Izi Ndi Zomwe MS Akuwoneka

Zamkati

• Kristen Pfiefer, wazaka 46
  Yodziwika 2009
• Jackie Morris, wazaka 30
  Kudziwika: 2011
• Angela Reinhardt-Mullins, wazaka 40
  Kudziwika: 2001
• Mike Menon, wazaka 34
  Kudziwika: 1995
• Sharon Alden, wazaka 53
  Kudziwika: 1996
• Jeanne Collins, wazaka 63
  Kudziwika: 1999
• Nicole Connelly, wazaka 36
  Kudziwika: 2010
• Katie Meier, wazaka 35
  Kudziwika: 2015
• Sabina Diestl, wazaka 41, ndi amuna awo, Danny McCauley, wazaka 53
  Kudziwika: 1988

Zimabwera m'njira zosiyanasiyana, mosiyanasiyana ndi makulidwe. Amazembera ena, koma migolo yolowera kwa ena.Ndi multiple sclerosis (MS) - matenda osayembekezereka, opita patsogolo omwe amakhudza anthu opitilira 2.3 miliyoni padziko lonse lapansi.

Kwa anthu omwe ali pansipa 9, MS satanthauzira kuti ndi ndani, momwe amachitira, kapena momwe dziko likuwawonera. Miyoyo yawo ingasinthe kuyambira pomwe adapezeka, koma nkhani zawo ndizapadera kwa iwo komanso iwo okha. Izi ndi zomwe MS amawoneka.

Kristen Pfiefer, wazaka 46
Yodziwika 2009

"Sindikufuna kuti anthu azindiyang'ana ndikunena kuti," O, ndi amene ali ndi MS. Sitiyenera kumupatsa ntchitoyo chifukwa akhoza kudwala. ’Sindikufuna kuti anthu azindiweruza. Ndikudziwa zomwe ndingathe komanso zomwe sindingathe. Sichiyenera kukhala chofooka. Ndipo ndikuganiza kuti ndi zomwe anthu ambiri omwe amapezeka amapezeka amaziona. Ndipo siziyenera kutero. … Ndimasankha kuti zizindipatsa mphamvu. … Muli ndi mphamvu ngati musankha kuyitenga. Zili ngati nkhondo. Pankhondo, mutha kusankha kubisala ndikupemphera kuti isabwere kwa inu kapena mutha kumenya nkhondo. Ndimasankha kumenya nkhondo. Sindikukhulupirira kuti ndilibe mphamvu panthawiyi. Sindikukhulupirira kuti njinga ya olumala ili mtsogolo mwanga. Ndikukhulupirira kuti nditha kuthana nazo ndipo ndimachita tsiku lililonse. ”

Jackie Morris, wazaka 30
Kudziwika: 2011

“Kungoti simukuwoneka wodwala sikutanthauza kuti simukudwala. Ndikulingalira ndapeza bwino posawonetsa kuti pali cholakwika ngakhale mkati mkati tsiku lililonse, ndizovuta kuti ndichite zinthu za tsiku ndi tsiku. Ndikuganiza kuti ndilo gawo lovuta kwambiri, pokhapokha mutakhala ndi mawonekedwe akunja ngati anthu ali ndi chimfine kapena ngati ali ndi china chake chakuthupi chomwe mutha kuwona cholakwika nawo. Ngati saziwona saganiza kuti muli ndi vuto ndi inu. … Ndimalola kuti chikhale chinthu chomwe chingandikakamize kuti ndisinthe moyo wanga ndikukhala wotsimikiza ndikuchita zinthu zomwe mwina sindikadachita kale. Chifukwa ngakhale ndili ndi RRMS ndipo ndimamwa mankhwala ndipo zikuwoneka kuti zikuyang'aniridwa, simukudziwa kwenikweni. Sindikufuna kudandaula kuti sindinachite zinthu chifukwa sindinathe kuzichita ndikadatha. "

Angela Reinhardt-Mullins, wazaka 40
Kudziwika: 2001

"Ndikuganiza kuti nthawi yomwe ndidazindikira ndidakhala 'inde'. Tsopano ndikuyamba kunena kuti 'ayi.'… Ndiyenera kuwonetsa kuti palibe cholakwika ndi ine chifukwa anthu amanditenga ngati palibe cholakwika ndi ine. … Pali china chake cholakwika koma simukuchiwona ndipo ndicho chinthu chovuta kwambiri. "

Mike Menon, wazaka 34
Kudziwika: 1995

"Kwa ine, pali wina kunja uko yemwe ndi woipa kuposa ine amene akuchita zambiri kuposa ine. Chifukwa chake sindingadandaule kwenikweni pazomwe ndikuchita pano chifukwa ndikudziwa kuti pali wina kunja uko yemwe ali ndi MS yemwe ndi woipitsitsa, komabe akuchita zinthu zomwe akuyenera kuchita. Ndipo ndiyo njira yabwino kwambiri yoti mundiyang'anire. Zingakhale zoyipa kwambiri. Anthu adandiwonapo ndili pachiwopsezo chachikulu ndipo anthu adandiwona ndili pafupi ndi zabwino zanga zonse. Zaka ziwiri zapitazo ndinali pa chikuku ndipo sindimayenda ndipo ndinali ndi gawo loyipa kwambiri. Ndipo mapiritsi 20 pambuyo pake, anthu amandiwona ndipo ali ngati, 'Palibe cholakwika ndi inu.'… Ndikumva kuwawa tsiku lonse, tsiku lililonse. Ndangozolowera. … Pali masiku omwe nthawi zina sindimafuna kudzuka ndikungofuna kugona pamenepo, koma ndili ndi zinthu zoti ndichite. Muyenera kuti mudzikakamize pang'ono, ndikuyendetsa pang'ono. Ndikakhala pano, zikhala zikuipiraipira ndipo ine ndikungoipiraipira. "

Sharon Alden, wazaka 53
Kudziwika: 1996

"MS imawoneka ngati chilichonse. Zikuwoneka ngati ine. Zikuwoneka ngati mnzake wa mlongo wanga yemwe adayamba kuthamanga marathons atamupeza. Ndipo atasiya kugwira ntchito chifukwa cha MS, adaphunzitsanso za marathon. Ndi anthu omwe sangathe kuyenda molunjika kapena sangathe kuyenda. Ndili ndi anzanga pama wheelchair ndipo akhala motere kwakanthawi, kotero zikuwoneka ngati chilichonse. "

Jeanne Collins, wazaka 63
Kudziwika: 1999

"Ndikuganiza kuti MS imawoneka ngati aliyense. Aliyense amene mumakumana naye mwina ali ndi zomwe zikuchitika m'miyoyo yawo ndipo simukudziwa. Ndipo ndikuganiza kuti MS makamaka ndimatenda osawoneka mpaka mutalowera kumene. Ichi ndichifukwa chake sindikuganiza kuti MS imawoneka ngati chilichonse. Mutha kuwona ndodo. Mutha kuwona njinga ya olumala. Koma kwakukulu mumawoneka ngati aliyense. Mutha kukhala ndi zowawa zambiri ndipo palibe amene akuzungulirani amene amadziwa. … Ndikofunika kuti ena awone kuti simuyenera kusiya. Simuyenera kuchita kudzimvera chisoni komanso osatuluka kunja ndikusangalala ndi zomwe mumakonda kuchita. "

Nicole Connelly, wazaka 36
Kudziwika: 2010

“Nthawi zina zimangokhala ngati mndende mthupi lanu. Ndikulephera kuchita zinthu zomwe ndikufuna kuchita ndikumverera ngati pali zinthu zomwe sindiyenera kuchita. Ndiyenera kudzikumbutsa kuti ndisadzikakamize kwambiri, kuti ndisachite mopitirira muyeso chifukwa ndimalipira. Ndimadzidalira poganiza kuti anthu amaganiza kuti 'ndine wopusa' kapena anthu amaganiza kuti 'ndamwa' chifukwa pamakhala nthawi zina pamene sindimachita bwino monga ena. Ndikadakonda kuti anthu adziwe zomwe zili zolakwika koma ndikuganiza kuti chovuta kwambiri kwa ine ndikuti anthu samvetsa. "

Katie Meier, wazaka 35
Kudziwika: 2015

“Anthu ali ndi zambiri zabodza zokhudza MS ndi chiyani. Nthawi yomweyo amaganiza kuti mukufuna kukhala pa chikuku ndi zinthu zonse zamtunduwu, koma sizili choncho kwenikweni. [Nthawi zina] zitha kuwoneka kuti muli ndi thanzi labwino komanso mukukhala moyo wabwino, koma mukulimbana ndi zizindikilo zosiyanasiyana. "

Sabina Diestl, wazaka 41, ndi amuna awo, Danny McCauley, wazaka 53
Kudziwika: 1988

“Sindingasunthe konse. Sindikupatsirana. Sizowopsa. … Mungakhalebe osangalala ndi MS. ” - Sabina

"Ndinakumana naye ali ndi zaka 23 ndipo nthawi imeneyo sanali kuyenda, koma tidakondana nthawi iliyonse. Poyambirira ndimayesetsa kugwira ntchito ndikukhala womusamalira koma idakhala ntchito yanthawi zonse. Kukhala thandizo la munthu amene akudwala matendawa kumasintha moyo wake. ” - Danny