Kugonana

Narcolepsy ndi vuto lamanjenje lomwe limayambitsa kugona kwambiri komanso kugona tulo masana.

Akatswiri sadziwa chomwe chimayambitsa matendawa. Itha kukhala ndi zifukwa zingapo.

Anthu ambiri omwe amadwala matenda ozunguza bongo ali ndi vuto lochepa kwambiri la hypocretin (wotchedwanso orexin). Izi ndi mankhwala omwe amapangidwa muubongo omwe amakuthandizani kuti mukhale ogalamuka. Mwa anthu ena omwe ali ndi vuto lakumwa, pali ma cell ochepa omwe amapanga mankhwalawa. Izi zitha kuchitika chifukwa chodzichitira zokha. Zomwe zimachitika podzitchinjiriza ndimomwe chitetezo chamthupi chimalowerera molakwika mnofu wamthupi.

Narcolepsy imatha kuyenda m'mabanja. Ofufuza apeza majini ena omwe amalumikizidwa ndi narcolepsy.

Zizindikiro za matendawa nthawi zambiri zimachitika pakati pa zaka 15 ndi 30. M'munsimu muli zizindikiro zofala kwambiri.

KUGONA KWAMBIRI KWA NTHAWI

• Mutha kukhala ndi chidwi chogona, nthawi zambiri chimatsatiridwa ndi nthawi yogona. Simungathe kudziletsa mukamagona. Izi zimatchedwa kugona tulo.
• Nthawi izi zimatha kuchokera pamasekondi pang'ono mpaka mphindi zochepa.
• Zitha kuchitika mutatha kudya, mukamalankhula ndi munthu wina, kapena nthawi zina.
• Nthawi zambiri, mumadzuka mutatsitsimulidwa.
• Kuukira kumatha kuchitika mukamayendetsa galimoto kapena kuchita zina zomwe kugona kungakhale kowopsa.

Mphaka

• Pakati pa ziwopsezozi, simungathe kuwongolera minofu yanu ndipo simutha kusuntha. Kukwiya, monga kuseka kapena kukwiya, kumatha kuyambitsa mavuto.
• Kuukira nthawi zambiri kumatha masekondi 30 mpaka 2 mphindi. Mumakhalabe ozindikira panthawi ya chiukirocho.
• Pakuukira kumeneku, mutu wanu umagwera kutsogolo, nsagwada zanu zikugwa, ndipo mawondo anu atha kugwa.
• M'mavuto akulu, mutha kugwa ndikukhala olumala kwa mphindi zingapo.

MADALITSO

• Mukuwona kapena kumva zinthu zomwe palibe, mwina mutagona kapena mukadzuka.
• Pakati pa kuyerekezera zinthu m'maganizo, mutha kuchita mantha kapena kukumana ndi vuto.

KUGONJEDWA KWA NTCHITO

• Apa ndipamene sungasunthire thupi lako ukayamba kugona kapena ukadzuka koyamba.
• Zitha kukhala mpaka mphindi 15.

Anthu ambiri omwe amadwala matenda osokoneza bongo amakhala ndi tulo masana komanso amakhala ndi nkhawa. Sikuti aliyense ali ndi zizindikiro zonsezi. Chodabwitsa n'chakuti, ngakhale atatopa kwambiri, anthu ambiri omwe ali ndi vuto lakumwa samagona bwino usiku.

Pali mitundu iwiri yayikulu yamankhwala osokoneza bongo:

• Mtundu woyamba umaphatikizapo kugona tulo masana, cataplexy, ndi hypocretin yotsika.
• Mtundu wachiwiri umaphatikizapo kugona tulo masana, koma osagwedezeka, komanso kuchuluka kwa hypocretin.

Wothandizira zaumoyo wanu adzakuyesani ndikufunsani za matenda anu.

Mutha kuyezetsa magazi kuti mupeze zina zomwe zingayambitse zofananira. Izi zikuphatikiza:

• Kusowa tulo ndi mavuto ena ogona
• Matenda opanda miyendo
• Kugwidwa
• Mpweya wogona
• Matenda ena azachipatala, amisala, kapena amanjenje

Mutha kukhala ndi mayeso ena, kuphatikiza:

• ECG (imayesa magwiridwe antchito amagetsi mumtima mwanu)
• EEG (imayesa zamagetsi zamaubongo anu)
• Kuphunzira kugona (polysomnogram)
• Mayeso angapo ogona kachedwedwe (MSLT). Uku ndiyeso kuti muwone nthawi yayitali kuti mugone nthawi yopuma masana. Anthu omwe amadwala matenda ozunguza bongo amagona mwachangu kwambiri kuposa anthu omwe alibe vutoli.
• Kuyesedwa kwa majini kuti mufufuze jini ya narcolepsy.

Palibe mankhwala a narcolepsy. Komabe, chithandizo chitha kuthandizira kuwongolera zizindikilo.

ZINTHU ZIMASINTHA

Zosintha zina zitha kuthandizira kugona kwanu usiku ndikuchepetsa kugona masana:

• Pita ukagone ndi kudzuka nthawi yomweyo tsiku lililonse.
• Sungani chipinda chanu chogona mdima komanso kutentha bwino. Onetsetsani kuti bedi ndi mapilo anu ali omasuka.
• Pewani caffeine, mowa, ndi zakudya zolemera maola angapo musanagone.
• Osasuta.
• Chitani zinazake zosangalatsa, monga kusamba mofunda kapena kuwerenga buku musanagone.
• Muzichita masewera olimbitsa thupi tsiku lililonse, zomwe zingakuthandizeni kugona usiku. Onetsetsani kuti mwakonzekera kuchita masewera olimbitsa thupi maola angapo musanagone.

Malangizo awa atha kukuthandizani kuti muzichita bwino pantchito komanso m'malo ochezera.

• Konzani zopumira masana pamene mumakhala otopa. Izi zimathandiza kuchepetsa kugona kwa usana ndikuchepetsa kuchuluka kwa kugona kosakonzekera.
• Uzani aphunzitsi, oyang'anira ntchito, ndi abwenzi za matenda anu. Mungafune kusindikiza zinthu kuchokera pa intaneti zokhudzana ndi matendawa kuti aziwerenga.
• Pezani upangiri, ngati kuli kofunikira, kukuthandizani kuthana ndi vutoli. Kukhala ndi narcolepsy kumatha kukhala kopanikiza.

Ngati muli ndi narcolepsy, mutha kukhala ndi zoletsa zoyendetsa. Zoletsa zimasiyanasiyana malinga ndi mayiko.

MANKHWALA

• Mankhwala olimbikitsa angakuthandizeni kukhala maso masana.
• Mankhwala olepheretsa kupanikizika amathandiza kuchepetsa magawo a cataplexy, kugona ziwalo, ndi kuyerekezera zinthu m'maganizo.
• Mpweya wa sodium (Xyrem) umagwira bwino ntchito poletsa cataplexy. Itha kuthandizanso kuwongolera kugona kwamasana.

Mankhwalawa atha kukhala ndi zovuta zina. Gwirani ntchito ndi omwe akukuthandizani kuti mupeze dongosolo lamankhwala lomwe limakugwirirani ntchito.

Narcolepsy ndi moyo wonse.

Kungakhale koopsa ngati magawo angachitike mukamayendetsa, kugwiritsa ntchito makina, kapena kuchita zinthu zofananira.

Narcolepsy nthawi zambiri imatha kuyang'aniridwa ndi chithandizo. Kuchiza zovuta zina zomwe zimayambitsa kugona kumatha kusintha zizindikilo za matendawa.

Kugona mokwanira chifukwa cha matenda osokoneza bongo kumatha kubweretsa:

• Mavuto ogwira ntchito
• Vuto lokhala pagulu
• Kuvulala ndi ngozi
• Zotsatira zoyipa zamankhwala omwe amagwiritsidwa ntchito kuthana ndi vutoli atha kuchitika

Itanani omwe akukuthandizani ngati:

• Muli ndi zizindikiro za matenda osokoneza bongo
• Narcolepsy siyiyankha mankhwala
• Mumakhala ndi zizindikilo zatsopano

Simungapewe matenda ozunguza bongo. Chithandizo chingachepetse kuchuluka kwa ziwopsezo. Pewani zochitika zomwe zingayambitse vutoli ngati mumakonda kudwala matenda ozunguza bongo.

Matenda ogona masana; Cataplexy

• Njira zogonera achinyamata ndi achikulire

Chokroverty S, Avidan AY. Kugona ndi zovuta zake. Mu: Daroff RB, Jankovic J, Mazziotta JC, Pomeroy SL, olemba. Neurology ya Bradley mu Kuchita Zachipatala. Wachisanu ndi chiwiri. Philadelphia, PA: Elsevier; 2016: chap 102.

Krahn LE, Hershner S, Wolemba LD, et al .; American Academy of Medicine Kugona. Njira zabwino zosamalirira odwala omwe ali ndi matendawa. J Clin Kugona Med. 2015; 11 (3): 335. PMID: 25700880 www.ncbi.nlm.nih.gov/pubmed/25700880.

Mignot E. Narcolepsy: ma genetics, immunology, ndi pathophysiology. Mu: Kryger M, Roth T, Dement WC, olemba. Mfundo ndi Zochita za Mankhwala Ogona. Lachisanu ndi chimodzi. Philadelphia, PA: Elsevier; 2017: chap 89.