasula nthawi zina. ” - Amy M., wokhala ndi MS
"Munthu wina akutafuna zinthu zokhazokha." - Deanna L., wokhala ndi MS
“Ndimakhala ndi phokoso lochokera kumbuyo kwambiri, makamaka ngati wina akufuna kundilankhula. Ndipo tikakhala ndi ana awiri aang'ono, nthawi zonse timangokhalira kumangonena phokoso lokhalo! ” - Brandi M., wokhala ndi MS
“Sindingathe kupirira phokoso lililonse. Ngakhale galu wanga akukuwa amandipeza. ” - Ruth W., wokhala ndi MS
Masitolo
“Chofala kwambiri ndi pamene malo ogwirira ntchito amakhala okwera komanso otanganidwa, koma chatsopano kwambiri, komanso chomwe chimawoneka chodabwitsa kwambiri, ndi sitolo iliyonse yosungira katundu. Mipata yayitali kwambiri komanso yayitali, ngakhale ilibe kanthu. ” - Amy L., wokhala ndi MS
“Khamu lalikulu. Masitolo akulu owala. Nthawi zina ndimapita kusitolo, ndikamalowa ndikunena kuti, 'Ayi,' ndikupita kunyumba. ” - Bonnie W., wokhala ndi MS
“Golosale ndi kuchuluka kwa magalimoto. Zimandipangitsa kumva kuti ndine wobalalika komanso 'wotayika.' ”- Amber A., wokhala ndi MS
Malo osadziwika
"Malo omwe sindinazolowere, mwakuthupi komanso / kapena m'maganizo. Komabe simukudziwa momwe mungachitire nawo. " - Rona M., wokhala ndi MS
“Kutalikirana kwambiri ndi ana. Ndimakhala ndi nkhawa kwambiri. ” - Sherri H., wokhala ndi MS
Kutopa
"Kutopa kumatha kuyambitsa, magetsi owala kwenikweni, kuyenda kwambiri, magetsi, phokoso nthawi yomweyo, kuyesera kumvetsera ndikuyankhula m'malo ena ndi zina." - Kelly H., wokhala ndi MS
"Kutopa mwina ndi komwe kumapangitsa kuti ndikhale ndi nkhawa zambiri, koma sikuti nthawi zonse ndimakhala wolakwa. Ngati pali mapokoso ochulukirapo nthawi imodzi, onse akuwoneka kuti akupikisana kuti akhale okwera kwambiri, zomwe zimapangitsa kukhala ochulukirachulukira. Kenako, ndimasweka kwathunthu. Kugwedezeka, kumva kukhala wosakhazikika kwambiri, komanso kuda nkhawa. Zonsezi zimakhala zowona ndikamadzaza ndi zinthu zina zakuthupi kapena kuphatikiza zochitika zochulukirapo. ” - Gail F., wokhala ndi MS
"Munthu amene amakhala pafupi ndi ine ndikuyankhula osayima, makamaka nthawi yamadzulo atatopa kwambiri, kapena anthu olira mwamphamvu ali ndi mphamvu zambiri ... Ndili ngati chokoleti pamalo owotchera ... Ndasungunuka ndi nyansi." - Lisa F., wokhala ndi MS
Malo Odyera
“M'malo odyera, ndimapempha kuti ndisakhale pansi pa speaker. Nyimbo, kuphatikiza mawu a anthu komanso phokoso la kukhitchini, zimandisokoneza. ” - Connie R., wokhala ndi MS
"Kudya ku Texas Roadhouse ndi masiku onse okumbukira kubadwa komanso kuyimba ndi zikondwerero. Zimangokhala zochuluka kwambiri! ” - Judy C., wokhala ndi MS
"Phokoso likuchokera mbali zingapo ndikumveka kwamphamvu ngati kulira kwa mbale ndi siliva pamodzi, kapena ana akulira. Malo odyera okhala ndi denga lokwera komanso khitchini yotseguka ndi omwe amandivuta kwambiri chifukwa mawu aliwonse amangomva kuti achulukitsidwa. ” - Erin H., wokhala ndi MS
Unyinji
"Kukhala pagulu la anthu kapena chipinda chaphokoso momwe sindimatha kutulutsa phokoso lina. Khamu laphokoso kwambiri ndi lomwe limangokhala phokoso pakati pawo, anthu, komanso vuto langa. ” - Cindi P., wokhala ndi MS
“Pali mawu ambiri nthawi imodzi.” - Anatero Robin G., wokhala ndi MS
Zinthu zochuluka kwambiri kuwerengera
"Magetsi owala, mokweza kwambiri, ana akulira mokweza, otentha ndi fungo losamveka, mawu ena akumafakitale, nthawi zina ngakhale kuwerenga kumatha kukhala kochulukirapo ngati magetsi ali olakwika kapena malo akukwera." - Alysin P., wokhala ndi MS
"Kupita kugolosale, nditatopa, madokotala akundiuza zambiri nthawi imodzi, malo odyera, anthu omwe samatha kufuula kwawo, kuthamanga ana." - Stacy N., wokhala ndi MS
“Masitolo akuluakulu okhala ndi utoto wowoneka bwino komanso wokopa; magetsi owala kapena a strobe makamaka mumdima; kwambiri, mokweza kwambiri, kapena mitundu yapadera ya phokoso monga screeching kapena ma siren; khamu kapena zochitika zofulumira komanso zotanganidwa. ” - Polly P., wokhala ndi MS
Tikulangiza
L-glutamine
