Komwe Mungapeze Thandizo ndi Hidradenitis Suppurativa

Zamkati

• Pezani gulu lothandizira
• Pangani gulu la abwenzi
• Pezani wothandizira
• Tengera kwina

Hidradenitis suppurativa (HS) imayambitsa ziphuphu zomwe zimawoneka ngati ziphuphu kapena zithupsa zazikulu. Chifukwa vutoli limakhudza khungu lanu ndipo ziphuphu nthawi zina zimapangitsa fungo losasangalatsa, HS imatha kupangitsa anthu ena kuchita manyazi, kupsinjika, kapena manyazi.

HS imakula nthawi zambiri munthu akamatha msinkhu, zomwe zimatha kukhala pachiwopsezo cha moyo. Kukhala ndi vutoli kumatha kusokoneza momwe mumadzilingalira ndi thupi lanu. A pa anthu 46 omwe ali ndi HS adapeza kuti vutoli lidakhudza kwambiri mawonekedwe amthupi la anthu.

Zithunzi za thupi zimatha kubweretsa kukhumudwa komanso kuda nkhawa, zomwe ndizofala kwa anthu omwe ali ndi HS. A anapeza kuti 17 peresenti ya anthu omwe ali ndi vutoli amakhala ndi nkhawa, ndipo pafupifupi 5% amakhala ndi nkhawa.

Kuwona dermatologist ndikuyamba chithandizo ndi njira imodzi yodzichitira bwino. Ngakhale mukuchiza matenda a HS, ndikofunikanso kuganizira za thanzi lanu. Nawa malo ochepa oti mungathandizire, ndikuthandizani kuthana ndi zovuta kwambiri zokhala ndi matenda owoneka bwino.

Pezani gulu lothandizira

HS ndiofala kuposa momwe mungaganizire. Pafupifupi munthu m'modzi mwa anthu 100 ali ndi HS, komabe zingakhale zovuta kupeza munthu amene ali ndi vutoli yemwe amakhala pafupi nanu. Kusadziwa wina aliyense amene ali ndi HS kungakupangitseni kukhala osungulumwa komanso osungulumwa.

Gulu lothandizira ndi malo abwino kulumikizana ndi anthu ena omwe ali ndi HS. Pamalo otetezekawa, mutha kugawana nawo nkhani zanu osachita manyazi. Muthanso kupeza upangiri wothandiza kuchokera kwa anthu omwe ali ndi HS momwe angayendetsere vutoli.

Kuti mupeze gulu lothandizira kulowa nawo, yambani kufunsa adotolo amene amachiza HS wanu. Zipatala zina zokulirapo zimatha kulandira limodzi la maguluwa. Ngati anu satero, pitani ku bungwe la HS.

Chiyembekezo cha HS ndi amodzi mwamabungwe akuluakulu achitetezo a HS. Inayamba mu 2013 ngati gulu limodzi lothandizira. Masiku ano, bungweli lili ndi magulu othandizira m'mizinda ngati Atlanta, New York, Detroit, Miami, ndi Minneapolis, komanso pa intaneti.

Ngati mulibe gulu lothandizira HS mdera lanu, lowetsani limodzi pa Facebook. Malo ochezera a pa Intaneti ali ndi magulu angapo achangu, kuphatikiza:

• Gulu Lothandizira HS
• HS Global International Support Gulu
• Kutaya Kunenepa kwa Hidradenitis Suppurativa, Chilimbikitso, Thandizo & Chilimbikitso
• HS Imani Pamaziko

Pangani gulu la abwenzi

Nthawi zina chithandizo chabwino kwambiri chimachokera kwa anthu omwe amakudziwani bwino. Anzanu, abale anu, komanso oyandikana nawo omwe mumawakhulupirira atha kukhala mabatani abwino mukakhumudwitsidwa kapena kukhumudwa.

M'modzi mwa anthu omwe amakhala ndi HS adanenanso kuti kuthandizidwa ndi anzawo ndi njira yotchuka kwambiri. Onetsetsani kuti mwazungulira ndi anthu abwino. Aliyense amene samabwera nthawi yomwe mumawafuna, kapena amene amakupangitsani kudzimva kuti ndinu wosafunika, sayenera kukhala nawo pafupi.

Pezani wothandizira

Zotsatira za HS zimatha kukhudza pafupifupi gawo lililonse la moyo wanu, kuphatikiza kudzidalira kwanu, ubale, moyo wogonana, komanso ntchito. Kupsinjika kukakhala kovuta kwambiri kuthetsa, pitani kwa katswiri, monga wama psychologist, mlangizi, kapena othandizira.

Akatswiri azaumoyo amakupatsirani chithandizo chonga kuyankhula ndi chithandizo chazidziwitso (CBT) kuti zikuthandizireni kusinthanso malingaliro aliwonse okhumudwitsa omwe muli nawo okhudzana ndi matenda anu. Mungafune kusankha munthu yemwe ali ndi chidziwitso chakuchiza matenda opatsirana. Othandizira ena amakhazikika m'malo ngati maubwenzi kapena thanzi lachiwerewere.

Ngati mukuganiza kuti mwina muli ndi vuto la kukhumudwa, pitani kwa katswiri wazamisala kapena katswiri wazamisala kuti mukawunike. Katswiri wazamisala amatha kupereka njira zosiyanasiyana zochiritsira kuti akuchitireni, koma m'maiko ena okha ndiamisala omwe amatha kupereka mankhwala opatsirana ngati mukuwafuna.

Tengera kwina

HS imatha kukhala ndi zotsatira zenizeni pamatenda anu. Mukamachiza zisonyezo zakunja, onetsetsani kuti mulandiliranso pamavuto am'maganizo omwe angabuke, kuphatikiza kukhumudwa ndi nkhawa.