Momwe Kupezera Wampando Wamavuto Amatenda Anga Kusintha Moyo Wanga

Zamkati

• Kudzikakamiza kuti ndikhale 'wabwino'
• Ndikumva bwino kwambiri pampando wanga wamagetsi

Pomaliza kuvomereza kuti nditha kugwiritsa ntchito thandizo linalake kunandipatsa ufulu wambiri kuposa momwe ndimaganizira.

Thanzi ndi thanzi zimakhudza aliyense wa ife mosiyanasiyana. Iyi ndi nkhani ya munthu m'modzi.

"Ndiwe wamakani kwambiri moti ungakhale pa chikuku."

Izi ndi zomwe katswiri wa physiotherapist pamkhalidwe wanga, Ehlers-Danlos syndrome (EDS), adandiuza ndili ndi zaka zoyambirira za 20.

EDS ndimatenda othandizira omwe amakhudza gawo lililonse la thupi langa. Chovuta kwambiri kukhala nacho ndikuti thupi langa limavulala nthawi zonse. Mapfundo anga amatha kugundana ndipo minofu yanga imatha kukoka, kuphipha, kapena kung'ambika kangapo pamlungu. Ndakhala ndi EDS kuyambira ndili ndi zaka 9.

Panali nthawi yomwe ndimakhala nthawi yayitali ndikulingalira za funsoli, Kodi kulemala ndi chiyani?? Ndinkatenga anzanga omwe anali ndi zilema zooneka ngati mbiri, monga "Anthu Olemala Kwenikweni."

Sindingathe kudzizindikiritsa ndekha ngati wolumala, pomwe - kuchokera kunja - thupi langa likadatha kukhala labwino. Ndinawona thanzi langa kukhala losintha nthaŵi zonse, ndipo ndinkangolingalira za kulemala monga chinthu chokhazikika ndi chosasintha. Ndinadwala, sindinali wolumala, ndipo kugwiritsa ntchito njinga ya olumala chinali chinthu china chomwe "Anthu Olemala Kwenikweni" amatha, ndimadziuza.

Kuyambira zaka ndikudziyesa kuti palibe cholakwika ndi ine mpaka nthawi yomwe ndakhala ndikulimbikira kupweteka, moyo wanga wonse ndi EDS yakhala nkhani yokana.

Pazaka zanga zaunyamata ndi zoyambirira za 20, sindinathe kuvomereza zenizeni zathanzi langa. Zotsatira zakusowa kwachisoni ndimakhala kumapeto kwa miyezi ndikugona - osagwira ntchito chifukwa chokakamiza thupi langa kuti ndiyesetse kukhala ndi anzanga athanzi "abwinobwino".

Kudzikakamiza kuti ndikhale 'wabwino'

Nthawi yoyamba yomwe ndidagwiritsa ntchito njinga ya olumala panali pa eyapoti. Sindinaganizepo zogwiritsa ntchito njinga ya olumala kale, koma ndinkasokosera bondo langa ndisanapite patchuthi ndipo ndinkafunika thandizo kuti ndidutse pamalo okwerera mahatchiwa.

Zinali mphamvu zodabwitsa- komanso zopulumutsa ululu. Sindinaganize kuti ndi chinthu chofunikira kwambiri kuposa kundipititsa pa eyapoti, koma chinali gawo loyamba lofunikira pondiphunzitsa momwe mpando ungasinthire moyo wanga.

Ngati ndikunena zowona, nthawi zonse ndimamva kuti nditha kupusitsa thupi langa - ngakhale nditakhala ndi matenda angapo kwazaka pafupifupi 20.

Ndinaganiza kuti ngati ndingoyesetsa mwamphamvu momwe ndingathere ndikudutsa, ndidzakhala bwino - kapena kukhala bwino.

Zipangizo zothandizira, makamaka ndodo, zinali zovulala kwambiri, ndipo akatswiri onse azachipatala omwe ndidawawona adandiuza kuti ndikamagwira ntchito molimbika, ndiye kuti ndidzakhala "wabwino" - pamapeto pake.

Sindinali.

Ndinkatha masiku, milungu, kapena miyezi ingapo ndikudzikankhira kutali. Ndipo zotalikirapo kwambiri kwa ine nthawi zambiri zomwe anthu athanzi angaganize kuti ndi zaulesi. Kwa zaka zambiri, thanzi langa linakulirakulirabe, ndipo ndinkaona ngati ndikhoza kudzuka pabedi. Kuyenda masitepe ochepa kunandipweteka kwambiri ndikutopa kotero kuti nditha kulira mphindi imodzi nditachoka mnyumbayo. Koma sindimadziwa choti ndichite nazo.

Nthawi zovuta kwambiri - pomwe ndimamva ngati ndilibe mphamvu yakukhalapo - amayi anga amadza ndi chikuku chakale cha agogo anga, kuti angondidzutsa pabedi.

Ndinkakhala pansi ndikunditenga kukawona m'mashopu kapena kuti ndikangopeza mpweya wabwino. Ndinayamba kuigwiritsa ntchito kwambiri pamacheza ndikakhala ndi wina wondikankhira, ndipo zimandipatsa mwayi woti ndiyambe kugona pabedi ndikukhala ndi moyo wina.

Kenako chaka chatha, ndidapeza ntchito yanga yamaloto. Izi zikutanthauza kuti ndimayenera kudziwa momwe ndingachitire pochita chilichonse osachoka panyumba kukagwira ntchito kwa maola ochepa kuchokera kuofesi. Moyo wanga wocheza nawo unayamba, ndipo ndimalakalaka ufulu. Koma, kachiwiri, thupi langa linali kuyesetsa kuti likhale lolimba.

Ndikumva bwino kwambiri pampando wanga wamagetsi

Kupyolera mu maphunziro ndi kuwonekera kwa anthu ena pa intaneti, ndinaphunzira kuti malingaliro anga a mipando ya olumala ndi olumala onse anali osadziwika bwino, chifukwa cha zochepa zomwe zimawonetsa zolemala zomwe ndimaziwona munkhani komanso chikhalidwe chotchuka ndikukula.

Ndinayamba kuzindikira kuti ndine wolumala (inde, zilema zosaoneka ndi chinthu!) Ndipo ndinazindikira kuti "kuyesetsa mokwanira" kuti ndipitirize sikunali nkhondo yolimbana ndi thupi langa kwenikweni. Ndi chifuniro chonse padziko lapansi, sindinathe kukonza minyewa yanga yolumikizira.

Inali nthawi yokapeza mpando wamagetsi.

Kupeza yoyenera kwa ine kunali kofunikira. Nditagula zinthu mozungulira, ndinapeza mpando wa whizzy womwe ndi wabwino kwambiri ndipo umandipangitsa kumva bwino. Zinangotenga maola ochepa kuti mpando wanga wamagetsi uzimva ngati gawo langa. Patatha miyezi isanu ndi umodzi, ndimagwetsa misozi m'maso mwanga ndikaganiza za momwe ndimazikondera.

Ndinapita ku golosale koyamba m'zaka zisanu. Nditha kutuluka panja popanda kukhala ntchito yokhayo yomwe ndimachita sabata imeneyo. Ndimatha kukhala ndi anthu osawopa kuti ndikakhala mchipatala. Mpando wanga wamagetsi wandipatsa ufulu womwe sindingakumbukirepo.

Kwa anthu olumala, zokambirana zambiri mozungulira ma wheelchair ndizokhudza momwe amabweretsa ufulu - ndipo zimachitikadi. Mpando wanga wasintha moyo wanga.

Koma nkofunikanso kuzindikira kuti poyambirira, njinga ya olumala imatha kumva ngati yolemetsa. Kwa ine, kuvomereza kugwiritsa ntchito chikuku chinali njira yomwe idatenga zaka zingapo. Kusintha kwakutha kuyenda (ngakhale ndikumva kuwawa) ndikukhala kwayokha panyumba kunali kwachisoni komanso kubwerera.

Ndikadali wachichepere, lingaliro loti "ndikakamiridwe" pa njinga ya olumala lidali lowopsa, chifukwa ndidalumikiza kuti ndikutha kuyenda. Mphamvu imeneyo itatha ndipo mpando wanga unandipatsa ufulu m'malo mwake, ndinaziwona mosiyana.

Malingaliro anga paufulu wogwiritsa ntchito njinga ya olumala ndiwotsutsana ndi omwe amagwiritsa ntchito olumala nthawi zambiri omwe amachokera kwa anthu. Achinyamata omwe "amawoneka bwino" koma amagwiritsa ntchito mpando amamva chisoni kwambiri.

Koma apa pali chinthu: Sitikusowa chifundo chanu.

Ndakhala nthawi yayitali ndikuphunzitsidwa ndi akatswiri azachipatala kuti ndikadakhala mpando, ndikanalephera kapena ndasiya mwanjira ina. Koma zosiyana ndizoona.

Mpando wanga wamagetsi ndikuzindikira kuti sindikufunika kudzikakamiza kupyola muyezo wowawa kwambiri pazinthu zazing'ono kwambiri. Ndiyenera kukhala ndi mwayi wokhala ndi moyo weniweni. Ndipo ndine wokondwa kuti ndikutero pa chikuku changa.

Natasha Lipman ndi blogger wodwala komanso wolumala wochokera ku London. Alinso Global Changemaker, Rhize Emerging Catalyst, ndi Virgin Media Pioneer. Mutha kumupeza pa Instagram, Twitter ndi blog yake.