Kusamalira Ndalama Za Hodgkin's Lymphoma Treatment

Zamkati

• Kulipira kuchipatala 101
• Ulendo umodzi, opereka zambiri
• Kuchotsera ndi mapulani olipira
• Allies ali paliponse
• Zowonjezera zamankhwala
• Mankhwala ndi zowonjezera
• Kusunga chonde
• Therapy ndi zida kuti mukhale bata
• Kuchita ndi tsitsi
• Moyo watsiku ndi tsiku
• Kupeza zovala zatsopano
• Chakudya chopatsa thanzi komanso kuchita masewera olimbitsa thupi
• Kusunga nyumba
• Ngongole zabwinobwino pamwezi komanso mayendedwe
• Zinthu zaulere zomwe zimathandizadi
• Port pilo
• Tote wa chemo
• Tchuthi
• Kutenga

Nditazindikira kuti ndili ndi gawo lachitatu la Hodgkin's lymphoma, ndimamva zambiri, kuphatikizapo mantha. Koma chimodzi mwazinthu zomwe zimayambitsa mantha kwambiri paulendo wanga wa khansa zitha kukudabwitsani: kuwongolera zolipira. Nthawi iliyonse ndikamalandira chithandizo chamankhwala, amandionetsa pepala lofotokoza mtengo wa ulendowu, zomwe inshuwaransi yanga ikwaniritsa, komanso kuchuluka kwa ndalama zomwe ndimagwira.

Ndikukumbukira ndikutulutsa mobwerezabwereza kirediti kadi yanga mobwerezabwereza kuti ndilipire ndalama zochepa. Malipiro amenewo, komanso kunyada kwanga, zidapitilira kuchepa mpaka pomwe ndidatulutsa mawu akuti, "Sindingakwanitse kulipira lero."

Mphindi yomweyo, ndinazindikira kuti ndinali wokhumudwa kwambiri ndi matenda angawa komanso mitengo yomwe idatsatiridwa nawo. Pamwamba pakuphunzira za momwe ndondomeko yanga yothandizira ingakhalire ndi zovuta zomwe zingayambitse, ndidaphunzira za zomwe ndiyenera kulipira. Ndinazindikira msanga kuti khansara itenga malo agalimoto yatsopano yomwe ndimayembekezera kugula chaka chino.

Ndipo posakhalitsa ndinakumana ndi ndalama zina zambiri zomwe sindinakonzekere, kuyambira zakudya zopatsa thanzi mpaka mawigi.

Ndizovuta kuthana ndi matenda a khansa popanda zolipira. Ndi nthawi, kafukufuku, ndi upangiri, ndapeza zambiri zokhudzana ndi kusamalira mtengo wa mankhwala a Hodgkin's lymphoma - ndipo ndikhulupilira kuti zomwe ndaphunzira ndizothandizanso kwa inu.

Kulipira kuchipatala 101

Tiyeni tiyambe ndi ngongole zamankhwala. Ndili ndi mwayi wokhala ndi inshuwaransi yazaumoyo. Deductible yanga imatha kuwongoleredwa komanso kutuluka kwanga mthumba - ngakhale kuli kovuta pa bajeti yanga - sikudasokoneze banki.

Ngati mulibe inshuwaransi yazaumoyo, mungafune kufufuza zomwe mungachite posachedwa. Mutha kukhala oyenera kulandira mapulani azaumoyo kapena Medicaid.

Mwezi uliwonse, inshuwaransi yanga imanditumizira Chiyerekezo cha Mapindu (EOB). Chikalatachi chikufotokozera zomwe kuchotsera kapena zolipira zomwe inshuwaransi yanu idzapereka kwa mabungwe omwe amakulipilirani komanso zomwe muyenera kuyembekezera kukhala nawo m'masabata otsatirawa.

Nthawi zina mutha kulipira masiku, masabata, kapena miyezi ingapo mutapita kukaonana ndi dokotala. Ena mwa omwe adandipatsa adakwanitsa kulipiritsa pa intaneti pomwe ena adatumiza ngongole ndi makalata.

Nazi zinthu zochepa zomwe ndidaphunzira panjira:

Ulendo umodzi, opereka zambiri

Ngakhale mutapitako kamodzi kuchipatala, mutha kulipira ngongole zosiyanasiyana za othandizira azaumoyo.Nditachitidwa opareshoni yoyamba, adandilipira ndalama, dotolo, dotolo woloza, labu yochita kafukufukuyu, komanso anthu omwe amawerenga zotsatirazo. Ndikofunika kudziwa omwe mumawawona, liti, ndi chiyani. Izi zidzakuthandizani pakuwona zolakwika mu EOBs yanu kapena pamalipiro.

Kuchotsera ndi mapulani olipira

Funsani kuchotsera! Onse koma omwe amandipatsa chithandizo chamankhwala amandipatsa kuchotsera ndikamalipira ngongole zonse. Izi nthawi zina zinkatanthawuza zinthu zoyandama pa kirediti kadi yanga kwa milungu ingapo, koma pamapeto pake zidapindula.

Ndiyeneranso kufunsa ngati mungagwiritse ntchito njira yolipirira thanzi. Ndinatha kusamutsa ndalama zanga zazikulu kwambiri kupita kwa munthu wina kuti andibweretsere chiwongola dzanja cha zero peresenti ndikulipira ndalama zochepa.

Allies ali paliponse

Ganizirani mozama za omwe angakhale othandizira anu atha kukhala osamalira ndalama. Mutha kupeza thandizo m'malo osayembekezereka, mwachitsanzo:

• Ndinatha kulumikizana ndi wotsogolera maubwino kudzera kwa abwana anga omwe adandithandiza kuzindikira zomwe ndapeza.
• Ndinali ndi namwino amene anandipatsa kudzera mu inshuwaransi yanga yemwe amayankha mafunso okhudza momwe ndimakhudzidwira ndi EOBs. Adakhala ngati bolodi pomwe sindimadziwa komwe ndingapeze upangiri.
• Mnzanga wina anali atagwira ntchito zachipatala kwazaka zambiri. Adandithandizira kumvetsetsa makinawa ndikuyendetsa zokambirana zovuta.

Kuchokera pa zomwe ndakumana nazo, ndazindikira kuti kutsatira ngongole zamankhwala kumatha kumva ngati ntchito yaganyu. Ndi kwachilengedwe kukhumudwitsidwa. Sizachilendo kufunsa kuti alankhule ndi oyang'anira.

Muyenera kuti mapulani anu amakulipirani. Osataya mtima! Izi siziyenera kukhala chopinga chachikulu pankhondo yanu yolimbana ndi khansa.

Zowonjezera zamankhwala

Ndalama zamankhwala zomwe zimatsata ndi matenda a khansa zimapitilira ngongole za omwe amapatsidwa nthawi ndi omwe amapereka chithandizo chamankhwala. Mtengo wa mankhwala, chithandizo, ndi zina zambiri zitha kuwonjezeka mwachangu. Nazi zina zokhudza kuwongolera:

Mankhwala ndi zowonjezera

Ndaphunzira kuti mitengo yamankhwala imasiyanasiyana kwambiri. Palibe vuto kukambirana ndi dokotala za mtengo wake. Malangizo anga onse ali ndi mwayi wopanga. Izi zikutanthauza kuti ndakwanitsa kuwapeza pamtengo wotsika ku Walmart.

Njira zina zochepetsera ndalama ndizo:

• Kuwona zopanda phindu zakomweko. Mwachitsanzo, osachita phindu wamba otchedwa Hope Cancer Resources amagwirizana ndi ofesi yanga ya oncologist kuti andithandizire kugula mankhwala okhudzana ndi chithandizo.
• Kusaka pa intaneti kungakuthandizeni kupeza kuchotsera kapena kuchotsera. Ngati mungaganize zakumwa zowonjezerapo, chitani kuyerekezera mtengo mwachangu: Kungakhale kotsika mtengo kuzitenga pa intaneti.

Kusunga chonde

Sindimayembekezera kuti ndiphunzira kuti kutaya chonde kungakhale zotsatira zoyipa zamankhwala. Kuchita zoteteza kubereka kumatha kukhala kodula, makamaka kwa azimayi. Ndidasankha kupewa ndalama izi, chifukwa mwina zachedwetsa kuyamba kwa chithandizo changa.

Ngati muli ndi chidwi choteteza chonde, funsani a inshuwaransi anu za kufunda kwanu. Muthanso kufunsa ndi omwe amakuthandizani kuti muwone ngati mungalandire thandizo lililonse kuchokera kwa omwe akukulembani ntchito.

Therapy ndi zida kuti mukhale bata

Kukhala ndi khansa kumakhala kovuta. Nthawi zina ndimakhala ngati ndikumenya nkhondo yayikulu kwambiri m'moyo wanga. Ndicho chifukwa chake ndikofunikira kumva kuti mukuthandizidwa ndikuphunzira njira zothanirana ndi mavutowa.

Koma ngakhale ndi inshuwaransi, chithandizo nthawi zambiri chimakhala chokwera mtengo. Ndidasankha kupanga ndalamayi ndikudziwa kuti ndalama zanga zonse zanga za inshuwaransi yanga zikwaniritsidwa posachedwa. Izi zikutanthauza kuti ndimatha kupita kuchipatala kwaulere chaka chonse.

Ngati simukufuna kugwiritsa ntchito ndalama kuchipatala, funsani abwana anu, malo operekera chithandizo, komanso osapeza phindu kwanuko kuti muwone ngati mungalandire thandizo. Njira ina ndiyo kupita kumagulu othandizira kapena kuphatikizidwa ndi wopulumuka yemwe angapereke upangiri.

Ndipo pali njira zinanso zothetsera kupsinjika. Ndinadabwa kwambiri kuti anamwino anga a chemotherapy ankandilimbikitsa kuti ndizisisitidwa! Pali mabungwe omwe amapereka ma massage makamaka kwa odwala khansa, monga Angie's Spa.

Kuchita ndi tsitsi

Mankhwala ambiri a khansa amachititsa tsitsi - ndipo ma wigs akhoza kukhala amodzi mwazinthu zokwera mtengo kwambiri zokhala ndi khansa. Zabwino, tsitsi laumunthu limagula madola mazana kapena masauzande. Mawigi opanga ndiotsika mtengo kwambiri koma nthawi zambiri amafuna ntchito kuti aziwoneka ngati tsitsi lachilengedwe.

Ngati mungatenge wigi, onani YouTube kapena funsani wolemba tsitsi kuti akuthandizeni momwe mungapangire kuti wigyo asamawonekere. Kudulidwa, shampu yowuma, ndi kubisala kumatha kupanga kusiyana kwakukulu.

Zikafika pakulipira wigi yanu, funsani inshuwaransi yanu ngati yaphimbidwa. Onetsetsani kuti mukugwiritsa ntchito mawu oti "cranial prosthesis" - ndiye kiyi!

Ngati wanu inshuwaransi sakuphimba wigi, yesetsani kulumikizana ndi omwe amagulitsa ma wig mwachindunji. Ambiri amapereka kuchotsera kapena zaulere ndi zomwe mumagula. Palinso mabungwe ena osangalatsa omwe amapereka ma wigi aulere. Ndalandira ma wigi aulere kuchokera:

• Maziko a Verma
• Anzanu Ali Mbali Yanu
• American Cancer Society Wig Bank, yomwe ili ndi mitu yakomweko

Bungwe lina, lotchedwa Zabwino Zabwino, limapereka mipango yaulere kapena zokutira kumutu.

Pano pali chithunzi cha ine nditavala wigi ya kapu yomwe ndinalandira kuchokera ku Verma Foundation.

Moyo watsiku ndi tsiku

Kupatula zolipira kuchipatala, mtengo wa moyo watsiku ndi tsiku wokhala ndi khansa ndiwofunika. Ndipo ngati mukufuna kupatula nthawi yolipira kuti muganizire za chithandizo chamankhwala, kutsatira ngongole kungakhale kovuta. Izi ndi zomwe ndaphunzira:

Kupeza zovala zatsopano

Ngati mukulandira khansa, zitha kukhala zothandiza kukhala ndi zovala zatsopano kuti zigwirizane ndi kusintha kwa thupi lanu. Mutha kukhala ndi zotupa ngati mankhwala. Kapena, mutha kukhala ndi doko lomwe lidayikidwa kuti lilowetse mtsempha mosavuta.

Mulimonsemo, pali njira zotsika mtengo zopezera zovala zatsopano, kuphatikiza kugunda pamsewu kapena malo ogulitsira. Ndipo kumbukirani kuti anthu adzafuna kukuthandizani. Ganizirani zopanga mndandanda wazomwe mukufuna kugula muma shopu omwe mumakonda ndikugawana nawo.

Chakudya chopatsa thanzi komanso kuchita masewera olimbitsa thupi

Kukhala ndi chakudya chopatsa thanzi ndikukhalabe achangu momwe mungathere ndi malingaliro abwino - koma nthawi zina kumakhala kovuta pa bajeti.

Kuti musavutike, khalani ndi cholinga chotsegulira anthu omwe angakuthandizeni m'moyo wanu. Anthu awiri anzanga omwe ndimagwira nawo ntchito adandipangira sitima yodyera nthawi yonse yomwe ndimachiritsidwa. Anagwiritsa ntchito tsambali lothandiza kuti aliyense azichita zinthu mwadongosolo.

Ndikulimbikitsanso kuyika chozizira pakhonde panu ndikuwonjezera mapaketi a ayezi anthu akamakupatsani chakudya. Izi zikutanthauza kuti chakudya chanu chitha kuperekedwa popanda inu ndi banja lanu kusokonezeka.

Ndapatsidwanso makhadi ambiri amphatso kuti ndibwere. Izi zimakhala zothandiza mukakhala ndi uzitsine. Njira ina yothandiza yomwe abwenzi angatengere ndikupanga madengu azinthu zokhwasula-khwasula, zakumwa, ndi zakumwa.

Zikafika pazochita zolimbitsa thupi, lingalirani kulumikizana ndi ofesi yaku American Cancer Society. Anga amapereka mapulogalamu azakudya zopatsa thanzi komanso zolimbitsa thupi kwaulere. Muthanso kuyang'anitsitsa mdera lanu, malo ochitira masewera olimbitsa thupi pafupi, ndi malo ochitira masewera olimbitsa thupi kuti muwone nthawi yomwe mungatenge nawo gawo laulere kapena ngati angayese mayeso kwa makasitomala atsopano.

Kusunga nyumba

Pakati pakukhala moyo wanu wabwinobwino ndikulimbana ndi khansa, ndizachilengedwe kumva kutopa - ndikuyeretsa kungakhale chinthu chomaliza chomwe mumamva ngati kuchita. Ntchito zotsuka ndizotsika mtengo, koma pali zina zomwe mungachite.

Ndidasankha kulembetsa thandizo kudzera Mukutsuka Chifukwa. Bungweli limakuphatikitsani ndi malo oyeretsa mdera lanu omwe angatsuke nyumba yanu kwaulere kwakanthawi kochepa.

Mnzanga - yemwe adapezeka kuti ali ndi khansa sabata yomwe yomwe ndimakhala - adagwiritsa ntchito njira ina. Adalemba mndandanda wazantchito zomwe amafunikira kuthandizidwa ndikulola abwenzi kuti alembetse ntchito zawo. Gulu lonse la anthu likhoza kuthana ndi mndandandawu munthawi yochepa yomwe zikadatengera kuti akwaniritse yekha.

Ngongole zabwinobwino pamwezi komanso mayendedwe

Ngati mukukumana ndi mavuto ndi ngongole zanu zapamwezi pamwezi kapena mtengo wapaulendo wopita kumaulendo, zingakhale zothandiza kuyang'ana mabungwe omwe siopindulitsa. Mwachitsanzo, mdera langa, Hope Cancer Resources itha kupatsa anthu ena ndalama zothandizidwa ndi mankhwala, renti, zofunikira, kulipira galimoto, gasi, komanso ndalama zoyendera kunja kwa mzinda. Amaperekanso mayendedwe amalo osungira anthu pamtunda wa makilomita 60.

Zomwe simupeza phindu zimadalira dera lanu. Koma mosasamala kanthu komwe mumakhala, anthu m'moyo wanu angafune kukuthandizani. Ngati anzanu akuntchito, abwenzi, kapena okondedwa anu akufuna kuti akonzekere fundraiser kwa inu - asiyeni!

Nditangolumikizidwa koyamba, sindinkasangalala ndi lingalirolo. Komabe, kudzera mwa osonkhetsa ndalamawa, ndidakwanitsa kulipira madola masauzande ambiri kulipira ngongole zanga.

Njira yodziwika bwino yoti anzanu azikuthandizirani ndalama ndi kudzera mu ntchito ngati GoFundMe, yomwe imalola kulumikizana kwanu kulowa m'malo awo ochezera. GoFundMe ili ndi malo othandizira omwe ali ndi maupangiri amomwe angakuthandizireni momwe mungagwiritsire ntchito ndalama zanu.

Anthu m'moyo wanga adapezanso njira zapadera zopezera ndalama zondithandizira. Gulu langa kuntchito linayamba lingaliro "kupititsa chipewa" posiya kapu ya khofi pa desiki yanga, popeza sindinabwerere kuofesi kwa milungu ingapo. Anthu amatha kugwa ndikupereka ndalama momwe angathere.

Lingaliro lina labwino linachokera kwa bwenzi lokondedwa yemwe ndi mlangizi wa Scentsy. Adagawana ntchito yake pamwezi wathunthu wogulitsa ndi ine! M'mwezi womwe adasankha, adachita nawo zaphwando pa intaneti komanso mwa-ulemu. Anzanga ndi abale adakonda kutenga nawo mbali.

Zinthu zaulere zomwe zimathandizadi

Ndakhala ndikugwiritsa ntchito ma Googling kwa anthu omwe akukumana ndi khansa. Ndili panjira, ndaphunzira za zinthu zaulere ndi zopereka - ndipo zina mwazi ndizothandiza kwambiri:

Port pilo

Ngati muli ndi doko kwa nthawi yonse yamankhwala anu, mungaone kuti sizomveka kuvala lamba wapampando. Bungwe la Hope and Hugs limapereka mapilo aulere omwe amalumikizana ndi lamba wanu! Ichi ndichinthu chaching'ono chomwe chasintha kwambiri m'moyo wanga.

Tote wa chemo

Azakhali anga okoma, omwe adamenya khansa ya m'mawere, adadziwa kuti ndikufunika thumba lodzaza ndi zinthu kuti ndipite nawo ku chemotherapy yomwe imapangitsa kuti chithandizo chisakhale chosavuta. Chifukwa chake, adandipatsa mphatso yaumwini. Komabe, mutha kupeza tote yaulere ku The Lydia Project.

Tchuthi

Chimodzi mwazinthu zodabwitsa kwambiri zomwe ndidapeza ndikuti odwala khansa, ndipo nthawi zina osamalira, amatha kupita kutchuthi (makamaka) kwaulere. Pali zingapo zopanda phindu zomwe zimamvetsetsa kufunika kopumira pa nkhondo yolimbana ndi khansa kungakhale kothandiza paumoyo wanu. Nawa ochepa:

• Otsika Oyamba
• Ndoto Ya Camp
• Pumulani ku Khansa

Kutenga

Za ine, nthawi zina zimakhala zopweteka kwambiri kuganizira zosamalira mtengo wa khansa. Ngati mukumva choncho, chonde dziwani kuti ndizomveka. Muli pamavuto omwe simunapemphe kuti mukhale nawo ndipo pano mwadzidzidzi mukuyembekezeredwa kulipira ndalamazo.

Pumirani kwambiri, ndipo kumbukirani kuti pali anthu omwe akufuna kuthandiza. Palibe vuto kuuza anthu zomwe mukufuna. Dzikumbutseni kuti mudzatha izi, mphindi imodzi imodzi.

Destiny LaNeé Freeman ndiwopanga amakhala ku Bentonville, AR. Atapezeka ndi Hodgkin's lymphoma, anayamba kufufuza mozama za momwe angayendetsere matendawa ndi ndalama zomwe zimadza nawo. Kutha ndi wokhulupirira pakupanga dziko kukhala malo abwinoko ndipo akuyembekeza kuti ena apindule ndi zomwe akumana nazo. Pakadali pano akuchiritsidwa, ali ndi chithandizo champhamvu cha abale ndi abwenzi kumbuyo kwake. Munthawi yake yopuma, Destiny amasangalala ndi lyra komanso yoga yapamlengalenga. Mutha kumutsatira iye pa @alirezatalischioriginal pa Instagram.