Zouziridwa Kuchita: Hepatitis C, Nkhani ya Pauli
Zamkati
“Pasakhale chiweruzo. Anthu onse akuyenera kuchiritsidwa matendawa ndipo anthu onse ayenera kuthandizidwa mosamala komanso mwaulemu. ” - Pauli Mdima
Matenda amtundu wina
Mukakumana ndi Pauli Gray akuyenda agalu ake awiri m'misewu ya San Francisco lero, mwina mungazindikire kuti akuyenda. Woyimba wokonda kuimba komanso rock 'n' roll woyandikana naye, Gray amawonetsa chisangalalo. Zomwe mwina simukuzindikira ndikuti adachiritsidwa posachedwa ku matenda akulu a chiwindi: hepatitis C.
"Ndi mawu osangalatsa, 'kuchiritsidwa,' chifukwa nthawi zonse ndimayesa antibody, koma apita," akutero. "Wapita."
Ngakhale kuti matendawa atha, amamva kukhudzidwa kwake. Izi ndichifukwa choti, mosiyana ndi matenda ena ambiri monga nyamakazi kapena khansa, matenda a chiwindi a C ali ndi manyazi ambiri. Matendawa amaperekedwa ndi magazi omwe ali ndi kachilomboka. Kugawana masingano, kulemba mphini kapena kuboola m'malo osavomerezeka, ndipo, nthawi zambiri, kugonana mosadziteteza ndizo njira zonse zopezera matenda a chiwindi a C.
"Pali manyazi ambiri okhudzana ndi matenda a chiwindi a C," akutero Gray. "Tidaziwonera kale ndi HIV mzaka za m'ma 80. Awa ndi malingaliro anga chabe, koma ndikuganiza kuti pali malingaliro owoneka bwino a anthu omwe amagwiritsa ntchito mankhwala osokoneza bongo, komanso m'zaka za m'ma 80 omwe adagwiritsa ntchito mankhwala osokoneza bongo, komanso amuna ogonana amuna kapena akazi okhaokha, mwina atha kutayika. "
Kugwiritsa ntchito bwino
Ngakhale manyazi okhudzana ndi hepatitis C atha kukhala olakwika m'moyo wa Gray, adasandutsa chinthu chabwino. Amayang'ana nthawi yambiri masiku ano pamaphunziro azachipatala, upangiri, komanso kupewa kupewa.
"Ndikupita kukayesa kukapanga malowa pang'ono pang'ono tsiku lililonse," akutero.
Kudzera mu ntchito yake yolimbikitsa, Gray adakumana ndi chidwi chatsopano chofuna kusamalira ena. Amazindikira kuti mwina sakadakumana ndi chikhumbo ichi ngati iyeyo akadapanda kupezeka ndi matendawa. Izi ndizowona makamaka chifukwa amayeneradi kukakamira kukayezetsa koyambirira, makamaka chifukwa madotolo adangodzitchinjiriza.
"Ndidadziwa kuti sindimamva bwino," akutero a Gray, maso ake ali ndi nkhawa. "Ndidadziwa kuti zomwe ndimachita m'mbuyomu zidayika pachiwopsezo cha hep C. Ndimadwala kwambiri komanso ndimakhala ndi nkhawa komanso ubongo wa muubongo, motero ndidalimbikira kukayezetsa."
Chithandizo chatsopano, chiyembekezo chatsopano
Atazindikira kuti ali ndi matendawa, Gray adaganiza zopita kukayezetsa. Koma mpaka zaka zingapo zapitazo, chithandizo sichinali chilichonse koma kuyenda pakiyo.
"Zinali zovuta kwambiri," akutero mosabisa. "Ndinali ndi malingaliro ambiri ofuna kudzipha ndipo sindili choncho."
Pozindikira kuti sangathe kudziponyetsa yekha kapena thupi lake, adasiya njira yoyamba yamankhwalayi patangotha miyezi isanu ndi umodzi. Komabe, sanataye mtima. Mtundu watsopano wamankhwala utayamba kupezeka, Grey adaganiza zopita nawo.
"Zinali zovuta pang'ono, koma unali mlalang'amba wina wonse kuchokera kuchipatala choyambirira, ndipo udagwira, ndipo ndidamva bwino mkati mwa mwezi umodzi," akutero.
Masiku ano, chimodzi mwa zolinga zake ndikuthandiza ena kuchira kudzera kuchipatala. Amapereka zokambirana, zokambirana, komanso zokambirana za matenda a chiwindi a C, komanso HIV, kupewa kumwa mopitirira muyeso, kuchepetsa mavuto, komanso kugwiritsa ntchito mankhwala osokoneza bongo. Mwa kugawana nkhani yake yomwe, amalimbikitsanso ena kulingalira zamtsogolo.
"'Ndikupita kuti?' Ndi funso lalikulu," akutero. "Ndimauza makolo anga kuti, 'Mutha kumva bwino pakatha mwezi,' ndipo pafupifupi nthawi zonse amamva. Zimatsegula mwayi wambiri mtsogolo. ”
Kwa zaka 15 zapitazi - nthawi yomweyi idamutengera kuti apezeke - Gray wakhala akugwiritsa ntchito ntchito yake yolimbikitsa kutsimikizira ena kuti kulidi chiyembekezo. Amauza ena kuti kulandira chithandizo kuli bwino kuposa kusalandira chithandizo.