Kupita Patsogolo mu Zipangizo Zamakono ndi Chithandizo cha Spinal Muscular Atrophy

Zamkati

• Zolemba 3-D zosindikizidwa
• Kuwongolera zachilengedwe
• Ma wheelchair
• Mapiritsi
• Pulogalamu yotsata m'maso
• Zovala zothandiza
• Kutenga

Spinal muscular atrophy (SMA) ndichikhalidwe cha chibadwa. Zimayambitsa mavuto ndi ma neuron oyendetsa magalimoto omwe amalumikiza ubongo ndi msana. Kuyenda, kuthamanga, kukhala tsonga, kupuma, ngakhale kumeza kumatha kukhala kovuta kwa anthu omwe ali ndi SMA. Omwe ali ndi SMA nthawi zambiri amafunikira zida zosiyanasiyana zamankhwala.

Pakadali pano palibe mankhwala a SMA. Koma pakhala kupita patsogolo kwatsopano kwamakono komanso kosangalatsa. Izi zitha kupatsa anthu omwe ali ndi SMA kuyenda bwino, chithandizo chambiri, komanso moyo wabwino.

Zolemba 3-D zosindikizidwa

Katundu woyamba woyamba wa ana omwe ali ndi SMA adayamba kupezeka mu 2016. Tsopano ndizotheka kusindikiza mawonekedwe azithunzi zitatu za chipangizochi chifukwa cha kupita patsogolo kwamakampani osindikiza a 3-D. Chipangizocho chitha kuthandiza ana kuyenda koyamba. Zimagwiritsa ntchito ndodo zosinthira, zazitali zomwe zimagwirizana ndi miyendo ya mwana ndi torso. Zimaphatikizaponso masensa angapo omwe amalumikizidwa ndi kompyuta.

Kuwongolera zachilengedwe

Anthu omwe ali ndi SMA samayenda kwenikweni. Ntchito zosavuta monga kuzimitsa magetsi zingakhale zovuta. Ukadaulo wowongolera zachilengedwe umalola anthu omwe ali ndi SMA kuti azilamulira mdziko lawo lonse. Amatha kuwongolera ma TV awo, chowongolera mpweya, magetsi, ma DVD, ma speaker, ndi zina zambiri. Zomwe amafunikira ndi piritsi kapena kompyuta.

Olamulira ena amabwera ndi maikolofoni a USB. Malamulo amawu amatha kuyambitsa ntchitoyi. Itha kuphatikizanso ndi alamu yadzidzidzi kuti mupemphe thandizo pakukankha batani.

Ma wheelchair

Ukadaulo wa olumala wapita kutali. Wothandizira mwana wanu pantchito atha kukuwuzani zamagalimoto olowera omwe alipo. Chitsanzo chimodzi ndi Wizzybug, njinga yamagudumu yoyendetsedwa kwa ana ang'onoang'ono. Wiricheya ndi yogwiritsa ntchito mkati ndi kunja. Imayendetsedwa ndi kuwongolera kosavuta.

Ma triki oyenda ndi njira ina. Amapatsa mwana wanu mwayi wocheza ndi anzawo komanso kuti azichita masewera olimbitsa thupi.

Mapiritsi

Mapiritsi ndi ochepa komanso osavuta kuyang'anira kuposa ma laptops kapena ma PC apakompyuta. Zimasinthika kwa mwana wanu. Zitha kuphatikizanso kuzindikira mawu, othandizira ma digito (monga Siri), ndi zina. Izi zitha kukhazikitsidwa ndimakina, ma swichi, ma styluses, ma kiyibodi opezeka, ndi zowongolera m'manja

Zida zama wheelchair zimakupatsani mwayi wokwera foni yam'manja kapena piritsi pa chikuku.

Mapiritsi amapatsa mwana wanu kuthekera kofufuza, ngakhale sangayende mozungulira kwambiri. Kwa ana okalamba, piritsi lingatanthauze kusewera chida ngati ng'oma pagulu lakusukulu. Mapulogalamu azida zoimbira amatha kulumikizidwa mpaka amp amp kuti mwana wanu aphunzire kusewera.

Pulogalamu yotsata m'maso

Pulogalamu yotsatila maso, monga ukadaulo wopangidwa ku EyeTwig, imapereka njira ina yolumikizirana ndi makompyuta. Imazindikira ndikutsata kuyenda kwa mutu wa mwana wanu pogwiritsa ntchito kamera yomwe ili pa kompyuta kapena piritsi yanu.

Zovala zothandiza

Mafupa opangidwa ndi zovala, monga Playskin Lift, ndi ocheperako kuposa mafupa. Kuyika kwa makina mu zovala kumathandiza ana ang'onoang'ono kukweza manja awo. tapeza ukadaulo wotsika mtengo, wosavuta kugwiritsa ntchito, wogwira ntchito, komanso womasuka. Mitundu yatsopano yamatekinolojeyi ibwera posachedwa.

Kutenga

Zipangizo ndi mankhwala atsopano ngati awa samangokhalira kukonza moyo wa omwe ali ndi SMA. Amawapatsanso mwayi woti atenge nawo mbali pazinthu zonse zomwe anthu angaganize kuti ndi moyo "wabwinobwino".

Zojambula zakunja, mapulogalamu othandizira, komanso mankhwala atsopano ndi chiyambi chabe cha kupita patsogolo kwamakono.Zosintha zonsezi zitha kuthandizira kuchiza ma SMA ndi zovuta zina zam'mimba.

Lumikizanani ndi gulu lanu lakusamaliro la SMA kuti mumve zambiri za inshuwaransi, renti, ndi mndandanda wazinthu zopanda phindu zomwe zingathandize. Muthanso kulumikizana ndi kampaniyo kuti muwone ngati akupereka renti, ndalama, kapena kuchotsera.