Kuthamanga Kunamuthandiza Mayi Ameneyu Kupirira Atamupeza Ndi Matenda Osowa Minofu

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Kutha kusuntha ndichinthu chomwe mwina mumachiwona mopepuka, ndipo palibe amene amadziwa kuposa wothamanga Sara Hosey. Mnyamata wazaka 32 wochokera ku Irving, TX, posachedwapa adapezeka ndi myasthenia gravis (MG), matenda osowa kwambiri a ubongo omwe amadziwika ndi kufooka komanso kutopa kwachangu kwa minofu yomwe mumayendetsa thupi lonse.

Hosey wakhala akuthamanga kuyambira ali ku koleji, akutenga nawo mbali mu 5Ks ndi theka marathons. Kuthamanga kunakhala gawo la moyo wake, ndipo sanaganizepo kawiri zakunyamula nthawi iliyonse yomwe angafune. Tsiku lopanikizika kuntchito? Palibe chomwe kuthamanga mwachangu sikungathetse. Kuvuta kugona? Kutenga nthawi yayitali kungathandize kuti atope. (Nazi zifukwa 11 zochirikizidwa ndi sayansi zomwe zikuyenda bwino kwa inu.)

Kenako tsiku lina nthawi yachilimwe chaka chatha, mosayembekezeka adayamba kunyinyirika pakudya chakudya chamadzulo ndi banja lake. "Ndakhala ndikumva kutopa kwambiri milungu ingapo yapitayi, koma ndimangozikoka kuti ndikhale wopanikizika," akutero Hosey. "Kenako usiku wina ndimatha kudya chakudya changa ndikuyamba kunyoza mawu anga. Izi zidachitika katatu pamasabata awiri ndisanapite kuchipatala."

Atayesa kangapo, kuphatikiza CT ndi MRI, madotolo sanathe kudziwa chomwe chinali cholakwika. "Ndidadzimva wopanda thandizo komanso wopanda mphamvu, kotero ndidatembenukira ku chinthu chimodzi chomwe chimandikhazika pansi: kuthamanga," akutero.

Anaganiza zolembetsa ndikuyamba maphunziro a United Airlines New York City Half Marathon, mpikisano wake wachinayi pamtunda womwewo. "Ndimangofuna kumva kuti ndili ndi mphamvu pachinthu china, ndipo ndimadziwa kuti kuthamanga kungandithandizire," akutero Hosey. (Kodi mumadziwa kuti "wothamanga" ndiye zenizeni, zotsimikizika mwasayansi?)

Kwa miyezi isanu ndi inayi yotsatira, zizindikiro zake zinapitirizabe, zomwe zinapangitsa maphunziro kukhala ovuta kuposa kale lonse. "Thupi langa silinkamva ngati ndikulimbikira," akutero Hosey. "Nthawi zonse ndimagwiritsa ntchito Hal Higdon Novice 1 kuphunzitsa ndipo ndidachitiranso ichi. Koma minofu yanga sinakhale yabwinoko monga kale. Sindingathe kuyendetsa mtunda umodzi panthawi yophunzitsira ndisanayime. I Kodi maphunziro aliwonse adathamanga (kupatula ochepa) ndipo kupirira kwanga sikunapite patsogolo. "

Munthawi imeneyi, madotolo sanathe kudziwa zomwe zinali vuto lake. "Ndidadzifufuza ndekha, ndipo ndidakumana ndi MG pa intaneti," akutero Hosey. "Ndinazindikira zizindikiro zambiri ndipo ndinaganiza zopempha dokotala kuti andiyezetse magazi enieni a matenda." (Zokhudzana: Kusaka Kwatsopano Zaumoyo wa Google Kukuthandizani Kupeza Zambiri pa Zachipatala Paintaneti)

Kenako, mu February chaka chino, kutatsala milungu ingapo kuti athamangire theka la marathon, madokotala anatsimikizira zomwe iye ankakayikira. Hosey analidi ndi MG-matenda omwe alibe mankhwala. "Kunena zowona, zinali ngati mpumulo," akutero. "Sindinakhalenso ndikukayikira komanso kuwopa zoyipa."

Madokotala anamuuza kuti chifukwa cha thanzi lake labwino kwambiri, matendawa sanamukhudze msanga ngati mmene akanachitira ndi munthu amene sali bwino. Komabe, "sindinadziwe chomwe matendawa amatanthauza mtsogolo, chifukwa chake ndinali wofunitsitsa kupitiliza maphunziro anga ndikupanga theka zivute zitani," akutero. (Kungolembetsa nawo mpikisano ndipo sindikudziwa kuti ndiyambira pati? Ndondomeko iyi yophunzitsira theka la marathon iyenera kuthandiza.)

Hosey adakwaniritsa lonjezo lomwe adapanga kwa iye ndikumaliza theka-marathon ku NYC sabata yatha. "Zinali zovuta kwambiri kuposa zonse zomwe ndidachitapo," a Hosey akutero. "Nditayamba kupuma, mapapu anga anapweteka ndipo ndinadutsa mzere womaliza ndikulira. Zinamveka ngati ndapindula kwambiri chifukwa thupi langa linkandigwira ntchito. Zokhumudwitsa zonse zokhudzana ndi madokotala omwe ankangokhalira kulembera mankhwala olakwika zinangotuluka. . Ndinali wonyada komanso wodekha kuti ndakwaniritsa cholinga changa koma zonse zimene ndakhala ndikuchita zinatulukanso.

Ndi matenda omwe adamupeza, mafunso ambiri akadali kwa Hosey. Kodi matendawa angakhudze bwanji kuyenda kwake kwanthawi yayitali? Pakadali pano, chinthu chimodzi ndichotsimikiza: kuthamanga kwambiri."Mwina nditsikira ku 5Ks, koma ndipitiliza kuyenda momwe ndingathere," akutero. "N'zosavuta kutenga mopepuka zomwe mungachite mpaka mutataya, ndiye kuti mumakhala ndi chiyamikiro chatsopano pa izo."

Hosey akuyembekeza kuti pogawana nkhani yake, akhoza kudziwitsa anthu za MG ndikulimbikitsa anthu kuti azikhala otanganidwa ndikupitirizabe kuyenda chifukwa "simudziwa zomwe zingachitike."

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