Dansi Limodzi Lokwatirana Lidalimbikitsa Dziko Lapansi Kuti Limbane motsutsana ndi MS

Pa tsiku laukwati la Stephen ndi Cassie Winn ku 2016, Stephen ndi amayi ake Amy adavina mwanjira yovina ya mayi / mwana pa phwando lawo. Koma atafika kwa amayi ake, zidamukhudza: Aka kanali koyamba kuti adavina ndi amayi ake.

Chifukwa chake? Amy Winn wakhala ali ndi multiple sclerosis (MS), matenda omwe amangokhalira kuteteza thupi omwe amakhudza dongosolo lamanjenje, ndipo akhala pa chikuku kwa zaka zoposa 17. Kupita patsogolo kwa MS kwa Amy kumamulepheretsa kuchita zambiri zofunika zofunika tsiku ndi tsiku.

"Panalibe diso lowuma mchipindacho," adatero Cassie, mpongozi wa Amy. Inali yamphamvu kwambiri. ”

Ukwati udabwera munthawi yosinthira banja la a Winn, lomwe ndi Amy ndi ana ake atatu omwe akukula. Mwana wachiwiri wa Amy, Garrett, anali atangochoka kwawo ku Ohio kupita ku Nashville, ndipo mwana wake wamkazi Gracie anali kumaliza sukulu yasekondale ndikukonzekera koleji. Ana akuchoka pachisa ndikuyamba miyoyo yawo ndi nthawi yotsiriza m'moyo wa kholo lililonse, koma Amy amafuna thandizo la nthawi zonse, ndichifukwa chake idawoneka ngati nthawi yabwino kuti mufufuze zosankha.

"Amy anali ndi abwenzi ochepa omwe adamuyandikira kuti adzakambirane za izi zatsopano zamankhwala am'magazi a stem cell kwa odwala a MS, ndipo zidamupatsa chidwi, chifukwa angakonde kuyendanso," adatero Cassie. Komabe, malowa anali ku Los Angeles ndipo palibe aliyense m'banjamo amene angakwanitse kulandira chithandizo. Pakadali pano paulendo wake, Amy adawerengera pemphero ndi "chozizwitsa" kuti amusonyeze njira.

Chozizwitsa chimenecho chidadza ngati kubweza ndalama. Mpongozi wa Amy Cassie ali ndi mbiri pakutsatsa kwadijito, ndipo adasanthula nsanja zingapo zopezera anthu ambiri asanakupezeni YouCaring, yomwe imapereka ndalama kwaulere pa intaneti pazithandizo ndi zothandiza.

"Sindinauze ngakhale Amy kuti ndimakhazikitsa," adavomereza Cassie. "Ndidakhazikitsa, ndikumuuza, 'Hei, tikupezerani $ 24,000 ndipo mupita ku California.' Tinawauza madotolo masiku omwe tikubwera ku California tisanatolere ndalama zilizonse, chifukwa timakhulupirira kwambiri izi. Gule woyamba wa Amy ndi Stephen inali nkhani yabwino, yopatsa chiyembekezo, ndipo anthu amafunika kuwona chiyembekezo chotere. Sindikudziwa ngati mwawona kanema yomwe tidagawana yovina ndi Stephen ndi Amy patsamba lathu lopeza ndalama? ” Cassie anafunsa, panthawi yomwe tinkakambirana.

Ndinatero, ndiponso enanso oposa 250,000.

Atapanga tsamba lawo la YouCaring, Cassie adatumiza kanemayo kumsika wanyumba zaku Ohio, omwe adakhudzidwa ndi nkhani ya Amy kotero kuti kanemayo adakopa chidwi cha dziko lonse pazowonetsa kuphatikizapo "The Today Show." Izi zidathandizira kampeni yopeza ndalama kubanja la a Winn kukweza $ 24,000 yomwe ikufunika m'masabata awiri ndi theka okha.

"Zinali zosangalatsa kumva mayankho omwe tidalandira ndikungowona anthu akumuthandiza mayi uyu yemwe sanakumanepo naye," Cassie adadandaula. "Samadziwa kuti ndi ndani, kapena banja lake, kapena momwe chuma chake chilili. Ndipo anali okonzeka kupereka madola mazana angapo. Makumi awiri. Makumi asanu. Chilichonse. Anthu amatha kunena kuti, 'Ndili ndi MS, ndipo kanemayu amandipatsa chiyembekezo kuti ndidzatha kuvina ndi mwana wanga wamwamuna kapena wamkazi paukwati wawo pazaka 10.' Kapena, 'Zikomo kwambiri chifukwa chogawana izi. Tikukupemphererani. Ndizolimbikitsa kumva kuti pali chithandizo chamankhwala. '”

Pasanathe milungu inayi, banja la a Winn lidakhazikitsa tsamba lawo la YouCaring, ndikupeza ndalama zofunikira pa intaneti, ndikupita ku California, ndikuthandiza Amy pomwe amayamba masiku 10 opangira ma cell cell. Ndipo patangotha ​​miyezi yochepa chabe, Amy ndi banja lake akuwona zotsatira.

"Zimamva ngati Amy adayamba kudumphadwala. Ndipo ngati zili choncho, yalepheretsa kufalikira kwa matendawa, ndipo akuwoneka wathanzi kwambiri, "adatero Cassie.

Mwa kuphatikiza mankhwala a stem cell ndi zakudya zopatsa thanzi, Amy amasangalala kwambiri ndikusintha koyambirira.

"Ndaona kuwonjezeka kwa kumveka kwa malingaliro komanso kusintha kwa malankhulidwe anga," Amy adagawana nawo patsamba lake la Facebook. “Inenso ndili ndi mphamvu zowonjezeka ndipo sindinatope kwambiri!”

Ulendo wa Amy pamapeto pake upita naye ku Nashville kuti akakhale pafupi ndi Stephen, Cassie, ndi Garrett pomwe akuyamba mankhwala owonjezera. Pakadali pano, Amy "ndiwothokoza kwambiri kwa onse omwe andithandiza kuyambira pomwe ndalandira chithandizo chamankhwala," ndipo akupempha onse omwe amathandizira pa intaneti, abwenzi, komanso abale "kupitiliza kupempherera kuti ndikhale ndi thanzi labwino!"

Banja lake likukhala ndi chiyembekezo ndipo ladzipereka kuvina ndi Amy tsiku lina.

"Nthawi zina angafunike kuthandizidwa kusamba," adatero Cassie, "kapena angafunike kuthandizidwa kulowa ndi kutsika pabedi, komabe akadali munthu wokhoza kugwira ntchito, kucheza, kucheza ndi kucheza, komanso kukhala ndi banja , ndi kusangalala ndi moyo wake. Ndipo tikukhulupirira mwamtheradi kuti ayenda. ”

Michael Kasian ndi mkonzi pa Healthline yemwe amayang'ana kwambiri kugawana nthano za ena omwe ali ndi matenda osawoneka, popeza iyeyo amakhala ndi a Crohn's.