Momwe Zakudya ndi Kulimbitsa Thupi Zathandizira Kwambiri Zizindikiro Zanga Zambiri Za Sclerosis

Zamkati

• The Long Road to Diagnosis
• Kuphunzira Kukhala ndi MS
• Momwe ndidapezera Moyo Wanga
• Onaninso za

Panali patangopita miyezi ingapo kuchokera pamene ndinabereka mwana wanga wamwamuna pamene malingaliro a dzanzi anayamba kufalikira mthupi langa. Poyamba, ndidazichotsa, ndikuganiza kuti zidakhala zotsatira za kukhala mayi watsopano. Koma dzanzi lija linabwereranso. Ulendo uno m'mikono ndi m'miyendo yanga-ndipo ndinabwerera mobwerezabwereza kwa masiku angapo. Pambuyo pake zinafika poti moyo wanga unakhudzidwa ndipamene ndinadziwa kuti inali nthawi yoti ndiwone wina wake.

The Long Road to Diagnosis

Ndidayamba kucheza ndi azabanja langa momwe ndingathere ndipo adauzidwa kuti zisonyezo zanga zidachokera kupsinjika. Pakati pobereka ndikubwerera kukoleji kuti ndikapeze digiri, panali zambiri pa mbale yanga. Chifukwa chake dokotala wanga adandipatsa mankhwala othana ndi nkhawa komanso kupsinjika ndikunditumiza.

Masabata anadutsa ndipo ndinapitiriza kumva dzanzi mwa apo ndi apo. Ndinapitiriza kutsimikizira dokotala wanga kuti chinachake sichili bwino, choncho anavomera kuti ndikhale ndi MRI kuti awone ngati pangakhale chifukwa china.

Ndinali ndikuchezera amayi anga ndikudikirira nthawi yomwe ndinakonzekera pamene ndinamva nkhope yanga ndi gawo lina la mkono wanga zitatheratu. Ndinapita molunjika ku ER komwe adachita mayeso a stroke ndi CT scan - zonsezi zidabweranso bwino. Ndinapempha chipatala kuti chitumize zotsatira zanga kwa dokotala wanga wamkulu, yemwe adaganiza zoletsa MRI yanga popeza CT scan sinasonyeze kanthu. (Zokhudzana: Zizindikiro za 7 Zomwe Simuyenera Kunyalanyaza)

Koma kwa miyezi ingapo yotsatira, ndidapitilizabe kumva dzanzi pathupi langa. Nthawi ina, ndidadzuka ndikupeza kuti mbali yamaso anga idagwera pansi ngati kuti ndidwala sitiroko. Koma kuyesa magazi angapo, kuyesa sitiroko, ndi ma scan ena a CT pambuyo pake, madokotala sanathe kudziwa chomwe chinali cholakwika ndi ine. Pambuyo poyesedwa kambiri osayankhidwa, ndimamva ngati ndilibe njira ina koma kungoyeserera.

Panthawiyo, zaka ziwiri zidadutsa kuyambira pomwe ndidayamba kumva dzanzi ndipo mayeso okhawo omwe sindinawachite anali MRI. Popeza ndinali nditasowa zochita, dokotala wanga anaganiza zonditumiza kwa dokotala wa matenda a ubongo. Nditamva za zizindikiro zanga, anandikonzera MRI, mwamsanga.

Ndidapeza masikelo awiri, imodzi yokhala ndi media yosiyanitsa, mankhwala omwe amabadwira kuti zithunzi za MRI ziwoneke bwino, ndi imodzi yopanda. Ndidasiya msonkhanowu ndikumva nseru kwambiri koma ndidatsimikiza kuti sindingagwirizane nazo. (Zokhudzana: Madokotala Ananyalanyaza Zizindikiro Zanga Kwa Zaka Zitatu Ndisanandipeze Ndi Gawo 4 Lymphoma)

Ndinadzuka mawa lake ndikumva ngati kuledzera. Ndinali kuwona kawiri ndipo sindinathe kuyenda mzere wowongoka. Maola twente-foro anapita, ndipo sindinamve bwino. Chifukwa chake mamuna wanga adanditengera kwa dokotala wanga wamaubongo - ndipo nditatayika, ndidawachonderera kuti afulumira ndi zotsatira zakuyesa ndikundiuza chomwe chinali vuto ndi ine.

Tsiku limenelo, mu August 2010, ndinapeza yankho langa. Ndinali ndi Multiple Sclerosis kapena MS.

Poyamba, mpumulo unanditsikira. Poyambira, pamapeto pake ndinapezeka ndi matenda, ndipo kuchokera pazochepa zomwe ndimadziwa za MS, ndinazindikira kuti sinali chilango cha imfa. Komabe, ndinali ndi mafunso miliyoni pokhudzana ndi tanthauzo la izi kwa ine, thanzi langa komanso moyo wanga. Koma nditafunsa madotolo zambiri, ndidapatsidwa DVD yodziwitsa, komanso kapepala kamene kali ndi nambala kuti ndiyitane. (Zokhudzana: Madokotala Aakazi Ndiabwino Kuposa Ma Doc Amuna, Ziwonetsero Zatsopano Zofufuza)

Ndidatuluka pa nthawiyo ndikupita mgalimoto ndi amuna anga ndikukumbukira ndikumva chilichonse: mantha, mkwiyo, kukhumudwa, chisokonezo - koma koposa zonse, ndimadzimva ndekhandekha. Ndinasiyidwa mumdima ndi matenda omwe akanasintha moyo wanga kosatha, ndipo sindinamvetsetse bwinobwino momwe angachitire.

Kuphunzira Kukhala ndi MS

Mwamwayi, mwamuna wanga ndi amayi onse ali m’chipatala ndipo anandipatsa chitsogozo ndi chichirikizo m’masiku angapo otsatira. Pokakamira, ndinayang'ananso DVD yomwe dokotala wanga wamankhwala adandipatsa. Ndipamene ndidazindikira kuti palibe m'modzi mu kanemayo yemwe anali ngati ine.

Kanemayo adalunjika kwa anthu omwe adakhudzidwa kwambiri ndi MS kotero kuti anali olumala kapena anali ndi zaka 60 kuphatikiza. Ndili ndi zaka 22, kuonera vidiyoyi kunandipangitsa kumva kuti ndili ndekhandekha. Sindinadziwe komwe ndiyambira kapena tsogolo lotani lomwe ndingakhale nalo. Kodi MS yanga ingakhale yoipa motani?

Ndakhala miyezi iwiri ikubwerayi ndikuphunzira zambiri zamatenda anga pogwiritsa ntchito chilichonse chomwe ndingapeze mwadzidzidzi, ndinali ndi vuto lina lalikulu la MS m'moyo wanga. Ndinafa ziwalo kumanzere kwa thupi langa ndipo ndinafika m'chipatala. Sindingathe kuyenda, sindimatha kudya chakudya chotafuna, ndipo choyipitsitsa, sindimatha kuyankhula. (Zogwirizana: 5 Nkhani Zaumoyo Zomwe Zimakhudza Akazi Mosiyanasiyana)

Nditafika kunyumba patapita masiku angapo, mwamuna wanga ankafunika kundithandiza pa chilichonse, kaya ndi kumanga tsitsi langa, kutsuka mano, kapena kundidyetsa. Pamene mphamvu inayamba kubwerera kumanzere kwa thupi langa, ndinayamba kugwira ntchito limodzi ndi dokotala wamankhwala kuti ndiyambe kulimbitsa minofu yanga. Ndinayambanso kuona wothandizira kulankhula, chifukwa ndinayenera kuphunzira kuyambiranso. Zinanditengera miyezi iwiri kuti ndiyambenso kugwira ntchito ndekha.

Pambuyo pa chochitikacho, dokotala wanga wa minyewa adandilamula kuti andiyesenso kambirimbiri, kuphatikiza pa msana ndi MRI ina. Pambuyo pake ndinapezeka kuti ndili ndi Relapsing-Remitting MS-mtundu wa MS pomwe mumatha kuyambiranso ndipo mutha kubwereranso koma pamapeto pake mumabwerera mwakale, kapena kuyandikira, ngakhale zitenga masabata kapena miyezi. (Zogwirizana: Selma Blair Apanga Kuwonekera Kwamtima ku Oscars Pambuyo pa Kuzindikira kwa MS)

Pofuna kuthana ndi maulendo obwerezabwerezawa, ndinapatsidwa mankhwala oposa khumi ndi awiri. Izi zidabwera ndi zovuta zina zingapo zomwe zidapangitsa kukhala moyo wanga, kukhala mayi ndikuchita zinthu zomwe ndimakonda zimakhala zovuta kwambiri.

Panali patatha zaka zitatu chiyambire pamene ndinayamba kudwala, ndipo tsopano ndinadziŵa chimene chinali kundivuta. Komabe, ndinali ndisanapeze mpumulo; makamaka chifukwa kunalibe zinthu zambiri zomwe zimakuuzani momwe mungakhalire moyo wanu ndi matenda aakuluwa. Ndicho chimene chinandipangitsa ine kukhala ndi nkhawa kwambiri ndi mantha.

Kwa zaka zambiri pambuyo pake, ndinali ndi mantha kuti aliyense andisiye ndekha ndi ana anga. Sindinadziwe kuti kupsa mtima kungachitike liti ndipo sindinkafuna kuwaika pamalo omwe angafunikire kupempha thandizo. Ndimamva ngati sindingakhale mayi kapena makolo omwe ndimalota ndikukhala - ndipo zidaswa mtima wanga.

Ndinali wotsimikiza mtima kupewa zoyipa zilizonse kotero kuti ndinali wamanjenje kupsinjika mtundu uliwonse pathupi langa. Izi zikutanthauza kuti ndimayesetsa kukhala wokangalika, ngakhale zitanthauza kuti ndimachita masewera olimbitsa thupi kapena kusewera ndi ana anga. Ngakhale ndimaganiza kuti ndimamvetsera thupi langa, pamapeto pake ndimadzimva wofooka komanso wotopa kwambiri kuposa momwe ndimamvera moyo wanga wonse.

Momwe ndidapezera Moyo Wanga

Intaneti idakhala chida chachikulu kwa ine nditapezeka ndi matenda. Ndinayamba kugawana zizindikiro zanga, malingaliro, ndi zokumana nazo ndi MS pa Facebook ndipo ngakhale ndinayambitsa MS blog yangayanga. Pang'ono ndi pang'ono, ndinayamba kudziphunzitsa ndekha tanthauzo la kukhala ndi matendawa. Ndikamaphunzira zambiri, ndimadzidalira.

M'malo mwake, ndizomwe zidandilimbikitsa kuti ndiyanjane ndi kampeni ya MS Mindshift, njira yomwe imaphunzitsa anthu zomwe angachite kuti athandize ubongo wawo kukhala wabwinobwino momwe angathere, bola momwe angathere. Kupyolera mu zomwe ndakumana nazo pophunzira za MS, ndazindikira kufunika kokhala ndi zothandizira zophunzirira kuti musamadzimve kuti ndinu otaika komanso osungulumwa, ndipo MS Mindshift akuchita zomwezo.

Ngakhale ndinalibe chothandizira ngati MS Mindshift zaka zonse zapitazo, zidadutsa pagulu lapaintaneti ndikufufuza kwanga komwe (ayi DVD ndi kapepala) komwe ndidaphunzira momwe zingakhudzire zakudya ndi masewera olimbitsa thupi pokhudzana ndi kuyang'anira MS. Kwa zaka zingapo zotsatira, ndinayesa zolimbitsa thupi zingapo ndi zakudya zosiyanasiyana ndisanapeze zomwe zinandithandiza. (Zokhudzana: Kulimbitsa Thupi Kwapulumutsa Moyo Wanga: Kuchokera pa MS Patient mpaka Elite Triathlete)

Kutopa ndi chizindikiro chachikulu cha MS, motero ndinazindikira msanga kuti sindingathe kuchita zolimbitsa thupi. Ndinayeneranso kupeza njira yoti ndikhale woziziritsa ndikugwira ntchito chifukwa kutentha kumatha kuyambitsa moto. Pambuyo pake ndidazindikira kuti kusambira inali njira yabwino yoti ndithandizire kulimbitsa thupi, kukhalabe wozizira, ndikukhala ndi mphamvu yochitira zinthu zina.

Njira zina zokhalirabe wokangalika zomwe zinandithandizira: kusewera ndi ana anga aamuna kuseri kwa bwalo dzuwa likangolowa kapena kuchita masewera olimbitsa thupi komanso masewera afupiafupi a maphunziro a band resistance mkati mwa nyumba mwanga. (Zokhudzana: Ndine Wachinyamata, Woyenerera Spin Mlangizi-ndipo Watsala pang'ono Kumwalira ndi Matenda a Mtima)

Zakudya zidathandizanso kukulitsa moyo wanga wabwino. Ndidapunthwa pa ketogenic mu Okutobala wa 2017 pomwe idayamba kutchuka, ndipo ndidakopeka nayo chifukwa imaganiza kuti ichepetse kutupa. Zizindikiro za MS zimalumikizidwa mwachindunji ndi kutupa mthupi, komwe kumatha kusokoneza kufalikira kwa zikhumbo zamitsempha ndikuwononga ma cell amubongo. Ketosis, dera lomwe thupi limawotcha mafuta kuti liziwotcha, limathandizira kuchepetsa kutupa, komwe ndidapeza kukhala kothandiza kuti ndisasiye zizindikiro zanga za MS.

Patangotha ​​milungu yochepa chabe, ndinayamba kumva bwino kwambiri kuposa kale. Mphamvu zanga zinakwera, ndinachepa thupi ndipo ndinadzimva ngati ine ndekha. (Zokhudzana: (Onani Zotsatira za Mayi Ameneyu Atatha Kutsatira Zakudya za Keto.)

Tsopano, pafupifupi zaka ziwiri pambuyo pake, nditha kunena monyadira kuti sindinayambenso kuyambiranso kapena kuyambiranso.

Zitha kutenga zaka zisanu ndi zinayi, koma pamapeto pake ndidapeza kuphatikiza kwa zizolowezi zomwe zimandithandiza kuthana ndi MS. Ndikumwabe mankhwala ena koma ndikufunikira kokha. Ndi MS yanga yanga yodyera. Kupatula apo, izi ndizo zokha zomwe zawoneka ngati zikugwira ntchito kwa ine. MS aliyense ndi zokumana nazo komanso chithandizo chazomwe ayenera kukhala ndizosiyana.

Kuphatikiza apo, ngakhale ndakhala wathanzi kwakanthawi kwakanthawi, ndimakhalabe ndi zovuta zanga. Pali masiku omwe ndimakhala nditatopa kwambiri mwakuti ndimalephera kufika kokasamba. Ndakhalanso ndimavuto ozindikira pano ndi apo ndikulimbana ndi masomphenya anga. Koma poyerekeza ndi momwe ndimamvera nditangopezedwa ndi matendawa, ndikupeza bwino kwambiri.

Kwa zaka zisanu ndi zinayi zapitazi, ndakhala ndikukwera ndikutsika ndi matenda ofooketsawa. Ngati zandiphunzitsa kalikonse, ndikumvetsera komanso kumasulira zomwe thupi langa likuyesera kundiuza. Tsopano ndimadziŵa pamene ndifunikira kupuma ndi pamene ndikhoza kukankhira patsogolo pang’ono kutsimikizira kuti ndili ndi mphamvu zokwanira kukhalapo kaamba ka ana anga—ponse paŵiri mwakuthupi ndi m’maganizo. Koposa zonse, ndaphunzira kusiya kukhala ndi mantha. Ndinakhalapo panjinga ya olumala, ndipo ndikudziwa kuti pali kuthekera kuti nditha kubwerera komweko. Koma mfundo yofunika: Palibe chilichonse cha izi chomwe chingandilepheretse kukhala ndi moyo.

Onaninso za