Kodi moyo pambuyo pa matenda a Down Syndrome umapezeka bwanji?

Zamkati

• 1. Kodi mumakhala nthawi yayitali bwanji?
• 2. Ndi mayeso ati omwe amafunikira?
• 3. Zili bwanji?
• 4. Ndi mavuto ati omwe amapezeka nthawi zambiri?
• 5. Kodi mwana amakula bwanji?
• 6. Zakudya zizikhala bwanji?
• 7. Kodi sukulu, ntchito komanso moyo wachikulire ndi zotani?

Pambuyo podziwa kuti mwana ali ndi Down Syndrome, makolo ayenera kukhazika mtima pansi kuti afufuze zambiri za matenda a Down Syndrome, mawonekedwe ake, mavuto azaumoyo omwe mwana angakumane nawo komanso njira zochizira zomwe zingathandize kulimbikitsa kudziyimira pawokha ndikuwongolera moyo wamwana wanu.

Pali mabungwe omwe makolo amakhala monga APAE, komwe ndikotheka kupeza zidziwitso zabwino, zodalirika komanso akatswiri ndi zochizira zomwe zitha kuwonetsedwa kuti zithandizire kukula kwa mwana wanu. Mgwirizanowu, ndizotheka kupeza ana ena omwe ali ndi vutoli komanso makolo awo, zomwe zingakhale zothandiza kudziwa zoperewera komanso mwayi womwe munthu wa Down Syndrome angakhale nawo.

1. Kodi mumakhala nthawi yayitali bwanji?

Kutalika kwa moyo wa munthu yemwe ali ndi Down syndrome kumasintha, ndipo kumatha kukhudzidwa ndi zovuta zakubadwa, monga kupindika kwa mtima ndi kupuma, mwachitsanzo, ndikutsata koyenera kwamankhwala kumachitika. M'mbuyomu, nthawi zambiri moyo wokhala ndi moyo sunadutse zaka 40, komabe, masiku ano, kupita patsogolo kwamankhwala ndi kusintha kwamankhwala, munthu yemwe ali ndi Down syndrome amatha kukhala ndi zaka zopitilira 70.

2. Ndi mayeso ati omwe amafunikira?

Atatsimikizira kuti mwana ali ndi Down Syndrome, adokotala amatha kuyitanitsa mayeso ena, ngati kuli kofunikira, monga: karyotype yomwe iyenera kuchitidwa mpaka chaka cha 1 cha moyo, echocardiogram, kuchuluka kwa magazi ndi mahomoni a chithokomiro T3, T4 ndi TSH.

Gome ili m'munsi likuwonetsa mayeso omwe akuyenera kuchitidwa, komanso nthawi yanji omwe akuyenera kuchitidwa pamoyo wa munthu yemwe ali ndi Down Syndrome:

* Echocardiogram iyenera kubwerezedwa kokha ngati pali zovuta zina zamtima, koma mafupipafupi akuyenera kuwonetsedwa ndi katswiri wamtima yemwe amatsagana ndi munthu yemwe ali ndi Down's Syndrome.

3. Zili bwanji?

Kubereka mwana yemwe ali ndi Down's Syndrome kumatha kukhala kwachilendo kapena kwachilengedwe, komabe, ndikofunikira kuti katswiri wa zamatenda ndi neonatologist azipezeka ngati wabadwa tsiku lisanafike, ndipo pachifukwa ichi, nthawi zina makolo amasankha gawo loti asamalire, kale kuti madotolo samapezeka nthawi zonse muzipatala.

Dziwani zomwe mungachite kuti muchiritse msanga magawo obayira mwachangu.

4. Ndi mavuto ati omwe amapezeka nthawi zambiri?

Munthu amene ali ndi Down Syndrome amatha kukhala ndi mavuto azaumoyo monga:

• Pamaso: Matenda am'maso, mabodza am'maso am'miyeso yamiyeso, mankhwala osokoneza bongo, komanso magalasi ayenera kuvalidwa adakali aang'ono.
• M'makutu: Pafupipafupi otitis yomwe ingakonde kugontha.
• Mumtima: Kuyankhulana kwapakati kapena kosakanikirana, atrioventricular septal defect.
• Mu dongosolo la endocrine: Matenda osokoneza bongo.
• M'magazi: Khansa ya m'magazi, kuchepa magazi m'thupi.
• M'magazi am'mimba: Kusintha kwa khosi komwe kumayambitsa Reflux, duodenum stenosis, aganglionic megacolon, matenda a Hirschsprung, matenda a Celiac.
• Mu minofu ndi ziwalo: Ligament kufooka, khomo lachiberekero subluxation, m'chiuno dislocation, olowa kukhazikika, amene angakonde dislocations.

Chifukwa cha izi, ndikofunikira kutsatira dokotala kwa moyo wonse, kuyesa mayeso ndi chithandizo pakawonekera kusintha kulikonse.

5. Kodi mwana amakula bwanji?

Minofu ya mwana ndiyofooka motero mwana amatha kutenga nthawi yayitali kuti agwire mutu yekha motero makolo ayenera kusamala kwambiri ndipo nthawi zonse amathandizira khosi la mwana kuti apewe kutuluka kwa khomo lachiberekero komanso kuvulala pamtsempha.

Kukula kwa psychomotor kwa mwana yemwe ali ndi Down Syndrome ndikuchedwa pang'ono ndipo chifukwa chake zimatha kutenga kanthawi kukhala, kukwawa ndikuyenda, koma chithandizo ndi psychomotor physiotherapy chitha kumuthandiza kukwaniritsa zochitika zazikulu zakukula mwachangu. Kanemayo ali ndi zochitika zina zomwe zingakuthandizeni kuti muzichita masewera olimbitsa thupi kunyumba:

Mpaka zaka ziwiri, mwana amakhala ndi chimfine, chimfine, reflux yam'mimba ndipo amatha kukhala ndi chibayo ndi matenda ena opuma ngati sakuchiritsidwa moyenera. Anawa amatha kutenga katemera wa chimfine chaka chilichonse ndipo nthawi zambiri amatenga katemera wa Respiratory Syncytial Virus pobadwa kuti ateteze chimfine.

Mwana yemwe ali ndi Down Syndrome amatha kuyamba kuyankhula pambuyo pake, atakwanitsa zaka zitatu, koma chithandizo chamankhwala olankhula chingathandize kwambiri, kufupikitsa nthawi ino, kuthandizira kulumikizana kwa mwana ndi abale ndi abwenzi.

6. Zakudya zizikhala bwanji?

Mwana yemwe ali ndi Down Syndrome amatha kuyamwa koma chifukwa cha kukula kwa lilime, kuvuta kogwirizanitsa kukoka ndi kupuma komanso minofu yomwe imafulumira kutha, atha kukhala ndi vuto lina loyamwitsa, ngakhale ataphunzitsidwa pang'ono komanso kuleza mtima. athe kuyamwa mkaka wokha.

Izi ndizofunikira ndipo zitha kuthandiza mwana kulimbitsa minofu yakumaso yomwe imuthandize kuyankhula mwachangu, koma mulimonsemo, mayiyo amathanso kufotokozera mkakawo ndi pampu ya m'mawere ndikupereka kwa mwana ndi botolo .

Onani Buku Lathunthu La Kuyamwitsa Kwa Oyamba

Kuyamwitsa kokha kumalimbikitsidwanso mpaka miyezi isanu ndi umodzi, pomwe zakudya zina zimatha kuyambitsidwa. Nthawi zonse muyenera kukonda zakudya zopatsa thanzi, kupewa soda, mafuta ndi kukazinga, mwachitsanzo.

7. Kodi sukulu, ntchito komanso moyo wachikulire ndi zotani?

Ana omwe ali ndi Down Syndrome amatha kuphunzira kusukulu wamba, koma omwe ali ndi zovuta zambiri pakuphunzira kapena kuchepa kwamaganizidwe amapindula ndi sukulu yapaderayi.Zochita monga maphunziro azolimbitsa thupi ndi maphunziro azaluso ndizolandilidwa ndipo zimathandiza anthu kumvetsetsa malingaliro awo ndikudzifotokozera bwino.

Munthu yemwe ali ndi Down Syndrome ndiwokoma, wochezeka, wochezeka komanso amatha kuphunzira, amatha kuphunzira komanso amatha kupita ku koleji ndikugwira ntchito. Pali nkhani za ophunzira omwe adachita ENEM, adapita ku koleji ndipo amatha kuchita zibwenzi, kugonana, ndipo ngakhale, kukwatirana ndipo awiriwa amatha kukhala okha, mothandizana okhaokha.

Popeza munthu yemwe ali ndi Down Syndrome amakonda kulemera nthawi zonse kuchita masewera olimbitsa thupi kumabweretsa zabwino zambiri, monga kukhala wonenepa bwino, kuwonjezera mphamvu zaminyewa, kuthandiza kupewa kuvulala kwamalumikizidwe ndikuthandizira mayanjano. Koma pofuna kuonetsetsa kuti mukukhala otetezeka mukamachita masewera olimbitsa thupi, kuchita masewera olimbitsa thupi, kusambira, kukwera pamahatchi, adotolo amatha kuyitanitsa mayeso a X-ray pafupipafupi kuti awone msana wa chiberekero, womwe ungasokonezeke, mwachitsanzo.

Mnyamata yemwe ali ndi Down's Syndrome nthawi zambiri amakhala wosabala, koma atsikana omwe ali ndi Down's Syndrome amatha kutenga pakati koma amakhala ndi mwayi wokhala ndi mwana yemwe ali ndi Syndrome yomweyo.