Chifukwa Chake Ndimabodza Kukhala 'Wachibadwa' - ndi Akazi Ena Omwe Ali ndi Autism Amachitanso, Momwemonso

Zamkati

• Kusokonezeka kwa ubongo wanga ndi gawo la omwe ndili - osati opunduka
• Momwe ndimabisira autism yanga kuti igwirizane nayo
• Mtengo wodziyesa pagulu

Nayi chithunzithunzi mkati mwa neurodivergent yanga - osati wolumala - ubongo.

Sindimawerenga zambiri za autism. Osatinso pano.

Nditamva koyamba kuti ndili ndi Asperger's syndrome ndipo "ndimasangalatsa," monga anthu amakonda kunenera, ndinawerenga chilichonse chomwe ndingagwiritse ntchito. Ndinalowanso gulu "lothandizira" pa intaneti la anthu omwe ali ndi autism.

Ngakhale ndimazindikira zina mwa mikhalidwe ndi nkhani zomwe zafotokozedwa munkhani, magazini, ndi gulu la gulu lothandizira, sindinathe kudziona ndekha.

Sindingathe kuyang'anitsitsa mabokosi onse omwe angakulunge umunthu wanga mu phukusi labwino lomwe limalembedwa kuti, "Wosalimba, gwirani mosamala." Momwe ndimatha kudziwa kuchokera pazomwe ndimkawerenga, sindinali ngati anthu ena onse ovota padziko lapansi.

Sindinayenerere kulikonse. Kapena ndimaganiza.

Kusokonezeka kwa ubongo wanga ndi gawo la omwe ndili - osati opunduka

Nthawi zambiri anthu amafuna kutcha autism matenda, opunduka, kapena mwina matenda.

Ndidawerenga china kamodzi ndi anti-vaxxer, ndikunena kuti katemera amatha kuyambitsa autism (sizowona), zomwe zingalepheretse mwana wanu kukhala zonse zomwe angakhale.

Kusintha kosangalatsa kwa mawu, zonse zomwe angakhale. Monga ngati kukhala ndi autistic kumakulepheretsani kukhala wamphumphu - kapena nokha.

Neurodivergence, kapena autism, sichinthu chosiyana ndi zomwe ndili. Ndi chimodzi mwazinthu zomwe zimandipangitsa kukhala yemwe ndili.

Ndine wathunthu komanso wathunthu - kuphatikiza ndi kusokonekera kwa ubongo wanga - ngakhale zili choncho. Ndikuganiza kuti popanda iwo, sindingakhale kwathunthu.

Kawirikawiri, anthu samaganiza kuti ndili pamawonekedwe konse, makamaka chifukwa sizimawoneka momwe iwo amaganizira.

Kuphatikiza apo, ndili bwino pakusintha machitidwe anga kuti nditsanzire zikhalidwe wamba - ngakhale zitamveka zosamvetseka kwa ine kapena zosemphana ndi zomwe ndimachita ndikufuna kuchita kapena kunena. Anthu ambiri autistic ali.

Zabwino kwambiri chilichonse ndimachita pamene pagulu palibe amene amaganiza kuti ndine wodabwitsa. Nthawi zonse ndimasintha machitidwe anga, chifukwa ndizosavuta pakapita nthawi. Chifukwa ngati sindinatero, mwina sindikanakhala ndi ntchitoyo kapena moyo womwe ndili nawo tsopano.

Kafukufuku wa 2016 adawonetsa kuti azimayi amawoneka kuti ndi akatswiri pa izi. Ichi chingakhale chimodzi mwazifukwa zomwe amalandirira matenda a autism kapena matendawa pambuyo pake.

Sindikadaganizapo makamaka kuti zina mwazinthu zomwe ndimachita ndikakhala pakati pa anthu ena zitha kuonedwa ngati zobisalira. Koma, pomwe ndimawerenga kafukufukuyu pakubisala, ndidazindikira kuti zidatchulapo zingapo zazing'ono zomwe ndimachita pagulu kuti ziwoneke ngati ena onse.

Momwe ndimabisira autism yanga kuti igwirizane nayo

Nthawi zambiri ife anthu omwe timagwiritsa ntchito mankhwala osokoneza bongo amakhala ndi nthawi yovuta kuyang'ana maso. Njira yabwino yodziwira izi - ndipo zomwe ndimachita pafupipafupi - ndikuwoneka pakati maso a mnzake. Kawirikawiri, sazindikira kusintha kwakungoyang'ana pang'ono. Chilichonse chimawoneka "chachilendo" kwa iwo.

Ndikakhala kuti sindimakhala bwino pamakhalidwe chifukwa chaphokoso kwambiri komanso zina, zokhumba zanga ndikuthawa kapena kubwerera msanga (ndipo, monga akuwonera ena, mwamwano) pakona pabwino, pabwino.

Koma kuti ndipewe kuchita izi, ndimagwira manja anga molimba patsogolo panga - mwamphamvu. Ndimaphwanya zala za dzanja limodzi ndi linalo, mpaka kufika poti limapweteka. Kenako ndimatha kuganizira kwambiri za ululu ndikupondereza chidwi chofuna kuthawa, kuti ndiwoneke ngati wamwano.

Anthu ambiri omwe amachititsa kuti magazi asatayike amakhalanso ndi nkhupakupa, zomwe amachita kangapo. Ndikakhala wamanjenje, ndimazungulira tsitsi langa, nthawi zonse ndi dzanja langa lamanja pakati pa chala changa chachiwiri ndi chachitatu. Nthawi zonse ndakhala. Makamaka ndimavala tsitsi langa pakhosi lalitali, chifukwa chake ndimazunguliza hunk yonse.

Ngati kuzungulirako kukayamba kutuluka (anthu akuyang'anitsitsa), ndikulunga tsitsi langa mumphika ndi dzanja langa ndikuligwira pamenepo, ndikuligwira mokwanira kuti lipweteke pang'ono.

Kuti ndizitha kuyankha momwe anthu amayembekezera, ndimayesetsa kukambirana kunyumba. Ndimayeserera kuseka ndikugwedeza mutu ndikunena zinthu monga, "O mulungu wanga, zoona ?!" ndipo "O ayi, sanatero!"

Nthawi zonse ndimakhala wosamvetseka ndikamatulutsa njira zingapo zothanirana, wina ndi mnzake. Ndimamva kuti ndili panja ndikudziyang'ana ndekha. Ndikufuna kunong'oneza khutu langa, ndidziuze ndekha choti ndiyankhe poyankha wina, koma sindingayandikire mokwanira.

Mtengo wodziyesa pagulu

Ofufuza kuchokera ku kafukufukuyu wa 2016 adapeza kuti kubisalaku nthawi zonse kumadza ndi mtengo, monga kutopa, kuwonjezeka kwa kupsinjika, kusungunuka chifukwa chakuchulukirachulukira pagulu, nkhawa, kukhumudwa, komanso "ngakhale zoyipa zomwe zimakulitsa kukula kwa umunthu."

Ndimawona gawo lomaliza kukhala losangalatsa. Ndikuganiza kuti "ndalama" zina zonse zimawerengedwa mofananamo ndi machenjezo omwe adatchulidwa pamankhwala atsopano komanso ozizwitsa omwe mumawawona akulengezedwa pawailesi yakanema (kuchotsera kuyendetsa kogonana).

Sindikuganiza kuti kubisala kwanga konse kudakhala ndi vuto pakudziwika kwanga, koma ndikudziwa kuti zambiri zomwe ndimalemba zaka zaunyamata zidadzala ndi mawu oti, "Zomwe ndimafuna ndimakhala zenizeni."

Sindinaganizirepo chifukwa chomwe ndimagwiritsira ntchito mawuwa pafupipafupi. Koma ndikakumbukira, ndikuganiza kuti inali njira yanga yokhayo yodziwira kuti sindinali ngati anzanga. Kwa nthawi yayitali, ndimaganiza kuti anali zenizeni, zowona, kuposa ine.

Asayansi tsopano akudziwa kuti anthu ena autistic amamvadi Zambiri kutengeka kuposa anthu wamba. Tili, m'njira zambiri, timayenderana kwambiri ndi zovuta komanso zotsika zama psychi a iwo omwe atizungulira.

Ndikuganiza kuti ndi zoona. Luso langa nthawi zonse limakhala lakuwona zinthu mosiyanasiyana. Nditha kutuluka ndekha ndikuwona komwe munthu wina akuchokera. Ndipo ndikutha kumva momwe akumvera.

Chifukwa chake, inde, ndili bwino ndikusintha machitidwe anga kuti asakhale osasangalala. Ngati ali omasuka, nanenso ndikumva choncho, ndiyeno tonse tili omasuka.

Ndiyenera kusamala, komabe, chifukwa kumva konseko nthawi zina kumatha kukhala kovuta.

Koma ndikudziwa momwe ndingayendetsere. Kubisalako kumatha kukhala kotopetsa nthawi zina koma, monga wolowerera, kungokhala pafupi ndi anthu ena kwa nthawi yayitali osapumira kungakhale kotopetsa.

Sindikulekanitsa kubisalirana kwanga ndi mayanjano anga. Ndi chinthu chaphukusi chomwe, kwa ine, wolowerera m'mitsempha yamagetsi, chimafunikira nthawi yayitali kuti ndikwaniritse pambuyo pake.

Izi sizikutanthauza kuti pali china chake cholakwika ndi ine.

Mawu omwe ndimadana nawo kwambiri mukamayenderana ndi autism ndi "owonongeka."

Sindikuganiza kuti anthu autistic awonongeka. Ndikungoganiza kuti akuwona dziko mosiyana ndi anthu omwe sali autistic. Kukhala atypical sizitanthauza kuti ndife olakwika.

Pazindikiritsozi, chimodzi mwazinthu zabwino za kukhala wodwala matendawa ndikuti nthawi zonse ndimatha kuwona munthu wina wosagwiritsa ntchito mankhwalawa - ngakhale wina yemwe akungobisalira komanso mokwiya ngati ine.

Sindikudziwa kuti ndi chiyani chomwe chimandipatsa ine kapena kuwachotsera: mwina kuphatikizira kwa kena kake, kusokoneza, kutambasula dzanja kowonekera. Koma zikachitika, nthawi zonse pamakhala mphindi yokongola iyi ndikazindikira kuti andizindikira, ndipo ndimawawona. Ndipo timayang'anizana (inde, kwenikweni) ndikuganiza, "Ah inde. Ndikukuwonani."

Vanessa ndi wolemba komanso woyendetsa njinga ku New York City. Mu nthawi yake yopuma, amagwira ntchito ngati telala komanso wopanga makanema pa kanema ndi kanema wawayilesi.