Chilichonse Chimene Muyenera Kudziwa Zokhudza PPMS ndi Kuntchito

Zamkati

• Kodi ndiyenera kusiya ntchito nditapezeka?
• Kodi ndingadziwe bwanji ngati ndiyenera kusintha ntchito?
• Kodi ndiyenera kufotokozera abwana anga za matenda anga?
• Kodi ndimapempha bwanji malo ogwirira ntchito?
• Kodi malo okhala ndi ati?
• Kodi ntchito yanga ingakhudzidwe bwanji?
• Kodi ndizitha kuyenda kuntchito?
• Kodi PPMS ingakhudze mwachangu ntchito yanga?
• Kodi ntchito zabwino kwambiri kwa anthu omwe ali ndi PPMS ndi ziti?
• Ndingatani ngati sindingagwirenso ntchito?

Kukhala ndi primary sclerosis (PPMS) koyambirira kungatithandizire kusintha kosiyanasiyana m'moyo wanu, kuphatikiza ntchito yanu. Pazovuta kwambiri, PPMS itha kupangitsa kuti zikhale zovuta kugwira ntchito. Malinga ndi nkhani yomwe ili mu PPMS, imapangitsa kuti anthu azitha kugwira ntchito poyerekeza ndi mitundu ina ya MS.

Komabe, izi sizikutanthauza kuti muyenera kusiya kugwira ntchito palimodzi. Nawa mayankho amafunso ena okhudzana ndi ntchito za PPMS.

Kodi ndiyenera kusiya ntchito nditapezeka?

Ayi. M'malo mwake, National MS Society ikuwonetsa kuti ichi ndi chimodzi mwazolakwika zomwe anthu omwe angopeza kumene matendawa. Zizindikiro zimatha kukula pang'onopang'ono ndi mtundu uwu wa MS, koma izi sizikutanthauza kuti muyenera kusiya ntchito yanu nthawi yomweyo.

Dokotala wanu akupatsani chitsogozo pankhani ya ntchito yanu ndi PPMS. Ngati akuwona kuti ntchito yanu ndi yosatetezeka pazifukwa zilizonse, apereka upangiri pasadakhale.

Kodi ndingadziwe bwanji ngati ndiyenera kusintha ntchito?

Kudziyesa nokha kungakhale kofunikira popanga chisankho. Choyamba lembani zofunikira pantchito yanu pamodzi ndi zomwe mumabweretsa patebulopo. Kenako lembani mndandanda wazizindikiro zanu. Onani ngati zina mwazizindikiro zanu zimakhudza momwe mungakwaniritsire kugwira ntchito zina zomwe mumachita pafupipafupi. Ngati mukuganiza kuti zizindikiro za PPMS zikuyamba kusokoneza ntchito yanu, mungaganize zokambirana ndi abwana anu kuti musinthe ntchito yanu musanasiye ntchitoyo.

Kodi ndiyenera kufotokozera abwana anga za matenda anga?

Palibe lamulo lofunikira kuti mufotokozere abwana anu za matenda a PPMS. Mutha kukhala wokayikira poulula, makamaka ngati mwangolandira kumene matenda.

Komabe, mutha kupeza kuti kufotokoza za matenda anu kumabweretsa malo ogona omwe mungafunike pantchitoyo. Ndizosemphana ndi malamulo kuti olemba anzawo ntchito azisala kapena kuchotsa winawake ntchito chifukwa cha chilema - izi zikuphatikiza PPMS.

Ganizirani mosamala chisankho ichi, ndipo funsani dokotala wanu kuti akuthandizeni.

Kodi ndimapempha bwanji malo ogwirira ntchito?

Mutu Woyamba wa America ndi Disability Act (ADA) sikuti umangoletsa kusankhana chifukwa cha olumala, komanso umafunanso kuti olemba anzawo ntchito azipeza malo okhala. Kuti mupeze malo ogona, muyenera kulankhula ndi abwana anu kapena woimira anthu ogwira nawo ntchito.

Kodi malo okhala ndi ati?

Zitsanzo zina za malo ogwirira ntchito omwe angakhale othandiza ndi PPMS ndi awa:

• zogwirira ntchito kunyumba
• mwayi wogwira ntchito nthawi yochepa
• matekinoloje othandizira
• malo osungira magalimoto asintha
• zosintha maofesi kuti zigwirizane ndi ma wheelchair
• zowonjezera kuzimbudzi, monga mipiringidzo yolanda ndi zowumitsira zokha

Komabe, ADA sikufuna wolemba ntchito kuti asinthe zomwe zingayambitse zovuta zina. Zitsanzo zikuphatikizapo kupanga ntchito zatsopano komanso kupereka chida choyendera.

Kodi ntchito yanga ingakhudzidwe bwanji?

Zizindikiro za PPMS monga kutopa kwambiri, kukhumudwa, komanso kuwonongeka kwa chidziwitso kumatha kubweretsa kusowa kwa ntchito. Mwinanso mungafunike kuphonya gawo la tsiku lanu logwira ntchito chifukwa chakuikani kwa dokotala, kulimbitsa thupi, komanso chithandizo chantchito.

Kodi ndizitha kuyenda kuntchito?

PPMS imayambitsa zilonda zambiri msana kuposa ubongo poyerekeza ndi mitundu ina ya MS. Izi zitha kutanthauza kuti mutha kukhala ovuta kuyenda kwambiri matendawa. Komabe, nthawi yeniyeni ya izi imasiyanasiyana, ndipo sikuti aliyense adzakumana ndi zovuta zoyenda. Thandizo lakuthupi lingakuthandizeni kuti mukhale ndi luso loyenda. Chifukwa chake mwina simukukumana ndi zovuta zilizonse poyenda zokhudzana ndi ntchito.

Kodi PPMS ingakhudze mwachangu ntchito yanga?

Popeza kuti PPMS ikhoza kutenga zaka zingapo kuti izindikire molondola komanso kuti ikupita patsogolo, mwina mwakhala mukukumana ndi zizindikilo mukadali pantchito. Kuchuluka kwa olumala ndikokwera ndi mtundu uwu wa MS, koma kulowererapo koyambirira kumatha kuchepetsa kuchepa koyambirira. Zonsezi, zovuta pantchito yanu zimadalira mtundu wa ntchito yomwe mumagwira, komanso kuopsa kwa zizindikilo zanu.

Odwala a MS ku Norway adapeza kuti pafupifupi 45% adagwirabe ntchito zaka makumi awiri atapezeka ndi matendawa. Chifukwa chakulemala, kuchuluka kwa odwala a PPMS omwe anali kugwira ntchito anali ochepa, pafupifupi 15%.

Kodi ntchito zabwino kwambiri kwa anthu omwe ali ndi PPMS ndi ziti?

Palibe ntchito zina zabwino kwa anthu omwe ali ndi PPMS. Ntchito yanu yabwino ndiyomwe mumakonda, muli ndi luso, ndipo mutha kuchita bwino.Izi zitha kuphatikizira ntchito zosiyanasiyana, kuyambira bizinesi mpaka kuchereza alendo, ntchito, ndi maphunziro. Mwachidziwitso, palibe ntchito yoletsedwa. Chinsinsi chake ndikusankha ntchito yomwe mumakonda komanso yomwe mukumva kuti ndinu otetezeka.

Ndingatani ngati sindingagwirenso ntchito?

Kusiya ntchito yanu chifukwa cha PPMS ndi chisankho chovuta, ndipo nthawi zambiri chimakhala chotsalira pambuyo pogona sichithandizaninso.

Anthu omwe ali ndi PPMS amafunikira zabwino za inshuwaransi yaumunthu (SSDI). SSDI itha kuthandizira kulipirira zinthu zofunika pamoyo ngati simungagwire ntchito.

Lankhulani ndi dokotala wanu za zinthu zina zomwe mungakhale nazo ngati simungathe kugwira ntchito.