Ulcerative Colitis Taboos: Zinthu Zomwe Palibe Munthu Amayankhulapo

Zamkati

• Mankhwala
• Opaleshoni
• Maganizo
• Kuchita opaleshoni si mankhwala
• Zimbudzi
• Zakudya
• Tengera kwina

Ndakhala ndikukhala ndi ulcerative colitis (UC) kwazaka zisanu ndi zinayi. Anandipeza mu Januware 2010, patatha chaka bambo anga atamwalira. Pambuyo pokhululukidwa kwa zaka zisanu, UC wanga adabweranso ndi kubwezera ku 2016.

Kuyambira pamenepo, ndakhala ndikubwezera, ndipo ndikulimbanabe.

Nditamaliza mankhwala onse ovomerezedwa ndi FDA, sindinachitire mwina koma kungopanga koyamba koyamba katatu mu 2017. Ndinadwala ileostomy, komwe madokotala andichotsa matumbo anga akulu ndikundipatsa kachikwama kanthawi kochepa. Patatha miyezi ingapo, dokotalayo adandichotsa kachilomboka ndikupanga J-poch momwe ndimakhalabe ndi thumba lanthawi yayitali la ostomy. Opareshoni yanga yomaliza inali pa Ogasiti 9, 2018, pomwe ndidakhala membala wa kalabu ya J-poch.

Kunena kuti wakhala ulendo wautali, wopweteka komanso wopanikiza. Nditachitidwa opareshoni koyamba, ndidayamba kulimbikitsa zamankhwala anzanga otupa, ostomate, ndi J-poch.

Ndasintha magalasi pantchito yanga monga wolemba mafashoni ndipo ndaika mphamvu zanga polimbikitsa, kudziwitsa anthu, ndikuphunzitsa dziko lapansi za matendawa kudzera mu Instagram ndi blog yanga. Ndiwo wokonda kwanga kwakukulu m'moyo komanso gawo la siliva la matenda anga. Cholinga changa ndikubweretsa mawu kutchete komanso kosaoneka.

Pali mbali zambiri za UC zomwe simukuwuzidwa kapena anthu amapewa kuzikamba. Kudziwa zina mwa izi ndikadandilola kuti ndimvetsetse ndikukonzekera m'maganizo ulendo wanga wamtsogolo.

Awa ndi zilembo za UC zomwe ndikulakalaka ndikadadziwa zaka zisanu ndi zinayi zapitazo.

Mankhwala

Chinthu chimodzi chomwe sindimadziwa nditangopezedwa ndikuti zimatenga nthawi kuti chilombochi chiziyang'aniridwa.

Sindimadziwanso kuti pakhoza kubwera nthawi yomwe thupi lanu limakana mankhwala aliwonse omwe mungayese. Thupi langa lidafika kumapeto, ndikusiya kuyankha chilichonse chomwe chingandithandizire kukhululukidwa.

Zinanditengera pafupifupi chaka chimodzi mpaka nditapeza mankhwala oyenera a thupi langa.

Opaleshoni

Sindinayambe ndaganiza kuti m'zaka milioni ndidzafunika kuchitidwa opaleshoni, kapena kuti UC ingandipangitse opaleshoni.

Nthawi yoyamba yomwe ndidamva mawu oti "opaleshoni" anali zaka zisanu ndi ziwiri ndikukhala ndi UC. Mwachibadwa, ndinakweza maso chifukwa sindinakhulupirire kuti ichi chinali chenicheni changa. Ichi chinali chimodzi mwazisankho zovuta kwambiri zomwe ndimayenera kupanga.

Ndinadwala matenda ndi madokotala. Zinali zovuta kuvomereza kuti matendawa alibe mankhwala ndipo palibe chifukwa chenicheni.

Pambuyo pake, ndinayenera kuchitidwa maopaleshoni atatu akuluakulu. Zonsezi zimandipweteka mwakuthupi komanso mwamaganizidwe.

Maganizo

UC imakhudza zambiri osati zamkati mwanu zokha. Anthu ambiri samalankhula zaumoyo wamaganizidwe atapezeka ndi UC.Koma kuchuluka kwa kukhumudwa ndikokwera pakati pa anthu omwe amakhala ndi UC poyerekeza ndi matenda ena komanso anthu wamba.

Izi ndizomveka kwa ife, omwe timachita nawo. Komabe sindinamvepo zamaganizidwe mpaka zaka zingapo nditatsika pang'ono pomwe ndimakumana ndi zosintha zazikulu ndi matenda anga.

Nthawi zonse ndimakhala ndi nkhawa, koma ndimatha kuziphimba mpaka 2016 matenda anga atayambiranso. Ndinachita mantha chifukwa sindinkadziwa kuti tsiku langa likhala bwanji, ngati ndingafike kubafa, komanso kuti ululuwo uzikhala motalika bwanji.

Ululu womwe timapirira ndiwowopsa kuposa kuwawa kwa pobereka ndipo umatha kupitilira ndi kutha tsiku lonse, komanso kutaya magazi. Kupweteka kosalekeza pakokha kumatha kupangitsa aliyense kukhala ndi nkhawa komanso kukhumudwa.

Ndizovuta kuthana ndi matenda osawoneka kuphatikiza zovuta zam'mutu pamwamba pake. Koma kuwona wothandizira komanso kumwa mankhwala kuti muthane ndi UC kungathandize. Izi sizoyenera kuchita manyazi.

Kuchita opaleshoni si mankhwala

Anthu nthawi zonse amandiuza, "Tsopano popeza mwachitidwa maopaleshoni awa, mwachiritsidwa, sichoncho?"

Yankho ndilakuti, ayi, sindine.

Tsoka ilo, palibe mankhwala a UC pano. Njira yokhayo yomwe ndingalowerere chikhululukiro inali kuchitidwa opaleshoni kuchotsa matumbo anga akulu (colon) ndi thumbo.

Ziwalo ziwirizi zimachita zambiri kuposa momwe anthu amaganizira. Matumbo anga ang'ono tsopano akugwira ntchito yonse.

Osati zokhazo, koma chikwama changa cha J chili pachiwopsezo chachikulu cha pouchitis, komwe ndikutupa kwa thumba langa la J. Kupeza izi pafupipafupi kumatha kufuna chikwama chokhazikika cha ostomy.

Zimbudzi

Chifukwa matendawa saoneka, anthu nthawi zambiri amadabwa ndikawauza kuti ndili ndi UC. Inde, nditha kuwoneka wathanzi, koma chowonadi ndichakuti anthu amaweruza buku ndi chikuto chake.

Monga anthu okhala ndi UC, timafunikira kupeza chimbudzi nthawi zambiri. Ndimapita kubafa kanayi kapena kasanu ndi kawiri patsiku. Ngati ndili pagulu ndikusowa bafa ASAP, ndikufotokozera mwaulemu kuti ndili ndi UC.

Nthawi zambiri, wantchito amandilola kugwiritsa ntchito bafa lawo, koma amazengereza pang'ono. Nthawi zina, amafunsa mafunso ambiri ndipo samandilola. Izi ndi zochititsa manyazi kwambiri. Ndikumva kuwawa kale, kenako ndimakanidwa chifukwa sindimawoneka ngati ndikudwala.

Palinso vuto losakhala ndi chimbudzi. Pakhala kuti nthawi zambiri matendawa andipangitsa kuti ndipange ngozi, monga ndikakhala pagalimoto.

Sindinadziwe kuti zinthu izi zitha kundichitikira ndipo ndikulakalaka nditapatsidwa mitu, chifukwa ndizopeputsa kwambiri. Ndikadali ndi anthu ondifunsa lero ndipo makamaka chifukwa chakuti anthu sazindikira za matendawa. Chifukwa chake, ndimakhala ndi nthawi yophunzitsa anthu ndikubweretsa matenda amtondo patsogolo.

Zakudya

Ndisanapeze matenda anga, ndinkadya chilichonse. Koma ndinataya kwambiri nditapezeka ndi matendawa chifukwa zakudya zina zimandikwiyitsa komanso zimandipweteka. Tsopano, popanda koloni yanga ndi kachilomboka, zakudya zomwe ndingadye ndizochepa.

Nkhaniyi ndi yovuta kukambirana popeza aliyense yemwe ali ndi UC ndi wosiyana. Kwa ine, zakudya zanga zinali zopukutira, zopanda mafuta, zophika bwino monga nkhuku ndi nthaka, ma carbs oyera (monga pasitala wamba, mpunga, ndi buledi), ndi chokoleti Onetsetsani kuti chakudya chikugwedezeka.

Nditalowa kukhululukidwa, ndimatha kudya zakudya zomwe ndimakonda, monga zipatso ndi nyama zamasamba. Koma pambuyo pa maopareshoni anga, zakudya zamafuta ambiri, zokometsera, zokazinga, ndi acidic zidakhala zovuta kuti ndisiye ndi kugaya.

Kusintha zakudya zanu ndikusintha kwakukulu, ndipo makamaka kumakhudza moyo wanu wachikhalidwe. Zakudya zambiri izi zinali zoyeserera komanso zolakwika zomwe ndidaphunzira ndekha. Zachidziwikire, mutha kuwonanso katswiri wazakudya yemwe amaganizira kwambiri kuthandiza anthu omwe ali ndi UC.

Tengera kwina

Njira yayikulu yothanirana ndi zovuta zambiri komanso zovuta zomwe zimadza ndi matendawa ndi izi:

• Pezani dokotala wamkulu komanso gulu la m'mimba ndikupanga ubale wolimba nawo.
• Khalani woimira wanu.
• Pezani chithandizo kuchokera kwa abale ndi abwenzi.
• Lumikizanani ndi ankhondo anzanu a UC.

Ndakhala ndi J-poch yanga kwa miyezi isanu ndi umodzi tsopano, ndipo ndikadali ndi zotsika zambiri. Tsoka ilo, matendawa ali ndi mitu yambiri. Mukakumana ndi vuto limodzi, wina amatuluka. Sichitha, koma ulendo uliwonse uli ndi misewu yosalala.

Kwa ankhondo anzanga onse a UC, chonde dziwani kuti simuli nokha ndipo pali dziko la ife kunja kuno lomwe likupezeka pano kudzakuthandizani. Ndiwe wamphamvu, ndipo uli ndi ichi!

Moniqua Demetrious ndi mayi wazaka 32 wobadwira ndikuleredwa ku New Jersey, yemwe wakhala m'banja zaka zopitilira zinayi. Zokonda zake ndi mafashoni, kukonzekera zochitika, kusangalala ndi mitundu yonse ya nyimbo, komanso kulimbikitsa matenda ake amthupi mwake. Alibe kanthu popanda chikhulupiriro chake, abambo ake omwe tsopano ndi mngelo, amuna awo, banja, ndi abwenzi. Mutha kuwerenga zambiri zaulendo wake pa iye blog ndi iye Instagram.